Hep C Discussion Forum

Enavigo3891 · Enavigo3891

Today is day 29 which means this morning I was "poppin' bottles" .... of Riba and Sovaldi that is!!! Onto the next 28 days I go.... Just got home from my Week 4 Check-In with the liver doc. He walked in the room just as I was chugging from the extra large jug of water I travel with these days; it ma...

mindovermatter · mindovermatter

Dear All, I am done with 12 weeks of peg interferon ribavarin treatment. I have now started experiencing neutropenia (150) Range 200 to 700). My monocyte % is also rising over the weeks it is now at 11%. I am upset. I know that many people experience low neutrophil counts during treatment. But I do no...

Dee Dee · Dee Dee

My Doc just told me (via voicemail, missed his call) that I do have the NS3 Q80K and that I shouldn't worry because he was going to have me do my treatment just as planned. He said it just meant that if I were to stop doing my treatment the virus could become more resistant. From what I read having this lower...

Enavigo3891 · Enavigo3891

Happy monday! So this evening marks my official halfway point. At 7:15pm this evening I will take my evening Riba which will conclude my first 6 weeks of treatment! The Riba, those blasphemous little pink pills, are starting to annoy me. I've got riba rash in my cleavage!! Fellas, I don't expect you t...

Gracie · Gracie

So, who has had problems with joint pain, how long did it last and does it go away after treatment? My hips and shoulders (between my shoulder blades) have been aching since yesterday and I mean aching! Been taking Tylenol for arthritis which seems to help. Is this from the incevik? Don't remember hav...

Gracie · Gracie

Well, I am finally rid of the little purple pills. Took the Elusive Three that I missed a couple of weeks ago this morning. Maybe its mental, but I sure feel great today. The sun is out, I got a new hair cut, went to MacDonalds for an Egg McMuffin, and am going to the show this afternoon with my niece and siste...

globetrotter · globetrotter

Hi all Does anyone have any suggestions for a constantly sore mouth, sides of mouth and really sore throat...had more or less since starting the Triple but getting to a point of complete irritation with it now...husband prefers it I think as it keeps me quieter

Loopy Lisa · Loopy Lisa

I just came back from the hospital, and apart from a rise in ASAT all is normal. It was disappointing that the it is not sorted in the Netherlands for Sofosbivr, it is still going through paper channels and unless it is life or death everyone else has to wait. Over here for a course it will cost 30 thousend E...

Lon · Lon

Hello, Has anyone heard of any updates on when the interferon free drug combo was going to be available for the general public? Thanks, Lon

Caryn · Caryn

I was told at my appt. in the middle of Feb. that I would be starting this combo. I was also told it would take 4-6 weeks before I heard anything from my specialty pharmacy. It's been 5 weeks and I still have not heard from them. I called my nurse and she said that they pharmacies are very busy because so may pe...

aprileee · aprileee

8 weeks and still undetected......I <3 SOVALDI :))

Roxie · Roxie

Last week right before my 4 week blood draw last Friday, my temper went off the charts, complete with enough rage for pounding blood pressure and my head feel like it would blow up. Friday after the blood draw, I received a call from my doctor that I had anemia and should reduce my ribasphere to 800 m...

Dee738 · Dee738

I literally crossed my fingers before I clicked the link for my test results. I can't believe how thrilled I am! I'm so happy for all of us who are responding to this treatment so well. It really is an amazing time. My hemoglobin levels have held up well. A smaller drop from week 2.5 - 5 than from baseline to...

Enavigo3891 · Enavigo3891

Happy Friday all! Got a chipper voicemail from my liver PA this afternoon - my 4 week VL came back UNDETECTABLE!!! He said that all my liver enzymes looked good - my WBC count is still high but it's steady at 12 which is what it was on 2/28/14. I'm still not convinced that it's not related to the treatment...

