Hep C Discussion Forum

SickPuppy · SickPuppy

Hi. I just started my treatment with Harvoni + Ribavirin 12 weeks today. I'm in the UK. I was wondering if anyone here has taken Harvoni while also taking Ursofalk (and Propranolol). Ursofalk is ursodeoxycholic acid, which might be a different brand in the USA. I was reading something about antacid...

drummerman · drummerman

I am surprised things are so quiet on the 3 forums I view. Not at all like it was in 2007. Post after post. I interpret this as 1 of 2 things: 1. Things are just quiet in the summer 2. The new drugs work with little/mild side effects. I hope it is #2! dm

Lon · Lon

Hello Everyone, My 12 week EOT labs are this week. Are they still considering people to be "cured" if they are undetectable at 12 weeks after treatment? Thanks, Lon

S1jiujitsu · S1jiujitsu

Hi guys I had a question. Did 8 wee of Harvoni and I've been off for 3 weeks. I am undetectable. My doctor suggested that I don't take any workout supplements until after 3 months after treatment. I have had some mental fatigue and was wondering if CoQ10 natural energy supplement was ok. It's naturally...

Brian1412 · Brian1412

Being that I have like 8 pills left, all labs excellent , and no appointments for 3 months I am returning to the Circus and will be joining the them , next stop Montreal . All I missed of the tour were the last 5 days in LA but they were special performances and showed that our fearless guide is also m...

JimmyK · JimmyK

Greetings, My career has taken me to many different countries. Fond memories are held for some while others led to a "there's no place like home" moments. Now I find myself here with you,... traveling a very important highway. Lot's of curves ahead I can see and depending how traveled the...

obsessing · obsessing

I want to make sure that I'm doing everything I can to get the full effects of Harvoni. This is my chance for a new start. Five months ago, I tried IV drugs for the first time. Two months later, I felt sick and told my doctor to test me. I just knew. As soon as I transitioned from acute to chronic, I pushed my G...

Gypsy Soul · Gypsy Soul

My Dr. mailed my results...but not really sure what I need to be comparing. I know Ast & ALT..... what else? pre AST 73 2 wk AST 32 pre ALT 85 2 wk 20

Jaded · Jaded

My RBC has gone up a touch as well as my Hemoglobin. My platelet count has now come into a low normal from 95 before start of treatment..it was 135 4 weeks ago. My Conjugated Bilirum has gone up from 6 (normal) to 8 since my 4 week test...I'm not sure why or what this means. My AST remains a bit above normal at 3...

Gracie · Gracie

I'm back from the city that doesn't sleep. Had a tiring, run off my feet, two broadway shows, Century 21 shopping, hot dog eating week and now it's down to business. I figure I have 2 or 3 weeks to initially clear the dragon, and then it will be gone, hopefully forever! Officially start week one tomorrow...

Lawmatt · Lawmatt

Well gotta say i am so bloody relieved i had be final injection #48 now its time to reastablish my sanity and rebuild my fitness . it has been one hell of a journey to say the least i can now start hearing and understanding my wife and have plenty of time for my 2 year old little girl . i would like to say thankyo...

KPB · KPB

Happy Independence day to all .... I have watched the Harvoni Commercial being advertised in the United States "I am Ready for Hepatitis C Treatment:" This commercial advertises that Harvoni is a 12 week treatment program, and some patients may be cured in as little as 8 weeks. Since my d...

Michaele · Michaele

Hi all. Looks LIke Im SVR.. WOOT me. platelets lowish at 117, all metoblics normal, FibroSure F2: down from F4 last year. WBC are 4,5 but I was on prendisone for 5 days do it went up 0.1 , So Im thanking God ; and All of you for putting up with me. I really dont give alot of creadence to Fibrosure , but Dr does....

