Hep C Discussion Forum

SeeTheLight · SeeTheLight

Hi all, thought it about time I started my own thread rather than hijacking 5's all the time, so here goes. lol I have had the virus since early 80's although I didn't know it as I was diagnosed with hep b at the time. I thought I had ridded myself of that but about 20 years later learnt that I was hep c pos and ha...

katpanics · katpanics

Not sure how the next week will go as I'm starting Epclusa tomorrow. Been a life long journey with Hep C received a BT at birth. I found out I had Hep C in college back in '93. Looking forward to clearing my system and move on from this virus which has wreaked havoc on my body in many different ways over the ye...

Karyl · Karyl

I have no idea at what point this happened but my bloodwork of last week came back virus undetected! My doc says finish up the pills and see you in 2 months for the last labs. I must say, that all in all, the Harvoni ride was pretty smooth. Woohoo!!!!!!!!!!!!

Karyl · Karyl

I'm a firm believer that taking milk thistle daily for over 20yrs has helped my liver cope with the Hep c. I'm starting on Harvoni TOMORROW!! Getting on that train. Dr. Andrew Weil suggests that everyone with liver problems should take it ESPECIALLY those us on treatment. Thoughts? Should I co...

woodytwoshoes · woodytwoshoes

Hey, done 2 bottles of pills now, 28 pills to go. a bit tired but still working at a very strenuous job, so not bad. Nurse called yesterday to see how i was doing and if i was on any new meds etc. she said i would have to wait 12 more weeks after treatment ends to get blood work done. bit of a wait but not a problem,...

marjim48 · marjim48

I usually post for myself but this is for a friend who does not have a computer. I know that this group has so many answers. Q He has hep c and is on methadone. He says his program wants him to go for testing. How do I guide him? He is on medicaid. Is there a drug that works well with methadone? I am on...

lonewolf · lonewolf

I am a 55 yr. old white male. genotype 1A, who just started Viekira Pak+Ribavirin on March 5th. So far so good side effect wise although the Riba is a bit stimulating for me. There will probably be other side effects down the road but they should be manageable. I am a service-connected veteran and all tr...

Barbergirl58 · Barbergirl58

Well today was a awesome day .Got 5 week blood work back and Doc says I am cured !!!Not sure how to post levels but my AST 15 ALT 21..Less than 5 copies...Woo Woo .Happy Happy !!

nathanW · nathanW

hope this doesnt mess up my program.

Phil G · Phil G

Well, not me, my son this time. I was a devoted follower of this forum during my treatment for GT1 with Victrelis in 2011-2012. Tested last year and still clear. He is GT3 with an initial virus load of 7.8 million, AST 472, and ALT 883. FibroTest and ActiTest scores are 0.56 (F2/F3) and 0.91 (A3). Ultraso...

nathanW · nathanW

hi guys im nearly on my second bottle of EPCLUSA . i've had a dream of a medication streak , i could not complain about this medication at all ... only thing i hate is it has given me some kind of skin rash that comes about 5 hours after i take my pill and im scratching like i have flees lol. on my 4 week blood t...

NorwegianWaffle · NorwegianWaffle

I guess I'll be starting Mavyret next week! A complete surprise after being denied Epclusa. Long Story. I'll update next week.

Barbergirl58 · Barbergirl58

Side effects have only been more energy.No headaches no naseau.I pray to God this virus will be cured after this treatment.I will keep y'all posted on this new treatment.

Shemp · Shemp

Hi all, My Dr.'s office just called and ask how things were going.I told them all is well except for some stress.He gave me a prescription for Ativan,but I don't know if I ever want to take it.I don't want to take anything but the Mavyret.Any thoughts would be appreciated.

Dandyindeed · Dandyindeed

Im already living with a partner that I really do need to leave and have a hard time coping with when it comes to his emotional IQ. Im afraid going into treatment is going to make me tired/cranky. Im afraid I"ll end up throwing his stuff out into the parking lot upon which it'll be my fanny that gets evi...

Lindsmatt52 · Lindsmatt52

Got my Epclusa today and am starting it tonight!! Such an amazing feeling to FINALLY be starting the treatment and am counting down the days till my first four-week blood draw!! Thanks to all who got me this far! I am SO ready!

Chevy · Chevy

Just wanted to say hello. Hoping to find a harvoni forum. I just took my first dose yesterday.

