Hep C Discussion Forum

GodsGrl · GodsGrl

I had labs done on Monday, I've been on treatment for 2.5 weeks at time of labs. I am >43 which is so low it's non-quantifiable. My doctor was very happy. I was 1.5 million prior to treatment. I don't 100% understand these results but it's a huge drop!! From the looks of it I am on my to undetectable. -- Ed...

Butcheeyboy · Butcheeyboy

Well yesterday Dr. called to see how I was feeling, not a good question to ask me. I had requested she set up another blood transfusion. She went into her 'you know u can stop now if u can't go on feeling like u do. Well let me tell you something lady, I haven't gone through all this 'crap' to quit now. Let's se...

GodsGrl · GodsGrl

I learned a hard lesson today. I know my skin is different now that I am on treatment, but geez. I put my normal hair depilatory on today and within 90 seconds it began burning. It burned and blistered me. Guess I'll stick to shaving. Anyone else have skin sensitivity?

DJ · DJ

Is there anything we can do to help increase our White Blood Cells (non-prescription). Like are there foods that help? Or getting more rest? Anyone know of what might help. So far I am not so low that they are going to reduce my medicines, but I am wondering if there is anything I can do to keep from get...

Dopey · Dopey

Hi everyone guess ive been promoted to this part of the forum! I went for my appointment today and have finally started. I injected myself and am now sat waiting for the side effects to kick in !!! I decided to go for boceprivir so am having a 4 week lead in. I will be on treatment for 48 weeks. The nurse tol...

gatekeep · gatekeep

Ever since I have stopped incevek 9 wks. Ago I have felt a growing ake where my liver is. It's like I felt right before I started Tx.(like bruse). I've had a ultrasound done last week and it showed a slight swelling and a few noduals. My next VL test is march 7 (24 wk). Anybody else have this or in the know? O...

mallani · mallani

I've staggered across the finish line. After 48 weeks, the relief is enormous. Time to heal and grow some red and white blood cells, and platelets. I swallowed 3,696 caps of Victrelis and 2016 caps of Riba during Rx. Makes me smile ( or cry) at the thought that in 5 years, Rx will probably be a pill a day for...

libgirl07 · libgirl07

I got my 4 week labs yesterday and started victrelis today. My blood looked brown and thick yesterday it was weird.. My labs looked ok only thing that was drastic was my WBC went down to 2.5 I havent gotten my viral load yet. Why is my blood brown?

TeddyTrout · TeddyTrout

I was just told this morning the my 12th week PCR is undetectable. They have just started me on Eprex last week as my red cells where down to 103. they didn't want to reduce my Ribavirin any more as I'm on 5 tabs of Ribavirin. The Eprex injection system that they sent to me was defective and I was having...

wkt · wkt

Hi all...It's been awhile since I posted. This whole hep c thing is a real time consumer. I do appreciate all the kind words of advice you gave me prior to starting treatment. It means a lot because I can see how much experience there is on this forum. So...for today's question... I started 180mcg Pegasy...

Daook · Daook

Info: I have been fighting the "Ribacough" for 2 months. It's been costing me sleep and basically putting in a bad mood during the day. I started googling it last week and found a guy that says Robitussin and 2 big glasses of water twice a day. Bingo!! It's down to a wimper and again sleeping a...

DJ · DJ

My doctor had me take another blood test today because the one I took last week showed my White Blood Cell counts are low. She said to avoid people with colds and flu for now. If today's is still low they will most likely reduce the medicine amounts. Will it still work well if it is reduced? I am really ti...

turtles · turtles

I don't know if is it's my imagination but for the last 3 weeks or so I have been experiancing slight pain under my right upper rib cage when i'm laying down. Also in the morning I get pain in my lower right stomach area that stays around for a couple hours. Has anyone else experianced this? Also noti...

mallani · mallani

I've been fainting so doc. said get some urgent bloods. Hb- 7.1 (71 here) WCC- 1.7 Platelets- 36!! Thank goodness I finish Rx in 1.5 days or may not be here to tell you about it. I'm going to have a serious talk with my doc about Riba reduction for future patients.

lucy · lucy

In the morning 10:30, I got my first shot in clinic. after coming back home, I eat my Incivek 3 tablets and Riba 600mg at 1:00pm after lunch. Then I cancle afternoon meeting and wait to all side efects coming. But till now, I am feeling good. only a little bit headache. I am nervous and drink a lot of water....

Caryn · Caryn

I got a call from the drs office today. 2 week labs show vl of 810!!! I know I am not in the clear yet, but it is good to hear. I hope everything stays on track! In Dec my vl was 8 mil, in Jan it was 6 mil.

