Hep C Discussion Forum

lonewolf · lonewolf

I just picked up my next 2 week supply of Viekira Pak, starting on week 5 now. I see that now it has a patient information leaflet that was previously left blank. I guess because its so new none was available. I see one side-effect listed that's very interesting. "Changes in body fat may occur whi...

bubble · bubble

Yes, I have started Vikera-pac Saturday. Got this large styrofoam box I thought it was Omaha Steaks ! I take 3 pills plus riba in the am. At night 1pill plus riba. So far no head aches or nausea. Am feeling a little ant-zee or anxious. Drinking lots of bottled water keeps the taste down. No sleep problems...

FeelingGood · FeelingGood

From my doc - Your viral load after 4 weeks of treatment is detectable but < 20.It means the medication is working to suppress the viral production. When I responded I was told:The test is much more sensitive than other places. Our detectable <20 is what the drug company used to define treatment...

Stormy · Stormy

Feeling like I have a chest cold. Just started Harvoni 4 days ago and wondering if that is just a sx. But my lungs feel like an infection. which doctor do I go see? My Gastro or GP. Anyone taken amoxicillin or a zpak while on Harvon?

VetwithC · VetwithC

I'm one that just got into the system at the perfect time as Harvoni is available and the big shake up last year that got them more funding and more pressure to perform. They gave me a complete physical, confirmed my HVC and am now going to start the Harvoni in a couple of days. My esperience and observati...

Liamc · Liamc

Just go my bloods back everything is within range but my glucose level has dropped from 5,6 to 2.08 within a month. Has anyone else experienced this or know of its significance? I have been really tired the past 2 weeks. 4 weeks to go.

VetwithC · VetwithC

The reason that I ask this is that my original Dx was in Thailand during a routine physical exam and in the year 2000, I got the biopsy [ouch] and their determination of my genotype was 1a. fast forward to Jan this year and the VA says that I have 1b and starting me on Harvoni tomorrow. Should I assume that t...

Rubye · Rubye

I am very curious about why 12 weeks after treatment my platelets have gotten lower while my liver enzymes have gotten so much better, and so am wondering if there is any relationship between these two things. Before treatment my platelets were 65, got up to 84 during treatment and at 3 weeks after tx,...

lonewolf · lonewolf

I'm about 18 days into treatment on Viekira Pak + Ribavirin and am having serious difficulty concentrating sometimes. I work as a mold technician at a large Auto trim manufacturer and brain fog is not what I need. No real troubles other than that. My hemoglobin is down from 14 to 12.3 but the other labs w...

Rufo · Rufo

The five week PCR showed virus detectable but not quantifiable. So it is still there, but the quantity is to few to quantify, i.e., put a number on. I started at about 3.7 million. So the treatment appears to be working. I have had minimal side effects. Kind of surprised at such quick results, but very...

Lon · Lon

Hello Everyone, I started my third week of Harvoni today. I'm grateful to be on this medicine and I know how hard the earlier Hep C treatments were on the patients. I've been fortunate in that I haven't had the Harvoni headaches, but the exhaustion has been very noticeable. I'm good for a few hours in...

Bob54 · Bob54

Completed week 12 of my 12 week Harvoni ride on Sunday, Mar 1. Gave blood today; Complete Metabolic Panel CMPG, CBC w/auto diff CBCA, and Heptimax HCV, RNA. Anything missing? Appoint w/Doc not until Mar 19, so waiting til then to find out if I'm UND. Hopeful! -- Edited by Bob54 on Monday 2nd of March 2015...

Miracleinprogress · Miracleinprogress

Has anyone been on this treatment and could you fill me in on it? I've done the research but would love to hear from someone actually taking the drug. Dr. wants me on this and waiting for approval now. Thanks a bunches

Knorman · Knorman

seems my body is adjusting to the Meds anyone have any short term vision issue on Harvoni

bubble · bubble

I guess you can tell I am in a hurry to get treated. I contacted my Doc to check the status of my pre-authorozation for Vikera-pac. The nurse said it takes about a month! Called my insurance company and they had nothing after 8 days. Called Express Scripts to look into it-again nothing. Abb-Vie (Who are v...

Lawmatt · Lawmatt

its now 28 weeks and since around the half way mark at 24 weeks i have become more and more in control of the nasties. i struggled more mentally than physical even though the sick head ache fluey feeling was still there it was the metal anguish i needed to conquere and believe me it has worked no end to date....

Ro · Ro

Besides all the generalized aches and pains, I am trying to determine if gout is a side effect of Harvoni, but cannot find anything in the literature. I woke up with severe pain near my great toe that runs along the side of the foot. Weight bearing is extremely difficult. It came out of nowhere. I do no...