Gypsy Soul · Gypsy Soul

I have been ot for 1 week now and so far no bad side effects...just wondering IF you are going to have any side effects would they be in the beginning of treatment...or possibly later on?? Your thoughts???

coolheat · coolheat

Called same # as given last Wed. when I was told about not qualifying for help on my second mo. worth of Harvoni. This time the person that I talk to was quite disgruntled that I was told I did not qualify for assistance and that I was also taunted with "too bad if you have to stop treatment." Tod...

KPB · KPB

since I was not UND on my 3 week blood test, would this suggest that my doctor may increase my treatment to 12 weeks ?

Mona · Mona

I just got my 4 week lab results. HCV RNA PCR QT (IU/ML) is 97 Reference <15 HCV RNA PCR QT (LOG IU/ML) is 1.99 Reference <1.18 This makes me nervous. Has anyone else NOT been undetectable at 4 weeks and still go on to be Undetectable? Taking exactly as I should. With food twice a day within the s...

Jaded · Jaded

I just woke up and have been blessed with an email my from my Dr's office... Hep C Virus RNA (PCR/NAAT) No HCV RNA detected. Hep C Virus RNA (PCR/NAAT) Not calculated The assay is quantitatively accurate between 15 and 100,000,000 IU/mL. I am overwhelmed. Thank God. I finish week 6 of 24 tonight. I sti...

sirronalot · sirronalot

I wanted to post this really couldn't believe it. 4 weeks on Harvoni. Just got blood test back. Called Prime and asked them to send third bottle early just in case insurance tried to cut me to 8 weeks instead of the full 12, there shipping on Friday. AST 20, ALT 32, HCA RNA *Detected below the the limit of Qu...

shadow10cats · shadow10cats

Wouldn't it be neat if, say a year from now; maybe less we had a get together somewhere nice? It could happen if we got enough interest and got some folks on board to help organize it. Maybe & this might be a stretch but there's a possibility, however slim, we could get Gilead to help too. After all m...

coolheat · coolheat

Has anyone else had or heard of anyone having any problem with the Achilles tendon at ankle level. Like swelling and tenderness, maybe a marble size lump develop? Presents itself at night and the area gets warm to hot and extremely tender.??? Thanks, CH

Gypsy Soul · Gypsy Soul

Hey everybody!! Took my first dose at 8:00 am...feeling good..maybe just a little woozy and I noticed my pupils are super small. I was required to go to a class by my Gastro Dr.... The Drug rep gave the class going over possible side effects. She said when it came to me that one of the side effects is insom...

bubble · bubble

Hi to all, Happy day for me. Took my last dose of Vikera-Pac !! It seems like I now am entering the 4 week SVR stage and cant help but think about my Pegasys ride and disapointment. Anyway, I am off the train now. This week-end Blueberry season is starting in NJ. I am taking the wife for a ride to an orga...

coolheat · coolheat

Hi, husband put his shoes on with a different authority this am. Ask me not to make calls just yet, he would call after lunch. He called and he's bringing home the bacon. That will take the dead fish off the table for us until next month, which we will be prepared for the ultimatum, whether it comes or not....

coolheat · coolheat

Hi all, somewhat stressed here. Has anyone had this happen to them in dealing with Gilead? Gilead called me this afternoon and wanted to know if they could get my second months worth in order for shipping; I said a big "YES". I am currently on my 3rd day of my 3rd wk. of treatment. My origin...

Lock · Lock

hi all, My doctor has prescribed Harvoni, my insurance just called and informed me they will not allow Harvoni, but instead will recommend that my doctor prescribes Viekira. I've read a lot about Harvoni and was pretty excited with its results during testing. I tried triple therapy a few years ag...

S1jiujitsu · S1jiujitsu

Hi guys. I'm kinda new to this great group and have up to this point received some great feedback regarding harvoni treatment related fatigue. I have 9 more days to go of treatment and was wondering if anyone has had any trouble with focusing. For a while even before treatment I feel like it's hard to foc...

