Hep C Discussion Forum

shadow10cats · shadow10cats

Two things have brought me back to this forum today: 1. FDA RESPONSE TO GILEAD'S APPLICATION FOR THE 1-DRUG REGIME: I have been scouring the web to see if there's any news on the FDA's response to Gilead's drug application for the one-drug pill. So far nothing. On their website they only show approva...

dragonfly · dragonfly

Well, I have just finished week 8 and my 4 week test was UND. Things have now settled down and my bilirubin level is down. I am trying to get my Child-Pugh level down through diet and healthy things. Hope everyone is well. Nirmale x

skewedButNotBroken · skewedButNotBroken

Just got a call from my doc's assistant and she says I'm undetected! I feel so fortunate and blessed.

hepcinbama · hepcinbama

I have a good bit of Ribavirin because my doctor cut back on my rib an the pharm just kept sending it ,im through with treatment an doc said he will not retreat me with rib an peg pen again if I relaps ha ha! what do I do with these extra meds id hate to flush them if they could help someone.One the same token don'...

skewedButNotBroken · skewedButNotBroken

Due to a mix-up (again) my lab order for the 4 week test was botched, so I finally went in yesterday which was day 31 of my treatment and the viral load is not ready--of course but should be ready by Friday. This time it is being processed by Quest Diagnostics labs. However, I received my ALT/AST level and c...

Doni · Doni

I have 4 shots of interferon left along with sovaldi and rebetol pills of my 12 week therapy. I got UND at 5 weeks (didn't have chance to test at 4 weeks). However instead of feeling better, I am feeling lethargic, sleepy, tired. It seems my body is exhausted of medicines or these are the signs of advanced...

anurse1985 · anurse1985

Ok, you'd think it would be simple to finish up 6 more days. But I swear I feel like I'm getting closer to the edge with every passing hour. Erratic mood swings (more low than high); more fatigue, itchy, sad, bored and considerable disinterest in life itself. Since the virus is being eradicated, why do I...

Mark Y · Mark Y

Hi everybody, I'm on day 17 of the Sovaldi/Olysio combo and experiencing a few side effects. Mainly dry mouth, not much appetite, mild joint and headaches and some insomnia. The side effects are nothing compared to the pega/riba that I went through 10 yrs ago but was curious as to what, if any side ef...

Jeanno · Jeanno

I am on Day #7. I woke up with a significant rash on my chest this morning and itch a lot. I am thinking it is just the toxins. I also have really increased upper right quadrant pain. I know this is my liver, but I haven't had this much discomfort bordering on pain for quite a while. I would love some feedba...

Jeanno · Jeanno

The first few days were kind of tough adjusting but today I feel so much better. I made a healthy breakfast and lunch. My appetite for healthy foods had been kind of dulled. Yeah!!! Here's to SVR and great health and vitality. http://extremehealthwarrior.blogspot.com/

skewedButNotBroken · skewedButNotBroken

A couple of days ago I asked Dr. Paul Martin's nurse (Nabiha Sanchez) to ask the doctor if he would order a viral load test for me because I feel so much better. She said that he probably would not order it because BCBS had authorized a 4 week viral load test and they would not pay for it. I told her that since m...

wmlj1960 · wmlj1960

This was done Wed 10-1-14 and it says the comparison is in reference to a CT scan I had 1-17-14, which I don't the printout of, yet. Also I included the MRI final report from 3 months ago 7-7-14, also compared to 1-17-14 abdominal ultrasound and CT abdomen. I won't see my hepatologist until Tues. I don't u...

Jeanno · Jeanno

I have a great medical team and approaching this from a integrated treatment approach. My Tx is being handled by a third party pharmacy which delivers my meds and answers my questions about side effects. Prior to shipping my first month's meds, they called and went over every supplement I am on and was...

globetrotter · globetrotter

Hi there all Its been a very long time since I posted...... Im now in week 48 and on Monday I took my 48 INF shot which was then rammed into the yellow box with the other partners in crime and the lid shut firmly.... the Riba finishes at 1800 hrs on Sunday so a little bit more to go...its been a tough journey, mo...

wmlj1960 · wmlj1960

I take meds 3x per day (9am,3pm,9pm) and I use the alarm on my cell phone mostly as a reminder, but also have 2 alarm clocks and use notes on my TV remote, car keys, and fridge. But yesterday I was napping at 3pm and my cell phone had a shirt covering it and the 2 alarm clocks are set for 9am,9pm only. So I was abo...