Hoodietree · Hoodietree

I emailed my doctor already. Till I get a reply, Does anyone know if stool softener (docusate sodium) is ok ti take while on treatment (Epclusa). TIA

Jen · Jen

Hi Guys It's been a while since i last posted. I hope everyone is drinking plenty of water and doing their best to be mindful and taking things easy whilst on treatment. I finally received my final blood test and Guess what I am Now Hep C FREE! I could not of achieved this without the help and support of ever...

Bilbo626 · Bilbo626

http://hepcfriends.activeboard.com/t63209883/taking-a-class-before-starting-harvoni/?page=2&sort=newestFirst

Iris Dragonfly · Iris Dragonfly

Holy cow, is this normal? Oh dang let me backmup, the brain fog is really hindersome. Two days ago I went to my friends house for a swim, its been hot around 105, figured I really have to get off my butt and get a Little movement in my body. Seemed swimming would be low impact. Aaaand I didn't really do laps,...

Dishbrat · Dishbrat

My Mavyret finally arrived today! I decided to go ahead and start my treatment this evening with my dinner, instead of waiting until tomorrow as I initially planned. Dr already put orders in for my 4 week, and 8 week blood work....so that'll take me to July 3rd, and July 31st (I'll be visiting my parents...

Dandyindeed · Dandyindeed

I have a Dr Appt 8/15 to get treatment. I got dx'd in 1995 and currently have a lot of fatigue as well as inability to eat some fried foods and dairy products. oh, how i'd love to be able to eat cottage cheese , yogurt and not worry about whether I can keep foods down. Oh, how i'd love to exercise and not b...

Jane-n-phil · Jane-n-phil

Hi all my husband and I are day 2 of our 12 week epclusa treatment plan I hope you are all having successful journeys! Much love J and P

Hoodietree · Hoodietree

Hi friends. I find that Im too fatigued to leave the house this weekend and it bumming me out. Drank my gallon already and its only 3pm. Going to an A.A. mtg at 630 and dinner afterwards so will probably be out past my bedtime

heh. Good thing I had a 4 hour nap, lol. Planning to have the yummy wild salmon at...

Hoodietree · Hoodietree

Hey Canuck and Tig, do you have any experience with human parvovirus? I updated all my labs in my bio. Can you give them a look? Many thanks in advance

woodytwoshoes · woodytwoshoes

after much deliberation, i have decided to go ahead with treatment. was a bit concerned about the fatique thing as i work a very physical job. Just hoping i have the energy to do what i need work wise. wish me luck woody

boxers · boxers

Just thought I would try and show you an image of my tac levels....try, wish me luck

Iris Dragonfly · Iris Dragonfly

Hey folks, just wondering how many of you all experienced the small red marks on your skin, it's something the doctors usually looked at when I would be in for a visit. They were always pretty prevalent on my upper chest, and shoulders. Well I'm surprised and pleased to report that these have all but f...

Iris Dragonfly · Iris Dragonfly

Is this a normal side effect of Harvoni? My neck is killing me and I am getting a bit of a sore throat on and off but then that was a normal symptom of my hep...for me anyway. Iris

