Hep C Discussion Forum

Harvoninme · Harvoninme

Great article w/ lots of resources.How to Appeal a Health Insurance Denialhttp://guides.wsj.com/health/health-costs/how-to-appeal-a-health-insurance-denial/"Another key resource is the nonprofit Patient Advocate Foundation, which handles health-insurance appea...

ss · ss

JUST GOT APPROVED ANYBODY GETTING ANY SIDE EFFECTS ON HARVONI - THANK YOU

Tess · Tess

Has anyone been on Fosamax - or been taken off it - when on Harvoni? Tomorrow I have a training appointment at my gastro's and then will start on 12 weeks of Harvoni. I have been taking Alendronate Sodium (Fosamax) 1x per week for osteoporosis which my PCP prescribed. I called the PCP today to ask...

Bills · Bills

Hi All you great people here, Sorry I have avoided coming on this because I was just looking and looking for a Trial to do / Whats new approved? I was getting to obsessed with when can I start TX again. I'd love to hear some feedback on this. To get this good news out of the way I got my doc to test for the resista...

Sierrajen · Sierrajen

got my 2 week labs back . they didnt do the pcr VL but does this other test mean that the VL is still really high? see pic Jen -- Edited by Sierrajen on Saturday 22nd of November 2014 10:50:33 PM

LC · LC

Does getting a cold during treatment reduce your chances of reaching SVR? I've gotten all my OTC meds approved.

ss · ss

ANYBODY FEELING DIFFERENT ON HORVANI - WHAT DAY DO YOU THINK IT KICKED IN WILL BE STARTING NEXT WEEK

angelseven · angelseven

Well, here I go ... day 5 on Harvoni... it appears the men are not having any side effects... I wonder why that is?? I am just not feeling myself especially in the mornings and my head is very heavy and hurts off and on. Intense exercise seems to help this problem the most. I am just basically "spa...

hepCFREEwanab · hepCFREEwanab

since stopping his previous treatment my husband has been taking the following supplements all with the doctor's approval. Milk thisle ( reduced billirubin from 2.0 to 1.5 in 6 mo.) cinnamon ( Reduced glucose from 193 to 73 " ) Turmeric Vit. D ( Increased level from 17 to 37 &...

hepCFREEwanab · hepCFREEwanab

I know that there are so many new people on the forum , but hopefully some of the old timers will remember us. My husband Angelo has been hanging on, not doing too badly since stopping his previous treatment last august, due to too many complications. Yesterday he was approved for the HARVONI. His doct...

JLynch30 · JLynch30

24 weeks - loooong ride!

JLynch30 · JLynch30

After showing my doctor the slides of the Boston meeting and a little begging: I am on Harvoni and Rib for 24 weeks! they actually crossed out 12 and put 24 - yipeeee!

JLynch30 · JLynch30

Just checking in the situation - looks like Kaiser is sticking to their guns despite my begging. I have a prescription waiting for me.

RonH · RonH

Well another day has gone by and not a thing but a little nap at 4 today! I nodded out for about 20 minutes and woke up refreshed! All I can say is I hope this is all there is, I will keep a positive attitude about it too!

JLynch30 · JLynch30

HEPATITIS C TREATMENT Sofosbuvir/ledipasvir with ribavirin is highly effective for people with decompensated cirrhosisLiz HighleymanPublished: 12 November 2014Steven Flamm, speaking at the American Association for the Study of Liver Diseases (AASLD) Liver Meeting. Photo by Liz Highle...

JLynch30 · JLynch30

I am cirhotic but my doctor said the new guidelines are 12 weeks for cirhosis with ribravirin????? Should i wait for another doctor to give 24 without? Just opinions.

JLynch30 · JLynch30

Go in for blood tests today and then the doctor will order it. Anyone know how long it takes after bloodtests for doctor to call int eh prescription? They couldn't give me an exact time. Any cirrhotics getting 12 weeks or is it all 24?

RudiRoo · RudiRoo

Got my two week labs back and my Eosinophils were 6% (0-4 normal) and Basophils 3% (0-3 normal) were high. Is this an allergy? Also my bilirubin went from .05 to 1.0 which is the highest normal value. I can't find this on either Sovaldi or Olysio's prescribing info and I don't know what it means. I've bee...

