Hep C Discussion Forum

hepCFREEwanab · hepCFREEwanab

What a God sent has benadryl been for my husband. He had been having so much trouble keeping food, water and MEDS down. It was breaking my heart seeing my husband like that. Holding my breath everytime he took a zip of water or swallowed his pills, for fear that everything was going to come up...and the...

Caryn · Caryn

So after my failed treatment this year, it is time for me to go for an ultrasound and start thinking about treatment again. I emailed my doctor a while back and he said that sofosbuvir is looking the best. I asked him if it would be with or without interferon and he said with. It was a short, quick email. My...

TeddyTrout · TeddyTrout

I have been so ill from this treatment, just like the other 2 times but it seems worse this time around. I getting older I guess. I was un detectable at week 12and 24. I seem to have most of the skin and the worst flu like symptoms, They have me injecting Epox to bring my red blood cells up every week as well. Th...

tonib · tonib

Tomorrow morning I will take my 1st dosage of 600 mg Ribavarin, and then tomorrow night I will have another dose of 400 mg and my 1st shot...I am really on my way......funny I used to have a drink to drown my sorrows or to try to cope with a difficult situation.....a whole new day a whole new me...

libgirl07 · libgirl07

Has anyone heard of being und at week 8 and 17 but det at week 24 on victrelis? I'm so nervous but I guess whatever happens happens I can't control it

Kellie · Kellie

Hey out there Buds- starting week 10 tomorrow. The good news is the Incivik rash, along with the itch is gone. Now for about a week. I still have 2 weeks to take it, to make it an even 12 weeks. I just have a lot of nausea when I take it now. My face is even puffy now too. Not rashy puffy. Just like chipmunk puffy....

kandicemichelle · kandicemichelle

I start treatment tomorrow... 12 months long... do i really have to stop drinking that whole time? what about occasional drinking? i became hep-c positive because i used a syringe after an infected person... because i couldnt wait til i got home for a new one. i have so much regret built up... for mysel...

Kellie · Kellie

Hello! Just got back from seeing my NP. 600 mg of Riba - sphere for the next week. Dose in the a.m. She won't start me again aggressively on it until next week. Then back to the 600mg in the a.m. and 400mg in the pm. I'll start back on the Pegasus tonight after a 8 day break. No reduction. 180 mcg. Just got the ca...

Tig · Tig

How do you handle your Riba rage when your family and friends refuse to listen to your explanations of the irritability? I've got a surprise houseful right now and it's as if I'm in the way or needing to forget my own personal issues. My last nerve is about shot!

ucbgal · ucbgal

yippee!!!! on day 9 had my 1st test reults. vl went from 1.2million to 170. ast/alt went from 122/195 to 62/89!!!! my hemoglobin went from 11.2 to 10.2. today's day 14 and am getting rash,scalp,and bathroom issues under a bit of control. with such great test resuls i almost feel like...

edmed · edmed

Hi all, I went to see my DR today. Had a long talk with him about my TX. The DR re-explain to me how it work with TX. At 12 WK if under 1000 you stay on riba and peg and re-test at 24 WK and if {by the grace} I finally become UND then I continual for 48 WK of TX. Anyway thats info i got today. I've posted in the past abou...

Kellie · Kellie

Hi Friends!, Kellie here, wow, what a horrible last 5 days. I'm finally starting to feel like writing again, let alone eating, breathing, talking, and the simple act of brushing my teeth. My nausea and messed up digestive system really whacked me good. Tip: Do not take Zofran for nausea (Unless you ha...

