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Fight is on!
(Preview)
Got blessing from my hepa and hematologists today. Nupogena arriving @ 18h (managed to find it somehow, 100EUR per vial), hopefully i am continuing with full dose of PegIntron from tomorrow again (3 days late only)...my last chance to bring up neutrophiles otherwise my hepa will halve my interfero...
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Zlikster
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3
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681
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Frustrated
(Preview)
Got a text from HCV compliance nurse on Friday. She said my Dr. ordered wrong 12 week VL labs, so I've been waiting for 2 weeks to get results and they only go down to 650 VL. So I still dont know if I'm undetected or not. Not sure when they will retest. Tired of shots and pills. My skin looks like crap, my eye la...
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GodsGrl
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10
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878
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Half way point
(Preview)
Hello to all, Finished my last dose of Incivek on Thursday; can't tell you how happy I am not to have that dragon in my belly anymore. Between a reduction in my riba dosage and a couple of weeks of procrit and Neupogen my blood counts have improved dramatically. I actually feel more like myself in the pa...
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Rescape
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5
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724
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back to oddball treatment again?????
(Preview)
Well seen doctor on friday and I guess because I was so pale a lady of perpetual revenge put me in a wheel chair and that started an 8 hr process. Sent me for a blood transfussion two bags, blood work was Hemo 71 white 22 platt 100. They also injected something into the last bag that may make you pee, well if...
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2willy
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3
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779
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8 week results
(Preview)
hi all, I'm little concern about a phone call from my doctor today. This whole month i've been fighting with my emotional rollor coaster called riba rage. Two days ago i put in a call to the nurse and said i cant take it anymore{The rage or the rollor coaster}. The doctor called me and he's putting me on p...
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edmed
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5
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715
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Looking for Feedback About a Situation
(Preview)
So, my husband started treatment on 2/28/2013. Prior to that date, we had two office visits - the first with the doctor and nurse practitioner, and the second with the nurse practitioner. My husband gets blood work done each week, and the nurse practitioner calls the next day with the results. So fa...
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Carolinca
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6
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913
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Caffine
(Preview)
This morning after I took my ribavirn and drank some coffee I had a huge speeding feeling I never felt before. Felt almost like an anxety attack. Does caffine affect you different while on treatment?
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Rachel
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4
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877
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Week 1 Labs & SX - Incivek
(Preview)
I know it's too early to tell of the long term benefits of the treatment, however it is encouraging that most things are headed in the right direction. Here's some of the numbers (from Monday's lab work vs. Mar 27th) thus far: WBC = 4.8 ( + .3) RBC = 3.75 ( - .11) Hemiglobin = 12.3 ( - .5) RDW = 18.2 ( + .3.5) Plat...
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BeingOral
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1
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757
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Favorite Fatty Helper
(Preview)
Just wondering what people are eating / drinking with their incivek? I work weird hours and with the butt trouble I have to stay away from certain things. Thanks, Brian
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gatekeep
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17
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2135
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very dry skin
(Preview)
These two weeks, My skin is getting to be more dry. I already use a lot of body lotion, body cream, but not useful. Can anyone recommend any way to me? I already tried to change a different brand product, but still not useful. Thanks a lot -- Edited by lucy on Tuesday 16th of April 2013 06:47:05 PM -- Edite...
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lucy
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16
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1636
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und at week 8 now set
(Preview)
detection is 18 iu/ml. so now what? 
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libgirl07
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10
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1167
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Good results I think
(Preview)
Well after calling around to get viral load results which I had done April 2, finally got results not from specialist nor hospital but a nurse. Anyways will probably go for a blood transfussion on monday as hemo is down to 7.8 again, anyways after 31 weeks of pegus pills and shot and 21 weeks of Victrelli...
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2willy
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10
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821
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remedy for injection sites/ruined veins?
(Preview)
my both hands looks like i am heroin user ;-( from constant blood tests (espec. PCR at hospital where they usually ruin my veins with heavy needles) any creams or something to ease the look? summer is comming and i do not need another stigmatisation nor it's easy to wear long sleeves all the time when the...
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Zlikster
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13
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1376
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RASH
(Preview)
I've posted about rash before. Nine days ago I had to stop meds because of extreme fatigue and worsening rash. My energy level has improved relatively quickly as has the fog. My hemoglobin was pretty low but I can tell that it must be improving. But the rash, now nine days later remains awful, terri...
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darkstar
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5
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829
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second post from edmed
(Preview)
hi all, i started week no# 8 and this sat" i'm going for 8 week blood draw. I'm excited but very anxious at the same time. Started tx on 3/1/13 and after 4 weeks still det. hoping for better results at 8 weeks. my tx hasn't been a bowl of cherry. lots of aches, rashes, rectal icting and some bleeding,...
