Hep C Discussion Forum

Lighthouse · Lighthouse

I am geno 1 ...starting my third month Savoldi an RIBA been eating to much was afraid I was gaining weight but when I step on scale I had lost weight. Is this normal?

Thom · Thom

I went to my Doctor today. He wrote the prescriptions for my treatment. I will return Friday afternoon and his Medical Assistant will have obtained the drugs and will instruct me on how to inject the peginterferon. I will have ribavirin and Sovaldi as well. HCV genotype 1

pizzacake · pizzacake

Today I feel extraordinarily lucky and sad. A very close friend will likely die, today or tomorrow, due to end-stage liver disease as a result of Hep C and drinking. He didn't do enough about the Hep C until it was too late. I have a shot at a second chance but he doesn't. Watching him go through this rem...

patiently_waiting · patiently_waiting

I'm really agitated right now with my doctor's office and I'm hoping I can get some confirmation from knowledgeable people here that I'm not crazy. I've had two PCR tests thus far during my treatement: one at 2 weeks and one at 4 weeks. Both tests had this result:HCV RNA IU/ML<15 IU/mL<15 DETEC...

Lon · Lon

Hello, I had my MRI today and I'm meeting with my Gastro next month to start on the new non-Interferon combo treatment that Gilead and Bristol Meyer have out (I think that's them). It will just be the 12 weeks of pills without the Interferon. I feel pretty good now except for the foggy mind and constant...

Crysmel · Crysmel

New to the Forum, wanted to vent what I am going through with the S/O treatment. Actually it is not compared to the first treatment in 2005, which I did not finish, I was so sick my Dr. took me off the treatment. I am starting my 6th week, taking the 2 pills daily, week 4 my VL went from mls to 35,(good sign) my...

TazKat · TazKat

I have been feeling still crappy. my back for number 1. sciatic (sp) nerve pressing down. muscles ache a lot, don't know if that is body trying to get back to normal whatever that is. lol want energy back so bad. I know it will come in time. I have only been off treatment for 3 weeks. I just wish it would hurr...

hepcinbama · hepcinbama

ok I saw where as a hep c person I should not use anyone else's toothbrush ,not that I would cause I wouldn't but I get it because the blood my gums tend to bleed when I brush my teeth anyway here's the question can I re-infect myself with my blood using my toothbrush or nail clippers or any item you are not sup...

thepoet · thepoet

It's 2:54am and I once again cannot fall asleep. I know that the lack of sleep is leading to my increasing irritability. I just came back from Plymouth MA, on the ocean near Cape Cod and I should be as relaxed as a bump on a log, but I am not. I broke down the other day and took some Benadryl because I was so desp...

Doni · Doni

I guess this question is not worth creating a topic but I am breaking my head on this one. I recently bought very good quality hairclippers, I guess I should get rid of them as soon as I start treatment? Also I cut my baby's hair once with it which freaked me out when I found out clippers can also transmit the...

patiently_waiting · patiently_waiting

I'm on sov/oly/riba and have developed a little rash on my right shin. It's not really bothering me that bad but thought I should check it out. I read about how some rashes can turn into something serious so thought I should check into it a little more. Anyone else have this? (see attached image)

jrobertson8919 · jrobertson8919

Hi all, I'm new here and I'm Josh from North Carolina. I have strain 2 of Hepatitis C and my GI doc prescribed Sofosbuvir and Ribivarin. A company called Avella Speciality Pharmacy in Arizona filled my medicine and it was totally free through a nonprofit organization (which I'd have to find the name of...

tgcd78 · tgcd78

I am currently on the S/O combo, no Riba. I have two weeks left of treatment. For the first two months I took my meds at 8:10am every morning with food. In my last month I have been extremely busy with work and family and have not been as good about taking my medicine at the same time of day. I always take i...

Doni · Doni

Just got all my medication today. Decided to start treatment next week though, bygetting interferon shot every Friday, and I am travelling this Saturday. I have only noticed that Ribavirin capsules that pharmacy gave me for 3 months have expiry of October 2014. If I start taking drugs on 15 August...