Topic		Started By	Replies	Views	Last Post
	Started Epclusa 1 May 2018 ( 1 2 3 4 ) (Preview) Hi all, thought it about time I started my own thread rather than hijacking 5's all the time, so here goes. lol I have had the virus since early 80's although I didn't know it as I was diagnosed with hep b at the time. I thought I had ridded myself of that but about 20 years later learnt that I was hep c pos and ha...	SeeTheLight	177	14698	Feb 22, 2019 by Canuck
	1/15/19 Day 1 begins tomorrow EPCLUSA Journey (Preview) Not sure how the next week will go as I'm starting Epclusa tomorrow. Been a life long journey with Hep C received a BT at birth. I found out I had Hep C in college back in '93. Looking forward to clearing my system and move on from this virus which has wreaked havoc on my body in many different ways over the ye...	katpanics	44	2346	Feb 14, 2019 by Tig
	SVR! (Preview) I have no idea at what point this happened but my bloodwork of last week came back virus undetected! My doc says finish up the pills and see you in 2 months for the last labs. I must say, that all in all, the Harvoni ride was pretty smooth. Woohoo!!!!!!!!!!!!	Karyl	5	2450	Oct 31, 2018 by Canuck
	Milk thistle and other supplements (Preview) I'm a firm believer that taking milk thistle daily for over 20yrs has helped my liver cope with the Hep c. I'm starting on Harvoni TOMORROW!! Getting on that train. Dr. Andrew Weil suggests that everyone with liver problems should take it ESPECIALLY those us on treatment. Thoughts? Should I co...	Karyl	25	2427	Oct 30, 2018 by 5-1-18
	56 days done on Epclusa (Preview) Hey, done 2 bottles of pills now, 28 pills to go. a bit tired but still working at a very strenuous job, so not bad. Nurse called yesterday to see how i was doing and if i was on any new meds etc. she said i would have to wait 12 more weeks after treatment ends to get blood work done. bit of a wait but not a problem,...	woodytwoshoes	13	2294	Oct 20, 2018 by Cheddy
	Treatment while on methadone (Preview) I usually post for myself but this is for a friend who does not have a computer. I know that this group has so many answers. Q He has hep c and is on methadone. He says his program wants him to go for testing. How do I guide him? He is on medicaid. Is there a drug that works well with methadone? I am on...	marjim48	12	3068	Oct 20, 2018 by wmlj1960
	High viral load (Preview) I am a 55 yr. old white male. genotype 1A, who just started Viekira Pak+Ribavirin on March 5th. So far so good side effect wise although the Riba is a bit stimulating for me. There will probably be other side effects down the road but they should be manageable. I am a service-connected veteran and all tr...	lonewolf	13	4484	Oct 17, 2018 by Canuck
	Cured! (Preview) Well today was a awesome day .Got 5 week blood work back and Doc says I am cured !!!Not sure how to post levels but my AST 15 ALT 21..Less than 5 copies...Woo Woo .Happy Happy !!	Barbergirl58	13	2177	Oct 10, 2018 by Canuck
	fckn forgot yesterdays epclusa tablet grrrr. (Preview) hope this doesnt mess up my program.	nathanW	6	1517	Oct 2, 2018 by nathanW
	Mavyret for GT3, Starting next week (Preview) Well, not me, my son this time. I was a devoted follower of this forum during my treatment for GT1 with Victrelis in 2011-2012. Tested last year and still clear. He is GT3 with an initial virus load of 7.8 million, AST 472, and ALT 883. FibroTest and ActiTest scores are 0.56 (F2/F3) and 0.91 (A3). Ultraso...	Phil G	16	2353	Sep 30, 2018 by Cheddy
	EPCLUSA . welting and a horrible itch . my symptoms and how long they took too decrease. (Preview) hi guys im nearly on my second bottle of EPCLUSA . i've had a dream of a medication streak , i could not complain about this medication at all ... only thing i hate is it has given me some kind of skin rash that comes about 5 hours after i take my pill and im scratching like i have flees lol. on my 4 week blood t...	nathanW	9	2417	Sep 25, 2018 by nathanW
	Mavyret.1 ( 1 2 3 4 ) (Preview) I guess I'll be starting Mavyret next week! A complete surprise after being denied Epclusa. Long Story. I'll update next week.	NorwegianWaffle	154	31851	Sep 22, 2018 by angelseven
	Almost 4 weeks on Mavyret (Preview) Side effects have only been more energy.No headaches no naseau.I pray to God this virus will be cured after this treatment.I will keep y'all posted on this new treatment.	Barbergirl58	45	3710	Sep 22, 2018 by Barbergirl58
	Drug Interaction (Preview) Hi all, My Dr.'s office just called and ask how things were going.I told them all is well except for some stress.He gave me a prescription for Ativan,but I don't know if I ever want to take it.I don't want to take anything but the Mavyret.Any thoughts would be appreciated.	Shemp	6	1982	Sep 18, 2018 by 5-1-18
