Hep C Discussion Forum

ell · ell

Hello! Sorry for my English , I write through an interpreter , although few know English , but it's easier. And so : I am 35 years old , 19 of which I have hepatitis C. F=0. 11 weeks ago I started treatment with the Egyptian sofosbuvir and ribavirin 24weeks. The treatment produced faster results , but I'm a...

G Man · G Man

4 week blood work in.....zero virus detected. Amen. 7 weeks to go. I'm shocked and thankful. Wishing everyone good health and happiness. G

spodek · spodek

Hi Everybody I am new to this forum and was diagnosed with HCV in 2009. Since it was no cure for the virus up to now I tried to maintain healthy lifestyle all these years (doing sports, not drinking...) and the virus did not bother me much. Now I am past 65 and applied for treatment covered by OHIP. Even tho...

MechanicMike · MechanicMike

Hi all, I'm finishing up 24 weeks of sov/riba today. Been undetected all the way through TX and I've gotta go get my EOT labs drawn tomorrow. I kind of dread the drive (I'm being treated at a clinic that's quite a distance from home). But my wife has a colonoscopy scheduled for tomorrow morning, so I'...

Observer · Observer

I am on day day 4 Holkira pak with Rib, I have noticed I seem to be getting very dark, rather large and random bruises, mainly on my legs and without obvious cause. Is that something forum members have seen before from treatment? thank you Alison

biminidave · biminidave

4 1/2 weeks of Harvoni. Not bad for 35K.

-- Edited by biminidave on Saturday 19th of September 2015 01:38:56 AM

Penelope PePod · Penelope PePod

Saw the doctor today and got VL results from blood drawn 4 weeks into tx. I updated my sig line with new results. 34 is good, right? I saw 15 on lots of other folk's results, including my hubby, and I sort of thought that's where I be. Am I being silly? Also, because my HCT, RBC and HGB have all droppe...

bubble · bubble

Hi All, Just got my EOT+12 Week result: NO FLAGS!!! Platelets: 167 Glucose Serum: 97 RBC: 5.29 WBC: 5.8 AST: 21 ALT: 23 Hepititus C Quantitation: HCV Not Freakin' Detected !!!!!!!!!!!!!!!!!!! Tig: What should become of all this Dragon Meat thats pilling up? Thanks all, This is incredibl...

judeahomestead · judeahomestead

Spent the morning in the ER with left side lower back aching, ears ringing and elevated blood pressure. Had a panic attack come on top of it all. Not sure what's going on but they gave me some Ativan to calm me down. BP went down, so did ear ringing. Will follow up with doctors tomorrow. About to take my 4th H...

judeahomestead · judeahomestead

Hello everyone...I have a question. I do eat healthy but am noticing after my meals that I get very bad cramping and bloating. Lower back and lower left side aching some also. I don't know if I should be chewing on gas-x or antacids to help. Has anyone else gone through this?

obsessing · obsessing

Hi all - I'm not sure if these side effects are from Harvoni or one of the psych meds I take. I've been very anxious on Harvoni and do not get much sleep. So some of what I'm feeling could also be from sleep deprivation. The main side effect is sudden fatigue to the point that I need to lay down and take a quick 1...

Matt Chris · Matt Chris

Hey All I am elated ,in high spirits and over the top delighted to report I received my 12 weeks EOT PCR results today / Labor Day via email that read 8-31-2015 Hep-C PCR result NOT DETECTED Thats means I have reached SVR-12 YAAAAHHHHOOOO!!!!!! SVR is an abbreviation or acronym for "Sustained...

drummerman · drummerman

I never thought I would see those words on my lab reports.... but there they are...I am in shock and it has still not sunk in... it seems like a dream. I never believed that I would see the results I'm seeing in my lifetime. And even better tx is on the way! So much gratitude to all those that blazed the trai...