Mark Y · Mark Y

Hi everybody, just received my week 3 viral count and wanted to share this with everybody that's on the Sovaldi/Olysio combo, I'm undetected after 21 days! Started at 3.7 million, went to 244 after 7 days and now undetected. I'm feeling very grateful and wanted to wish everybody else the same succes...

jenjen · jenjen

I posted last Sunday about my appointment with the DR discussing the new treatmentwellI get my meds tomorrow and because of scheduling am starting Treatment Tuesday! Insurance quickly approved it and got the call today that they were sending it. I pray everyone who has hopes to begin treatment wil...

AngieV123 · AngieV123

I went to take my interferon and removed the cap off my auto injector and it was leaky. It stopped leaking and seemed fine but I took out another injection to use tonight instead. Just wondering if it's happened to anyone else and if it's a faulty pen or what? Hoping the pharmacy will replace it.

TimS44 · TimS44

Hi All, My week 4 test came in today @ <43 and I have to admit I'm.... disappointed? Is that being unrealistic? I went from 37 million to 138 in 2 weeks. I just assumed, as did my Dr, I would UND this week. Makes me wonder what happened? The lower RIba dose? Am working too much/hard/not getting enough re...

Barnacle · Barnacle

I got my Rx approved Sovaldi/Simeprevir today. Between the 2 drug companies and my work health insurance my cost is $0.00CDN I will do baseline bloodwork/VL and then start Wednesday. That is one week since the financial assistance went in through Gilead and Jannsen The Canadian program for assista...

Gracie · Gracie

The RIBA rash has creeped onto my back. The itch that I can't reach is driving me nuts! Does the RIBA rash come and go, or am I going to have to put up with it for the entire treatment? I need to invest in a back scratcher, if my brain fog will allow me to actually remember that while I'm out so I can pick one up......

Roxie · Roxie

Possibility I could be in a ribarage, but my second Pegasys delivery that was supposed to come first thing this morning arrived late this afternoon. (I'm a little wound up right now). Temperature inside the box of 4 proclicks is 70 degrees. Insert says to store at 36 - 46 degrees. Should I make spec...

aprileee · aprileee

Hello everyone....I just have a quick question....what do you all eat when you take your Ribavirin? I take mine at 10am and 10pm. I got a little carried away there in the beginning, basically cooking myself a second dinner at 10pm every night so I gained a bit of weight but I'm starting to lose my appeti...

jimbob · jimbob

For those of you taking Sovaldi, do you find it better to take it in the mornings or evenings?

lauralou57 · lauralou57

I desperately need to get a recommendation for a good hepatitis C doctor in the Washington, DC metropolitan area - District of Columbia, Virginia or Maryland. I am in a clinical trial in Baltimore, Maryland but I need my own hepatitis C doctor. I would truly appreciate any recommendations!

Scruffy · Scruffy

For all the 48 triple tx ppl. I have 9 weeks left. I'll give ya's a run down on how it went so far as I've been asked. At first we start out jogging down the tx path. I was on incivek. I was anemic at week 7 and had to get three transfusions and still on procrit but I was still jogging along. My "jog" st...

Gracie · Gracie

As you can see from my avatar, I am not having a good week. Now I know why. Platelets 44, ANC .5 .... I've been tired, cranky, blah feeling, dizzy and all around not very fun to be with! And random bruises keep appearing! Two more weeks of Incevik and praying for higher blood counts. This stuff is nasty .......

Gracie · Gracie

Well, just got the news. I am negative for hep c as of week 8. This has given me some renewed energy and hope! Now.... To keep it that way!

hepcsurvivor · hepcsurvivor

Hello People, I'm about 5 weeks into TX and my blood levels are falling. Sorry this is hard to read, its a copy paste. I think each lists my numbers, followed by the normal range. So for Hemoglobin I am at 10.6 for example. I did go UND after my 1st monthly, so I know the Sovaldi/Riba (1200mg) is working. I fe...

