Hep C Discussion Forum

kristi6 · kristi6

I have been on triple therapy now for 6 wks. I find I have alot of shortness of breath. I was wondering if it is safe to use inhaler like spiriva for COPD and a ventolin buffer when needed daily? My family doctor prescribed them for me earlier in the year. Will using these interfere with my treatment? If any...

ucbgal · ucbgal

have had moderate swelling due to the "rheumethroid arthritis" since aug.1st. was using compression stockings & 2 naproxen daily for 3 wks to no avail. i actually had to go up 1/2 shoe size and felt like a 100 yr. old.... in 1 week here's my new stategy.am back into my own shoe size and fe...

Kirstin · Kirstin

I was informed today that my partners father will be coming to visit next week & will be staying for a few days.. Now, I usually enjoy his company (sort of) and have never complained about his visits but this time I just dont need it. It has really upset me, for a few reasons.. Firstly because his first...

djones473 · djones473

Hi, I've only been on triple therapy for a week. I tried doing a search on this topic but didn't find anything. The directions for incivek say to eat a meal containing 20g of fat within 30 min of taking the pill. Does that mean that I should wait until 20-30 minutes after I eat to take the pills, to maximize...

lozeaujo · lozeaujo

Hi.. Ive been on hep c treatment with Victrilous for 12 weeks now, and have been undetected since week 4.I also have cirrhosis and portal hypertension with slightly swollen spleen...The first 9 weeks my AST and ALT levels cosistently went down and my ALT even fell into normal range. My AST is slightl...

ucbgal · ucbgal

have mentioned in earlier posts i was suffering from knee &ankle swelling. it became uncomfortable and started naproxen i month ago. well since then my alt/ast haven't gone down at all. started at 122/199 and am now at wk 14 only at 55/65. also iron saturation went from 32% to 80% but am still u...

bmhartwd · bmhartwd

I just got a call from my Hepa in regards to my viral load and she said the HCV RNA is UNDETECTED in my blood and my blood levels are all normal!!! I'm so excited!! Does anyone have any experience with this? God is the healer of all things!!!!

Kellie · Kellie

Hey all, I just wanted to check in with a week 22 update - 2 weeks to go on this. I'll do my last shot on 9/25 and then my last riba the pm of 9/29. It's like time is going very slowly now. I'm still not able to go back to work because of a separate issue and that's a blessing and a curse together. I've got insomnia s...

Tig · Tig

I just got a phone call from my hepa's office. My CBC has dropped low enough that he has ordered my specialty pharmacy to overnight ship me the Neupogen injectable. I'm not sure if it will be once or twice a week. But most certainly will be until my WBC comes up. I have read that Neupogen stings on injection...

TN99 · TN99

First visit with the doc since week 4 results (VL 318, down from 9.4 mil at start) Week 8 VL UND, Week 12 VL UND. All other blood chemistry within normal range, WBC dropped a few points, but still normal. (Brain fog, walked out of the office with out getting copies of my labs.) Doc said to get standard CBC la...

Seriously · 247

Im looking for people with genotype 2b who are on treatment, went through treatment, or are awaiting or considering treatment. What was the treatment you were advised to take? Was it successful? Are you waiting for new treatments to become available? Feel free to share whatever you'd like.

tonib · tonib

Oh boy, I just realized that because I was not UND at 8 weeks I will have the 48 weeks of therapy, or if I just don't go UND by week 12 then I'm off the therapy....either way I am so miserable....I so wanted the 24 weeks...This is so not fair... GIVE ME STRENGTH!!!

bmhartwd · bmhartwd

I just did Shot#4 on my 4th week of treatment with RIBA and Incivek. It seems to go by so slow when you are counting the days. I just thank God that these medicines are available even though they make us feel like pure ****. To all of my friends on here fighting this Dragon hang in there!!! Cheers to preparat...

ucbgal · ucbgal

was having a rough day w/sx,rude nurses aide and some disappointing news at ob/gyn. after seeing dr.,making another appt. and leaving,i grabbed my keys. plop right on my swollen foot. grabbed the cane and shuffled out. next thing you know my big toe is bleeding and it's throbbing. i sit dow...