Snowball271 · Snowball271

Hi there. First post here. I have looked at old posts and understand there is many on this subject. So sorry if this is just a repeat, more looking for advise that it will get better. But rather have the truth if that is not the case. I am almost done with week 4 of 12 week treatment. First 2 weeks weren...

D

I just got back from seeing my doctor. The bloodwork results from last Friday, which was the end of my second week on Havoni, showed that I am already non detectable. ALT / AST has dropped to 15 / 19! I have never, ever seen then so low. And the best is that all of the mild side effects I was feeling in my...

SwimmerChic · SwimmerChic

My first set of labs (4 week) were Monday. Got the results this morning. I'm going with "these look awesome"! Love that (Normal) beside the Hep C result. And this is the first time in 7 years that ALT/AST/Glucose have been within range. I'm assuming the note on the Hep C result is saying th...

JLynch30 · JLynch30

I have never seen numbers like this before - fantastic! ComponentStandard RangeYour ValueAST<=34 U/L32 ALT<=63 U/L37ALKALINE PHOSPHATASE<=125 U/L95BILIRUBIN, TOTAL<=1.0 mg/dL0.8

Lon · Lon

Hi Everyone, After a 10 week battle with my insurance company I was finally approved for 8-weeks of Harvoni. The 8-week duration is because my viral load was under 6 million. For anyone getting ready to take the medicine, I have found it to be a breeze so far. No side effects at all. I'm having good gy...

Knorman · Knorman

First pill of 12 week treatment last Friday. No major side effects, sleep a bit restless the first night, second pretty good. looking forward to ridding my body of this virus

bubble · bubble

Hi all. My second post. Went to the doctors for my report on pre blood work and MRI. Apparently and amazingly I am now geno 1a from 1b 10 yrs ago. Since 2009 my viral load has stayed at a low 225,000. (Thank-you supplements). Now.....Doc had no explanation how I switched geno's. No new testing practice...

Ro · Ro

Hey all, Just received my 16 week lab results and am a little concerned. I called the doctor, but am not expecting a call back until tomorrow..wondering if anyone has insight as to theses values? Alk Phos Oct. 9: 214 Nov 21: 181 Dec 5 : 159 Jan 2: 174 ...

hepCFREEwanab · hepCFREEwanab

Hello everyone. Just wanted to give you a quick update on what has been happening to my husband Angelo. After several MRI HCC was proven. 3 tumors were found, 5cm, 1.5 cm 2cm. the whole team of doctors decided that the best course of action would be to do RADIOEMBOLIZATION. On feb. 12 they did a map...

shadow10cats · shadow10cats

I haven't been visiting the forum much the past week or so. So first of all, hope all is well with everyone & more of you are able to get Harvoni or one of the other "no-sides" drugs. It's been one month now & I haven't gotten my blood-work results back yet but everything has been going...

shadow10cats · shadow10cats

When I found out I had HepC in 2004 I had been going to doctors for around 2 yrs. complaining of symptoms that no one could put a name to. I was given handfuls of anti-depressant scripts because of course; "it was all in my head". I was given pain meds basically to shut me up seems that's what doc...

FeelingGood · FeelingGood

My platelets have been between 195-224 over the last three years ( pre tx 224 ) - Today after 2 weeks tx 184 - Any ideas? Other CBC with diff all ok. Waiting for AST/ALT Bili results later today. thanks

Jener · Jener

I'm just starting treatment on 3/5/2014 and would like to share my progress, if anyone is interested. I had a lung tumor when I was 10 and got several blood transfusions. And also the virus. I was first diagnosed in 2005 during a full physical exam. At the time, the doctor said that I could wait for treat...