TazKat · TazKat

went to doc today. they are going to do paperwork to treat me with solvadi. the other one i can't do as she said it was in the family of the protease inhibitor. so the sovaldi interfereon & riba. they will decrease the riba 1/2 of the normal. so waiting to see what happens. it could be 2 months or so b4 i ca...

Dee738 · Dee738

I'm two days into week 5 of Sovaldi/RIBA treatment, and I'm noticing a general lifting of negative mood. I just feel more "glass half full." 40 years in a bad mood. Do I get to be happy starting in my 60th year? I'll take it! Check out this 2009 study on emotional distress and HCV: http://www....

Topic		Started By	Replies	Views	Last Post
	Week 4 Check in (Preview) Today is day 29 which means this morning I was "poppin' bottles" .... of Riba and Sovaldi that is!!! Onto the next 28 days I go.... Just got home from my Week 4 Check-In with the liver doc. He walked in the room just as I was chugging from the extra large jug of water I travel with these days; it ma...	Enavigo3891	13	1370	Mar 27, 2014 by AngieV123
	Experiencing neutropenia: feeling upset (Preview) Dear All, I am done with 12 weeks of peg interferon ribavarin treatment. I have now started experiencing neutropenia (150) Range 200 to 700). My monocyte % is also rising over the weeks it is now at 11%. I am upset. I know that many people experience low neutrophil counts during treatment. But I do no...	mindovermatter	17	1947	Mar 27, 2014 by mindovermatter
	Q80K NS3 polymorphism (Preview) My Doc just told me (via voicemail, missed his call) that I do have the NS3 Q80K and that I shouldn't worry because he was going to have me do my treatment just as planned. He said it just meant that if I were to stop doing my treatment the virus could become more resistant. From what I read having this lower...	Dee Dee	4	1716	Mar 26, 2014 by Caryn
	Half-way point... doctor tried to kill me :-) (Preview) Happy monday! So this evening marks my official halfway point. At 7:15pm this evening I will take my evening Riba which will conclude my first 6 weeks of treatment! The Riba, those blasphemous little pink pills, are starting to annoy me. I've got riba rash in my cleavage!! Fellas, I don't expect you t...	Enavigo3891	1	1071	Mar 24, 2014 by Larry2384
	Sore Hips and Shoulders ... Newest symptoms arrive (Preview) So, who has had problems with joint pain, how long did it last and does it go away after treatment? My hips and shoulders (between my shoulder blades) have been aching since yesterday and I mean aching! Been taking Tylenol for arthritis which seems to help. Is this from the incevik? Don't remember hav...	Gracie	9	1217	Mar 22, 2014 by AngieV123
	THE ELUSIVE THREE ... The Last of the Purple Pills (Preview) Well, I am finally rid of the little purple pills. Took the Elusive Three that I missed a couple of weeks ago this morning. Maybe its mental, but I sure feel great today. The sun is out, I got a new hair cut, went to MacDonalds for an Egg McMuffin, and am going to the show this afternoon with my niece and siste...	Gracie	7	943	Mar 22, 2014 by Terry
	Persistently sore mouth (Preview) Hi all Does anyone have any suggestions for a constantly sore mouth, sides of mouth and really sore throat...had more or less since starting the Triple but getting to a point of complete irritation with it now...husband prefers it I think as it keeps me quieter	globetrotter	6	907	Mar 22, 2014 by globetrotter
	ASAT rise, start treatment the end of this week. (Preview) I just came back from the hospital, and apart from a rise in ASAT all is normal. It was disappointing that the it is not sorted in the Netherlands for Sofosbivr, it is still going through paper channels and unless it is life or death everyone else has to wait. Over here for a course it will cost 30 thousend E...	Loopy Lisa	19	1043	Mar 22, 2014 by Tig
