Hep C Discussion Forum

Dawnh · Dawnh

HI, I wondered if anyone can tell me what the normal dosage is for ribavirin per day? I know my Dr. goes by weight. Yet I am in some other groups where many people who weigh more than I do are taking much less than I am and with the same gentotype. I do not have cirrhosis either. Could anyone explain why t...

kbonavena2 · kbonavena2

I called my pharmacist n she asked me the brand of herbs n the name of the formula n she looked it up n said it was OK to take w Harvoni. It has berberine in it n I saw someone say they stopped using there berberine while taking Harvoni. So far I only took the herbs one day then I quit it. But I am taking a advanc...

SickPuppy · SickPuppy

I usually took my pill at 9.30am, however by mistake I overdosed at 8.30pm (because that's when I take my 2nd of Ribavirin, accidentaly took a Harvoni too) so then my time Harvoni time became 8.30pm. Basically an accidental time change. 1) Did you change the time you took your Harvoni? How? Did you ove...

bubble · bubble

A feeling I have waited for 15 years. Entry into the Honorary Dragon Slayers Society: MCH: 32.5 PLATELETS: 159 WBC: 4.7 RBC: 5.04 AST: 28 ALT: 30 GLUCOSE/SERUM: 101 (DROPPED FROM 177) TIG: You were spot on. What a drop. HCV QUANTITATIVE " UNDECTECTED" ( WOOT) I thank you all for the...

MikeH · MikeH

Day 10 on Harvoni, and along with the tinnitus, I think I'm noticing a reduction in sex drive which may be related to the Harvoni. Though I'm not finding a great deal of posts about this online, it seems some others are experiencing this and posting about it. Some are female. Found one post which suggest...

biminidave · biminidave

This thing has gone without a hitch. It was only a week and a half ago that my GI submitted the request to my insurer and sent me for additional testing in case they wanted it before approval. Insurance approved in a snap, and a foundation supplied money for the first 90 day copay plus enough left over to...

drummerman · drummerman

First thing I noticed was my AST and ALT are down to 18, before tx they were both at 34. I assume this is good??Some things I don't really understand...WBC is 13.1 10.8 is the upper end of the normal range. Is this bad?? Is it normal for your white blood cells to increase like this?Red blood count i...

drummerman · drummerman

Just got a call from doc's nurse. Blood results in... Week 5 UND! Hope it sticks! dm

Gypsy Soul · Gypsy Soul

ALT 17 AST 21 < less than 2 IU/ml...Undetected

Penelope PePod · Penelope PePod

In less than a month, I'm out of range in 6 categories that were normal before, and I see a fairly large change in a few others. My doc's office called and told me to get some additional bloodwork tomorrow, so I'm guessing they saw something concerning. I have no energy, my chest hurts, headaches, cou...

Lon · Lon

Hi Everyone, My GI called today with my 12 week EOT labs. I'm still undetectable. My GI said my next labs will be in a year. Thanks everyone for all of your help and support. Best Regards, Lon

Mona · Mona

Hi all, I am wondering if anyone experienced an elevation in WBCs and Absolute Lymphocytes? Between week 4 and week 9 my wbcs shot up from normal to 17 and lymphs to 12,000. Very odd. Saw doctor and will be following it, but wondered if anyone else had this reaction. Thanks, Maura

Mamabear · Mamabear

Hello friends, I am wondering if anyone on the Harvoni train is experiencing slow but steady weight gain. I am eating normally and continuing to gain weight with each week. I am in week 6 of treatment. I'm wondering if I should expect more gain so I can adjust my diet accordingly. I do not have any strong c...

drummerman · drummerman

Hey all, Just wondering what times you take your meds. I was taking mine exactly 12 hours apart , but then realized it didn't have to be 12 hours. Just am and pm. I have been carefully monitoring how I felt after dosage and found that the worst I felt was an hour through 5 hours after taking my a.m. , 3 riba...

biminidave · biminidave

I found out yesterday that after 40 years with HepC, having a case of early cirrhosis helps in the approval process with Medicare partD. I'd have been unable to afford it without a grant from the Patient Access Network Foundation though. As it is 12 weeks of it costs right at 100K. My copay is 7K with M...