Zlikster · Zlikster

i got lite fever for 2nd day, i thought it was usual peg biz, but it's Mon nite (getting peg on Sat) and i still got fever. Went to my mom's for a dinner and she noticed i was shaking, measured body temp t was 39C (102F)! Measured it couple of time mores, all in +-0.2 range. I dont feel like i am on that high body t...

gatekeep · gatekeep

I'm nearing the finish. I'm in week 40 undetected and feeling all the ups and downs. This hot humid weather is really kicking my energy in the ass. I had the summer cold thought I was dieing but made it though. Hang in there peeps! brian

AngieV123 · AngieV123

I think I read somewhere that tx can flare psoriasis. .I currently have a very mild case of it and was wondering if anyone else has it and is experiencing a worsening of the condition during or after treatment. I have not begun tx yet..just wondering.

ucbgal · ucbgal

the good news is it's day 10 and 2 darts down. also i didn't get the tingles at all during the nite for 2nd shot also my rash has abated ,it's on 2/3rds of my body. here's what i need help with;burning scalp,nausea, &extreme constipation. for the burning scalp i use olive oil in my hair....

Roughrider55 · Roughrider55

I am concerned about the treatment causing Jaundice. Does any one have experience with this one? I so hope to continue some level of working and social activity during treatment.

nurschic · nurschic

Did anyone on the incivek triple therapy get a baseline eye exam prior to starting the treatment? My GI Dr said that his partner just got back from a conference and they were recommending one prior to treatment. Has anyone on treatment have/had eye/vision changes during treatment?

Carolinca · Carolinca

I know that someone needs to get viral load tests done after treatment to test for SVR, but did anyone else have to continue doing other blood work after treatment, such as CBC's or CMP's? Thanks, Carol

Tig · Tig

WBC : 3.3 3.8-10.8 RBC : 4.37 4.2-5.8 HGB : 13.4 13.2-17.1 AB LYMPH: 795 850-3900 The rest are WNL HCV RNA : 16264 <43 IU/mL Down from 4.95 million HCV RNA : 4.21 <1.63 Log IU/mL i was hoping for an UND but these were the 4 week Peg/Riba results. Next results will include the first 4 wee...

GodsGrl · GodsGrl

Just got results back from follow-up thyroid tests. Hair falling out, seriously in hand fulls can now see scalp and I've lost 6 lbs this week alone. I have four more shots left, this week was bad. Not sure if I had food poisoning or stomach flu but didn't get out of bed for 2 1/2 days. Couldn't keep anything...

ss · ss

Does anybody know if you can sit in the sun while being on interferon and ribo If ot why thanks

64amazing · 64amazing

We the people of the Pegasys and the Copegus order. What to do? is the question with so many issues after the drug therapy,from Chronic fatigue,Painful joints throughout the body, damage thyroid,depression,vision problems,come to find out these chemicals have damaged our brains somewhat.I hav...

darkstar · darkstar

I started triple therapy with telaprevir. Unfortunately, in spite of a great response, rash and fatigue were overwhelming and I had to stop. 3+ weeks ago, I began standard pegasys + ribavirin as a lead in for boceprevir which I begin on Friday. Pegasys is a sustained release drug so I would assume t...

ucbgal · ucbgal

greetings, the good news is that since i stopped all that herbal stuff,for example m.t.,liv.52,and ip6, my ast&alt have lowered. my v.l. only dropped 100k. the bad news is that the dreaded rash decided to have a party on both the front and back of my torso on day3. did anyone ever get the ra...

Brendalee333 · Brendalee333

I just had my blood work done, I am undetected!! My hemoglobin is starting todrop, but nothing to worry about yet. I am struggling though with side effects. MY dry mouth got so bad that I got thrush in my mouth, and even with the ambien im lucky to sleep 4 hours a night. (twins at night get up) My doctor t...

edmed · edmed

Hi all, I'm allmost done with week 16 and cant seem to get any energy to do anything this week. On father day I went fishing for two day after speaking to the doctor. He told to wear plenty of sun block under my long sleeve and to protect myself from the sun. I didn't know how my skin was going to react but to my s...

ucbgal · ucbgal

guys, thanks for all the support and tips i've already learned in one month. anyone who's on triple x and completes the regimen deserves an olympic gold medal! talk about being fighters and survivors... anyway i got all the 10 pills down and survived dart1!!! the shot seemed the hardest for i s...