Uval951 · Uval951

Is any correlation between ANA direct (antinuclear antibodies) test and result of HCV PCR? We have negative ANA direct test (not special for HCV tests like ELISA or RIBA) and are waiting for PCR Quant. results. It's 4 weeks post treatment test. Another question - AST/ALT were in normal range (25-45)...

HazeySask · HazeySask

Tomorrow I start week 6 of triple therapy with telaprevir. I've been running a temp of 37.5 up from 37.2 in the past 48 hours. I was weak / short of breath and collapsed at work yesterday. Today I had severe pain around my "liver area" that spiked if I twisted or turned my body. It's now an uncomf...

scotu · scotu

After doing great on the Incivek triple play combo, (undetectable at all key markers) until week 60 when the virus came roaring back, (12 week post treatment), my Doctor is putting me in the last slot they have for the Phase 2 study of the Gilead 7977 w/ Ribavirin study. Apparently this is phase 2 vice p...

HazeySask · HazeySask

As of tomorrow I'm 5 week into Triple Therapy. I've slowly been getting this rash on my elbows. I wasn't concerned because I get this rash every January/February due to the dry air, but this time it's a little more pronounced --- no doubt due to Telaprevir. Click To See Rash I'm beginning to see it just a t...

Zlikster · Zlikster

3rd shot went with almost no fever and less body aches. Headache was still strong and nausea was more severe than usual. Usual time pattern (cca 6hrs after shot sx appear and last for 6-7hrs). I really don't have issues with overcoming sx each Fri-Sat. Not that bad, but tinnitus is getting really scary...

Caryn · Caryn

Has anyone had one of these done? Here is a short summary of my results. If anyone can explain, that would be great. This was a test done before I started treatment, but just posted to the labcorp website. PI Boceprevir Victrelis Sensitive NS3 RAMs*: None NS4A RAMs*: None Telaprevir Incivek S...

Caryn · Caryn

How protected are we from the common cold while on ribavirin? I know we are prone to bacterial infections, but what about other virus'?

lucy · lucy

I am so worrying about incivek is ruied. I am so worrying about it. any reply will be appreciated

libgirl07 · libgirl07

Can someone tell me the most recent info on this? I've read that it's just dormant until something happens to suppress your immune system.

pepsi · pepsi

well my insurance has approved my treatment. so next friday is the big day for me. Still a little worried and nervous but i know that this will lead to me being heal from this.

DJ · DJ

I read on another message board suggesting that you get rid of earrings to avoid reinfection after treatment. Have any of you heard this? Should I get rid of all of my earrings? I have stopped wearing them during treatment.

Zlikster · Zlikster

Second shot went pretty similar like first one, just with less fever, but with stronger nausea and headache. I haven't taken again any painkillers, went to bath (helped for headache a bit, but nausea nah). got shot @ 12.30PM, sx kicked in round 18PM and lasted until 1AM. It is definetly Interferon th...

Slick Rock Red · Slick Rock Red

I missed a partial Inicievk dose. I was really trippin' with the Riv, Escitalopram, and Trazadone. I took one (late) and the other 1 1/2 hrs after that. Has anybody done this? or am I just a knucklehead???

Zlikster · Zlikster

http://www.wholeworldbotanicals.com/herbal_desmodium.html)

