Hep C Discussion Forum

Tig · Tig

HERE ARE FIVE SIGNS THAT YOUR LIVER MAY BE TOXIC AND IS MAKING YOU GAIN WEIGHT:1. BRAIN FOGBrain fog is a general term used to describe suboptimal cognitive function. Symptoms of brain fog often include: inability to concentrate, lack of awareness, memory problems and slow response times.Per the...

Canuck · Canuck

http://hcvadvocate.org/hepatitis/factsheets_pdf/genotype.pdf_____________________________________________________________________________________________________________ExcerptAre There Different Types of Hepatitis C (Genotype...

Canuck · Canuck

Excerpt from Medscape article: Google up the whole of the study for a full in-depth read if the topic interests you. Hm, heehee, it is ... just a little bit of sugar helps the medicine go down ... or maybe it's ... just a little bit of medicine helps the sugar go down? Liver International Hepatitis C Vi...

Tig · Tig

Here is a section for discussion of NAFLD (Non Alcoholic Fatty Liver Disease) and NASH (Non Alcoholic Steato-Hepatitis). Please feel free to add any information pertaining to these liver diseases here. Nonalcoholic fatty liver disease (NAFLD) is a condition in which fat builds up in your liver. N...

Canuck · Canuck

Excerpt of opinion from a well-known American liver doc - he portrays a further "case" situ, but I highlight only the nucleus of his rationale in how he follows his hepc pts.: PS - I have always appreciated this particular docs careful approach to certain issues, for example how he handles cor...

Canuck · Canuck

What are the results provided by FibroMeter VIRUS?The FibroMeter VIRUS test (Viral Hepatitis) assesses the stage of liver fibrosis in patients with chronic viral hepatitis (B, C) with or without HIV co-infection.What parameters are used to calculate FibroMeter VIRUS?The test is based on pa...

Tig · Tig

This is an informative video presented by the HCV Advocate. Anyone with questions about this topic should spend a few minutes and view it. I think it’s an excellent resource that briefly explains the new treatments and how valuable testing and treatment are. If you have someone concerned about seek...

Canuck · Canuck

From 2010, but I thought this lady explained the differences well ... however, I believe the lower levels of quantitative detection is currently down to about 12 or 15 IU/L, depending on country/equipment used. How to Better Understand Your HCV Viral Load Tests - Nicole Cutler L.Ac. July 22, 201...

Tig · Tig

In my search for information, I located some handouts and advice for side effects for the latest DAA’s. Not comprehensive, but helpful. Most are short and some are blank, allowing you or your healthcare provider to fill in your prescribed care. Side Effects Management Taking Your Hep C Therapy

Anon5213 · Anon5213

hello everyone, I am extremely worried on my boyfriends STI results but I do not understand what some of them mean, but I am very worried that he has possibly put me at risk which has upset me. His Hep C results say. Hepatitis C Antibody < 0.1 Negative: < 0.8 Indetermi...

Canuck · Canuck

This "Table of Values" is limited and may not be the same from country to country and/or from lab to lab, and all normal reference ranges are subject to revisions and updating anyway - but this one does at least use comparative "SI" units (Canada) AND "traditional units" (USA) in case it helps to assist...

Canuck · Canuck

FIBROSpect HCV fibrosis test - utilizes 3 "bio-markers". The biomarkers are analyzed using assays for:- alpha-2 macroglobulin (AMG) by nephelometry- tissue inhibitor of metalloproteinases (TIMP-1) by chemiluminescence- hyaluronic acid (HA) by ELISA. The result...

Tig · Tig

Avella Hep C App I found an App for iOS devices that I mentioned previously, but thought I‘d add a section where we could share various resources like this. The Avella Hep C App is worth looking at for those wanting to broaden their knowledge base. Check it out in the App Store, it’s free. Those of you usin...