MechanicMike · MechanicMike

Hi all, just got my 8-week labs back from 6/8/15 (apologies for formatting, on mobile). Still undetected! Still feeling a little tired and dealing with various muscle aches, but nothing too tough to handle. I'd welcome any input as to how things are looking. A little over 1/3 complete... CBC W...

JLynch30 · JLynch30

This is the longest I have been undetected. I am wondering if anyone knows the chances of relapse between 4 and 12 eot?

KPB · KPB

Two weeks ago, I asked the question below. You can also see the answers I received to my question. But since I am considered the ("ignorant"general public that may understand the whole SVR/cure debate ) I was wondering if anyone could explain it to me in layman terms ? I still do not unders...

Topic		Started By	Replies	Views	Last Post
	Harvoni and Ursofalk (Ursodeoxycholic acid) (Preview) Hi. I just started my treatment with Harvoni + Ribavirin 12 weeks today. I'm in the UK. I was wondering if anyone here has taken Harvoni while also taking Ursofalk (and Propranolol). Ursofalk is ursodeoxycholic acid, which might be a different brand in the USA. I was reading something about antacid...	SickPuppy	5	1578	Jul 21, 2015 by Tig
	So quiet. (Preview) I am surprised things are so quiet on the 3 forums I view. Not at all like it was in 2007. Post after post. I interpret this as 1 of 2 things: 1. Things are just quiet in the summer 2. The new drugs work with little/mild side effects. I hope it is #2! dm	drummerman	5	1004	Jul 20, 2015 by drummerman
	12 Week EOT Questions (Preview) Hello Everyone, My 12 week EOT labs are this week. Are they still considering people to be "cured" if they are undetectable at 12 weeks after treatment? Thanks, Lon	Lon	3	921	Jul 20, 2015 by bubble
	Supplements?? (Preview) Hi guys I had a question. Did 8 wee of Harvoni and I've been off for 3 weeks. I am undetectable. My doctor suggested that I don't take any workout supplements until after 3 months after treatment. I have had some mental fatigue and was wondering if CoQ10 natural energy supplement was ok. It's naturally...	S1jiujitsu	7	1094	Jul 19, 2015 by Cinnamon Girl
	Going back to the Circus. (Preview) Being that I have like 8 pills left, all labs excellent , and no appointments for 3 months I am returning to the Circus and will be joining the them , next stop Montreal . All I missed of the tour were the last 5 days in LA but they were special performances and showed that our fearless guide is also m...	Brian1412	26	2075	Jul 18, 2015 by Brian1412
	Traveling with y'all (Preview) Greetings, My career has taken me to many different countries. Fond memories are held for some while others led to a "there's no place like home" moments. Now I find myself here with you,... traveling a very important highway. Lot's of curves ahead I can see and depending how traveled the...	JimmyK	8	1277	Jul 16, 2015 by Cinnamon Girl
	Prescribed medications interacting with Harvoni (Preview) I want to make sure that I'm doing everything I can to get the full effects of Harvoni. This is my chance for a new start. Five months ago, I tried IV drugs for the first time. Two months later, I felt sick and told my doctor to test me. I just knew. As soon as I transitioned from acute to chronic, I pushed my G...	obsessing	10	1866	Jul 15, 2015 by Cinnamon Girl
	week 2 lab results (Preview) My Dr. mailed my results...but not really sure what I need to be comparing. I know Ast & ALT..... what else? pre AST 73 2 wk AST 32 pre ALT 85 2 wk 20	Gypsy Soul	6	1029	Jul 14, 2015 by Cinnamon Girl
	My 8 week blood test (Preview) My RBC has gone up a touch as well as my Hemoglobin. My platelet count has now come into a low normal from 95 before start of treatment..it was 135 4 weeks ago. My Conjugated Bilirum has gone up from 6 (normal) to 8 since my 4 week test...I'm not sure why or what this means. My AST remains a bit above normal at 3...	Jaded	4	1081	Jul 10, 2015 by Jaded
