Hep C Discussion Forum

G Man · G Man

That was quick. I finish tomorrow. Blood test on Thursday. I'm sure it will come back HCV undetected since that was what I got at 4 weeks. Anyway, just wondering, how long to cleanse the Harvoni from my body? To those just starting....this was a piece of cake. I managed to go to work everyday no pro...

Gypsy Soul · Gypsy Soul

Hi all...haven't checked in lately and wanted to give an update. I am on week 21 out of 24 week tx. We moved to Wyoming in September and I was already short of breath and had to pace myself. Thing is...we went from an altitude of 13 ft. to 6,700 ft. There are days I can't even brush my hair without having to cat...

kalelalee · kalelalee

When I think about my experience with interferon/Ribivarin vs. Harvoni it is amazingly different. I can remember the extreme loss of memory to the point where I would be driving in my car and be on the freeway and completely forget why. I took no time off from work and I worked 6 days a week. Have no idea ho...

kalelalee · kalelalee

Started Harvoni Sept. 9 2015. Was a real miracle for me to even get the medication. Failed interferon/ribivarin in 2009. Left my body in worse condition. I am experiencing a side effect I didn't expect to have during my new treatment with Harvoni. I was told I may have headaches, nausea, diarrhea. How...

Cherripie · Cherripie

Hi all i was mentioning my water intake today at the health club and later on I received a phone call from a friend who had just had a kidney ultra sound. In talking to the tech she told him how much water I am drinking and they said it could raise sodium levels and harm my kidneys. Honestly, I love drinking a l...

Rickk · Rickk

I just spoke with my Dr's Office. I'm Undetectable at this point. I was still positive at 4 weeks. 11 mill to 54 units. I was nervous because this was my third treatment & I was still somewhat skeptical. Im not sure what the relapse rate is for 6 month check ups are but today I'm truly excited. Thanks fo...

JimmyK · JimmyK

Greetings, It occurs to me the change in time tonight will alter the dosing schedule. Interested in your thoughts. Thanks JimmyK

judeahomestead · judeahomestead

Just had my second blood testing done. Have not talked to doctor yet but have appointment this Friday. Went online and saw my results. Everything looked good but something new was there. High (12.7) monocytes. Previous tests were okay. I am in week 8 of my Harvoni treatment. Anyone have any info on why...

Mopey · Mopey

Hello everyone, I posted on this forum last year and earlier this year. As my siggie states, I am a 42 year old male currently in the UK who has genotype 3 Hep C, and is co-infected with Hep B. Last year I did a 24 week course of Peg/Riba, and ended up relapsing 3 months after treatment ended. Treatment was ut...

Observer · Observer

I just heard from my team, my viral load was undetected at my 4 week blood test! It is a surreal feeling. YAY 7 more weeks to keep that dragon buried

G Man · G Man

Finish 9th week of 12 tomorrow. Still hitting the gym 4 days a week. Had a great 1/2 mile swim tonight. Coming out the other end of this ready to roll. Signed up for a Triathlon in June. Good luck and good health to all. G

Gifthealth · Gifthealth

Hello Everyone. I would like to thank all of you that participate in this forum. I have found the forum to be very helpful and reassuring during my journey to a cure. I am presently taking Sovaldi and Ribo to treat my stage 2 Genotype 2 HVC. I just got back my viral load test at the half way point of my treatme...

drummerman · drummerman

Final doses tomorrow (Sunday)! dm

Penelope PePod · Penelope PePod

Results came in this evening: For me, after 12 weeks of tx, EOT result is UNDETECTED! For my husband Paul, half way through a 24 week course of VP/Riba, result is UNDETECTED! We never thought we'd see this day and feel so blessed to have had the opportunity to be treated with these miraculous drugs....

dsheon · dsheon

Hello all, I work on behalf of a nationally recognized 501c3 non-profit called the HealthWell Foundation (www.HealthWellFoundation.org). HealthWell provides a lifeline for underinsured Americans. Since 2003, HealthWell has distributed nearly $900 million to over 200,000 Americans in n...

judeahomestead · judeahomestead

Has anyone experienced tinnitus (ear ringing) due to taking Harvoni? My right ear started about two weeks after I started my treatment. I went to my ENT doctor Monday but he can find no reason other than the possibility of a reaction to Harvoni. It is not listed in the noted side effects. I just today pur...

Scott18927 · Scott18927

I have had some crazy muscle twitching in my triceps recently. It is driving me nuts. I am not on treatment yet but am experiencing many symptoms. Has anyone experienced this? I read online that muscle twitches are common sign of dehydration so I drank some cranberry juice and ate a bunch of green...