	Any news on the interferon free treatment? (Preview) Hello, Has anyone heard of any updates on when the interferon free drug combo was going to be available for the general public? Thanks, Lon	Lon	3	920	Mar 22, 2014 by Lon
	Waiting for treatment with solvaldi, olysio and ribavirin (Preview) I was told at my appt. in the middle of Feb. that I would be starting this combo. I was also told it would take 4-6 weeks before I heard anything from my specialty pharmacy. It's been 5 weeks and I still have not heard from them. I called my nurse and she said that they pharmacies are very busy because so may pe...	Caryn	2	1255	Mar 21, 2014 by Caryn
	8 week bloodwork (Preview) 8 weeks and still undetected......I <3 SOVALDI :))	aprileee	10	981	Mar 21, 2014 by aprileee
	Anemia and riba reduction week 4 peg/riba/sovaldi (Preview) Last week right before my 4 week blood draw last Friday, my temper went off the charts, complete with enough rage for pounding blood pressure and my head feel like it would blow up. Friday after the blood draw, I received a call from my doctor that I had anemia and should reduce my ribasphere to 800 m...	Roxie	14	1592	Mar 18, 2014 by Gracie
	Undetectable at 5 weeks! Woo-hoo! (Preview) I literally crossed my fingers before I clicked the link for my test results. I can't believe how thrilled I am! I'm so happy for all of us who are responding to this treatment so well. It really is an amazing time. My hemoglobin levels have held up well. A smaller drop from week 2.5 - 5 than from baseline to...	Dee738	11	998	Mar 18, 2014 by Tig
	Joining the club!! 4 week UND!!!! (Preview) Happy Friday all! Got a chipper voicemail from my liver PA this afternoon - my 4 week VL came back UNDETECTABLE!!! He said that all my liver enzymes looked good - my WBC count is still high but it's steady at 12 which is what it was on 2/28/14. I'm still not convinced that it's not related to the treatment...	Enavigo3891	16	1823	Mar 17, 2014 by Dee738
	Week 3 Viral Count Undetected! (Preview) Hi everybody, just received my week 3 viral count and wanted to share this with everybody that's on the Sovaldi/Olysio combo, I'm undetected after 21 days! Started at 3.7 million, went to 244 after 7 days and now undetected. I'm feeling very grateful and wanted to wish everybody else the same succes...	Mark Y	22	2087	Mar 17, 2014 by Dee738
	Beginning treatment in 1 week (Sovaldi/Riba/Interferon) (Preview) I posted last Sunday about my appointment with the DR discussing the new treatmentwellI get my meds tomorrow and because of scheduling am starting Treatment Tuesday! Insurance quickly approved it and got the call today that they were sending it. I pray everyone who has hopes to begin treatment wil...	jenjen	22	2546	Mar 15, 2014 by jenjen
	leaky proclick injector (Preview) I went to take my interferon and removed the cap off my auto injector and it was leaky. It stopped leaking and seemed fine but I took out another injection to use tonight instead. Just wondering if it's happened to anyone else and if it's a faulty pen or what? Hoping the pharmacy will replace it.	AngieV123	11	913	Mar 14, 2014 by AngieV123
	Week 4 VL (Preview) Hi All, My week 4 test came in today @ <43 and I have to admit I'm.... disappointed? Is that being unrealistic? I went from 37 million to 138 in 2 weeks. I just assumed, as did my Dr, I would UND this week. Makes me wonder what happened? The lower RIba dose? Am working too much/hard/not getting enough re...	TimS44	13	1110	Mar 13, 2014 by TimS44
	Happy in Canada (Preview) I got my Rx approved Sovaldi/Simeprevir today. Between the 2 drug companies and my work health insurance my cost is $0.00CDN I will do baseline bloodwork/VL and then start Wednesday. That is one week since the financial assistance went in through Gilead and Jannsen The Canadian program for assista...	Barnacle	5	976	Mar 13, 2014 by Barnacle