Gracie · Gracie

So my hands have been achy since I've started treatment. Now it seems my feet have decided to join the party. When I first get up in the morning, it's actually hard to walk on them. And right now my wrist is lightly throbbing. Just curious what others have been doing to help with this? I try not to take Tyle...

judeahomestead · judeahomestead

Took my first pill last night at 9pm. About 10pm noticed a headache starting. (I have probably had no more then 10 headaches in my entire life.) I took 2 Extra Strength Tylenol. (If one is good then two is probably better...lol ) Went to bed about 11 and I swear I woke up every single hour all night. Fell rig...

dolphin123 · dolphin123

Hi all,If anyone on this Forum with mild disease (F0-F1) got denial for Harvoni from OptumRx?OptumRx will be my new prescription drug coverage insurance next year (through my employer). Currently, I have Express Script inc, and got denial letter for Harvoni. I am Gen1b, Fo-F1 (byopsy and Fibro...

Soookiesue2 · Soookiesue2

hi all! Started treatment yesterday, so far mild headaches, mild waves of nausea and brain fog. Drinking lots of water and 6 small meals meals a day. Just went to walk the dogs for their daily walk, walked right out with them without their leashes, thank God they came back when I realized! Forget my keys...

judeahomestead · judeahomestead

Tonight I will take my first pill...I am excited to start this journey. Side effects or not I am going for it. Certainly cannot be any worse then the past treatment I took of interferon. Will keep posting !

G Man · G Man

Day 4 Harvoni - Went to the gym last night. Lifted weights and knocked down a 1/2 mile in the pool. Feeling OK. I got myself in some of the best shape of my life over the last year in preparation for treatment and a triathlon I ran in June. I think getting in shape before beginning treatment will prove to be b...

Ziggy · Ziggy

New to forum...genotype 1b started 12 wk treatment VP/RIBA (1200) on July 13th. At start VL3mil, undetectable at 3 weeks but detectable at 5 weeks <15. Doc says this is unusual but seen once in awhile. All else good w/ blood work, etc. feeling ok so far.

Jaded · Jaded

I just got my week 16 blood test back and noticed a drop in my Est GFR from 83-86 over the last few months to 64 with normal being above 60. It was once at 66 I noticed about a year and 1/2 ago. I'm wondering if this is to close to the lower limits and if I am beginning to have kidney problems as I have read HCV can ca...

Mountain man · Mountain man

Hi,wanted to share, 4 weeks Harvoni blood test Zero HCV

JakeAms · JakeAms

Back in 2004 i was told I had genotype 2a, relatively easy to treat but nonetheless after 2 rounds of copeg treatment naive. The success rates of this genotype with my currents meds, ribavarin, soldivir, daclatisvir seemed very promising. My md called today to tell me that the last blood test indic...

drummerman · drummerman

Well my nurse called and told me I was undetected... but after careful reading and research , I see that my printed results say "hepatitis C Quantitation <15 IU/mL HCR RNA detected.Technically this is not UND... correct??and a question - is the qualitative test the one that can tell y...

rettajane · rettajane

Hi guys, I'm new here. I'm a baby boomer who was diagnosed in 2000. I've been waiting many years for these amazing drugs to come out. This has been a wild and exhausting experience,but I was approved recently for Gileads' PAP. I didn't think it would happen(many times). I had to start over a couple of t...

saltylife · saltylife

My boyfriend was placed on a 12 week treatment of Solvaldi/Ribo for his type 2 geno. He has 10 days of treatment left but at the last visit they told him his count was not where they expected it to be. He is not one to ask any questions and has no idea what his viral load is or was. His doctor doesn't provide hi...

biminidave · biminidave

I'm on day 8 of a 12 week stint on Harvoni. It's still really early to tell if I'm going to have mentionable side effects on this drug, but comparing it to the SE's of meds I've had to take for joint pain and skin problems, this stuff is almost as mild as acetaminophen. When I stay active I don't even have a pr...