Redbird29 · Redbird29

Hello! I was wondering if anyone has any information on Harvoni clearing up skin lesions. About six to eight months ago I developed a small (about 1/2 cm) whitish patch of skin on my chest that would occasionally flake dry skin. About 2 months ago this patch of skin began to raise up, got red with a bum...

Michaele · Michaele

I hope everyone is doing well . Just wondered if anyone wears gloves when they wash their dog. Its a heavy flea summer in Eastern NC. The drops arent working well, and dog needs an oatmeal flea bath. I didnt use gloves last time but now I wonder ; how much of the chemical use to treat fleas will I absorb throu...

JLynch30 · JLynch30

I took a Harvoni with the night rib last night because I am an idiot - anyone ever take 2 in fine day by accident. I feel fine, I am just wondering what you did about the next dose.

Paul B · Paul B

So the day after Boceprivir commencement. Brain fog seems more pronounced. Feel like I have even less get up and go. Bad taste in mouth. Don't feel like eating at all. That is it at the moment. Does anyone relate to the above ? Can I expect it to get worse or will my system become accustomed to the additi...

drummerman · drummerman

I remember when I treated in 2008 there was a lot of discussion regarding steatosis and insulin resistance. Many believed that these conditions made it more difficult to a achieve svr. I'm not seeing anything about that now and am wondering if the way the new drugs work in such a different way that t...

drummerman · drummerman

Just received my first refill (thankfully a week before I need it). Its very hot here in the south, and it did not arrive until 1pm via ups. So I measure the temp with my temp gun and it was 96 degrees in the styrofoam container. So I called the online pharmacy, which has been a constant source of errors an...

Redbird29 · Redbird29

Hi Everyone! Took my four week tx labs last week and got partial news today by accessing the hospitals patient portal. Good news ~ after 4 weeks on Harvoni my AST 16 and my ALT 26 which is a good drop from where I started!!! Won't have VL results till next week though when I see my doctor. Also my glucose le...

coolheat · coolheat

It's been almost 5th wk that I have been on Harvoni. Last week, during my 4th wk, I had blood draw. Results today were VL was undetectable. Have the phone calls on the back burner, and liquidating what ever I can grab in the house I think will sell. Thanks everyone here for your support and advice. Try...

SickPuppy · SickPuppy

I guess all of us have this fear, of course. So I thought, let's have a thread that's sort of "rate my relapse chance" where you can post your situation, and the next posters can weigh in on it, objectively, because it's hard to be objective when you are in the situations. So I'll start: TX-nai...

justme50 · justme50

This is Monica's daughter Amanda. She started Harvoni in April and finished her 24 weeks. During her treatment she started having pain in her hands and legs along with edema in her lower limbs. She tested negative for hep 7 weeks out. Her doctors could not figure out why she was having these other s...

Dickey · Dickey

I just finished taking my last pill of a 12 week treatment. I have had zero dr visits during the whole treatment. When should I return for post blood work? I read where I believe its 12 weeks before diagnosed as cured? Thanks, Dickey

Penelope PePod · Penelope PePod

My doc said to take the meds eight hours apart at 9 and 5 with meals. I've always struggled with being real on time, so I wondered what other folk's experience was with timeliness. Like do you think it's ok to take the morning dose between 9 and 10, and the evening one between 5 and 6? I know it's import...

obsessing · obsessing

Getting my one-month labs taken today after 28 days on Harvoni. So nervous! Hoping my ALT dropped to normal range and that my VL is UND. I'll know on Monday. So far I've had some minor side effects but nothing too bad. Before treatment, my hair was thinning and had a brittle texture. It's back to normal no...