Doni · Doni

I started triple therapy with Sovaldi/Pegintron/Rebetol on 15th August. On 28th September I took HCV RNA test and got result <15 UI/mL. The report says: No measurable signal - no HCV RNA detected! I am so happy the treatment is working on me, but I was wondering if this is considered RVR with respec...

BobK · BobK

Hi all, I was somehow able to get my medication extended for 24 weeks instead of the 12. I had read that there were higher SVR rates at 24 weeks. Anyway, I am at around 16 weeks and got a call from the nurse from my doctors office. She was just checking in and wanted to make an appointment for me when the treat...

Paul B · Paul B

And the telaprevirans too ! Had a discussion with my nurse today during which she informed me that she was ditching her old DAAs and commencing Simeprvir. Sometime next month apparently. So had I known when I started Victrelis triple I could have waited and had a tx duration of 24 weeks rather than 48...

skewedButNotBroken · skewedButNotBroken

Please see the document below. It says I'm still detected but it is below the quantification range which is 15 to 100,000,000. What the heck does that mean? Did the technician see a few of the devils floating around but could not accurately count them? Or does it mean something entirely different. The...

dragonfly · dragonfly

I am starting to feel better and know that my bloods have improved. I need to reduce my Child-Pugh level from 7 as this is too high. I haave been signed off work until next January which gives me time to build up my strength. As I teach in a college the likehood of catching a bug which escalates to somethi...

dragonfly · dragonfly

Please if anyone is in the same regime as me in the UK don't be afraid to see your consultant if there are adverse effects. They will not take you off I nearly delayed too long because of this. Because they are monitoring everyone they know that 3 people (of whom I'm one) have exactly the same bloods, I n...

mindovermatter · mindovermatter

Hi All, I am posting after a long time. Hope all of you are doing well. I see many member are undergoing treatment without interferon. Hope they are all doing well. Do any of you believe that you acquired HCV from sex? Because I had a sexual exposure with a CSW in August 22013. I checked my AST, ALT and Bilr...

Mila · Mila

I thought it would be great if everybody on Sovaldi + Ribavirin had a single thread to post in. I'm into Week 5 of 24 now. SFV (Stupid Freaking Virus) was undetectable at 2 weeks. Yeah! Do most patients respond this fast? I'll attach two charts that show my labs b4 starting tx, and then at 2 & 4 weeks fo...

Dee Dee · Dee Dee

Great news... I cried tears of joy! My doc just called said there were no signs of the virus found. I couldn't be happier. I have to say I was prepared for the worst considering the Q80k thing I "had" but the S/O kicked its butt too! I'm so happy right now.. My prayers have been answered!

theotherguy · theotherguy

This is my second time to be treated first time viral load was 2,135,032 genotype 1a/1b with stage four cirrhosis and was placed on peginterferon alfa-2a, ribavirin, and incivek. the next 12 months sucked......HARD. about 6 months ago I started feeling pressure in the right upper abdomen by the ti...

skewedButNotBroken · skewedButNotBroken

By trade, I'm a computer programmer and I also teach computer programming. One of the first things that a programming student learns is that the output for the program will be no more accurate than the data that is input into it--hence the phrase: Garbage in, Garbage out. Well a few days a go I got a call f...

anurse1985 · anurse1985

So this is a rant. I Want to share that from the start so people will be forewarned. It probably sounds childish and whiny, but the fact is I have no one else to be childish and whiny with, lucky you.The first few days of treatment were pretty benign, slight headache after morning dose that only lasted an h...

pizzacake · pizzacake

Yesterday I was out walking on a very public wide path in my city. Lots of people and dogs were out enjoying the evening. A skateboarder comes up behind me and was talking loudly to his friend. I turned and YELLED at him to go to the other side of the path! It just flew out of my mouth with no filter involved....

robertsamx · robertsamx

thanks to all who have spoken about riba rage im 20+ days into sofosbuvir / riba 1200mg and fliped out tonite It came on so fast, I cant belive the way i was shouting. However i soon relized what was going on and relaxed and soon was back to my old self. Thanks to this forum i was able to see what and why it wa...