Brendalee333 · Brendalee333

ahh this dry mouth. got thrush for the 3rd time now. this time they gave me a pill antibiotic, and another anyibiotic cuz im kinda sick. my WBC count was 1.7 so they dropped the 5 pills of riba down to 4. then It went up to 2.2 but decided to drop the pill dose to 3 now. weak, short of breath. hope the pill drop do...

Lon · Lon

Hello, In talking with my doctors, we've agreed to wait on treatment until the non-interferon treatment (psi-7977) becomes available. People in the beta group last year were suggesting that it might be available by the end of this year or early 2014. Has anyone heard of a recent update on the tenta...

Seriously · Seriously

I get a golf size red mark/bruise where I inject. At week 10 I have a perfect smiley face with my belly button as the nose. Gotta laugh where I can. Good news, no rib rage today. Joint pain and exhaustion tonight. Rearranging the rib timing seemed to help.

Seriously · Seriously

48 year old raising 3 grandchildren with SO. He was diagnosed with Hep C geno type 1 and went through treatments that pretty much rendered him useless. I get tested, well cause we've been together 20 years and I have it too, just geno type 2. Docs were confused we were confused. Viral load close to 70...

sheescraftee · sheescraftee

We are 6 days into treatment and now the sx are kicking in. He is not feeling well at all. He is on triple therapy and I think it all just hit him these last two days. I feel bad because there is nothing I can do. His skin is burning and on fire, his face is red and gets a bit swollen and having really bad diarreah....

Butcheeyboy · Butcheeyboy

I started treatment in March 2012. Now the Dr.'s are bringing up an issue with my thyriod. They say that I have hyperthyroidism as well as being anemic (?) spelling? They are even thinking of taking me out of treatment program, which I am not happy about as I have come this far. My viral load is 'negative'...

ucbgal · ucbgal

greetings, thought i'd post my recent progress. old dr. called w/cbs's yesterday. hemo went from 9.5 2nd wk. of august to 7.8 as of 8/30. his advice,only 200mg of ribo/day&maybe increase procrit dosage . am still 0/und and have only 5 Days of incivek left. alt & ast is getting better&...

tonib · tonib

Went to the doc today for my blood test results, and everything came in except the VL, which will determine if I continue on the therapy I have been totally stressed out all day over this and when he told me the results did not come in.....well disappointment does not really touch how I felt. He wouldn'...

gtstcactus · gtstcactus

I know sleep problems are not uncommon with interferon treatment but i'm pissed. Excuse me please. 2 weeks ago I was told if I still had issues sleeping I would get some support medicines to assist with the problem. Go to my appointment yesterday and am told they can't / won't help. I have been on SSRI's...

Tig · Tig

http://www.hep-druginteractions.org/interactions.aspx

tonib · tonib

I have called the pharmacy yesterday and they said it was shipped out and I should receive it today by noon, Well its almost 2pm and I am sort of freaking out here...I do not have any meds for tomorrow..So I called the pharm again and I get voice mail.......... I can't imagine after 9 weeks and now things...

nurschic · nurschic

Just got a call from my GI Dr and my viral load came in. It is actully higher then my 4 week VL, it is currently 805,000. So, I failed treatment, go figure, its just my luck. So, I have been told to stop all my meds. My Liver enzymes are also the highest that it has ever been. My Dr wants to check it again in a month...

Fajah · Fajah

If I had been treatment naive, I would have been done 3 months ago. I have passed every milestone for the 24 week program, but because of my non-responder status, they say I must go 48 weeks. I don't feel I can go another 3 months, this has really taken a toll on my physical health, not to mention mental hea...

cheeta37 · cheeta37

Dear friends i was patient of HCV in 2009 and undergone interferon injections therapy for 6 months (Pegasys Roch Company) my PCR got negative during treatment and now after 4 years my medical test reports are showing PCR Not Detected. I have a question, is it possible to have Anti HCV test negative af...