Observer · Observer

hey, so I have just finished week 4 of holkira pak and ribiviron. Alt and AST are the lowest they've been in 32 years YAY 15 and 18 but...hemoglobin has dropped below normal Pre treatment-----145 week 2. ---129...normal range week 4 ---115....normal being >120 I really want to stay on...

judeahomestead · judeahomestead

One month on Harvoni. Blood work last Friday, results given to me yesterday : undetected. Thank you, thank you, thank you.

Gracie · Gracie

I know it doesn't mean much at this point but still feels pretty good. All my Bloodwork is normal now except my platelets hanging on to 80. This plus pumpkin pie is really making this Thanksgiving weekend pretty awesome!

Penelope PePod · Penelope PePod

Final dose just went down the hatch! EOT labs tomorrow, then the wait begins. Bye-bye mean Mr. Riba and your nagging old cough. Penny -- Edited by Penelope PePod on Monday 12th of October 2015 12:37:13 AM

Gypsy Soul · Gypsy Soul

Still not detected.....YAH!!!!!!! Alt-38 Ast-33 On my 8 week my results were Not detected Alt-17 Ast-21 Is it normal for these numbers to fluctuate during treatment??

tired · tired

I just came across this today, I guess it's a little late for me having got on the Sovaldi Treatment already, But It might help out people seeking a more affordable treatment. http://www.abc.net.au/news/2015-08-20/hepa...

Michaele · Michaele

Hi all, just got results, everything is WNL , except the Platelets at 132, which isn't bad . Dr. said he didn't think my liver was cirrhotic because of the fibrosure results a few months back, Said he couldn't ever feel my liver. Well Woots me. Then why the low platelets? Love and best wishes all around , k...

Gypsy Soul · Gypsy Soul

The reason I'm asking is I have lost my sense of smell in the last few months. I had a bad cold a few weeks prior to treatment in June and it never returned. Just wondering if anyone here has heard of this? My ENT has me on steroids for 2 weeks but I can't help thinking maybe the ribavirin might have somethi...

Redbird29 · Redbird29

I found this letter below on another forum and wanted to share with everyone. I just wanted to cry when I read this because I was fortunate enough to get accepted into Support Path on June 11,2015. What really breaks my heart is that this is going to devastate so many people who's insurance denies them. H...

Gifthealth · Gifthealth

Hello Everyone. I have been reading posts on this forum for some time and I thought it was time for me to contribute. I would like to share my story. I was born with some chronic GI problems that required surgery when I was 7 days old and again at 7 years of age. I received blood transfusions during my surge...

G Man · G Man

30 days in. No problems. A little tired now and again. Have managed to go to the gym 4 days a week. 20 min. weights and a 1/2 mile swim each visit. Blood work on Monday. Hoping for good news. Heading up to Vermont for a week of vacation in a couple of weeks. Keep the faith. Be well. G

Penelope PePod · Penelope PePod

I didn't think I'd get my lab results until I saw my doc tomorrow, but the lab posted them last night. I was afraid to open the file, but of course I got over that bit of silliness in about a minute....NOT DETECTED! So the first hurdle has been passed! Thanks to God, and to you all for your encouragemen...

judeahomestead · judeahomestead

Well it has been two weeks since I started taking Harvoni. Doing okay as far as minimal side effects but I am really being bothered by this loud constant ringing in my ears. Just wondering if anyone else has experienced this.