Penelope PePod · Penelope PePod

We had blood dawn on 8/17 for our 1st VL count since prior to SOT. I'm so anxious to see results. Can anyone give me an idea how long it takes for results? The lab guy thought we'd see something yesterday. No biggie, just anxious... Penny -- Edited by Penelope PePod on Sunday 23rd of August 2015 01...

coolheat · coolheat

Hi Everyone, See results by clicking the icon below: -- Edited by Tig56 on Monday 17th of August 2015 12:26:38 AM

JakeAms · JakeAms

I've never wanted to get my hands on drugs this much since the 1970's and literally could not wait to get started. The first and second night I had trouble sleeping; it felt as if adreneline was surging through my body. After 2x peg-interferon/riba treatments I was sure I could deal with any sides, b...

Topic		Started By	Replies	Views	Last Post
	STATISTICS SVR12 FOR GENOTYPE 3 ( SOFOSBUVIR + RIBAVIRIN 24 WEEKS) (Preview) Hello! Sorry for my English , I write through an interpreter , although few know English , but it's easier. And so : I am 35 years old , 19 of which I have hepatitis C. F=0. 11 weeks ago I started treatment with the Egyptian sofosbuvir and ribavirin 24weeks. The treatment produced faster results , but I'm a...	ell	10	1264	Oct 1, 2015 by Cinnamon Girl
	4 week blood work in.....zero virus detected (Preview) 4 week blood work in.....zero virus detected. Amen. 7 weeks to go. I'm shocked and thankful. Wishing everyone good health and happiness. G	G Man	8	1119	Sep 30, 2015 by Matt Chris
	Waiting period for treatment in Ontario (Preview) Hi Everybody I am new to this forum and was diagnosed with HCV in 2009. Since it was no cure for the virus up to now I tried to maintain healthy lifestyle all these years (doing sports, not drinking...) and the virus did not bother me much. Now I am past 65 and applied for treatment covered by OHIP. Even tho...	spodek	7	1433	Sep 28, 2015 by malekula man
	EOT (Preview) Hi all, I'm finishing up 24 weeks of sov/riba today. Been undetected all the way through TX and I've gotta go get my EOT labs drawn tomorrow. I kind of dread the drive (I'm being treated at a clinic that's quite a distance from home). But my wife has a colonoscopy scheduled for tomorrow morning, so I'...	MechanicMike	10	1464	Sep 27, 2015 by robertsamx
	bruises (Preview) I am on day day 4 Holkira pak with Rib, I have noticed I seem to be getting very dark, rather large and random bruises, mainly on my legs and without obvious cause. Is that something forum members have seen before from treatment? thank you Alison	Observer	8	1327	Sep 27, 2015 by Brian1412
	Undetectable (Preview) 4 1/2 weeks of Harvoni. Not bad for 35K. -- Edited by biminidave on Saturday 19th of September 2015 01:38:56 AM	biminidave	14	1351	Sep 24, 2015 by biminidave
	First VL results since SOT - thought I'd be happier.... (Preview) Saw the doctor today and got VL results from blood drawn 4 weeks into tx. I updated my sig line with new results. 34 is good, right? I saw 15 on lots of other folk's results, including my hubby, and I sort of thought that's where I be. Am I being silly? Also, because my HCT, RBC and HGB have all droppe...	Penelope PePod	14	2589	Sep 23, 2015 by Penelope PePod
	It's all "Dragon Meat now" ....I did it !! (Preview) Hi All, Just got my EOT+12 Week result: NO FLAGS!!! Platelets: 167 Glucose Serum: 97 RBC: 5.29 WBC: 5.8 AST: 21 ALT: 23 Hepititus C Quantitation: HCV Not Freakin' Detected !!!!!!!!!!!!!!!!!!! Tig: What should become of all this Dragon Meat thats pilling up? Thanks all, This is incredibl...	bubble	15	1284	Sep 20, 2015 by wmlj1960
	Panic Attack (Preview) Spent the morning in the ER with left side lower back aching, ears ringing and elevated blood pressure. Had a panic attack come on top of it all. Not sure what's going on but they gave me some Ativan to calm me down. BP went down, so did ear ringing. Will follow up with doctors tomorrow. About to take my 4th H...	judeahomestead	7	1436	Sep 19, 2015 by Jaded