Huey · Huey

I guess I could call this my State of the Liver Address. lol/ The liver core biopsy, specimen B, contains two cores of hepatic parenchyma and one small core fragment of benign smooth muscle.No significant steatosis is seen.The portal areas are expanded by a mild chronic inflammatory infiltrate, pr...

Huey · Huey

Next week I will be in the post treatment arena I have deceided to delay the EOT Test for four weeks, later. This should expose any relapse. see you at the Post. /We are all in this together Keep your stick on the ice.;Red Green Show;

thepoet · thepoet

Hey Yall' Is anyone having the above sides? I started having these painful pimples on my stomach a couple weeks ago. They have no puss inside, but they hurt like the dickens. Today I noticed painful lymph node under my right jaw. What's up??? Somebody please give me some info...thanks.

libgirl07 · libgirl07

My 4 week labs aren't bad but my wbcs dropped to 1.54. My doc wants me to lower interferon to 140mcg and go from 3 rib in am n 2 at night to 2 in am 2 at night. I'm scared to lower my dosages. I relapsed last time on beceprevir lowering my rib. Anyone have any input please

wmlj1960 · wmlj1960

I'm feeling fatigued, have major abdominal pain issues and moderatly depressed, so I'm not in a good mood to do 'search' very much. What I would like to know is would it be a good idea to have decaying teeth (probably 4) pulled this coming Friday 8-1-14. I have read that decaying teeth can be a bad thing wh...

Paul B · Paul B

In cases where the virus has been cleared during treatment, would it be reasonable to conclude that from that point the liver is no longer being damaged, and is in fact already undergoing regeneration ?

hepcinbama · hepcinbama

this Friday I will take my shot number 8 of 12 an I got a call from my dr saying im testing negative for hep C I have been taking solvaldi ribavirin an inerfuron since jun 11 an now its gone I must complete my treatment for 5 more weeks an then come back in 6 months to see if the virus has returned or if im hep c-ure...

mindovermatter · mindovermatter

Dear All, As some of you on this forum might be knowing, I was diagnosed with GT 3. I have taken the 24 week peg interferon and Ribavarin treatment and I was undiagnosed at weeks 4, 12 and EOT. I took a CBC and LFT yesterday, 1.5 months after the end of treatment and my LFT was normal. WBC was at 7.1 while lymph...

Huey · Huey

Hi everyone, I have been in the Hospital since Monday, The surgery got messed up, They had to go back in through my common bile duct and put in a stint. This whole episode was vary vary painful, I was on 25cc morphine IV push for the first day, That went down to as much as 4cc the 2ed, depending, The last day I...

thepoet · thepoet

I am truly grateful to be UNDETECTED going into week 11. Today is an amazing day. I'm experiencing no sides today...just feeling MARVELOUS! However, I am curious to know the relapse rate.

bunyaminmd · bunyaminmd

I am at third day (about 48 hours) on thriple tx with incivo.First night, (8 hours after injection) : I chilled for 2 hours and it has past. At second day i had little muscle and joint pains. And now at third day. I have about NOTHING. is it normal? I am confused about tx is working or not???

TazKat · TazKat

Wooooohooooooo... go back oct 9 for 12 week labs ct scan in sept & back to doc oct 24th.. THANH YOU GOD! & all of you!!!!!!

bluegene · bluegene

To everyone about to start riba/interferon with or without oral drugs: the risk greatly outweighs any potential gain, regardless of the golden Sovaldi as a kicker. Im not speaking from experience, but rather extensive research and first hand testimonies from multiple sources. Im 9 days into the...

drexelpbp · drexelpbp

http://hcrenewal.blogspot.com/2014/07/sovaldi-quantum-leap-backwards-to-days.htmlAs we noted earlier, the two real randomized controlled trials of sofosbuv...