2willy · 2willy

Well I thjust waiting for some of the med side effects to go away, told Rib takes 3 weeks but Interferon can take up to 6 months. I get blood work on viral load back in 2 weeks but have been UND twice before. Effects of virus seem to have lessened also, what a new lease on life, have seen how this virus effec...

nurschic · nurschic

T 15 mins and counting until I take my last two pills of Incivek! It was so nice to pack a salad for me to eat for lunch tomorrow instead of eating a ton of fat! labs drawn on Monday......fingers crossed for UND!

Topic		Started By	Replies	Views	Last Post
	new on treatment. Question about using other medications while on triple therapy? (Preview) I have been on triple therapy now for 6 wks. I find I have alot of shortness of breath. I was wondering if it is safe to use inhaler like spiriva for COPD and a ventolin buffer when needed daily? My family doctor prescribed them for me earlier in the year. Will using these interfere with my treatment? If any...	kristi6	8	1579	Sep 29, 2013 by hepcat60
	tips for ankle,knee,foot swelling (Preview) have had moderate swelling due to the "rheumethroid arthritis" since aug.1st. was using compression stockings & 2 naproxen daily for 3 wks to no avail. i actually had to go up 1/2 shoe size and felt like a 100 yr. old.... in 1 week here's my new stategy.am back into my own shoe size and fe...	ucbgal	1	787	Sep 28, 2013 by mallani
	Annoying houseguests & Riba Rage won't mix.. (Preview) I was informed today that my partners father will be coming to visit next week & will be staying for a few days.. Now, I usually enjoy his company (sort of) and have never complained about his visits but this time I just dont need it. It has really upset me, for a few reasons.. Firstly because his first...	Kirstin	25	1907	Sep 27, 2013 by Scruffy
	taking incivek too soon after eating? (Preview) Hi, I've only been on triple therapy for a week. I tried doing a search on this topic but didn't find anything. The directions for incivek say to eat a meal containing 20g of fat within 30 min of taking the pill. Does that mean that I should wait until 20-30 minutes after I eat to take the pills, to maximize...	djones473	2	816	Sep 27, 2013 by mallani
	AST and ALT levels during treatment (Preview) Hi.. Ive been on hep c treatment with Victrilous for 12 weeks now, and have been undetected since week 4.I also have cirrhosis and portal hypertension with slightly swollen spleen...The first 9 weeks my AST and ALT levels cosistently went down and my ALT even fell into normal range. My AST is slightl...	lozeaujo	12	2050	Sep 25, 2013 by lozeaujo
	arthritis&rashadvice (Preview) have mentioned in earlier posts i was suffering from knee &ankle swelling. it became uncomfortable and started naproxen i month ago. well since then my alt/ast haven't gone down at all. started at 122/199 and am now at wk 14 only at 55/65. also iron saturation went from 32% to 80% but am still u...	ucbgal	4	1119	Sep 22, 2013 by Tig
	Week 4 Triple Therapy UNDETECTED (Preview) I just got a call from my Hepa in regards to my viral load and she said the HCV RNA is UNDETECTED in my blood and my blood levels are all normal!!! I'm so excited!! Does anyone have any experience with this? God is the healer of all things!!!!	bmhartwd	10	1198	Sep 20, 2013 by hepcat60
	Week 22 Update - I can see the light! (Preview) Hey all, I just wanted to check in with a week 22 update - 2 weeks to go on this. I'll do my last shot on 9/25 and then my last riba the pm of 9/29. It's like time is going very slowly now. I'm still not able to go back to work because of a separate issue and that's a blessing and a curse together. I've got insomnia s...	Kellie	8	980	Sep 20, 2013 by Kellie