Canuck · Canuck

Things can interfere with absorption of DAA's. As rare as this occurrence may be, it is possible to absorb and accumulate too much, or, to not absorb enough of a DAA - so always read the monograph that comes with your DAA, and take your DAA as directed. In this below, I only concentrate mostly on how lower...

Canuck · Canuck

About GT3's and our big ole fatty livers - sometimes size does matter!Now, I'm not necessarily talking about having an enlarged, inflamed liver, or a big ole fatty liver, these are never wanted things, just like having the HCV that may have caused same, is an unwanted thing, but rather I speak of big vi...

Canuck · Canuck

https://www.clinicaloptions.com/Hepatitis/Treatment%20Update...

Canuck · Canuck

hm, in this one they should have devoted a few more words about how "kinetic modeling" is not only potentially "cost-saving", (by allowing a 12 week course to be a shortened), but that another benefit of "kinetic modeling calculations" is justifying and providing the patient a possibly more ex...

Canuck · Canuck

This company has recently been promoting it's "product" as being FDA approved - their developed "method", their "product" (a sort of "scan/multi-level assessment/analysis") is being touted as a better, fuller, more informative way to assess hepatic "function", than other assesment methods....

Canuck · Canuck

hm, hope this graph is not too small to read - I could not seem to get it to enlarge. One of the abstracts (number 142) that was presented at the recent 2017 Liver Meeting, contained a simlar graph to the one below - it highlights the findings of G. Ioannou's (and co-authors) work (titled below). I had to so...

Canuck · Canuck

This had come up quite a times before in conversations, consideration of renal function while on DAA's, how to save work for the kidneys if they are not functioning up to par before you start DAA's. Zep has been highlighted, but we had one member here (in what seemed unusual, at first, at the time) who ha...

Canuck · Canuck

Commonly called a fibroscan (or a TE) - test which people have to derive an "Fscore" from. A non-invasive scanning method to determine levels of liver stiffness/fibrosis (and other parameters). Measurements of your liver elasticity/stiffness are obtained, expressed in kilopascals (kPa's) wh...

Canuck · Canuck

Being that I was a longstanding GT3a, with a prior abdominal ultrasound showing "steatosis" (fatty liver), and a "FibroScan" showing F4 (12.6 kPa) that provided no CAP measurement (which would be an indicator of the degree of liver fat content) I have a vested interest in the accuracy in assessing t...

Canuck · Canuck

About "Type" (IL28B) it still does matterSize (and "type") still does matter (somewhat) at least when we are talking about whether you are a CC, CT, CG, GG or a TT "type". Size? - high viral loads remain worthy of consideration when it comes to simply how potentially infective you might be (one just pla...

Canuck · Canuck

Recent article (and studies) about having a detectable load at EOT, or being "slow to become undetectable" during DAA treatment - that it does not equate to mean the patient will not reach SVR. Most do go on to being SVR. (Article draws from a couple good reference studies - the subjects analyzed had d...

Tig · Tig

It has been awhile since we bumped this into the forum for review. Some of you may have missed the thread we have on the subject. There are many payment assistance programs available. Gilead is not the only show in town. If you are denied by one organization, this list will provide you with additional op...

Tig · Tig

I found a website that can help US patients determine fair medical costs based on averages. I wish I had this a long time ago. This will be very helpful in determining what's fair and what needs to be renegotiated! Healthcare Bluebook

Canuck · Canuck

Clearing Hepatitis C Linked to Better Diabetes Control - Veronica Hackethal, MD, July 06, 2017(Excerpts from article) Eradicating hepatitis C virus (HCV) infection with new antiviral medication may improve glycemic control in patients with type 2 diabetes, according to a new study publis...

legionscube · legionscube

Just to let everyone know, because a couple of people in Washington sued the makers of Harvoni I believe and they won a settlement and now in this state you cannot be denied treatment because of your viral load or any other factors concerning your levels... Just thought this may be useful info. If you li...