Enavigo3891 · Enavigo3891

I was so excited when I realized it was Wednesday and Law & Order SVU is on! Waited until about 9:30 to go watch it (so I could fast forward through commercials) ... get into the living room, can't for the life of me figure out why the dish won't turn on... got off the couch to do it manually, still nothin...

wmlj1960 · wmlj1960

I took my 1st Sov/Riba this AM and Riba night dose an hour ago. I have no idea if I'm going to have Sx's related to Sov/Riba in part because I'm still having Sx's from starting new HIV Rx 7-18-14 but mostly because I was in so much pain today from not taking enough Lactulose. I've been having constipation is...

Topic		Started By	Replies	Views	Last Post
	Losing weight....savoldi an RIBA (Preview) I am geno 1 ...starting my third month Savoldi an RIBA been eating to much was afraid I was gaining weight but when I step on scale I had lost weight. Is this normal?	Lighthouse	9	1688	Aug 18, 2014 by Huey
	Starting treatment Friday (Preview) I went to my Doctor today. He wrote the prescriptions for my treatment. I will return Friday afternoon and his Medical Assistant will have obtained the drugs and will instruct me on how to inject the peginterferon. I will have ribavirin and Sovaldi as well. HCV genotype 1	Thom	29	1533	Aug 17, 2014 by Thom
	Please consider treatment! (Preview) Today I feel extraordinarily lucky and sad. A very close friend will likely die, today or tomorrow, due to end-stage liver disease as a result of Hep C and drinking. He didn't do enough about the Hep C until it was too late. I have a shot at a second chance but he doesn't. Watching him go through this rem...	pizzacake	3	818	Aug 16, 2014 by pizzacake
	Please help... (Preview) I'm really agitated right now with my doctor's office and I'm hoping I can get some confirmation from knowledgeable people here that I'm not crazy. I've had two PCR tests thus far during my treatement: one at 2 weeks and one at 4 weeks. Both tests had this result:HCV RNA IU/ML<15 IU/mL<15 DETEC...	patiently_waiting	29	1366	Aug 15, 2014 by Huey
	New Treatment Side Effects, What to expect (Preview) Hello, I had my MRI today and I'm meeting with my Gastro next month to start on the new non-Interferon combo treatment that Gilead and Bristol Meyer have out (I think that's them). It will just be the 12 weeks of pills without the Interferon. I feel pretty good now except for the foggy mind and constant...	Lon	6	921	Aug 14, 2014 by Tig
	S/O treatment (Preview) New to the Forum, wanted to vent what I am going through with the S/O treatment. Actually it is not compared to the first treatment in 2005, which I did not finish, I was so sick my Dr. took me off the treatment. I am starting my 6th week, taking the 2 pills daily, week 4 my VL went from mls to 35,(good sign) my...	Crysmel	1	682	Aug 13, 2014 by sandypsych
	hey guys. been feeling yuk, so not been in here much (Preview) I have been feeling still crappy. my back for number 1. sciatic (sp) nerve pressing down. muscles ache a lot, don't know if that is body trying to get back to normal whatever that is. lol want energy back so bad. I know it will come in time. I have only been off treatment for 3 weeks. I just wish it would hurr...	TazKat	10	1022	Aug 12, 2014 by TazKat
	stupid question time! (Preview) ok I saw where as a hep c person I should not use anyone else's toothbrush ,not that I would cause I wouldn't but I get it because the blood my gums tend to bleed when I brush my teeth anyway here's the question can I re-infect myself with my blood using my toothbrush or nail clippers or any item you are not sup...	hepcinbama	26	1528	Aug 11, 2014 by Marypetrecz
	Any Insomniacs Awake? (Preview) It's 2:54am and I once again cannot fall asleep. I know that the lack of sleep is leading to my increasing irritability. I just came back from Plymouth MA, on the ocean near Cape Cod and I should be as relaxed as a bump on a log, but I am not. I broke down the other day and took some Benadryl because I was so desp...	thepoet	8	986	Aug 10, 2014 by thepoet