TazKat · TazKat

been off treatment since july 17th. hair is still falling out at a rapid pace.. could this be from meds???? interferon?? it sure is a drag after every shower to see it all. I can't even really brush it. just put it up & weather the storm. I got some motivator for scalp from a hairdresser friend of mine...

Topic		Started By	Replies	Views	Last Post
	FINAL COUNTDOWN OCT 10, 2014 (Preview) Two things have brought me back to this forum today: 1. FDA RESPONSE TO GILEAD'S APPLICATION FOR THE 1-DRUG REGIME: I have been scouring the web to see if there's any news on the FDA's response to Gilead's drug application for the one-drug pill. So far nothing. On their website they only show approva...	shadow10cats	16	3062	Oct 10, 2014 by shadow10cats
	Week 8 (Preview) Well, I have just finished week 8 and my 4 week test was UND. Things have now settled down and my bilirubin level is down. I am trying to get my Child-Pugh level down through diet and healthy things. Hope everyone is well. Nirmale x	dragonfly	5	954	Oct 10, 2014 by Dzdayscomin
	THANK THE GOOD LORD ----DAY 31 UNDETECTED!!!!!!!!!!!!!!!!!!!!!!!!!!!!! (Preview) Just got a call from my doc's assistant and she says I'm undetected! I feel so fortunate and blessed.	skewedButNotBroken	9	962	Oct 10, 2014 by RonH
	I have extra Ribavirin my doctor cut back my rib because my blood count dropped (Preview) I have a good bit of Ribavirin because my doctor cut back on my rib an the pharm just kept sending it ,im through with treatment an doc said he will not retreat me with rib an peg pen again if I relaps ha ha! what do I do with these extra meds id hate to flush them if they could help someone.One the same token don'...	hepcinbama	8	1151	Oct 9, 2014 by hrsetrdr
	ALT/AST (Preview) Due to a mix-up (again) my lab order for the 4 week test was botched, so I finally went in yesterday which was day 31 of my treatment and the viral load is not ready--of course but should be ready by Friday. This time it is being processed by Quest Diagnostics labs. However, I received my ALT/AST level and c...	skewedButNotBroken	5	1050	Oct 8, 2014 by Milliganus
	One month left (Preview) I have 4 shots of interferon left along with sovaldi and rebetol pills of my 12 week therapy. I got UND at 5 weeks (didn't have chance to test at 4 weeks). However instead of feeling better, I am feeling lethargic, sleepy, tired. It seems my body is exhausted of medicines or these are the signs of advanced...	Doni	4	1251	Oct 8, 2014 by Isiscat2011
	Sovaldi/RIBA 6 days left and going nuts! Venting. (Preview) Ok, you'd think it would be simple to finish up 6 more days. But I swear I feel like I'm getting closer to the edge with every passing hour. Erratic mood swings (more low than high); more fatigue, itchy, sad, bored and considerable disinterest in life itself. Since the virus is being eradicated, why do I...	anurse1985	4	962	Oct 8, 2014 by Huey
	Sovaldi/Olysio Side Effects ( 1 2 ) (Preview) Hi everybody, I'm on day 17 of the Sovaldi/Olysio combo and experiencing a few side effects. Mainly dry mouth, not much appetite, mild joint and headaches and some insomnia. The side effects are nothing compared to the pega/riba that I went through 10 yrs ago but was curious as to what, if any side ef...	Mark Y	81	23111	Oct 6, 2014 by wmlj1960
	Day 7 of Treatment with Solvadi and Olysio (Preview) I am on Day #7. I woke up with a significant rash on my chest this morning and itch a lot. I am thinking it is just the toxins. I also have really increased upper right quadrant pain. I know this is my liver, but I haven't had this much discomfort bordering on pain for quite a while. I would love some feedba...	Jeanno	2	756	Oct 6, 2014 by Jeanno
	Day Six with Solvaldi and Olysio and feeling better all the time (Preview) The first few days were kind of tough adjusting but today I feel so much better. I made a healthy breakfast and lunch. My appetite for healthy foods had been kind of dulled. Yeah!!! Here's to SVR and great health and vitality. http://extremehealthwarrior.blogspot.com/	Jeanno	4	947	Oct 6, 2014 by Jeanno