	My Kingdom For A Back Scratcher (Preview) The RIBA rash has creeped onto my back. The itch that I can't reach is driving me nuts! Does the RIBA rash come and go, or am I going to have to put up with it for the entire treatment? I need to invest in a back scratcher, if my brain fog will allow me to actually remember that while I'm out so I can pick one up......	Gracie	8	1220	Mar 12, 2014 by AngieV123
	Pegasys delivery late, temp too high? (Preview) Possibility I could be in a ribarage, but my second Pegasys delivery that was supposed to come first thing this morning arrived late this afternoon. (I'm a little wound up right now). Temperature inside the box of 4 proclicks is 70 degrees. Insert says to store at 36 - 46 degrees. Should I make spec...	Roxie	6	810	Mar 12, 2014 by Scruffy
	Eating with Riba (Preview) Hello everyone....I just have a quick question....what do you all eat when you take your Ribavirin? I take mine at 10am and 10pm. I got a little carried away there in the beginning, basically cooking myself a second dinner at 10pm every night so I gained a bit of weight but I'm starting to lose my appeti...	aprileee	15	1048	Mar 11, 2014 by aprileee
	Taking Sovaldi (Preview) For those of you taking Sovaldi, do you find it better to take it in the mornings or evenings?	jimbob	10	2227	Mar 10, 2014 by jimbob
	Recommendation For A Good Hepatitis C Doctor In The Washington, DC Metropolitan Area (Preview) I desperately need to get a recommendation for a good hepatitis C doctor in the Washington, DC metropolitan area - District of Columbia, Virginia or Maryland. I am in a clinical trial in Baltimore, Maryland but I need my own hepatitis C doctor. I would truly appreciate any recommendations!	lauralou57	3	669	Mar 8, 2014 by Tig
	For the 48 weekers (Preview) For all the 48 triple tx ppl. I have 9 weeks left. I'll give ya's a run down on how it went so far as I've been asked. At first we start out jogging down the tx path. I was on incivek. I was anemic at week 7 and had to get three transfusions and still on procrit but I was still jogging along. My "jog" st...	Scruffy	3	729	Mar 8, 2014 by Gracie
	Rough Week (Preview) As you can see from my avatar, I am not having a good week. Now I know why. Platelets 44, ANC .5 .... I've been tired, cranky, blah feeling, dizzy and all around not very fun to be with! And random bruises keep appearing! Two more weeks of Incevik and praying for higher blood counts. This stuff is nasty .......	Gracie	15	962	Mar 8, 2014 by Gracie
	WEEK 8 NEGATIVE... WOOT! (Preview) Well, just got the news. I am negative for hep c as of week 8. This has given me some renewed energy and hope! Now.... To keep it that way!	Gracie	20	1288	Mar 5, 2014 by rebeca
	Looking for strategy to deal with falling Hemoglobin (Riba caused) (Preview) Hello People, I'm about 5 weeks into TX and my blood levels are falling. Sorry this is hard to read, its a copy paste. I think each lists my numbers, followed by the normal range. So for Hemoglobin I am at 10.6 for example. I did go UND after my 1st monthly, so I know the Sovaldi/Riba (1200mg) is working. I fe...	hepcsurvivor	8	1112	Mar 4, 2014 by longld
	soomewhat good news.. (Preview) went to doc today. they are going to do paperwork to treat me with solvadi. the other one i can't do as she said it was in the family of the protease inhibitor. so the sovaldi interfereon & riba. they will decrease the riba 1/2 of the normal. so waiting to see what happens. it could be 2 months or so b4 i ca...	TazKat	6	1222	Mar 4, 2014 by Matt Chris
	Improving mood: glass half full! (Preview) I'm two days into week 5 of Sovaldi/RIBA treatment, and I'm noticing a general lifting of negative mood. I just feel more "glass half full." 40 years in a bad mood. Do I get to be happy starting in my 60th year? I'll take it! Check out this 2009 study on emotional distress and HCV: http://www....	Dee738	2	695	Mar 4, 2014 by globetrotter
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