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edmed
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5
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864
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Surprise party for JoAnneh
(Preview)
Anyone want to help planning the surprise party for JoAnneh? We need to keep this a secret from her, so she will be totally surprised. We will need party decorations, chips and dip, horty-dorves and non-alcoholic drinks. Even if you don't know her please attend. JoAnneh has been keeping our hearts fu...
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12Step Guy
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20
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1433
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constant WBC drops treatment halt/nupogena?
(Preview)
my granlucytes are at 0.7, WBC 2.1...tomorrow i am doing blood test again for proper neutrophil count (last one was 0.9)...doc said it's time to lower interferon dosage, maybe from 120mg to 100mg. I got 2-3 weeks max to rebounce WBC otherwise they might halt therapy completly. She said Nupogena is a l...
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Zlikster
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12
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1334
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13 week update
(Preview)
I completed week 12 Friday so I have been Incevik free for 4 days. I hope it is not just psychological, but I felt the best today in weeks. I hope this is some indication of the difference w/o Incevik. Sure feels good feeling good if even for a day. Waiting on my 12 week labs.
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hepcat60
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3
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740
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Week 10 update
(Preview)
Hello to all. My physician has reduced my dosage of riba to 2 pills twice a day and started me on procrit after my latest blood work. I have to say that I am suprised and somewhat alarmed by how quickly and precipitously my counts dropped. Even the white count was marked as an alert by the lab. I had expre...
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Rescape
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2
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728
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Husband's White Blood Count Went up, Neupogen on Hold
(Preview)
Found out good news today that my husband's white blood count went up, so we don't have to use the Neupogen just quite yet. Things are looking good, especially since he was UND at 4 weeks and we are hoping for the same at 8 weeks. He is not having any signficant side effects as well. Praying that things co...
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Carolinca
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3
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784
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UND finally! ;-)
(Preview)
just got 8th week PCR and it's UND!  i was on brink of crying when i got damn result (was 1 week late)... bad news is, my neutrophiles are down to 0.7 ;( i will desepratly try to raise em in next 2 weeks with interferon dosage lowered from 120 to 100mcg (tho i would like to stay @ 120mcg)...i really don't wan...
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Zlikster
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35
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1365
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New to treatment, starting the injection tonight
(Preview)
I am sitting here scared as hell to start this injection, cause I don't know how im gonna feel!! Can I get some feedback on how the first week or two of treatment is?
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Brendalee333
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13
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1022
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Looking for Fibroscan location in Copenhagen, Denmark
(Preview)
Hello Members Does anyone know of a place where one can schedule a Fibroscan in Copenhagen, Denmark I will be visiting there in the coming months so thought it would be a good idea. Allready had a Liver Biopsy, but its results were debated by the Doctors. The USA still has not approved it yet. Matt
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Matt Chris
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1
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751
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Done with blood transfusion
(Preview)
2 units blood transfusion on Monday. after that, I have been feeling great. -- Edited by lucy on Friday 12th of April 2013 03:57:17 PM
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lucy
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4
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694
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update --week 8
(Preview)
HGB 78 120---160 RBC 2.29 3.8--5.2 HCT 0.23 0.36--0.46 My RA ask to reduce RIBA from 2 pills morning , 1 pill evening to 1 pill morning and 1 pill evening And she told me I need blood fransfusion and set up time to do that next week. Others keep the same.
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lucy
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8
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1129
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Timing: Alone or with Triple
(Preview)
I'm very thankful for this forum. It has good information, and has allowed me to care about others a little more than myself, which is a good thing. Thanks for sharing your journey. I start treatment on Friday. Our plan (my wife is great at scheduling, nourishing and caring) is to take my first shot on Fr...
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BeingOral
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8
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1168
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Week 29/18
(Preview)
Well got part of blood work back and hem down to 83 again, read some where importance of alt started out at 91 and has dropped to a regular 42-32 since about week 11 will get viral load in two more weeks as slow at hospital, if detected of treatment if undetected I guess I am more than 1/2 way to the 48 weeks sor...
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2willy
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3
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791
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Good & Bad News on Husband's Week 4 Results
(Preview)
The good news is that he is undetectable at 4 weeks. The bad news is that his white blood cells are still a bit low. He may end up having to take an injection called Neupogen (I think this is how you spell it?) Has anyone else had to take this drug for low white blood cell counts? If so, were you able to give...
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Carolinca
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3
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879
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Looking for your real life stories
(closed)
(Preview)
Hi there everyone, My name is Matt and I work with the Hep C News team. Our website was launched last year (hopefully some of you will have seen it). We want to share the latest news about hepatitis C, and share people's stories and experiences of the virus and undertaking treatment. Do you have a story...
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HepCNewsMatt
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1
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733
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Boceprevir vs Teleprevir
(Preview)
I have been doing triple therapy for 5+ weeks and have had VL go to near undetectable for three straight weeks (non-linear range so no number). That is greater than a four log drop. But with this, my side effects have been intolerable. Fatigue to the point of not being able to get out of bed, not helped...
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darkstar
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2
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827
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