Kellie · Kellie

Hey there buds, Any folks out there experiencing memories of maybe about the same time they contracted the virus during the treatment? I know some will say it's the medicine head. I contracted this virus during a time of great emotional sadness and confusion decades ago. I'm finding myself going bac...

Kellie · Kellie

Hi Friends, here's the latest on week 9. I've been a bit evasive about my progress and setbacks lately. Sorry 'bout that.....as for the evil rash - the Incivik rash (knock on wood) is almost gone. A bit itchy but that's about it. I just think it's a miracle. My NP is really happy that the rash is gone. My Eos...

Topic		Started By	Replies	Views	Last Post
	Nausea and BENADRYL!!! (Preview) What a God sent has benadryl been for my husband. He had been having so much trouble keeping food, water and MEDS down. It was breaking my heart seeing my husband like that. Holding my breath everytime he took a zip of water or swallowed his pills, for fear that everything was going to come up...and the...	hepCFREEwanab	10	1625	Jul 12, 2013 by DJ
	Is anyone on or planning on starting treatment with Sofosbuvir and Interferon? (Preview) So after my failed treatment this year, it is time for me to go for an ultrasound and start thinking about treatment again. I emailed my doctor a while back and he said that sofosbuvir is looking the best. I asked him if it would be with or without interferon and he said with. It was a short, quick email. My...	Caryn	0	576	Jul 12, 2013 by Caryn
	100 days left of treatment. (Preview) I have been so ill from this treatment, just like the other 2 times but it seems worse this time around. I getting older I guess. I was un detectable at week 12and 24. I seem to have most of the skin and the worst flu like symptoms, They have me injecting Epox to bring my red blood cells up every week as well. Th...	TeddyTrout	3	632	Jul 11, 2013 by Dillo
	I'm on my way! (Preview) Tomorrow morning I will take my 1st dosage of 600 mg Ribavarin, and then tomorrow night I will have another dose of 400 mg and my 1st shot...I am really on my way......funny I used to have a drink to drown my sorrows or to try to cope with a difficult situation.....a whole new day a whole new me...	tonib	39	1631	Jul 10, 2013 by hepcat60
	Got my 24 week pcr drawn today. Has anyone heard (Preview) Has anyone heard of being und at week 8 and 17 but det at week 24 on victrelis? I'm so nervous but I guess whatever happens happens I can't control it	libgirl07	13	1496	Jul 9, 2013 by Zlikster
	Good bye big funky rash - hello nausea & chipmunk face??? (Preview) Hey out there Buds- starting week 10 tomorrow. The good news is the Incivik rash, along with the itch is gone. Now for about a week. I still have 2 weeks to take it, to make it an even 12 weeks. I just have a lot of nausea when I take it now. My face is even puffy now too. Not rashy puffy. Just like chipmunk puffy....	Kellie	34	1546	Jul 7, 2013 by Kellie
	1a. start peg/copeg tomorrow. q's about alcohol (Preview) I start treatment tomorrow... 12 months long... do i really have to stop drinking that whole time? what about occasional drinking? i became hep-c positive because i used a syringe after an infected person... because i couldnt wait til i got home for a new one. i have so much regret built up... for mysel...	kandicemichelle	27	2255	Jul 7, 2013 by cola
	Back From The Clinic (Preview) Hello! Just got back from seeing my NP. 600 mg of Riba - sphere for the next week. Dose in the a.m. She won't start me again aggressively on it until next week. Then back to the 600mg in the a.m. and 400mg in the pm. I'll start back on the Pegasus tonight after a 8 day break. No reduction. 180 mcg. Just got the ca...	Kellie	17	1251	Jul 5, 2013 by Tig