	Side effects (Preview) Hello everyone...I have a question. I do eat healthy but am noticing after my meals that I get very bad cramping and bloating. Lower back and lower left side aching some also. I don't know if I should be chewing on gas-x or antacids to help. Has anyone else gone through this?	judeahomestead	5	1893	Sep 17, 2015 by fourlocos
	Wild side effects during the last week on Harvoni (Preview) Hi all - I'm not sure if these side effects are from Harvoni or one of the psych meds I take. I've been very anxious on Harvoni and do not get much sleep. So some of what I'm feeling could also be from sleep deprivation. The main side effect is sudden fatigue to the point that I need to lay down and take a quick 1...	obsessing	7	1637	Sep 16, 2015 by Tig
	SVR-12 Yes! It can happen & Yes! It did happen. (Preview) Hey All I am elated ,in high spirits and over the top delighted to report I received my 12 weeks EOT PCR results today / Labor Day via email that read 8-31-2015 Hep-C PCR result NOT DETECTED Thats means I have reached SVR-12 YAAAAHHHHOOOO!!!!!! SVR is an abbreviation or acronym for "Sustained...	Matt Chris	46	2053	Sep 16, 2015 by JLynch30
	"HCV Not Detected"! (Preview) I never thought I would see those words on my lab reports.... but there they are...I am in shock and it has still not sunk in... it seems like a dream. I never believed that I would see the results I'm seeing in my lifetime. And even better tx is on the way! So much gratitude to all those that blazed the trai...	drummerman	22	1709	Sep 14, 2015 by wmlj1960
	The Aches and Pains of Treatment (Preview) So my hands have been achy since I've started treatment. Now it seems my feet have decided to join the party. When I first get up in the morning, it's actually hard to walk on them. And right now my wrist is lightly throbbing. Just curious what others have been doing to help with this? I try not to take Tyle...	Gracie	20	3201	Sep 14, 2015 by DianaP
	Harvoni Day 2 (Preview) Took my first pill last night at 9pm. About 10pm noticed a headache starting. (I have probably had no more then 10 headaches in my entire life.) I took 2 Extra Strength Tylenol. (If one is good then two is probably better...lol ) Went to bed about 11 and I swear I woke up every single hour all night. Fell rig...	judeahomestead	5	1438	Sep 12, 2015 by Tig
	Harvoni approved by OptumRx (Preview) Hi all,If anyone on this Forum with mild disease (F0-F1) got denial for Harvoni from OptumRx?OptumRx will be my new prescription drug coverage insurance next year (through my employer). Currently, I have Express Script inc, and got denial letter for Harvoni. I am Gen1b, Fo-F1 (byopsy and Fibro...	dolphin123	0	821	Sep 12, 2015 by dolphin123
	Sovaldi/Ribavirin 24 weeks Started! GT 3a (Preview) hi all! Started treatment yesterday, so far mild headaches, mild waves of nausea and brain fog. Drinking lots of water and 6 small meals meals a day. Just went to walk the dogs for their daily walk, walked right out with them without their leashes, thank God they came back when I realized! Forget my keys...	Soookiesue2	8	1161	Sep 12, 2015 by Soookiesue2
	Day 1 (Preview) Tonight I will take my first pill...I am excited to start this journey. Side effects or not I am going for it. Certainly cannot be any worse then the past treatment I took of interferon. Will keep posting !	judeahomestead	6	1089	Sep 11, 2015 by wmlj1960
	Exercise (Preview) Day 4 Harvoni - Went to the gym last night. Lifted weights and knocked down a 1/2 mile in the pool. Feeling OK. I got myself in some of the best shape of my life over the last year in preparation for treatment and a triathlon I ran in June. I think getting in shape before beginning treatment will prove to be b...	G Man	21	1536	Sep 10, 2015 by Cinnamon Girl