	WEEK 1 Starts Tomorrow (Preview) I'm back from the city that doesn't sleep. Had a tiring, run off my feet, two broadway shows, Century 21 shopping, hot dog eating week and now it's down to business. I figure I have 2 or 3 weeks to initially clear the dragon, and then it will be gone, hopefully forever! Officially start week one tomorrow...	Gracie	22	1545	Jul 9, 2015 by coolheat
	Final weekend fellin like **** (Preview) Well gotta say i am so bloody relieved i had be final injection #48 now its time to reastablish my sanity and rebuild my fitness . it has been one hell of a journey to say the least i can now start hearing and understanding my wife and have plenty of time for my 2 year old little girl . i would like to say thankyo...	Lawmatt	14	1592	Jul 5, 2015 by Greg D
	Havoni Television Commercial (Preview) Happy Independence day to all .... I have watched the Harvoni Commercial being advertised in the United States "I am Ready for Hepatitis C Treatment:" This commercial advertises that Harvoni is a 12 week treatment program, and some patients may be cured in as little as 8 weeks. Since my d...	KPB	3	1591	Jul 5, 2015 by Tess
	Re; 12 post EOT results (Preview) Hi all. Looks LIke Im SVR.. WOOT me. platelets lowish at 117, all metoblics normal, FibroSure F2: down from F4 last year. WBC are 4,5 but I was on prendisone for 5 days do it went up 0.1 , So Im thanking God ; and All of you for putting up with me. I really dont give alot of creadence to Fibrosure , but Dr does....	Michaele	23	1460	Jun 30, 2015 by Michaele
	Not borrowing trouble..but.. (Preview) I have been ot for 1 week now and so far no bad side effects...just wondering IF you are going to have any side effects would they be in the beginning of treatment...or possibly later on?? Your thoughts???	Gypsy Soul	11	1720	Jun 30, 2015 by Gypsy Soul
	Flounder update (Preview) Called same # as given last Wed. when I was told about not qualifying for help on my second mo. worth of Harvoni. This time the person that I talk to was quite disgruntled that I was told I did not qualify for assistance and that I was also taunted with "too bad if you have to stop treatment." Tod...	coolheat	16	1677	Jun 29, 2015 by coolheat
	8 week Harvoni treatment (Preview) since I was not UND on my 3 week blood test, would this suggest that my doctor may increase my treatment to 12 weeks ?	KPB	1	859	Jun 29, 2015 by Tig
	4 week labs on Viekira + Riba (Preview) I just got my 4 week lab results. HCV RNA PCR QT (IU/ML) is 97 Reference <15 HCV RNA PCR QT (LOG IU/ML) is 1.99 Reference <1.18 This makes me nervous. Has anyone else NOT been undetectable at 4 weeks and still go on to be Undetectable? Taking exactly as I should. With food twice a day within the s...	Mona	6	1175	Jun 27, 2015 by Tig
	MY 4 week Viral load test (Preview) I just woke up and have been blessed with an email my from my Dr's office... Hep C Virus RNA (PCR/NAAT) No HCV RNA detected. Hep C Virus RNA (PCR/NAAT) Not calculated The assay is quantitatively accurate between 15 and 100,000,000 IU/mL. I am overwhelmed. Thank God. I finish week 6 of 24 tonight. I sti...	Jaded	9	1233	Jun 26, 2015 by Greg D
	4 Week blood test after SOT - Harvoni (Preview) I wanted to post this really couldn't believe it. 4 weeks on Harvoni. Just got blood test back. Called Prime and asked them to send third bottle early just in case insurance tried to cut me to 8 weeks instead of the full 12, there shipping on Friday. AST 20, ALT 32, HCA RNA *Detected below the the limit of Qu...	sirronalot	8	1531	Jun 23, 2015 by MzmiffY