Topic		Started By	Replies	Views	Last Post
	Labs Back (Preview) I had labs done on Monday, I've been on treatment for 2.5 weeks at time of labs. I am >43 which is so low it's non-quantifiable. My doctor was very happy. I was 1.5 million prior to treatment. I don't 100% understand these results but it's a huge drop!! From the looks of it I am on my to undetectable. -- Ed...	GodsGrl	4	756	Feb 22, 2013 by GodsGrl
	March 20th and 48 weeks DONE! (Preview) Well yesterday Dr. called to see how I was feeling, not a good question to ask me. I had requested she set up another blood transfusion. She went into her 'you know u can stop now if u can't go on feeling like u do. Well let me tell you something lady, I haven't gone through all this 'crap' to quit now. Let's se...	Butcheeyboy	5	879	Feb 22, 2013 by 2willy
	Lesson Learned Skin Sensitivity (Preview) I learned a hard lesson today. I know my skin is different now that I am on treatment, but geez. I put my normal hair depilatory on today and within 90 seconds it began burning. It burned and blistered me. Guess I'll stick to shaving. Anyone else have skin sensitivity?	GodsGrl	1	748	Feb 21, 2013 by Cinnamon Girl
	Increasing WBC (Preview) Is there anything we can do to help increase our White Blood Cells (non-prescription). Like are there foods that help? Or getting more rest? Anyone know of what might help. So far I am not so low that they are going to reduce my medicines, but I am wondering if there is anything I can do to keep from get...	DJ	5	915	Feb 20, 2013 by Bouba
	Started....... (Preview) Hi everyone guess ive been promoted to this part of the forum! I went for my appointment today and have finally started. I injected myself and am now sat waiting for the side effects to kick in !!! I decided to go for boceprivir so am having a 4 week lead in. I will be on treatment for 48 weeks. The nurse tol...	Dopey	10	972	Feb 20, 2013 by mallani
	Liver pain/ ultrasound (Preview) Ever since I have stopped incevek 9 wks. Ago I have felt a growing ake where my liver is. It's like I felt right before I started Tx.(like bruse). I've had a ultrasound done last week and it showed a slight swelling and a few noduals. My next VL test is march 7 (24 wk). Anybody else have this or in the know? O...	gatekeep	4	816	Feb 19, 2013 by gatekeep
	Finished Treatment! (Preview) I've staggered across the finish line. After 48 weeks, the relief is enormous. Time to heal and grow some red and white blood cells, and platelets. I swallowed 3,696 caps of Victrelis and 2016 caps of Riba during Rx. Makes me smile ( or cry) at the thought that in 5 years, Rx will probably be a pill a day for...	mallani	34	1493	Feb 17, 2013 by Bills
	My first month's labs (Preview) I got my 4 week labs yesterday and started victrelis today. My blood looked brown and thick yesterday it was weird.. My labs looked ok only thing that was drastic was my WBC went down to 2.5 I havent gotten my viral load yet. Why is my blood brown?	libgirl07	5	643	Feb 16, 2013 by libgirl07
	Week 12 PCR (Preview) I was just told this morning the my 12th week PCR is undetectable. They have just started me on Eprex last week as my red cells where down to 103. they didn't want to reduce my Ribavirin any more as I'm on 5 tabs of Ribavirin. The Eprex injection system that they sent to me was defective and I was having...	TeddyTrout	2	759	Feb 16, 2013 by Mary Jane
	Please help... (Preview) Hi all...It's been awhile since I posted. This whole hep c thing is a real time consumer. I do appreciate all the kind words of advice you gave me prior to starting treatment. It means a lot because I can see how much experience there is on this forum. So...for today's question... I started 180mcg Pegasy...	wkt	4	877	Feb 15, 2013 by Phil G
	Ribacough (Preview) Info: I have been fighting the "Ribacough" for 2 months. It's been costing me sleep and basically putting in a bad mood during the day. I started googling it last week and found a guy that says Robitussin and 2 big glasses of water twice a day. Bingo!! It's down to a wimper and again sleeping a...	Daook	11	1252	Feb 15, 2013 by Mary Jane
	Reduced medicine..... (Preview) My doctor had me take another blood test today because the one I took last week showed my White Blood Cell counts are low. She said to avoid people with colds and flu for now. If today's is still low they will most likely reduce the medicine amounts. Will it still work well if it is reduced? I am really ti...	DJ	4	700	Feb 15, 2013 by Caryn
	liver pain (Preview) I don't know if is it's my imagination but for the last 3 weeks or so I have been experiancing slight pain under my right upper rib cage when i'm laying down. Also in the morning I get pain in my lower right stomach area that stays around for a couple hours. Has anyone else experianced this? Also noti...	turtles	7	1284	Feb 14, 2013 by turtles
	How low can you go? (Preview) I've been fainting so doc. said get some urgent bloods. Hb- 7.1 (71 here) WCC- 1.7 Platelets- 36!! Thank goodness I finish Rx in 1.5 days or may not be here to tell you about it. I'm going to have a serious talk with my doc about Riba reduction for future patients.	mallani	13	983	Feb 14, 2013 by HazeySask