	UNDETECTED AFTER ONLY 6 DAYS ON SOVALDI AND OLYSIO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! (Preview) A couple of days ago I asked Dr. Paul Martin's nurse (Nabiha Sanchez) to ask the doctor if he would order a viral load test for me because I feel so much better. She said that he probably would not order it because BCBS had authorized a 4 week viral load test and they would not pay for it. I told her that since m...	skewedButNotBroken	20	2336	Oct 6, 2014 by Jeanno
	Latest MRI Final Report (Preview) This was done Wed 10-1-14 and it says the comparison is in reference to a CT scan I had 1-17-14, which I don't the printout of, yet. Also I included the MRI final report from 3 months ago 7-7-14, also compared to 1-17-14 abdominal ultrasound and CT abdomen. I won't see my hepatologist until Tues. I don't u...	wmlj1960	4	994	Oct 5, 2014 by Dzdayscomin
	Started Solvaldi/Olysio 12 Treatment - Anyone else on just these 2? (Preview) I have a great medical team and approaching this from a integrated treatment approach. My Tx is being handled by a third party pharmacy which delivers my meds and answers my questions about side effects. Prior to shipping my first month's meds, they called and went over every supplement I am on and was...	Jeanno	3	937	Oct 4, 2014 by skewedButNotBroken
	Week 48!!! (Preview) Hi there all Its been a very long time since I posted...... Im now in week 48 and on Monday I took my 48 INF shot which was then rammed into the yellow box with the other partners in crime and the lid shut firmly.... the Riba finishes at 1800 hrs on Sunday so a little bit more to go...its been a tough journey, mo...	globetrotter	14	1451	Oct 3, 2014 by Matt Chris
	Ways to remind self to take meds, please post the things that help you. (Preview) I take meds 3x per day (9am,3pm,9pm) and I use the alarm on my cell phone mostly as a reminder, but also have 2 alarm clocks and use notes on my TV remote, car keys, and fridge. But yesterday I was napping at 3pm and my cell phone had a shirt covering it and the 2 alarm clocks are set for 9am,9pm only. So I was abo...	wmlj1960	9	1682	Oct 2, 2014 by TazKat
	Is this RVR? (Preview) I started triple therapy with Sovaldi/Pegintron/Rebetol on 15th August. On 28th September I took HCV RNA test and got result <15 UI/mL. The report says: No measurable signal - no HCV RNA detected! I am so happy the treatment is working on me, but I was wondering if this is considered RVR with respec...	Doni	5	1210	Oct 2, 2014 by skewedButNotBroken
	Solvadi & Olysio Relapse?? (Preview) Hi all, I was somehow able to get my medication extended for 24 weeks instead of the 12. I had read that there were higher SVR rates at 24 weeks. Anyway, I am at around 16 weeks and got a call from the nurse from my doctors office. She was just checking in and wanted to make an appointment for me when the treat...	BobK	35	2920	Sep 30, 2014 by darkstar
	Last of the Boceprvirians (Preview) And the telaprevirans too ! Had a discussion with my nurse today during which she informed me that she was ditching her old DAAs and commencing Simeprvir. Sometime next month apparently. So had I known when I started Victrelis triple I could have waited and had a tx duration of 24 weeks rather than 48...	Paul B	11	1539	Sep 30, 2014 by Paul B
	HELP! Confused about Viral Load --please chime in Mallani (Preview) Please see the document below. It says I'm still detected but it is below the quantification range which is 15 to 100,000,000. What the heck does that mean? Did the technician see a few of the devils floating around but could not accurately count them? Or does it mean something entirely different. The...	skewedButNotBroken	7	1020	Sep 29, 2014 by mallani
	Feeling better (Preview) I am starting to feel better and know that my bloods have improved. I need to reduce my Child-Pugh level from 7 as this is too high. I haave been signed off work until next January which gives me time to build up my strength. As I teach in a college the likehood of catching a bug which escalates to somethi...	dragonfly	1	676	Sep 29, 2014 by Dzdayscomin