	Having to start Neupogen (Preview) I just got a phone call from my hepa's office. My CBC has dropped low enough that he has ordered my specialty pharmacy to overnight ship me the Neupogen injectable. I'm not sure if it will be once or twice a week. But most certainly will be until my WBC comes up. I have read that Neupogen stings on injection...	Tig	8	1268	Sep 20, 2013 by ucbgal
	12 week visit. (Preview) First visit with the doc since week 4 results (VL 318, down from 9.4 mil at start) Week 8 VL UND, Week 12 VL UND. All other blood chemistry within normal range, WBC dropped a few points, but still normal. (Brain fog, walked out of the office with out getting copies of my labs.) Doc said to get standard CBC la...	TN99	2	697	Sep 20, 2013 by mallani
	Looking for GT2b's (Preview) Im looking for people with genotype 2b who are on treatment, went through treatment, or are awaiting or considering treatment. What was the treatment you were advised to take? Was it successful? Are you waiting for new treatments to become available? Feel free to share whatever you'd like.	247	1	735	Sep 18, 2013 by Seriously
	48 weeks of therapy for me... (Preview) Oh boy, I just realized that because I was not UND at 8 weeks I will have the 48 weeks of therapy, or if I just don't go UND by week 12 then I'm off the therapy....either way I am so miserable....I so wanted the 24 weeks...This is so not fair... GIVE ME STRENGTH!!!	tonib	11	1370	Sep 18, 2013 by tonib
	Shot #4 (Preview) I just did Shot#4 on my 4th week of treatment with RIBA and Incivek. It seems to go by so slow when you are counting the days. I just thank God that these medicines are available even though they make us feel like pure ****. To all of my friends on here fighting this Dragon hang in there!!! Cheers to preparat...	bmhartwd	3	680	Sep 17, 2013 by Kellie
	a breathe of fresh air (Preview) was having a rough day w/sx,rude nurses aide and some disappointing news at ob/gyn. after seeing dr.,making another appt. and leaving,i grabbed my keys. plop right on my swollen foot. grabbed the cane and shuffled out. next thing you know my big toe is bleeding and it's throbbing. i sit dow...	ucbgal	5	1017	Sep 15, 2013 by tonib
	thrush again, low WBC (Preview) ahh this dry mouth. got thrush for the 3rd time now. this time they gave me a pill antibiotic, and another anyibiotic cuz im kinda sick. my WBC count was 1.7 so they dropped the 5 pills of riba down to 4. then It went up to 2.2 but decided to drop the pill dose to 3 now. weak, short of breath. hope the pill drop do...	Brendalee333	9	1664	Sep 15, 2013 by mallani
	PSI-7977 Question (Preview) Hello, In talking with my doctors, we've agreed to wait on treatment until the non-interferon treatment (psi-7977) becomes available. People in the beta group last year were suggesting that it might be available by the end of this year or early 2014. Has anyone heard of a recent update on the tenta...	Lon	2	903	Sep 14, 2013 by Lon
	Injection site circles (Preview) I get a golf size red mark/bruise where I inject. At week 10 I have a perfect smiley face with my belly button as the nose. Gotta laugh where I can. Good news, no rib rage today. Joint pain and exhaustion tonight. Rearranging the rib timing seemed to help.	Seriously	0	611	Sep 13, 2013 by Seriously
	8th week peg and rib anybody close? (Preview) 48 year old raising 3 grandchildren with SO. He was diagnosed with Hep C geno type 1 and went through treatments that pretty much rendered him useless. I get tested, well cause we've been together 20 years and I have it too, just geno type 2. Docs were confused we were confused. Viral load close to 70...	Seriously	10	1152	Sep 12, 2013 by Seriously
	Hubby not feeling well (Preview) We are 6 days into treatment and now the sx are kicking in. He is not feeling well at all. He is on triple therapy and I think it all just hit him these last two days. I feel bad because there is nothing I can do. His skin is burning and on fire, his face is red and gets a bit swollen and having really bad diarreah....	sheescraftee	10	1343	Sep 11, 2013 by hepcat60