Sierrajen · Sierrajen

I was reading elsewhere that changing to new tooth brushs and razors and even nail clippers might not be a bad Idea. I might just do it anyways. so I don't reinfect myself somehow. Any thoughts on this? Jen

JLynch30 · JLynch30

Anyone get the gold from Kaiser yet?

Angel67 · Angel67

This makes for interesting reading about how and why Gilead operate the way they do. http://www.hepcoalition.org/news/article/gilead-s-license-on-hepatitis-c

anurse1985 · anurse1985

Hello there! 23 days since last dose! And yes, feeling somewhat better (all in my mind?) I will admit that the 'heebie jeebies' i was feeling during treatment have subsided; but the restless legs that became unbearable during treatment (and only rarely before) are still present. And, although I th...

Trainhopper · Trainhopper

So, let me begin by saying that YES A BIOPSY HURTS!!!! people said it will be fine, I believe I will. But, The pain involved with this is unreal. The Dr. went between my ribs? Not sure what's up with that but he did. So, I am having extreme Chest pains and when I cough I feel it in my Liver area. My liver area hu...

Castraaa · Castraaa

i took my ribiviron and sovaldi this morning, I don't think I ate enough because I became super sick and I think I threw up my meds, how bad is that? I didn't have an appetite so I tried forcing some cereal down but don't think it was enough. I still feel super nauseated

Lon · Lon

Hello, Has anyone heard when Daclatasvir will be approved in the US? Thanks, Lon

LC · LC

While I was thinking about starting treatment last night, and what I could do to make sure I took my meds, I got to thinking - hmm, I wonder if there is a free good medication reminder app out there? I downloaded one called Medisafe for my android phone, and it's pretty cool. You can enter times, dosages...

JLynch30 · JLynch30

http://www.familypracticenews.com/news/journals/single-article/sofosbuvirledipasvir-effective-for-relapsed-hep-c-patients/61f3e868769ed6ee913673ba6638dc3e.html

Lawmatt · Lawmatt

Finally 12 weeks has passed and I must say for me a struggle to say the least hopefully will start feelin a bit normal . still very fatigued and lazy but am struggling through some work will have viral load results in 2 weeks I will upload when I receive them with fingers crossed i have attached my last bl...

Mopey · Mopey

Hi everyone, I haven't posted in a while, but I thought I'd give an update on my treatment to give hope to all those out there that are starting out on this journey. As you can see from my signature, I started treatment (interferon + ribavirin) on June 3rd, 2014, and am due to finish a 24 week course on Novem...

JLynch30 · JLynch30

I have heard nothing yet!