	VP/RIBA treatment (Preview) New to forum...genotype 1b started 12 wk treatment VP/RIBA (1200) on July 13th. At start VL3mil, undetectable at 3 weeks but detectable at 5 weeks <15. Doc says this is unusual but seen once in awhile. All else good w/ blood work, etc. feeling ok so far.	Ziggy	12	1613	Sep 6, 2015 by Ziggy
	Estimated GFR and Harvoni (Preview) I just got my week 16 blood test back and noticed a drop in my Est GFR from 83-86 over the last few months to 64 with normal being above 60. It was once at 66 I noticed about a year and 1/2 ago. I'm wondering if this is to close to the lower limits and if I am beginning to have kidney problems as I have read HCV can ca...	Jaded	1	935	Sep 5, 2015 by Cinnamon Girl
	Week 4 HCV Zero (Preview) Hi,wanted to share, 4 weeks Harvoni blood test Zero HCV	Mountain man	6	1071	Sep 2, 2015 by coolheat
	3rd week, not so good news (Preview) Back in 2004 i was told I had genotype 2a, relatively easy to treat but nonetheless after 2 rounds of copeg treatment naive. The success rates of this genotype with my currents meds, ribavarin, soldivir, daclatisvir seemed very promising. My md called today to tell me that the last blood test indic...	JakeAms	1	915	Aug 31, 2015 by Tig
	UND?? I may have misspoke (Preview) Well my nurse called and told me I was undetected... but after careful reading and research , I see that my printed results say "hepatitis C Quantitation <15 IU/mL HCR RNA detected.Technically this is not UND... correct??and a question - is the qualitative test the one that can tell y...	drummerman	12	2444	Aug 27, 2015 by drummerman
	Harvoni...Finally! (Preview) Hi guys, I'm new here. I'm a baby boomer who was diagnosed in 2000. I've been waiting many years for these amazing drugs to come out. This has been a wild and exhausting experience,but I was approved recently for Gileads' PAP. I didn't think it would happen(many times). I had to start over a couple of t...	rettajane	9	1488	Aug 25, 2015 by rettajane
	Solvaldi/Ribo not working for geno 2? (Preview) My boyfriend was placed on a 12 week treatment of Solvaldi/Ribo for his type 2 geno. He has 10 days of treatment left but at the last visit they told him his count was not where they expected it to be. He is not one to ask any questions and has no idea what his viral load is or was. His doctor doesn't provide hi...	saltylife	3	2357	Aug 25, 2015 by saltylife
	Treatment is... different. (Preview) I'm on day 8 of a 12 week stint on Harvoni. It's still really early to tell if I'm going to have mentionable side effects on this drug, but comparing it to the SE's of meds I've had to take for joint pain and skin problems, this stuff is almost as mild as acetaminophen. When I stay active I don't even have a pr...	biminidave	4	1357	Aug 25, 2015 by wmlj1960
	How long does it take for viral load labs to come back? (Preview) We had blood dawn on 8/17 for our 1st VL count since prior to SOT. I'm so anxious to see results. Can anyone give me an idea how long it takes for results? The lab guy thought we'd see something yesterday. No biggie, just anxious... Penny -- Edited by Penelope PePod on Sunday 23rd of August 2015 01...	Penelope PePod	8	1531	Aug 24, 2015 by Penelope PePod
	2nd Blood Test (CBC) since starting Harvoni now with 18 days to go end of tx (Preview) Hi Everyone, See results by clicking the icon below: -- Edited by Tig56 on Monday 17th of August 2015 12:26:38 AM	coolheat	15	1249	Aug 23, 2015 by coolheat
	Seventh day of solvadi/daclynza/ribavarin (Preview) I've never wanted to get my hands on drugs this much since the 1970's and literally could not wait to get started. The first and second night I had trouble sleeping; it felt as if adreneline was surging through my body. After 2x peg-interferon/riba treatments I was sure I could deal with any sides, b...	JakeAms	7	1283	Aug 23, 2015 by JakeAms
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