	Irritability? Duh! (Preview) How do you handle your Riba rage when your family and friends refuse to listen to your explanations of the irritability? I've got a surprise houseful right now and it's as if I'm in the way or needing to forget my own personal issues. My last nerve is about shot!	Tig	14	1034	Jul 5, 2013 by 2willy
	week1testresults (Preview) yippee!!!! on day 9 had my 1st test reults. vl went from 1.2million to 170. ast/alt went from 122/195 to 62/89!!!! my hemoglobin went from 11.2 to 10.2. today's day 14 and am getting rash,scalp,and bathroom issues under a bit of control. with such great test resuls i almost feel like...	ucbgal	15	1217	Jul 4, 2013 by ucbgal
	16 week lab result ???? (Preview) Hi all, I went to see my DR today. Had a long talk with him about my TX. The DR re-explain to me how it work with TX. At 12 WK if under 1000 you stay on riba and peg and re-test at 24 WK and if {by the grace} I finally become UND then I continual for 48 WK of TX. Anyway thats info i got today. I've posted in the past abou...	edmed	2	641	Jul 3, 2013 by Cinnamon Girl
	Back to the Land of the Living (Preview) Hi Friends!, Kellie here, wow, what a horrible last 5 days. I'm finally starting to feel like writing again, let alone eating, breathing, talking, and the simple act of brushing my teeth. My nausea and messed up digestive system really whacked me good. Tip: Do not take Zofran for nausea (Unless you ha...	Kellie	4	655	Jul 3, 2013 by Kellie
	high body temp/fever 3rd day (Preview) i got lite fever for 2nd day, i thought it was usual peg biz, but it's Mon nite (getting peg on Sat) and i still got fever. Went to my mom's for a dinner and she noticed i was shaking, measured body temp t was 39C (102F)! Measured it couple of time mores, all in +-0.2 range. I dont feel like i am on that high body t...	Zlikster	15	1195	Jul 2, 2013 by Cinnamon Girl
	8 more weeks to go (Preview) I'm nearing the finish. I'm in week 40 undetected and feeling all the ups and downs. This hot humid weather is really kicking my energy in the ass. I had the summer cold thought I was dieing but made it though. Hang in there peeps! brian	gatekeep	7	1027	Jul 2, 2013 by news
	tx and psoriasis question (Preview) I think I read somewhere that tx can flare psoriasis. .I currently have a very mild case of it and was wondering if anyone else has it and is experiencing a worsening of the condition during or after treatment. I have not begun tx yet..just wondering.	AngieV123	8	869	Jul 2, 2013 by Cinnamon Girl
	nausea&burningscalp (Preview) the good news is it's day 10 and 2 darts down. also i didn't get the tingles at all during the nite for 2nd shot also my rash has abated ,it's on 2/3rds of my body. here's what i need help with;burning scalp,nausea, &extreme constipation. for the burning scalp i use olive oil in my hair....	ucbgal	3	712	Jun 30, 2013 by Cinnamon Girl
	Is Jaundice a Side affect of Triple Treatment (Preview) I am concerned about the treatment causing Jaundice. Does any one have experience with this one? I so hope to continue some level of working and social activity during treatment.	Roughrider55	8	973	Jun 30, 2013 by Dillo
	Baseline eye exam (Preview) Did anyone on the incivek triple therapy get a baseline eye exam prior to starting the treatment? My GI Dr said that his partner just got back from a conference and they were recommending one prior to treatment. Has anyone on treatment have/had eye/vision changes during treatment?	nurschic	18	2046	Jun 30, 2013 by hepcat60
	Blood Work After Treatment? (Preview) I know that someone needs to get viral load tests done after treatment to test for SVR, but did anyone else have to continue doing other blood work after treatment, such as CBC's or CMP's? Thanks, Carol	Carolinca	2	627	Jun 27, 2013 by Zlikster