Topic		Started By	Replies	Views	Last Post
	How to Appeal a Health Insurance Denial (Preview) Great article w/ lots of resources.How to Appeal a Health Insurance Denialhttp://guides.wsj.com/health/health-costs/how-to-appeal-a-health-insurance-denial/"Another key resource is the nonprofit Patient Advocate Foundation, which handles health-insurance appea...	Harvoninme	0	740	Nov 27, 2014 by Harvoninme
	ANYBODY GETTING SIDE EFFECTS ON HARVONI (Preview) JUST GOT APPROVED ANYBODY GETTING ANY SIDE EFFECTS ON HARVONI - THANK YOU	ss	8	2159	Nov 27, 2014 by Harvoninme
	Anyone on Harvoni taking Fosamax? (Preview) Has anyone been on Fosamax - or been taken off it - when on Harvoni? Tomorrow I have a training appointment at my gastro's and then will start on 12 weeks of Harvoni. I have been taking Alendronate Sodium (Fosamax) 1x per week for osteoporosis which my PCP prescribed. I called the PCP today to ask...	Tess	0	846	Nov 26, 2014 by Tess
	NSA3 - NS4A resistance clear and getting my sword olut again. But which sword? (Preview) Hi All you great people here, Sorry I have avoided coming on this because I was just looking and looking for a Trial to do / Whats new approved? I was getting to obsessed with when can I start TX again. I'd love to hear some feedback on this. To get this good news out of the way I got my doc to test for the resista...	Bills	18	1726	Nov 25, 2014 by mallani
	Auto Neutrophil Percent is high (Preview) got my 2 week labs back . they didnt do the pcr VL but does this other test mean that the VL is still really high? see pic Jen -- Edited by Sierrajen on Saturday 22nd of November 2014 10:50:33 PM	Sierrajen	10	3182	Nov 25, 2014 by darkstar
	Getting sick while on treatment (Preview) Does getting a cold during treatment reduce your chances of reaching SVR? I've gotten all my OTC meds approved.	LC	16	1939	Nov 25, 2014 by LC
	ANY BODY FEELING DIFFERENT ON HORVANI - WHAT DAY DO YOU THINK IT KICKED IN (Preview) ANYBODY FEELING DIFFERENT ON HORVANI - WHAT DAY DO YOU THINK IT KICKED IN WILL BE STARTING NEXT WEEK	ss	13	1584	Nov 24, 2014 by Sierrajen
	Harvoni, just started (Preview) Well, here I go ... day 5 on Harvoni... it appears the men are not having any side effects... I wonder why that is?? I am just not feeling myself especially in the mornings and my head is very heavy and hurts off and on. Intense exercise seems to help this problem the most. I am just basically "spa...	angelseven	20	1923	Nov 23, 2014 by angelseven
	Supplements during Harvoni treatment! (Preview) since stopping his previous treatment my husband has been taking the following supplements all with the doctor's approval. Milk thisle ( reduced billirubin from 2.0 to 1.5 in 6 mo.) cinnamon ( Reduced glucose from 193 to 73 " ) Turmeric Vit. D ( Increased level from 17 to 37 &...	hepCFREEwanab	1	1337	Nov 22, 2014 by Tig
	HELLO EVERYONE, WE ARE BACK!!!!! (Preview) I know that there are so many new people on the forum , but hopefully some of the old timers will remember us. My husband Angelo has been hanging on, not doing too badly since stopping his previous treatment last august, due to too many complications. Yesterday he was approved for the HARVONI. His doct...	hepCFREEwanab	3	691	Nov 22, 2014 by Mugsy
	Started today (Preview) 24 weeks - loooong ride!	JLynch30	6	768	Nov 20, 2014 by Matt Chris
	Thanks everyone! (Preview) After showing my doctor the slides of the Boston meeting and a little begging: I am on Harvoni and Rib for 24 weeks! they actually crossed out 12 and put 24 - yipeeee!	JLynch30	11	866	Nov 19, 2014 by JLynch30
	anyone on 12 weeks harvoni with rib???? (Preview) Just checking in the situation - looks like Kaiser is sticking to their guns despite my begging. I have a prescription waiting for me.	JLynch30	3	902	Nov 19, 2014 by JLynch30
	Treatment day 4 (Preview) Well another day has gone by and not a thing but a little nap at 4 today! I nodded out for about 20 minutes and woke up refreshed! All I can say is I hope this is all there is, I will keep a positive attitude about it too!	RonH	45	5546	Nov 17, 2014 by Cinnamon Girl
	based on Boston meeting (Preview) HEPATITIS C TREATMENT Sofosbuvir/ledipasvir with ribavirin is highly effective for people with decompensated cirrhosisLiz HighleymanPublished: 12 November 2014Steven Flamm, speaking at the American Association for the Study of Liver Diseases (AASLD) Liver Meeting. Photo by Liz Highle...	JLynch30	4	2447	Nov 15, 2014 by Isiscat2011