Topic		Started By	Replies	Views	Last Post
	12 weeks...Boom! Finished! (Preview) That was quick. I finish tomorrow. Blood test on Thursday. I'm sure it will come back HCV undetected since that was what I got at 4 weeks. Anyway, just wondering, how long to cleanse the Harvoni from my body? To those just starting....this was a piece of cake. I managed to go to work everyday no pro...	G Man	0	995	Nov 17, 2015 by G Man
	breathing problems..... (Preview) Hi all...haven't checked in lately and wanted to give an update. I am on week 21 out of 24 week tx. We moved to Wyoming in September and I was already short of breath and had to pace myself. Thing is...we went from an altitude of 13 ft. to 6,700 ft. There are days I can't even brush my hair without having to cat...	Gypsy Soul	8	1357	Nov 12, 2015 by JimmyK
	Old treatments vs. Harvoni (Preview) When I think about my experience with interferon/Ribivarin vs. Harvoni it is amazingly different. I can remember the extreme loss of memory to the point where I would be driving in my car and be on the freeway and completely forget why. I took no time off from work and I worked 6 days a week. Have no idea ho...	kalelalee	6	1452	Nov 11, 2015 by Gracie
	Harvoni side effects not told to me.. (Preview) Started Harvoni Sept. 9 2015. Was a real miracle for me to even get the medication. Failed interferon/ribivarin in 2009. Left my body in worse condition. I am experiencing a side effect I didn't expect to have during my new treatment with Harvoni. I was told I may have headaches, nausea, diarrhea. How...	kalelalee	7	2315	Nov 7, 2015 by kalelalee
	Is too much water bad for you? (Preview) Hi all i was mentioning my water intake today at the health club and later on I received a phone call from a friend who had just had a kidney ultra sound. In talking to the tech she told him how much water I am drinking and they said it could raise sodium levels and harm my kidneys. Honestly, I love drinking a l...	Cherripie	4	1250	Nov 6, 2015 by wmlj1960
	Undetectable Results Today (Preview) I just spoke with my Dr's Office. I'm Undetectable at this point. I was still positive at 4 weeks. 11 mill to 54 units. I was nervous because this was my third treatment & I was still somewhat skeptical. Im not sure what the relapse rate is for 6 month check ups are but today I'm truly excited. Thanks fo...	Rickk	23	1763	Nov 4, 2015 by Matt Chris
	Time Change and Dosing (Preview) Greetings, It occurs to me the change in time tonight will alter the dosing schedule. Interested in your thoughts. Thanks JimmyK	JimmyK	3	987	Nov 1, 2015 by JimmyK
	monocytes (Preview) Just had my second blood testing done. Have not talked to doctor yet but have appointment this Friday. Went online and saw my results. Everything looked good but something new was there. High (12.7) monocytes. Previous tests were okay. I am in week 8 of my Harvoni treatment. Anyone have any info on why...	judeahomestead	4	1201	Oct 31, 2015 by judeahomestead
	Genotype 3 (might) start sovaldi/peg/riba? (Preview) Hello everyone, I posted on this forum last year and earlier this year. As my siggie states, I am a 42 year old male currently in the UK who has genotype 3 Hep C, and is co-infected with Hep B. Last year I did a 24 week course of Peg/Riba, and ended up relapsing 3 months after treatment ended. Treatment was ut...	Mopey	8	1768	Oct 31, 2015 by robertsamx
	Undetected (Preview) I just heard from my team, my viral load was undetected at my 4 week blood test! It is a surreal feeling. YAY 7 more weeks to keep that dragon buried	Observer	21	1974	Oct 29, 2015 by Observer
	9 weeks and all is well (Preview) Finish 9th week of 12 tomorrow. Still hitting the gym 4 days a week. Had a great 1/2 mile swim tonight. Coming out the other end of this ready to roll. Signed up for a Triathlon in June. Good luck and good health to all. G	G Man	2	871	Oct 27, 2015 by wmlj1960
	Half way through treatment... (Preview) Hello Everyone. I would like to thank all of you that participate in this forum. I have found the forum to be very helpful and reassuring during my journey to a cure. I am presently taking Sovaldi and Ribo to treat my stage 2 Genotype 2 HVC. I just got back my viral load test at the half way point of my treatme...	Gifthealth	4	1142	Oct 26, 2015 by Penelope PePod
	tomorrow = EOT (Preview) Final doses tomorrow (Sunday)! dm	drummerman	30	1954	Oct 24, 2015 by bubble
	Undetected times two! (Preview) Results came in this evening: For me, after 12 weeks of tx, EOT result is UNDETECTED! For my husband Paul, half way through a 24 week course of VP/Riba, result is UNDETECTED! We never thought we'd see this day and feel so blessed to have had the opportunity to be treated with these miraculous drugs....	Penelope PePod	10	1348	Oct 22, 2015 by mallani
	National Charity Offers Financial Assistance (Preview) Hello all, I work on behalf of a nationally recognized 501c3 non-profit called the HealthWell Foundation (www.HealthWellFoundation.org). HealthWell provides a lifeline for underinsured Americans. Since 2003, HealthWell has distributed nearly $900 million to over 200,000 Americans in n...	dsheon	5	1623	Oct 22, 2015 by Penelope PePod