	Hair clippers? (Preview) I guess this question is not worth creating a topic but I am breaking my head on this one. I recently bought very good quality hairclippers, I guess I should get rid of them as soon as I start treatment? Also I cut my baby's hair once with it which freaked me out when I found out clippers can also transmit the...	Doni	1	1785	Aug 9, 2014 by Cinnamon Girl
	Rash (Preview) I'm on sov/oly/riba and have developed a little rash on my right shin. It's not really bothering me that bad but thought I should check it out. I read about how some rashes can turn into something serious so thought I should check into it a little more. Anyone else have this? (see attached image)	patiently_waiting	23	1678	Aug 8, 2014 by Scruffy
	Sofosbuvir and Ribivarin Treatment (Preview) Hi all, I'm new here and I'm Josh from North Carolina. I have strain 2 of Hepatitis C and my GI doc prescribed Sofosbuvir and Ribivarin. A company called Avella Speciality Pharmacy in Arizona filled my medicine and it was totally free through a nonprofit organization (which I'd have to find the name of...	jrobertson8919	34	3791	Aug 7, 2014 by wmlj1960
	Treatment: time of Day and with food - Consistency (Preview) I am currently on the S/O combo, no Riba. I have two weeks left of treatment. For the first two months I took my meds at 8:10am every morning with food. In my last month I have been extremely busy with work and family and have not been as good about taking my medicine at the same time of day. I always take i...	tgcd78	2	750	Aug 6, 2014 by Fireman Rob
	Ribavirin expiry in October (Preview) Just got all my medication today. Decided to start treatment next week though, bygetting interferon shot every Friday, and I am travelling this Saturday. I have only noticed that Ribavirin capsules that pharmacy gave me for 3 months have expiry of October 2014. If I start taking drugs on 15 August...	Doni	4	998	Aug 6, 2014 by Huey
	Got the Low Down on the biopsy, (Preview) I guess I could call this my State of the Liver Address. lol/ The liver core biopsy, specimen B, contains two cores of hepatic parenchyma and one small core fragment of benign smooth muscle.No significant steatosis is seen.The portal areas are expanded by a mild chronic inflammatory infiltrate, pr...	Huey	13	1266	Aug 5, 2014 by Huey
	This Is my last week "On Treatment" (Preview) Next week I will be in the post treatment arena I have deceided to delay the EOT Test for four weeks, later. This should expose any relapse. see you at the Post. /We are all in this together Keep your stick on the ice.;Red Green Show;	Huey	6	774	Aug 5, 2014 by Huey
	Painful Pimples & Lymph Nodes (Preview) Hey Yall' Is anyone having the above sides? I started having these painful pimples on my stomach a couple weeks ago. They have no puss inside, but they hurt like the dickens. Today I noticed painful lymph node under my right jaw. What's up??? Somebody please give me some info...thanks.	thepoet	4	1301	Aug 5, 2014 by Scruffy
	low wbcs on solvadi peg n rib they want mw to decrease (Preview) My 4 week labs aren't bad but my wbcs dropped to 1.54. My doc wants me to lower interferon to 140mcg and go from 3 rib in am n 2 at night to 2 in am 2 at night. I'm scared to lower my dosages. I relapsed last time on beceprevir lowering my rib. Anyone have any input please	libgirl07	14	1160	Aug 4, 2014 by libgirl07
	Day 6 on Sov/Riba - Fatigue, Diarrhea, Depressed... Dental extractions Friday? (Preview) I'm feeling fatigued, have major abdominal pain issues and moderatly depressed, so I'm not in a good mood to do 'search' very much. What I would like to know is would it be a good idea to have decaying teeth (probably 4) pulled this coming Friday 8-1-14. I have read that decaying teeth can be a bad thing wh...	wmlj1960	11	1517	Aug 2, 2014 by wmlj1960