	dr wants me on 12 plus ribravrin? (Preview) I am cirhotic but my doctor said the new guidelines are 12 weeks for cirhosis with ribravirin????? Should i wait for another doctor to give 24 without? Just opinions.	JLynch30	2	813	Nov 14, 2014 by Tig
	Just got the call... (Preview) Go in for blood tests today and then the doctor will order it. Anyone know how long it takes after bloodtests for doctor to call int eh prescription? They couldn't give me an exact time. Any cirrhotics getting 12 weeks or is it all 24?	JLynch30	15	1331	Nov 14, 2014 by Ro
	Does this mean I'm allergic to S/O? (Preview) Got my two week labs back and my Eosinophils were 6% (0-4 normal) and Basophils 3% (0-3 normal) were high. Is this an allergy? Also my bilirubin went from .05 to 1.0 which is the highest normal value. I can't find this on either Sovaldi or Olysio's prescribing info and I don't know what it means. I've bee...	RudiRoo	13	1155	Nov 14, 2014 by RudiRoo
	Tooth brushs and stuff (Preview) I was reading elsewhere that changing to new tooth brushs and razors and even nail clippers might not be a bad Idea. I might just do it anyways. so I don't reinfect myself somehow. Any thoughts on this? Jen	Sierrajen	6	856	Nov 13, 2014 by LC
	anyone on keiser yet? (Preview) Anyone get the gold from Kaiser yet?	JLynch30	0	627	Nov 12, 2014 by JLynch30
	A fools bargain (Preview) This makes for interesting reading about how and why Gilead operate the way they do. http://www.hepcoalition.org/news/article/gilead-s-license-on-hepatitis-c	Angel67	2	739	Nov 12, 2014 by Isiscat2011
	3.5 weeks since EOT, still blowing my top! (Preview) Hello there! 23 days since last dose! And yes, feeling somewhat better (all in my mind?) I will admit that the 'heebie jeebies' i was feeling during treatment have subsided; but the restless legs that became unbearable during treatment (and only rarely before) are still present. And, although I th...	anurse1985	6	1270	Nov 11, 2014 by Thom
	I'm home from biopsy(x) (Preview) So, let me begin by saying that YES A BIOPSY HURTS!!!! people said it will be fine, I believe I will. But, The pain involved with this is unreal. The Dr. went between my ribs? Not sure what's up with that but he did. So, I am having extreme Chest pains and when I cough I feel it in my Liver area. My liver area hu...	Trainhopper	42	1667	Nov 9, 2014 by Trainhopper
	Nausea (Preview) i took my ribiviron and sovaldi this morning, I don't think I ate enough because I became super sick and I think I threw up my meds, how bad is that? I didn't have an appetite so I tried forcing some cereal down but don't think it was enough. I still feel super nauseated	Castraaa	9	1124	Nov 9, 2014 by Cinnamon Girl
	Daclatasvir (Preview) Hello, Has anyone heard when Daclatasvir will be approved in the US? Thanks, Lon	Lon	5	917	Nov 8, 2014 by pamelajean
	Pill reminder apps for smartphones (Preview) While I was thinking about starting treatment last night, and what I could do to make sure I took my meds, I got to thinking - hmm, I wonder if there is a free good medication reminder app out there? I downloaded one called Medisafe for my android phone, and it's pretty cool. You can enter times, dosages...	LC	5	1287	Nov 5, 2014 by LC
	Sofosbuvir/ledipasvir effective for relapsed hep C patients By: KAREN BLUM NOVEMBER 3, 2014 (Preview) http://www.familypracticenews.com/news/journals/single-article/sofosbuvirledipasvir-effective-for-relapsed-hep-c-patients/61f3e868769ed6ee913673ba6638dc3e.html	JLynch30	3	869	Nov 3, 2014 by Tig
	Out of the telapraver duldrims (Preview) Finally 12 weeks has passed and I must say for me a struggle to say the least hopefully will start feelin a bit normal . still very fatigued and lazy but am struggling through some work will have viral load results in 2 weeks I will upload when I receive them with fingers crossed i have attached my last bl...	Lawmatt	7	839	Nov 3, 2014 by Lawmatt
	update on treatment (interferon + ribavirin) (Preview) Hi everyone, I haven't posted in a while, but I thought I'd give an update on my treatment to give hope to all those out there that are starting out on this journey. As you can see from my signature, I started treatment (interferon + ribavirin) on June 3rd, 2014, and am due to finish a 24 week course on Novem...	Mopey	14	1558	Nov 3, 2014 by Isiscat2011
	any news on kaiser and harvoni (Preview) I have heard nothing yet!	JLynch30	3	2436	Nov 2, 2014 by Tig
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