	Did you have your abilty to cope with stress compromised during your rx? (Preview) Im already living with a partner that I really do need to leave and have a hard time coping with when it comes to his emotional IQ. Im afraid going into treatment is going to make me tired/cranky. Im afraid I"ll end up throwing his stuff out into the parking lot upon which it'll be my fanny that gets evi...	Dandyindeed	11	2740	Sep 16, 2018 by 5-1-18
	Just jumped on the Epclusa Train!! ( 1 2 3 4 5 … 6 ) (Preview) Got my Epclusa today and am starting it tonight!! Such an amazing feeling to FINALLY be starting the treatment and am counting down the days till my first four-week blood draw!! Thanks to all who got me this far! I am SO ready!	Lindsmatt52	296	29265	Sep 10, 2018 by Canuck
	New here (Preview) Just wanted to say hello. Hoping to find a harvoni forum. I just took my first dose yesterday.	Chevy	39	4357	Aug 24, 2018 by Observer
	Ugh. Constipated! (Preview) I emailed my doctor already. Till I get a reply, Does anyone know if stool softener (docusate sodium) is ok ti take while on treatment (Epclusa). TIA	Hoodietree	28	1735	Aug 19, 2018 by 5-1-18
	Clean and Free (Preview) Hi Guys It's been a while since i last posted. I hope everyone is drinking plenty of water and doing their best to be mindful and taking things easy whilst on treatment. I finally received my final blood test and Guess what I am Now Hep C FREE! I could not of achieved this without the help and support of ever...	Jen	14	2218	Aug 17, 2018 by Tig
	I'm No longer Ranting I am finally on the Harvoni Train. Time to slay a Dragon. ( 1 2 ) (Preview) http://hepcfriends.activeboard.com/t63209883/taking-a-class-before-starting-harvoni/?page=2&sort=newestFirst	Bilbo626	69	20402	Aug 13, 2018 by Cheddy
	Slug in Peanut Butter (Preview) Holy cow, is this normal? Oh dang let me backmup, the brain fog is really hindersome. Two days ago I went to my friends house for a swim, its been hot around 105, figured I really have to get off my butt and get a Little movement in my body. Seemed swimming would be low impact. Aaaand I didn't really do laps,...	Iris Dragonfly	13	1637	Aug 11, 2018 by polosilver
	START OF MAVYRET! (Preview) My Mavyret finally arrived today! I decided to go ahead and start my treatment this evening with my dinner, instead of waiting until tomorrow as I initially planned. Dr already put orders in for my 4 week, and 8 week blood work....so that'll take me to July 3rd, and July 31st (I'll be visiting my parents...	Dishbrat	30	3103	Aug 8, 2018 by Canuck
	Am I going to feel better? (Preview) I have a Dr Appt 8/15 to get treatment. I got dx'd in 1995 and currently have a lot of fatigue as well as inability to eat some fried foods and dairy products. oh, how i'd love to be able to eat cottage cheese , yogurt and not worry about whether I can keep foods down. Oh, how i'd love to exercise and not b...	Dandyindeed	10	1609	Aug 8, 2018 by Cheddy
	J&P - Our Epclusa Journey :) (Preview) Hi all my husband and I are day 2 of our 12 week epclusa treatment plan I hope you are all having successful journeys! Much love J and P	Jane-n-phil	31	4919	Aug 7, 2018 by Tig
	Epclusa fatigue (Preview) Hi friends. I find that Im too fatigued to leave the house this weekend and it bumming me out. Drank my gallon already and its only 3pm. Going to an A.A. mtg at 630 and dinner afterwards so will probably be out past my bedtime heh. Good thing I had a 4 hour nap, lol. Planning to have the yummy wild salmon at...	Hoodietree	7	1777	Aug 6, 2018 by JB
	Parvovirus positive blood test attn: Canuck, Tig (Preview) Hey Canuck and Tig, do you have any experience with human parvovirus? I updated all my labs in my bio. Can you give them a look? Many thanks in advance	Hoodietree	2	1168	Aug 5, 2018 by Hoodietree
	starting epclusa in two days! (Preview) after much deliberation, i have decided to go ahead with treatment. was a bit concerned about the fatique thing as i work a very physical job. Just hoping i have the energy to do what i need work wise. wish me luck woody	woodytwoshoes	36	2992	Aug 3, 2018 by Canuck
	TAC LEVELS (Preview) Just thought I would try and show you an image of my tac levels....try, wish me luck	boxers	7	1440	Jul 21, 2018 by Canuck
	Spider Angioma /Nevus (Preview) Hey folks, just wondering how many of you all experienced the small red marks on your skin, it's something the doctors usually looked at when I would be in for a visit. They were always pretty prevalent on my upper chest, and shoulders. Well I'm surprised and pleased to report that these have all but f...	Iris Dragonfly	3	1412	Jul 20, 2018 by Observer
	Neck Pain (Preview) Is this a normal side effect of Harvoni? My neck is killing me and I am getting a bit of a sore throat on and off but then that was a normal symptom of my hep...for me anyway. Iris	Iris Dragonfly	16	2718	Jul 14, 2018 by Scruffy
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