Brian1412 · Brian1412

I ate a very small piece of filet mignon, like 3 oz plain today as my body is screaming for protein .. badly,. about an hour latter, I had significant, rebellious , Objection from my liver in the form of pain. . I had a very lean, small LOW fat hamburger a few weeks ago, plain , no problem. . I have al...

bubble · bubble

Hi Everyone, wife and I just returned from our Mexico trip and I have been off Vikera Pac for a month. While down there I got red tiny blisters on top of my tan. Started along both my biceps and worked it's way across upper chest area. They seem like blisters. They have subsided now and have dried up. They w...

Topic		Started By	Replies	Views	Last Post
	Dosages for ribavirin (Preview) HI, I wondered if anyone can tell me what the normal dosage is for ribavirin per day? I know my Dr. goes by weight. Yet I am in some other groups where many people who weigh more than I do are taking much less than I am and with the same gentotype. I do not have cirrhosis either. Could anyone explain why t...	Dawnh	1	1116	Aug 21, 2015 by Tig
	Taking herb supplements w Harvoni (Preview) I called my pharmacist n she asked me the brand of herbs n the name of the formula n she looked it up n said it was OK to take w Harvoni. It has berberine in it n I saw someone say they stopped using there berberine while taking Harvoni. So far I only took the herbs one day then I quit it. But I am taking a advanc...	kbonavena2	9	2172	Aug 21, 2015 by kbonavena2
	Harvoni time change (Preview) I usually took my pill at 9.30am, however by mistake I overdosed at 8.30pm (because that's when I take my 2nd of Ribavirin, accidentaly took a Harvoni too) so then my time Harvoni time became 8.30pm. Basically an accidental time change. 1) Did you change the time you took your Harvoni? How? Did you ove...	SickPuppy	1	1058	Aug 21, 2015 by awol
	My EOT + 7 WEEKS - HAT TRICK!!!! (Preview) A feeling I have waited for 15 years. Entry into the Honorary Dragon Slayers Society: MCH: 32.5 PLATELETS: 159 WBC: 4.7 RBC: 5.04 AST: 28 ALT: 30 GLUCOSE/SERUM: 101 (DROPPED FROM 177) TIG: You were spot on. What a drop. HCV QUANTITATIVE " UNDECTECTED" ( WOOT) I thank you all for the...	bubble	12	1584	Aug 17, 2015 by Matt Chris
	Harvoni & Libido (Preview) Day 10 on Harvoni, and along with the tinnitus, I think I'm noticing a reduction in sex drive which may be related to the Harvoni. Though I'm not finding a great deal of posts about this online, it seems some others are experiencing this and posting about it. Some are female. Found one post which suggest...	MikeH	14	3663	Aug 17, 2015 by MikeH
	Harvoni jug in hand as we speak. (Preview) This thing has gone without a hitch. It was only a week and a half ago that my GI submitted the request to my insurer and sent me for additional testing in case they wanted it before approval. Insurance approved in a snap, and a foundation supplied money for the first 90 day copay plus enough left over to...	biminidave	8	1716	Aug 16, 2015 by Cinnamon Girl
	Looking at lab results... don't understand all of it (Preview) First thing I noticed was my AST and ALT are down to 18, before tx they were both at 34. I assume this is good??Some things I don't really understand...WBC is 13.1 10.8 is the upper end of the normal range. Is this bad?? Is it normal for your white blood cells to increase like this?Red blood count i...	drummerman	4	1101	Aug 13, 2015 by drummerman
	Week 5 UND (Preview) Just got a call from doc's nurse. Blood results in... Week 5 UND! Hope it sticks! dm	drummerman	14	1576	Aug 12, 2015 by drummerman
	Finally...4 week results.. (Preview) ALT 17 AST 21 < less than 2 IU/ml...Undetected	Gypsy Soul	10	1337	Aug 12, 2015 by drummerman
	I'm sooo tired, and labs that were normal before V-pac/Riba now out of range (Preview) In less than a month, I'm out of range in 6 categories that were normal before, and I see a fairly large change in a few others. My doc's office called and told me to get some additional bloodwork tomorrow, so I'm guessing they saw something concerning. I have no energy, my chest hurts, headaches, cou...	Penelope PePod	17	1778	Aug 12, 2015 by Penelope PePod