Topic		Started By	Replies	Views	Last Post
	Viekira Pak-side effects unknown? (Preview) I just picked up my next 2 week supply of Viekira Pak, starting on week 5 now. I see that now it has a patient information leaflet that was previously left blank. I guess because its so new none was available. I see one side-effect listed that's very interesting. "Changes in body fat may occur whi...	lonewolf	7	3267	Apr 2, 2015 by bubble
	Now a "VIKERIAN " (Preview) Yes, I have started Vikera-pac Saturday. Got this large styrofoam box I thought it was Omaha Steaks ! I take 3 pills plus riba in the am. At night 1pill plus riba. So far no head aches or nausea. Am feeling a little ant-zee or anxious. Drinking lots of bottled water keeps the taste down. No sleep problems...	bubble	9	1565	Mar 31, 2015 by bubble
	viral load after 4 weeks of treatment is detectable but < 20 (Preview) From my doc - Your viral load after 4 weeks of treatment is detectable but < 20.It means the medication is working to suppress the viral production. When I responded I was told:The test is much more sensitive than other places. Our detectable <20 is what the drug company used to define treatment...	FeelingGood	18	2502	Mar 31, 2015 by Tig
	Harvoni and antibiotics (Preview) Feeling like I have a chest cold. Just started Harvoni 4 days ago and wondering if that is just a sx. But my lungs feel like an infection. which doctor do I go see? My Gastro or GP. Anyone taken amoxicillin or a zpak while on Harvon?	Stormy	3	2489	Mar 30, 2015 by Ro
	Any other Vets out there dealing with the VA and HVC?? (Preview) I'm one that just got into the system at the perfect time as Harvoni is available and the big shake up last year that got them more funding and more pressure to perform. They gave me a complete physical, confirmed my HVC and am now going to start the Harvoni in a couple of days. My esperience and observati...	VetwithC	7	2136	Mar 30, 2015 by lonewolf
	glucose levels (Preview) Just go my bloods back everything is within range but my glucose level has dropped from 5,6 to 2.08 within a month. Has anyone else experienced this or know of its significance? I have been really tired the past 2 weeks. 4 weeks to go.	Liamc	2	1058	Mar 30, 2015 by Liamc
	1a & 1b Harvoni Tx the same?? (Preview) The reason that I ask this is that my original Dx was in Thailand during a routine physical exam and in the year 2000, I got the biopsy [ouch] and their determination of my genotype was 1a. fast forward to Jan this year and the VA says that I have 1b and starting me on Harvoni tomorrow. Should I assume that t...	VetwithC	1	1042	Mar 30, 2015 by Tig
	Platelets and Things (Preview) I am very curious about why 12 weeks after treatment my platelets have gotten lower while my liver enzymes have gotten so much better, and so am wondering if there is any relationship between these two things. Before treatment my platelets were 65, got up to 84 during treatment and at 3 weeks after tx,...	Rubye	5	1162	Mar 29, 2015 by mallani
	Brain fog! (Preview) I'm about 18 days into treatment on Viekira Pak + Ribavirin and am having serious difficulty concentrating sometimes. I work as a mold technician at a large Auto trim manufacturer and brain fog is not what I need. No real troubles other than that. My hemoglobin is down from 14 to 12.3 but the other labs w...	lonewolf	10	1880	Mar 27, 2015 by zavr
	PCR at Five Weeks: Harvoni and Ribivarin (Preview) The five week PCR showed virus detectable but not quantifiable. So it is still there, but the quantity is to few to quantify, i.e., put a number on. I started at about 3.7 million. So the treatment appears to be working. I have had minimal side effects. Kind of surprised at such quick results, but very...	Rufo	7	1460	Mar 24, 2015 by Tig
	Harvoni Fatigue Questions (Preview) Hello Everyone, I started my third week of Harvoni today. I'm grateful to be on this medicine and I know how hard the earlier Hep C treatments were on the patients. I've been fortunate in that I haven't had the Harvoni headaches, but the exhaustion has been very noticeable. I'm good for a few hours in...	Lon	13	3317	Mar 23, 2015 by Roey
	Completed week 12, Harvoni (Preview) Completed week 12 of my 12 week Harvoni ride on Sunday, Mar 1. Gave blood today; Complete Metabolic Panel CMPG, CBC w/auto diff CBCA, and Heptimax HCV, RNA. Anything missing? Appoint w/Doc not until Mar 19, so waiting til then to find out if I'm UND. Hopeful! -- Edited by Bob54 on Monday 2nd of March 2015...	Bob54	9	3482	Mar 22, 2015 by FeelingGood
	Sovaldi/Olysio (Preview) Has anyone been on this treatment and could you fill me in on it? I've done the research but would love to hear from someone actually taking the drug. Dr. wants me on this and waiting for approval now. Thanks a bunches	Miracleinprogress	13	1609	Mar 22, 2015 by mallani
	Week 3 Harvoni (Preview) seems my body is adjusting to the Meds anyone have any short term vision issue on Harvoni	Knorman	3	1314	Mar 21, 2015 by Knorman
	Did anyone go through this with your Doctor? (Preview) I guess you can tell I am in a hurry to get treated. I contacted my Doc to check the status of my pre-authorozation for Vikera-pac. The nurse said it takes about a month! Called my insurance company and they had nothing after 8 days. Called Express Scripts to look into it-again nothing. Abb-Vie (Who are v...	bubble	16	1848	Mar 21, 2015 by SwimmerChic