	4 Week Labs (Preview) WBC : 3.3 3.8-10.8 RBC : 4.37 4.2-5.8 HGB : 13.4 13.2-17.1 AB LYMPH: 795 850-3900 The rest are WNL HCV RNA : 16264 <43 IU/mL Down from 4.95 million HCV RNA : 4.21 <1.63 Log IU/mL i was hoping for an UND but these were the 4 week Peg/Riba results. Next results will include the first 4 wee...	Tig	6	798	Jun 26, 2013 by mallani
	Thyroid Damage (Preview) Just got results back from follow-up thyroid tests. Hair falling out, seriously in hand fulls can now see scalp and I've lost 6 lbs this week alone. I have four more shots left, this week was bad. Not sure if I had food poisoning or stomach flu but didn't get out of bed for 2 1/2 days. Couldn't keep anything...	GodsGrl	4	810	Jun 26, 2013 by GodsGrl
	Meds in the sun (Preview) Does anybody know if you can sit in the sun while being on interferon and ribo If ot why thanks	ss	18	1306	Jun 26, 2013 by Zlikster
	Pegasys and Copegus we the Guinea pigs. (Preview) We the people of the Pegasys and the Copegus order. What to do? is the question with so many issues after the drug therapy,from Chronic fatigue,Painful joints throughout the body, damage thyroid,depression,vision problems,come to find out these chemicals have damaged our brains somewhat.I hav...	64amazing	3	964	Jun 24, 2013 by 64amazing
	Pegasys related fatigue question (Preview) I started triple therapy with telaprevir. Unfortunately, in spite of a great response, rash and fatigue were overwhelming and I had to stop. 3+ weeks ago, I began standard pegasys + ribavirin as a lead in for boceprevir which I begin on Friday. Pegasys is a sustained release drug so I would assume t...	darkstar	5	1111	Jun 24, 2013 by mallani
	goodandbadnews (Preview) greetings, the good news is that since i stopped all that herbal stuff,for example m.t.,liv.52,and ip6, my ast&alt have lowered. my v.l. only dropped 100k. the bad news is that the dreaded rash decided to have a party on both the front and back of my torso on day3. did anyone ever get the ra...	ucbgal	14	1218	Jun 24, 2013 by Tig
	8 weeks! (Preview) I just had my blood work done, I am undetected!! My hemoglobin is starting todrop, but nothing to worry about yet. I am struggling though with side effects. MY dry mouth got so bad that I got thrush in my mouth, and even with the ambien im lucky to sleep 4 hours a night. (twins at night get up) My doctor t...	Brendalee333	4	1012	Jun 23, 2013 by Tig
	Tired (Preview) Hi all, I'm allmost done with week 16 and cant seem to get any energy to do anything this week. On father day I went fishing for two day after speaking to the doctor. He told to wear plenty of sun block under my long sleeve and to protect myself from the sun. I didn't know how my skin was going to react but to my s...	edmed	2	702	Jun 21, 2013 by mallani
	day one! (Preview) guys, thanks for all the support and tips i've already learned in one month. anyone who's on triple x and completes the regimen deserves an olympic gold medal! talk about being fighters and survivors... anyway i got all the 10 pills down and survived dart1!!! the shot seemed the hardest for i s...	ucbgal	6	717	Jun 21, 2013 by ucbgal
	Cellular Memory (Preview) Hey there buds, Any folks out there experiencing memories of maybe about the same time they contracted the virus during the treatment? I know some will say it's the medicine head. I contracted this virus during a time of great emotional sadness and confusion decades ago. I'm finding myself going bac...	Kellie	9	1002	Jun 20, 2013 by nurschic
	9 Week Update (Preview) Hi Friends, here's the latest on week 9. I've been a bit evasive about my progress and setbacks lately. Sorry 'bout that.....as for the evil rash - the Incivik rash (knock on wood) is almost gone. A bit itchy but that's about it. I just think it's a miracle. My NP is really happy that the rash is gone. My Eos...	Kellie	3	704	Jun 20, 2013 by BeingOral
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