	12 Week's EOT Undetectable (Preview) Hi Everyone, My GI called today with my 12 week EOT labs. I'm still undetectable. My GI said my next labs will be in a year. Thanks everyone for all of your help and support. Best Regards, Lon	Lon	13	1616	Aug 11, 2015 by Gypsy Soul
	elevated wbc's and lymphocytes (Preview) Hi all, I am wondering if anyone experienced an elevation in WBCs and Absolute Lymphocytes? Between week 4 and week 9 my wbcs shot up from normal to 17 and lymphs to 12,000. Very odd. Saw doctor and will be following it, but wondered if anyone else had this reaction. Thanks, Maura	Mona	1	898	Aug 11, 2015 by Cinnamon Girl
	Weight gain on Harvoni (Preview) Hello friends, I am wondering if anyone on the Harvoni train is experiencing slow but steady weight gain. I am eating normally and continuing to gain weight with each week. I am in week 6 of treatment. I'm wondering if I should expect more gain so I can adjust my diet accordingly. I do not have any strong c...	Mamabear	10	2316	Aug 10, 2015 by zavr
	what times are you taking your viekira/riba? (Preview) Hey all, Just wondering what times you take your meds. I was taking mine exactly 12 hours apart , but then realized it didn't have to be 12 hours. Just am and pm. I have been carefully monitoring how I felt after dosage and found that the worst I felt was an hour through 5 hours after taking my a.m. , 3 riba...	drummerman	10	1390	Aug 8, 2015 by zavr
	Approved for Harvoni! (Preview) I found out yesterday that after 40 years with HepC, having a case of early cirrhosis helps in the approval process with Medicare partD. I'd have been unable to afford it without a grant from the Patient Access Network Foundation though. As it is 12 weeks of it costs right at 100K. My copay is 7K with M...	biminidave	1	1127	Aug 7, 2015 by Tig
	Harvoni clearing skin lesions? (Preview) Hello! I was wondering if anyone has any information on Harvoni clearing up skin lesions. About six to eight months ago I developed a small (about 1/2 cm) whitish patch of skin on my chest that would occasionally flake dry skin. About 2 months ago this patch of skin began to raise up, got red with a bum...	Redbird29	13	2937	Aug 7, 2015 by MikeH
	Dog flea shampoo (Preview) I hope everyone is doing well . Just wondered if anyone wears gloves when they wash their dog. Its a heavy flea summer in Eastern NC. The drops arent working well, and dog needs an oatmeal flea bath. I didnt use gloves last time but now I wonder ; how much of the chemical use to treat fleas will I absorb throu...	Michaele	10	1434	Aug 7, 2015 by MikeH
	anyone accidentally take an extra? (Preview) I took a Harvoni with the night rib last night because I am an idiot - anyone ever take 2 in fine day by accident. I feel fine, I am just wondering what you did about the next dose.	JLynch30	8	3148	Aug 6, 2015 by Gracie
	Started Boceprivir yesterday ( 1 2 3 4 ) (Preview) So the day after Boceprivir commencement. Brain fog seems more pronounced. Feel like I have even less get up and go. Bad taste in mouth. Don't feel like eating at all. That is it at the moment. Does anyone relate to the above ? Can I expect it to get worse or will my system become accustomed to the additi...	Paul B	186	25325	Aug 4, 2015 by MzmiffY
	Steatosis and insulin resistance (Preview) I remember when I treated in 2008 there was a lot of discussion regarding steatosis and insulin resistance. Many believed that these conditions made it more difficult to a achieve svr. I'm not seeing anything about that now and am wondering if the way the new drugs work in such a different way that t...	drummerman	3	960	Jul 29, 2015 by drummerman