	Finally in controle (Preview) its now 28 weeks and since around the half way mark at 24 weeks i have become more and more in control of the nasties. i struggled more mentally than physical even though the sick head ache fluey feeling was still there it was the metal anguish i needed to conquere and believe me it has worked no end to date....	Lawmatt	9	1799	Mar 20, 2015 by Greg D
	Harvoni side effect? (Preview) Besides all the generalized aches and pains, I am trying to determine if gout is a side effect of Harvoni, but cannot find anything in the literature. I woke up with severe pain near my great toe that runs along the side of the foot. Weight bearing is extremely difficult. It came out of nowhere. I do no...	Ro	9	3119	Mar 20, 2015 by Ro
	Ribavirin/Sovaldi worry (Preview) Hi there. First post here. I have looked at old posts and understand there is many on this subject. So sorry if this is just a repeat, more looking for advise that it will get better. But rather have the truth if that is not the case. I am almost done with week 4 of 12 week treatment. First 2 weeks weren...	Snowball271	18	2499	Mar 19, 2015 by Snowball271
	First Bloodwork Results at Two Weeks (Preview) I just got back from seeing my doctor. The bloodwork results from last Friday, which was the end of my second week on Havoni, showed that I am already non detectable. ALT / AST has dropped to 15 / 19! I have never, ever seen then so low. And the best is that all of the mild side effects I was feeling in my...	D	9	1706	Mar 14, 2015 by D
	My 4 Week Labs (Preview) My first set of labs (4 week) were Monday. Got the results this morning. I'm going with "these look awesome"! Love that (Normal) beside the Hep C result. And this is the first time in 7 years that ALT/AST/Glucose have been within range. I'm assuming the note on the Hep C result is saying th...	SwimmerChic	4	2186	Mar 12, 2015 by SwimmerChic
	week 16 out of 24 (Preview) I have never seen numbers like this before - fantastic! ComponentStandard RangeYour ValueAST<=34 U/L32 ALT<=63 U/L37ALKALINE PHOSPHATASE<=125 U/L95BILIRUBIN, TOTAL<=1.0 mg/dL0.8	JLynch30	5	1238	Mar 12, 2015 by Knorman
	Harvoni - Day 1 (Preview) Hi Everyone, After a 10 week battle with my insurance company I was finally approved for 8-weeks of Harvoni. The 8-week duration is because my viral load was under 6 million. For anyone getting ready to take the medicine, I have found it to be a breeze so far. No side effects at all. I'm having good gy...	Lon	4	1303	Mar 9, 2015 by Lon
	Started Harvoni (Preview) First pill of 12 week treatment last Friday. No major side effects, sleep a bit restless the first night, second pretty good. looking forward to ridding my body of this virus	Knorman	3	841	Mar 9, 2015 by Knorman
	Train Time. (Preview) Hi all. My second post. Went to the doctors for my report on pre blood work and MRI. Apparently and amazingly I am now geno 1a from 1b 10 yrs ago. Since 2009 my viral load has stayed at a low 225,000. (Thank-you supplements). Now.....Doc had no explanation how I switched geno's. No new testing practice...	bubble	5	1505	Mar 6, 2015 by zavr
	Lab Concerns (Preview) Hey all, Just received my 16 week lab results and am a little concerned. I called the doctor, but am not expecting a call back until tomorrow..wondering if anyone has insight as to theses values? Alk Phos Oct. 9: 214 Nov 21: 181 Dec 5 : 159 Jan 2: 174 ...	Ro	8	1432	Mar 6, 2015 by Ro
	Mt. Sinai visit tomorrow! (Preview) Hello everyone. Just wanted to give you a quick update on what has been happening to my husband Angelo. After several MRI HCC was proven. 3 tumors were found, 5cm, 1.5 cm 2cm. the whole team of doctors decided that the best course of action would be to do RADIOEMBOLIZATION. On feb. 12 they did a map...	hepCFREEwanab	3	1171	Mar 4, 2015 by mallani
	Weird Rash (Preview) I haven't been visiting the forum much the past week or so. So first of all, hope all is well with everyone & more of you are able to get Harvoni or one of the other "no-sides" drugs. It's been one month now & I haven't gotten my blood-work results back yet but everything has been going...	shadow10cats	14	3412	Mar 3, 2015 by shadow10cats
	CONQUERING THE DRAGON! (Preview) When I found out I had HepC in 2004 I had been going to doctors for around 2 yrs. complaining of symptoms that no one could put a name to. I was given handfuls of anti-depressant scripts because of course; "it was all in my head". I was given pain meds basically to shut me up seems that's what doc...	shadow10cats	23	1791	Mar 3, 2015 by pl1952
	On Harvoni 2 weeks and Platelets went down instead of up (Preview) My platelets have been between 195-224 over the last three years ( pre tx 224 ) - Today after 2 weeks tx 184 - Any ideas? Other CBC with diff all ok. Waiting for AST/ALT Bili results later today. thanks	FeelingGood	8	1980	Mar 3, 2015 by Cinnamon Girl
	Genotype 1b on Sovaldi+Ribavirin. Progress report (Preview) I'm just starting treatment on 3/5/2014 and would like to share my progress, if anyone is interested. I had a lung tumor when I was 10 and got several blood transfusions. And also the virus. I was first diagnosed in 2005 during a full physical exam. At the time, the doctor said that I could wait for treat...	Jener	30	4964	Mar 2, 2015 by Tig
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