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Day 1 of 84 - Sovaldi + Riba
(Preview)
Good morning Everyone, Today's the day I start treatment; the first day of the rest of my life! Oh and we're under a winter storm warning until 6pm Thursday! We're not supposed to get winter storms in the southern Piedmont of NC! Have a great day everyone!
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Enavigo3891
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9
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1760
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First bad side effects of treatment
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Hi All, As you know I have been on treatment for 6 weeks. During the first few weeks, I had fever after every injection, slight stiffness in my knees and jaw and that was about it. I was on leave from work for about 4 months. 1. I joined work on first Feb. The first two days were okay. On the third day, that is on...
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mindovermatter
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12
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2214
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If I already had grants for my last tx willl they give me grants again?
(Preview)
I was so incredibly lucky to have received money to pay my Co payments w my triple TX. I unfortunately relapsed. Now I'm scared I won'tbe able to get assistance again. Anyone know if I could?
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libgirl07
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0
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583
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itchy feet!!!
(Preview)
Im on week 13 finished Incivek so now on Peg/Riba and this week have red small itchy lumps on soles and sides of feet and feet feel hot..driving me to distraction. Tried cooling, Hydrocortisone and moisturising has anyone experienced this? Grateful for any possible remedies Sally
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globetrotter
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4
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1436
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Interferon and work
(Preview)
Hi All, First off thanks everyone for the warm welcome in the new member section! Much appreciated I started inter/riba and solvaldi 3 days ago. I feel pretty good, a little tired but pretty good. It's back to work tomorrow. I guess I am just wondering if anyone has experience working a construction t...
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TimS44
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27
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1432
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Healing Visualization, hypnotism, etc. Your thoughts?
(Preview)
Hello, Has anyone had a positive experience with healing using the mind? For example, there are 2 areas I would like to work on for myself while I am under TX (Sovaldi+Ribavirin). I would like to be able to work on visualizing a healthy and an smooth liver. Would also like to encourage my body to assist in...
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hepcsurvivor
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10
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958
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Forth Week Viral Load 22
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Disappointed but my doctor said this means it's working and I should definitely be clear by 8 weeks. Does this mean I'm in for 48 weeks? I asked and he said it depends on 8 week viral load, but I'm thinking the worst. I just found this... Could this mean a chance for 6 months? Incivek (Telaprevir) In a sub...
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Gracie
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11
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1230
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Low ALP indicator for relapse?
(Preview)
Happy Friday Friends I got my complete pre-tx labs in the mail today, only one thing was out of the "normal" range. My doc did not speak to it in his letter so I am guessing he's not concerned however I of course "googled it". My ALP is low at 36 - normal range is 39 to 117. I looked back t...
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Enavigo3891
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7
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1223
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Sofosbuvir plus simeprevir undetectable!
(Preview)
G1a with Q80K, prior null responder (IFN + Riba) intolerant of triple Rx. Undetectable after two weeks, no side effects!!
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darkstar
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36
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4681
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Incevik and Sofosbuvir
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I started with incevik. Anybody hear of anybody switching over to Sofosbuvir? Wasn't it just approved in Canada?
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Gracie
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1
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746
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Drug Interactions - Interpreter needed
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Hi Guys, The Documents for Sovaldi have a Drug Interactions warning: Drugs that are potent intestinal P-gp inducers (e.g., rifampin, St. Johns wort) may alter the concentrations of sofosbuvir (Sovaldi). Is there anyone here that can have a stab at explaining what "intestinal P-gp inducer...
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hepcsurvivor
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15
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1814
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SVR Chances - am I being misled?
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Hi, Here is a note I just sent my NP (perhaps I should have posted here 1st LOL). I do have some degree of Cirrhosis. ******************************** Question: When I came to see Dr <name>I believe I was quoted either 80-85% SVR for my case. (Can't recall which). (Link to gilead data provided b...
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hepcsurvivor
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14
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1508
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Pre-treatment lab results and my "marching orders"
(Preview)
Happy Monday Everyone - As some of you know I went to the doc on Thursday afternoon to start the process on treatment. The specialty pharm called me the next day to let me know the Riba went through and they were forwarding a form to the doc for pre-auth on the Sovaldi. They told me to expect a call back "...
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Enavigo3891
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2
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1195
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Why does Ribivarin lower Hemoglobin?
(Preview)
Hello, I have been at it about a month. (Soldavi and Ribivarin). My Hemoglovin has dropped 2 points to 10 ish. Can anyone explain in a simple an concise way why Ribivarin lowers Hemoglobin? Do any know if eating an iron rich diet might help? Thank you much in advance.
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hepcsurvivor
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13
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2502
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12 viral week load
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Unfortunately still detectable so persevering until 24 week test but not feeling very hopeful. I am the only one they have had on Incivek to do this at my hospital. Gutted is an understatement..thank god for forums like this Sally
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globetrotter
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18
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2412
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veins popping up on lower legs
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Am having a lot of small veins popping up especially on lower legs but also around body. Have done searches on here and just general web searches and am not finding any thing about it. Am on triple therapy with the Incivic and am wondering if any one else is having the same problems. Some itch like crazy, a...