Canuck · Canuck

Just yet another helpful tool in judging fibrosis. Published in GastroenterologyJournal Scan / Research · June 09, 2017Mac-2 Binding Protein Glycosylation Isomer Effective for Identifying Liver Fibrosis in Patients With Hepatitis CBMC GastroenterologyTAKE-HOME MESSAGE - Patient...

Tig · Tig

I was watching Dr. Phil today, I admit it... Sometimes just watching that show will make you realize things are really difficult out there, for some more than others. I come away feeling better, lol. Whew! Anyway, one of his doctor friends mentioned this website. I checked it out and found it quite inf...

Topic		Started By	Replies	Views	Last Post
	Liver toxicity and Weight (Preview) HERE ARE FIVE SIGNS THAT YOUR LIVER MAY BE TOXIC AND IS MAKING YOU GAIN WEIGHT:1. BRAIN FOGBrain fog is a general term used to describe suboptimal cognitive function. Symptoms of brain fog often include: inability to concentrate, lack of awareness, memory problems and slow response times.Per the...	Tig	0	3213	Nov 5, 2018 by Tig
	About Genotype/Subtype - Lists - Geographical Locations (Preview) http://hcvadvocate.org/hepatitis/factsheets_pdf/genotype.pdf_____________________________________________________________________________________________________________ExcerptAre There Different Types of Hepatitis C (Genotype...	Canuck	9	4416	Oct 4, 2018 by Canuck
	DAA SVR Effect on Diabetics (Preview) Excerpt from Medscape article: Google up the whole of the study for a full in-depth read if the topic interests you. Hm, heehee, it is ... just a little bit of sugar helps the medicine go down ... or maybe it's ... just a little bit of medicine helps the sugar go down? Liver International Hepatitis C Vi...	Canuck	0	1014	Jul 19, 2018 by Canuck
	NAFLD - NASH (Preview) Here is a section for discussion of NAFLD (Non Alcoholic Fatty Liver Disease) and NASH (Non Alcoholic Steato-Hepatitis). Please feel free to add any information pertaining to these liver diseases here. Nonalcoholic fatty liver disease (NAFLD) is a condition in which fat builds up in your liver. N...	Tig	1	2145	Jul 9, 2018 by Angie Girl
	F3's and Ultrasound following (Preview) Excerpt of opinion from a well-known American liver doc - he portrays a further "case" situ, but I highlight only the nucleus of his rationale in how he follows his hepc pts.: PS - I have always appreciated this particular docs careful approach to certain issues, for example how he handles cor...	Canuck	1	1266	Jul 9, 2018 by robertsamx
	About FibroMeter - another fibrosis test (Preview) What are the results provided by FibroMeter VIRUS?The FibroMeter VIRUS test (Viral Hepatitis) assesses the stage of liver fibrosis in patients with chronic viral hepatitis (B, C) with or without HIV co-infection.What parameters are used to calculate FibroMeter VIRUS?The test is based on pa...	Canuck	0	1263	Jul 1, 2018 by Canuck
	Hepatitis C Videos (Preview) This is an informative video presented by the HCV Advocate. Anyone with questions about this topic should spend a few minutes and view it. I think it’s an excellent resource that briefly explains the new treatments and how valuable testing and treatment are. If you have someone concerned about seek...	Tig	0	893	Jun 20, 2018 by Tig
	About Qualitative versus Quantitative Hep C Tests (Preview) From 2010, but I thought this lady explained the differences well ... however, I believe the lower levels of quantitative detection is currently down to about 12 or 15 IU/L, depending on country/equipment used. How to Better Understand Your HCV Viral Load Tests - Nicole Cutler L.Ac. July 22, 201...	Canuck	3	2087	May 22, 2018 by lamassu
	Direct Acting Antiviral Handouts (Preview) In my search for information, I located some handouts and advice for side effects for the latest DAA’s. Not comprehensive, but helpful. Most are short and some are blank, allowing you or your healthcare provider to fill in your prescribed care. Side Effects Management Taking Your Hep C Therapy	Tig	1	774	May 15, 2018 by 5-1-18