	Feb 5 is my first shot day. (Preview) In the morning 10:30, I got my first shot in clinic. after coming back home, I eat my Incivek 3 tablets and Riba 600mg at 1:00pm after lunch. Then I cancle afternoon meeting and wait to all side efects coming. But till now, I am feeling good. only a little bit headache. I am nervous and drink a lot of water....	lucy	12	1071	Feb 13, 2013 by marktrux
	It's working! (Preview) I got a call from the drs office today. 2 week labs show vl of 810!!! I know I am not in the clear yet, but it is good to hear. I hope everything stays on track! In Dec my vl was 8 mil, in Jan it was 6 mil.	Caryn	18	1133	Feb 14, 2013 by Bills
	Correlation ANA and PCR tests? (Preview) Is any correlation between ANA direct (antinuclear antibodies) test and result of HCV PCR? We have negative ANA direct test (not special for HCV tests like ELISA or RIBA) and are waiting for PCR Quant. results. It's 4 weeks post treatment test. Another question - AST/ALT were in normal range (25-45)...	Uval951	2	916	Feb 13, 2013 by Uval951
	... start of severe side-effects - seeking advice / info (Preview) Tomorrow I start week 6 of triple therapy with telaprevir. I've been running a temp of 37.5 up from 37.2 in the past 48 hours. I was weak / short of breath and collapsed at work yesterday. Today I had severe pain around my "liver area" that spiked if I twisted or turned my body. It's now an uncomf...	HazeySask	5	828	Feb 13, 2013 by HazeySask
	Anybody On the 7977 Bandwagon? (Preview) After doing great on the Incivek triple play combo, (undetectable at all key markers) until week 60 when the virus came roaring back, (12 week post treatment), my Doctor is putting me in the last slot they have for the Phase 2 study of the Gilead 7977 w/ Ribavirin study. Apparently this is phase 2 vice p...	scotu	2	608	Feb 13, 2013 by LUV2RYDE
	That Incivic (Telaprevir) Itch (Preview) As of tomorrow I'm 5 week into Triple Therapy. I've slowly been getting this rash on my elbows. I wasn't concerned because I get this rash every January/February due to the dry air, but this time it's a little more pronounced --- no doubt due to Telaprevir. Click To See Rash I'm beginning to see it just a t...	HazeySask	4	1210	Feb 13, 2013 by HazeySask
	Week #3 (Preview) 3rd shot went with almost no fever and less body aches. Headache was still strong and nausea was more severe than usual. Usual time pattern (cca 6hrs after shot sx appear and last for 6-7hrs). I really don't have issues with overcoming sx each Fri-Sat. Not that bad, but tinnitus is getting really scary...	Zlikster	0	680	Feb 10, 2013 by Zlikster
	GenoSure Test (Preview) Has anyone had one of these done? Here is a short summary of my results. If anyone can explain, that would be great. This was a test done before I started treatment, but just posted to the labcorp website. PI Boceprevir Victrelis Sensitive NS3 RAMs: None NS4A RAMs: None Telaprevir Incivek S...	Caryn	2	734	Feb 9, 2013 by Caryn
	Protection from the Common cold? (Preview) How protected are we from the common cold while on ribavirin? I know we are prone to bacterial infections, but what about other virus'?	Caryn	9	1217	Feb 9, 2013 by DJ
	I store my Incivek into Refrigerator for one week (Preview) I am so worrying about incivek is ruied. I am so worrying about it. any reply will be appreciated	lucy	8	1190	Feb 7, 2013 by Bouba
	Svr = cure? (Preview) Can someone tell me the most recent info on this? I've read that it's just dormant until something happens to suppress your immune system.	libgirl07	22	1746	Feb 6, 2013 by mallani
	will start the battle on feb 15 (Preview) well my insurance has approved my treatment. so next friday is the big day for me. Still a little worried and nervous but i know that this will lead to me being heal from this.	pepsi	4	631	Feb 6, 2013 by GodsGrl
	Earrings (Preview) I read on another message board suggesting that you get rid of earrings to avoid reinfection after treatment. Have any of you heard this? Should I get rid of all of my earrings? I have stopped wearing them during treatment.	DJ	11	2501	Feb 6, 2013 by Mary Jane
	Week #2 (Preview) Second shot went pretty similar like first one, just with less fever, but with stronger nausea and headache. I haven't taken again any painkillers, went to bath (helped for headache a bit, but nausea nah). got shot @ 12.30PM, sx kicked in round 18PM and lasted until 1AM. It is definetly Interferon th...	Zlikster	0	627	Feb 4, 2013 by Zlikster
	Missed an partial Inicievk dose (Preview) I missed a partial Inicievk dose. I was really trippin' with the Riv, Escitalopram, and Trazadone. I took one (late) and the other 1 1/2 hrs after that. Has anybody done this? or am I just a knucklehead???	Slick Rock Red	11	1343	Feb 4, 2013 by turtles
	Desmodium Adscendens drops as supplement with tx? anyone? (Preview) http://www.wholeworldbotanicals.com/herbal_desmodium.html)	Zlikster	8	1408	Feb 4, 2013 by Zlikster
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