	Just received 1st refill - too hot! (Preview) Just received my first refill (thankfully a week before I need it). Its very hot here in the south, and it did not arrive until 1pm via ups. So I measure the temp with my temp gun and it was 96 degrees in the styrofoam container. So I called the online pharmacy, which has been a constant source of errors an...	drummerman	24	1710	Jul 28, 2015 by drummerman
	QUESTIONS ON TEST RESULTS (Preview) Hi Everyone! Took my four week tx labs last week and got partial news today by accessing the hospitals patient portal. Good news ~ after 4 weeks on Harvoni my AST 16 and my ALT 26 which is a good drop from where I started!!! Won't have VL results till next week though when I see my doctor. Also my glucose le...	Redbird29	6	2045	Jul 28, 2015 by Redbird29
	1st blood work result w/Harvoni (Preview) It's been almost 5th wk that I have been on Harvoni. Last week, during my 4th wk, I had blood draw. Results today were VL was undetectable. Have the phone calls on the back burner, and liquidating what ever I can grab in the house I think will sell. Thanks everyone here for your support and advice. Try...	coolheat	17	1674	Jul 28, 2015 by coolheat
	Afraid of relapse (Preview) I guess all of us have this fear, of course. So I thought, let's have a thread that's sort of "rate my relapse chance" where you can post your situation, and the next posters can weigh in on it, objectively, because it's hard to be objective when you are in the situations. So I'll start: TX-nai...	SickPuppy	8	2249	Jul 28, 2015 by mallani
	Justme50 has passed away, complications from Interferon/Harvoni treatment (Preview) This is Monica's daughter Amanda. She started Harvoni in April and finished her 24 weeks. During her treatment she started having pain in her hands and legs along with edema in her lower limbs. She tested negative for hep 7 weeks out. Her doctors could not figure out why she was having these other s...	justme50	19	2707	Jul 26, 2015 by Bills
	Last Harvoni pill taken this morning!!!!! (Preview) I just finished taking my last pill of a 12 week treatment. I have had zero dr visits during the whole treatment. When should I return for post blood work? I read where I believe its 12 weeks before diagnosed as cured? Thanks, Dickey	Dickey	5	1151	Jul 25, 2015 by Brian1412
	Viekira/Riba - Is there wiggle room? (Preview) My doc said to take the meds eight hours apart at 9 and 5 with meals. I've always struggled with being real on time, so I wondered what other folk's experience was with timeliness. Like do you think it's ok to take the morning dose between 9 and 10, and the evening one between 5 and 6? I know it's import...	Penelope PePod	2	1032	Jul 24, 2015 by Matt Chris
	4 weeks into Harvoni tx - Feeling good! (Preview) Getting my one-month labs taken today after 28 days on Harvoni. So nervous! Hoping my ALT dropped to normal range and that my VL is UND. I'll know on Monday. So far I've had some minor side effects but nothing too bad. Before treatment, my hair was thinning and had a brittle texture. It's back to normal no...	obsessing	1	1168	Jul 24, 2015 by Scruffy
	Maybe a good question , maybe not. to eat or not to eat. (Preview) I ate a very small piece of filet mignon, like 3 oz plain today as my body is screaming for protein .. badly,. about an hour latter, I had significant, rebellious , Objection from my liver in the form of pain. . I had a very lean, small LOW fat hamburger a few weeks ago, plain , no problem. . I have al...	Brian1412	12	1510	Jul 24, 2015 by Brian1412
	Is this the rash alot of posters are talking about? (Preview) Hi Everyone, wife and I just returned from our Mexico trip and I have been off Vikera Pac for a month. While down there I got red tiny blisters on top of my tan. Started along both my biceps and worked it's way across upper chest area. They seem like blisters. They have subsided now and have dried up. They w...	bubble	7	1695	Jul 22, 2015 by Femapples
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