	Can someone please help me on my boyfriends Hep C Results (Preview) hello everyone, I am extremely worried on my boyfriends STI results but I do not understand what some of them mean, but I am very worried that he has possibly put me at risk which has upset me. His Hep C results say. Hepatitis C Antibody < 0.1 Negative: < 0.8 Indetermi...	Anon5213	2	898	Mar 28, 2018 by Tig
	Normal Lab Values - another Guide (Preview) This "Table of Values" is limited and may not be the same from country to country and/or from lab to lab, and all normal reference ranges are subject to revisions and updating anyway - but this one does at least use comparative "SI" units (Canada) AND "traditional units" (USA) in case it helps to assist...	Canuck	0	1058	Mar 10, 2018 by Canuck
	About FibroSpect - another fibrosis test (Preview) FIBROSpect HCV fibrosis test - utilizes 3 "bio-markers". The biomarkers are analyzed using assays for:- alpha-2 macroglobulin (AMG) by nephelometry- tissue inhibitor of metalloproteinases (TIMP-1) by chemiluminescence- hyaluronic acid (HA) by ELISA. The result...	Canuck	0	1344	Feb 10, 2018 by Canuck
	HCV Related Apps (Preview) Avella Hep C App I found an App for iOS devices that I mentioned previously, but thought I‘d add a section where we could share various resources like this. The Avella Hep C App is worth looking at for those wanting to broaden their knowledge base. Check it out in the App Store, it’s free. Those of you usin...	Tig	1	1256	Jan 26, 2018 by Tig
	About DAA Absorption (Preview) Things can interfere with absorption of DAA's. As rare as this occurrence may be, it is possible to absorb and accumulate too much, or, to not absorb enough of a DAA - so always read the monograph that comes with your DAA, and take your DAA as directed. In this below, I only concentrate mostly on how lower...	Canuck	1	1641	Jan 10, 2018 by Canuck
	About GT3's and our big ole fatty livers - sometimes size does matter! (Preview) About GT3's and our big ole fatty livers - sometimes size does matter!Now, I'm not necessarily talking about having an enlarged, inflamed liver, or a big ole fatty liver, these are never wanted things, just like having the HCV that may have caused same, is an unwanted thing, but rather I speak of big vi...	Canuck	3	1840	Dec 20, 2017 by Canuck
	2017 Resource - Treatment Options (Preview) https://www.clinicaloptions.com/Hepatitis/Treatment%20Update...	Canuck	0	1197	Dec 3, 2017 by Canuck
	About Adjusting HCV course lengths (Preview) hm, in this one they should have devoted a few more words about how "kinetic modeling" is not only potentially "cost-saving", (by allowing a 12 week course to be a shortened), but that another benefit of "kinetic modeling calculations" is justifying and providing the patient a possibly more ex...	Canuck	0	809	Nov 18, 2017 by Canuck
	About "Hepatiq", Dr. Hoefs QLSS hepatic function technique VS fibrosis measurements (Preview) This company has recently been promoting it's "product" as being FDA approved - their developed "method", their "product" (a sort of "scan/multi-level assessment/analysis") is being touted as a better, fuller, more informative way to assess hepatic "function", than other assesment methods....	Canuck	0	900	Nov 18, 2017 by Canuck
	HCC Incidence after DAA treatment (Preview) hm, hope this graph is not too small to read - I could not seem to get it to enlarge. One of the abstracts (number 142) that was presented at the recent 2017 Liver Meeting, contained a simlar graph to the one below - it highlights the findings of G. Ioannou's (and co-authors) work (titled below). I had to so...	Canuck	0	1004	Nov 17, 2017 by Canuck
	About Accommodating Reduced Renal Function On DAA Therapy (Preview) This had come up quite a times before in conversations, consideration of renal function while on DAA's, how to save work for the kidneys if they are not functioning up to par before you start DAA's. Zep has been highlighted, but we had one member here (in what seemed unusual, at first, at the time) who ha...	Canuck	3	1821	Nov 11, 2017 by Canuck