	side effect (Preview) Has anyone experienced tinnitus (ear ringing) due to taking Harvoni? My right ear started about two weeks after I started my treatment. I went to my ENT doctor Monday but he can find no reason other than the possibility of a reaction to Harvoni. It is not listed in the noted side effects. I just today pur...	judeahomestead	4	1055	Oct 22, 2015 by judeahomestead
	Muscle twitching (Preview) I have had some crazy muscle twitching in my triceps recently. It is driving me nuts. I am not on treatment yet but am experiencing many symptoms. Has anyone experienced this? I read online that muscle twitches are common sign of dehydration so I drank some cranberry juice and ate a bunch of green...	Scott18927	1	980	Oct 20, 2015 by Tig
	How low is too low? Hemoglobin I mean? (Preview) hey, so I have just finished week 4 of holkira pak and ribiviron. Alt and AST are the lowest they've been in 32 years YAY 15 and 18 but...hemoglobin has dropped below normal Pre treatment-----145 week 2. ---129...normal range week 4 ---115....normal being >120 I really want to stay on...	Observer	13	2390	Oct 16, 2015 by Observer
	results in.... (Preview) One month on Harvoni. Blood work last Friday, results given to me yesterday : undetected. Thank you, thank you, thank you.	judeahomestead	20	1691	Oct 15, 2015 by MikeH
	One test down, two more to go ... (Preview) I know it doesn't mean much at this point but still feels pretty good. All my Bloodwork is normal now except my platelets hanging on to 80. This plus pumpkin pie is really making this Thanksgiving weekend pretty awesome!	Gracie	10	1596	Oct 12, 2015 by Gracie
	And then there were none! (Preview) Final dose just went down the hatch! EOT labs tomorrow, then the wait begins. Bye-bye mean Mr. Riba and your nagging old cough. Penny -- Edited by Penelope PePod on Monday 12th of October 2015 12:37:13 AM	Penelope PePod	11	1553	Oct 12, 2015 by Penelope PePod
	week 12 lab results (Preview) Still not detected.....YAH!!!!!!! Alt-38 Ast-33 On my 8 week my results were Not detected Alt-17 Ast-21 Is it normal for these numbers to fluctuate during treatment??	Gypsy Soul	9	1430	Oct 7, 2015 by Scruffy
	I wanted to share this with everyone (Preview) I just came across this today, I guess it's a little late for me having got on the Sovaldi Treatment already, But It might help out people seeking a more affordable treatment. http://www.abc.net.au/news/2015-08-20/hepa...	tired	45	2702	Oct 6, 2015 by wendyo
	7months post EOT labs (Preview) Hi all, just got results, everything is WNL , except the Platelets at 132, which isn't bad . Dr. said he didn't think my liver was cirrhotic because of the fibrosure results a few months back, Said he couldn't ever feel my liver. Well Woots me. Then why the low platelets? Love and best wishes all around , k...	Michaele	12	1716	Oct 6, 2015 by Ro
	Anosmia (loss of smell) could Ribavirin have something to do with this?? (Preview) The reason I'm asking is I have lost my sense of smell in the last few months. I had a bad cold a few weeks prior to treatment in June and it never returned. Just wondering if anyone here has heard of this? My ENT has me on steroids for 2 weeks but I can't help thinking maybe the ribavirin might have somethi...	Gypsy Soul	0	831	Oct 5, 2015 by Gypsy Soul
	Gilead to no longer pay for meds for people denied by insurance through Support Path (Preview) I found this letter below on another forum and wanted to share with everyone. I just wanted to cry when I read this because I was fortunate enough to get accepted into Support Path on June 11,2015. What really breaks my heart is that this is going to devastate so many people who's insurance denies them. H...	Redbird29	41	4568	Oct 4, 2015 by Tig
	3 weeks into treatment - a long road to get here (Preview) Hello Everyone. I have been reading posts on this forum for some time and I thought it was time for me to contribute. I would like to share my story. I was born with some chronic GI problems that required surgery when I was 7 days old and again at 7 years of age. I received blood transfusions during my surge...	Gifthealth	9	1122	Oct 3, 2015 by Penelope PePod
	Day 30 and all is well (Preview) 30 days in. No problems. A little tired now and again. Have managed to go to the gym 4 days a week. 20 min. weights and a 1/2 mile swim each visit. Blood work on Monday. Hoping for good news. Heading up to Vermont for a week of vacation in a couple of weeks. Keep the faith. Be well. G	G Man	5	1294	Oct 2, 2015 by Gracie
	Eight weeks into Viek/Riba.....and NOT DETECTED! (Preview) I didn't think I'd get my lab results until I saw my doc tomorrow, but the lab posted them last night. I was afraid to open the file, but of course I got over that bit of silliness in about a minute....NOT DETECTED! So the first hurdle has been passed! Thanks to God, and to you all for your encouragemen...	Penelope PePod	20	1539	Oct 1, 2015 by Penelope PePod
	side effects (Preview) Well it has been two weeks since I started taking Harvoni. Doing okay as far as minimal side effects but I am really being bothered by this loud constant ringing in my ears. Just wondering if anyone else has experienced this.	judeahomestead	3	986	Oct 1, 2015 by MikeH
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