	WHEN THE TRAIN FINALLY REACHES ITS DESTINATION - THEN WHAT? PARTY PARTY ?? (Preview) Wouldn't it be neat if, say a year from now; maybe less we had a get together somewhere nice? It could happen if we got enough interest and got some folks on board to help organize it. Maybe & this might be a stretch but there's a possibility, however slim, we could get Gilead to help too. After all m...	shadow10cats	21	1823	Jun 22, 2015 by Brian1412
	side effect? (Preview) Has anyone else had or heard of anyone having any problem with the Achilles tendon at ankle level. Like swelling and tenderness, maybe a marble size lump develop? Presents itself at night and the area gets warm to hot and extremely tender.??? Thanks, CH	coolheat	0	806	Jun 22, 2015 by coolheat
	Day 1... (Preview) Hey everybody!! Took my first dose at 8:00 am...feeling good..maybe just a little woozy and I noticed my pupils are super small. I was required to go to a class by my Gastro Dr.... The Drug rep gave the class going over possible side effects. She said when it came to me that one of the side effects is insom...	Gypsy Soul	9	1959	Jun 21, 2015 by Gypsy Soul
	My sword is ready. (Preview) Hi to all, Happy day for me. Took my last dose of Vikera-Pac !! It seems like I now am entering the 4 week SVR stage and cant help but think about my Pegasys ride and disapointment. Anyway, I am off the train now. This week-end Blueberry season is starting in NJ. I am taking the wife for a ride to an orga...	bubble	4	978	Jun 20, 2015 by bubble
	UPDATE: on the dead flounder at the Hep C garden party (Preview) Hi, husband put his shoes on with a different authority this am. Ask me not to make calls just yet, he would call after lunch. He called and he's bringing home the bacon. That will take the dead fish off the table for us until next month, which we will be prepared for the ultimatum, whether it comes or not....	coolheat	6	1041	Jun 18, 2015 by Tess
	Gilead Harvoni Flounder (Preview) Hi all, somewhat stressed here. Has anyone had this happen to them in dealing with Gilead? Gilead called me this afternoon and wanted to know if they could get my second months worth in order for shipping; I said a big "YES". I am currently on my 3rd day of my 3rd wk. of treatment. My origin...	coolheat	11	1947	Jun 18, 2015 by Brian1412
	Harvoni verses Viekira (Preview) hi all, My doctor has prescribed Harvoni, my insurance just called and informed me they will not allow Harvoni, but instead will recommend that my doctor prescribes Viekira. I've read a lot about Harvoni and was pretty excited with its results during testing. I tried triple therapy a few years ag...	Lock	7	1703	Jun 16, 2015 by Bills
	Focus problem (Preview) Hi guys. I'm kinda new to this great group and have up to this point received some great feedback regarding harvoni treatment related fatigue. I have 9 more days to go of treatment and was wondering if anyone has had any trouble with focusing. For a while even before treatment I feel like it's hard to foc...	S1jiujitsu	5	1127	Jun 16, 2015 by JLynch30
	Undetected at 8 weeks (lab work provided) (Preview) Hi all, just got my 8-week labs back from 6/8/15 (apologies for formatting, on mobile). Still undetected! Still feeling a little tired and dealing with various muscle aches, but nothing too tough to handle. I'd welcome any input as to how things are looking. A little over 1/3 complete... CBC W...	MechanicMike	6	1083	Jun 14, 2015 by Tig
	Undetected at 4 weeks eot (Preview) This is the longest I have been undetected. I am wondering if anyone knows the chances of relapse between 4 and 12 eot?	JLynch30	6	1158	Jun 14, 2015 by Cinnamon Girl
	Relapse (Preview) Two weeks ago, I asked the question below. You can also see the answers I received to my question. But since I am considered the ("ignorant"general public that may understand the whole SVR/cure debate ) I was wondering if anyone could explain it to me in layman terms ? I still do not unders...	KPB	6	1628	Jun 14, 2015 by Cinnamon Girl
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