	About Fibroscans - or VCTE - (Vibration Controlled Transient Elastrography) (Preview) Commonly called a fibroscan (or a TE) - test which people have to derive an "Fscore" from. A non-invasive scanning method to determine levels of liver stiffness/fibrosis (and other parameters). Measurements of your liver elasticity/stiffness are obtained, expressed in kilopascals (kPa's) wh...	Canuck	0	1291	Nov 4, 2017 by Canuck
	Fatty Livers (Steatosis) and "FibroScan" Measurements (Preview) Being that I was a longstanding GT3a, with a prior abdominal ultrasound showing "steatosis" (fatty liver), and a "FibroScan" showing F4 (12.6 kPa) that provided no CAP measurement (which would be an indicator of the degree of liver fat content) I have a vested interest in the accuracy in assessing t...	Canuck	3	2807	Oct 30, 2017 by Canuck
	About "Type" (IL28B) it still does matter (Preview) About "Type" (IL28B) it still does matterSize (and "type") still does matter (somewhat) at least when we are talking about whether you are a CC, CT, CG, GG or a TT "type". Size? - high viral loads remain worthy of consideration when it comes to simply how potentially infective you might be (one just pla...	Canuck	3	1275	Oct 26, 2017 by Canuck
	About becoming UND slowly (Preview) Recent article (and studies) about having a detectable load at EOT, or being "slow to become undetectable" during DAA treatment - that it does not equate to mean the patient will not reach SVR. Most do go on to being SVR. (Article draws from a couple good reference studies - the subjects analyzed had d...	Canuck	2	809	Oct 18, 2017 by Lindsmatt52
	Payment Assistance (Preview) It has been awhile since we bumped this into the forum for review. Some of you may have missed the thread we have on the subject. There are many payment assistance programs available. Gilead is not the only show in town. If you are denied by one organization, this list will provide you with additional op...	Tig	2	2000	Oct 17, 2017 by Tig
	Healthcare Bluebook (Preview) I found a website that can help US patients determine fair medical costs based on averages. I wish I had this a long time ago. This will be very helpful in determining what's fair and what needs to be renegotiated! Healthcare Bluebook	Tig	1	1133	Jul 19, 2017 by wendyo
	About HCV and Diabetes (Preview) Clearing Hepatitis C Linked to Better Diabetes Control - Veronica Hackethal, MD, July 06, 2017(Excerpts from article) Eradicating hepatitis C virus (HCV) infection with new antiviral medication may improve glycemic control in patients with type 2 diabetes, according to a new study publis...	Canuck	0	726	Jul 6, 2017 by Canuck
	You can get free treatment in the state of Washington if you are on ObamaCare! (Preview) Just to let everyone know, because a couple of people in Washington sued the makers of Harvoni I believe and they won a settlement and now in this state you cannot be denied treatment because of your viral load or any other factors concerning your levels... Just thought this may be useful info. If you li...	legionscube	0	683	Jun 29, 2017 by legionscube
	About fibrosis markers - how they can use Mac-2 blood tests (Preview) Just yet another helpful tool in judging fibrosis. Published in GastroenterologyJournal Scan / Research · June 09, 2017Mac-2 Binding Protein Glycosylation Isomer Effective for Identifying Liver Fibrosis in Patients With Hepatitis CBMC GastroenterologyTAKE-HOME MESSAGE - Patient...	Canuck	1	1277	Jun 13, 2017 by Tig
	Buying Medicine Online (Preview) I was watching Dr. Phil today, I admit it... Sometimes just watching that show will make you realize things are really difficult out there, for some more than others. I come away feeling better, lol. Whew! Anyway, one of his doctor friends mentioned this website. I checked it out and found it quite inf...	Tig	11	1957	Mar 2, 2017 by Cinnamon Girl
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