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newmex
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3
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1234
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rvr
(Preview)
Dear All, I am glad to inform that I have got my week 4 viral load test report and it says, 'HCV RNA not detected'!1 I am now hopeful! Thank you everyone here for supporting me and calming me down when I was anxious. I sincerely hope that I am able to slay this beast. You all are wonderful!
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mindovermatter
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10
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1124
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Here comes treatment...meds on order
(Preview)
Happy Thursday everyone! Saw my PA today at the Transplant Center (he's such a nice guy). He said we're going to do 12 weeks of treatment: 400mg of Sovaldi once per day and 600 mg of Ribavirin I believe twice per day. Pretty sure he said 3 pills at lunch and 3 pills at dinner (200mg) but I have that written d...
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Enavigo3891
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9
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1306
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Treatment Cost and Insurance Companies
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Hello, I was reading about the $1000 per pill cost of one of the new drugs and how it can cost $100,000 per person for the treatment. Does anyone have any insight as to how the health insurance companies are going to handle this? Do you think that Blue Cross & Blue Shield, etc. will pay for us to get cu...
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Lon
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16
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3734
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Just did shot 23 of 24
(Preview)
I can't believe that I only have one more shot!! It seems like just yesterday I was scared ****less to start treatment. Now I am thankful I had the chance to fight the Dragon!! I've learned a lot about myself by going thru treatment!! Like Joe Dirt says, you gotta keep on keeping on!!! Many thanks to my fri...
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bmhartwd
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11
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953
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Day 18 PCR test shows less then 15 viral load !!!!!
(Preview)
Hello everyone, I am on day 20 of the new tx (Sovaldi, Olysio and Riba). For strange reasons (on day 14 blood test they ran HCG blood test versus HCV PCR to be known as second time they made this mistake in 6 weeks and good to know that as a male I am not pregnant, again ????) I had a PCR test two days ago and to...
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Hep-C Dragon Slayer
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6
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1428
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Get your own Lab Reports
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Recommendation - get your own copy of lab reports and review before seeing dr. In the US, various labs now have patient portals that offer pdf copies of your lab reports - I use these to print out my reports before seeing the dr - I then can use the drs time wisely and be researched/prepared with my questio...
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longld
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3
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843
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Side Effect of Hair loss
(Preview)
Hi Everyone, I'm still hanging in there! I'm on 22wks of triple tx with peg,victrelis and ribavirin. My tx is for 48 wks. I have been experiencing alot of hair loss. I normally have very thick and long hair. I keep it up or tied back all the time, but it is still falling out from the top and sides. I constantl...
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kristi6
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8
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1354
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Gen 3, RVR and relapse
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Hi members, I am presently undergoing peg, riba treatment for GT 3. I am currently 20 days into treatment. I will have my week 4 VL test in about a week's time. If it is UND should I go for the standard six months or should I insist that the treatment be for 36 weeks instead. I am asking this because I have read...
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mindovermatter
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20
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2333
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Any Canadians getting sovaldi?
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Have any Canadian insurance companies approved the cost of treatment with sovaldi? My employee insurance covers loss of wages. I am hoping to make a case for 12 weeks of expensive treatment but continue working vs 48 weeks of laying around puking. Should cost about the same either way.
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Barnacle
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1
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838
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New Treatment with Sovalsi and Olysio
(Preview)
Hello to alli was stage 1 in July Mild in inflammation with fibrosis. Those results came after a biopsy was performed . I had my gall bladder removed at the same time and they also performed an ECRP i believe to look at my biliary ducts. My bilirubin levels were high and i was developing yellow jaundice. A...
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Richstar
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1
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1004
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My treatment has been stopped for a couple of days.
(Preview)
I'm having a bit of a medical emergency. It became very painful to breath last week and ended up in emergency Friday overnight. My heart rate would race for no reason at all causing an extreme shortness of breath and pain on each inhale. Also the pain in my body was so unbearable and moving from one part of...
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dustbear
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38
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2338
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Is fatugue in my head?!
(Preview)
I finish Incivek next monday and am currently wading through 48 weeks...for the last four days I have barely left my bed...I am anaemic but my last blood test two weeks ago had not got any worse. I phoned my treatment nurse who said wait until monday for my regular tests...feel a fool now for ringing her a...
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globetrotter
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6
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846
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Third Week Lowering Dose of Ribo...nooooo
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I just got a call from my nurse. The end of my third week bloodwork. She said my ALTs, ASTs and Billiruben are all normal so yea! Don't remember my ALTs and ASTs being normal for years. Taking that as a sign I'm killing this dragon... BUT platelets are low 70 but not dangerously, but my darn hemoglobin is 98...
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Gracie
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20
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1499
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Can Jaundice be a side effect of Hep tx
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I have often had bouts of jaundice and was told by my family doctors in my 20's it was from an enlarged spleen. In my mid 30's I was told it was from a higher level of Bilirubin and that was diagnosed as Gilberts syndrome ( three or more years with the same bilirubin levels is considered okay ?). Most recent...
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Hep-C Dragon Slayer
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5
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1516
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