	Thyroid issues (Preview) I started treatment in March 2012. Now the Dr.'s are bringing up an issue with my thyriod. They say that I have hyperthyroidism as well as being anemic (?) spelling? They are even thinking of taking me out of treatment program, which I am not happy about as I have come this far. My viral load is 'negative'...	Butcheeyboy	5	955	Sep 7, 2013 by Tig
	update & new dr. (Preview) greetings, thought i'd post my recent progress. old dr. called w/cbs's yesterday. hemo went from 9.5 2nd wk. of august to 7.8 as of 8/30. his advice,only 200mg of ribo/day&maybe increase procrit dosage . am still 0/und and have only 5 Days of incivek left. alt & ast is getting better&...	ucbgal	3	817	Sep 6, 2013 by Cinnamon Girl
	Viral load results not ready (Preview) Went to the doc today for my blood test results, and everything came in except the VL, which will determine if I continue on the therapy I have been totally stressed out all day over this and when he told me the results did not come in.....well disappointment does not really touch how I felt. He wouldn'...	tonib	8	1225	Sep 5, 2013 by edmed
	Cant sleep (Preview) I know sleep problems are not uncommon with interferon treatment but i'm pissed. Excuse me please. 2 weeks ago I was told if I still had issues sleeping I would get some support medicines to assist with the problem. Go to my appointment yesterday and am told they can't / won't help. I have been on SSRI's...	gtstcactus	24	2776	Sep 5, 2013 by tonib
	Drug Interactions (Preview) http://www.hep-druginteractions.org/interactions.aspx	Tig	0	688	Sep 3, 2013 by Tig
	OMG WHERE IS MY MED DELIVERY!! (Preview) I have called the pharmacy yesterday and they said it was shipped out and I should receive it today by noon, Well its almost 2pm and I am sort of freaking out here...I do not have any meds for tomorrow..So I called the pharm again and I get voice mail.......... I can't imagine after 9 weeks and now things...	tonib	8	905	Sep 4, 2013 by dustbear
	Well....The News is in, and its not good..... (Preview) Just got a call from my GI Dr and my viral load came in. It is actully higher then my 4 week VL, it is currently 805,000. So, I failed treatment, go figure, its just my luck. So, I have been told to stop all my meds. My Liver enzymes are also the highest that it has ever been. My Dr wants to check it again in a month...	nurschic	28	1776	Sep 4, 2013 by Loopy Lisa
	I have had enough, quitting at 36 weeks (Preview) If I had been treatment naive, I would have been done 3 months ago. I have passed every milestone for the 24 week program, but because of my non-responder status, they say I must go 48 weeks. I don't feel I can go another 3 months, this has really taken a toll on my physical health, not to mention mental hea...	Fajah	33	2353	Sep 2, 2013 by DJ
	ANTI HCV Test after Treatment (Preview) Dear friends i was patient of HCV in 2009 and undergone interferon injections therapy for 6 months (Pegasys Roch Company) my PCR got negative during treatment and now after 4 years my medical test reports are showing PCR Not Detected. I have a question, is it possible to have Anti HCV test negative af...	cheeta37	4	809	Aug 29, 2013 by mallani
	Over and Done (Preview) Well I thjust waiting for some of the med side effects to go away, told Rib takes 3 weeks but Interferon can take up to 6 months. I get blood work on viral load back in 2 weeks but have been UND twice before. Effects of virus seem to have lessened also, what a new lease on life, have seen how this virus effec...	2willy	7	952	Aug 29, 2013 by dustbear
	Last dose of Incivek (Preview) T 15 mins and counting until I take my last two pills of Incivek! It was so nice to pack a salad for me to eat for lunch tomorrow instead of eating a ton of fat! labs drawn on Monday......fingers crossed for UND!	nurschic	18	1135	Aug 27, 2013 by Tig
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