	The liver during treatment. (Preview) In cases where the virus has been cleared during treatment, would it be reasonable to conclude that from that point the liver is no longer being damaged, and is in fact already undergoing regeneration ?	Paul B	6	1125	Aug 2, 2014 by Huey
	this friday will be my 8th shot an my hep c is gone! (Preview) this Friday I will take my shot number 8 of 12 an I got a call from my dr saying im testing negative for hep C I have been taking solvaldi ribavirin an inerfuron since jun 11 an now its gone I must complete my treatment for 5 more weeks an then come back in 6 months to see if the virus has returned or if im hep c-ure...	hepcinbama	5	787	Aug 2, 2014 by Huey
	Very Scared : Mallani and other experts, your views please (Preview) Dear All, As some of you on this forum might be knowing, I was diagnosed with GT 3. I have taken the 24 week peg interferon and Ribavarin treatment and I was undiagnosed at weeks 4, 12 and EOT. I took a CBC and LFT yesterday, 1.5 months after the end of treatment and my LFT was normal. WBC was at 7.1 while lymph...	mindovermatter	5	987	Aug 2, 2014 by mallani
	4 Days , (Preview) Hi everyone, I have been in the Hospital since Monday, The surgery got messed up, They had to go back in through my common bile duct and put in a stint. This whole episode was vary vary painful, I was on 25cc morphine IV push for the first day, That went down to as much as 4cc the 2ed, depending, The last day I...	Huey	7	964	Aug 2, 2014 by Huey
	What is the relapse rate with the Sovaldi / Ribaviron 24 week protocol? (Preview) I am truly grateful to be UNDETECTED going into week 11. Today is an amazing day. I'm experiencing no sides today...just feeling MARVELOUS! However, I am curious to know the relapse rate.	thepoet	5	1430	Jul 30, 2014 by thepoet
	Not much side effects. Is it bad? (Preview) I am at third day (about 48 hours) on thriple tx with incivo.First night, (8 hours after injection) : I chilled for 2 hours and it has past. At second day i had little muscle and joint pains. And now at third day. I have about NOTHING. is it normal? I am confused about tx is working or not???	bunyaminmd	12	1084	Jul 29, 2014 by Paul B
	Went to Doc.. Yes I am clear!!!! (Preview) Wooooohooooooo... go back oct 9 for 12 week labs ct scan in sept & back to doc oct 24th.. THANH YOU GOD! & all of you!!!!!!	TazKat	23	1120	Jul 27, 2014 by maddie
	Golden Wizard of O-S (Preview) To everyone about to start riba/interferon with or without oral drugs: the risk greatly outweighs any potential gain, regardless of the golden Sovaldi as a kicker. Im not speaking from experience, but rather extensive research and first hand testimonies from multiple sources. Im 9 days into the...	bluegene	21	1469	Jul 25, 2014 by mallani
	INTERESTED TO HEAR COMMENTS ON THIS ARTICLE (Preview) http://hcrenewal.blogspot.com/2014/07/sovaldi-quantum-leap-backwards-to-days.htmlAs we noted earlier, the two real randomized controlled trials of sofosbuv...	drexelpbp	9	1010	Jul 25, 2014 by HR
	Riba rage in full bloom like the spring time flowers! (Preview) I was so excited when I realized it was Wednesday and Law & Order SVU is on! Waited until about 9:30 to go watch it (so I could fast forward through commercials) ... get into the living room, can't for the life of me figure out why the dish won't turn on... got off the couch to do it manually, still nothin...	Enavigo3891	11	1558	Jul 25, 2014 by pizzacake
	SOT today - Sx's? Lactulose lesson learned (Preview) I took my 1st Sov/Riba this AM and Riba night dose an hour ago. I have no idea if I'm going to have Sx's related to Sov/Riba in part because I'm still having Sx's from starting new HIV Rx 7-18-14 but mostly because I was in so much pain today from not taking enough Lactulose. I've been having constipation is...	wmlj1960	0	824	Jul 24, 2014 by wmlj1960
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