	Sides (Preview) Please if anyone is in the same regime as me in the UK don't be afraid to see your consultant if there are adverse effects. They will not take you off I nearly delayed too long because of this. Because they are monitoring everyone they know that 3 people (of whom I'm one) have exactly the same bloods, I n...	dragonfly	1	931	Sep 25, 2014 by Cinnamon Girl
	3 months post treatment: Very afraid (Preview) Hi All, I am posting after a long time. Hope all of you are doing well. I see many member are undergoing treatment without interferon. Hope they are all doing well. Do any of you believe that you acquired HCV from sex? Because I had a sexual exposure with a CSW in August 22013. I checked my AST, ALT and Bilr...	mindovermatter	4	910	Sep 24, 2014 by Huey
	"Hey" Everybody on Sovaldi + Ribavirin!!! ( 1 2 ) (Preview) I thought it would be great if everybody on Sovaldi + Ribavirin had a single thread to post in. I'm into Week 5 of 24 now. SFV (Stupid Freaking Virus) was undetectable at 2 weeks. Yeah! Do most patients respond this fast? I'll attach two charts that show my labs b4 starting tx, and then at 2 & 4 weeks fo...	Mila	65	7853	Sep 23, 2014 by Dzdayscomin
	12 weeks EOT results are in! (Preview) Great news... I cried tears of joy! My doc just called said there were no signs of the virus found. I couldn't be happier. I have to say I was prepared for the worst considering the Q80k thing I "had" but the S/O kicked its butt too! I'm so happy right now.. My prayers have been answered!	Dee Dee	2	825	Sep 18, 2014 by Dee Dee
	Second time around geeeeeeeeeeeeeeeeeeeeeeeeeeeez!!!!!!!!! (Preview) This is my second time to be treated first time viral load was 2,135,032 genotype 1a/1b with stage four cirrhosis and was placed on peginterferon alfa-2a, ribavirin, and incivek. the next 12 months sucked......HARD. about 6 months ago I started feeling pressure in the right upper abdomen by the ti...	theotherguy	2	819	Sep 17, 2014 by hrsetrdr
	Garbage in, Garbage out -- I'm very disappointed :( (Preview) By trade, I'm a computer programmer and I also teach computer programming. One of the first things that a programming student learns is that the output for the program will be no more accurate than the data that is input into it--hence the phrase: Garbage in, Garbage out. Well a few days a go I got a call f...	skewedButNotBroken	5	1228	Sep 17, 2014 by Isiscat2011
	Un-motivated, angry, lazy, and eating everything in sight! Is it the treatment or an excuse? (Preview) So this is a rant. I Want to share that from the start so people will be forewarned. It probably sounds childish and whiny, but the fact is I have no one else to be childish and whiny with, lucky you.The first few days of treatment were pretty benign, slight headache after morning dose that only lasted an h...	anurse1985	6	1368	Sep 16, 2014 by Groupergetter
	Funny Riba Rage story (Preview) Yesterday I was out walking on a very public wide path in my city. Lots of people and dogs were out enjoying the evening. A skateboarder comes up behind me and was talking loudly to his friend. I turned and YELLED at him to go to the other side of the path! It just flew out of my mouth with no filter involved....	pizzacake	10	2140	Sep 16, 2014 by Tig
	riba rage (Preview) thanks to all who have spoken about riba rage im 20+ days into sofosbuvir / riba 1200mg and fliped out tonite It came on so fast, I cant belive the way i was shouting. However i soon relized what was going on and relaxed and soon was back to my old self. Thanks to this forum i was able to see what and why it wa...	robertsamx	4	1608	Sep 15, 2014 by thepoet
	hair is still falling out (Preview) been off treatment since july 17th. hair is still falling out at a rapid pace.. could this be from meds???? interferon?? it sure is a drag after every shower to see it all. I can't even really brush it. just put it up & weather the storm. I got some motivator for scalp from a hairdresser friend of mine...	TazKat	5	1529	Sep 14, 2014 by thepoet
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