|
Starting Treatment next week! Have questions!
(Preview)
Ok it's been a long road to get to the point where I can actually start treatment, I am scheduled to start next Wed. I am geno type 3A so I only do double treatment. I am filled with all kinds of anxiety, I don't well with uncertainty! I am sure glad that I can turn to you guys, the true experts! Thank you all fo...
|
GodsGrl
|
37
|
1868
|
|
|
|
|
Insurance fixed starting treatment 1-30-13
(Preview)
Greetings all I just realized I never really introduced myself I am Jeri I am happy to say the final issues with my insurance has been resolved! Got the call today and my meds are being shipped and I will be starting treatment 1-30-13. I am having a lot of mix emotions, we have worked hard to get here, and...
|
GodsGrl
|
1
|
632
|
|
|
|
|
Anyone else fear needles?
(Preview)
The injection is going to be the hardest part for me. And not so much a fear of my reaction. I get so stressed over the thought of the needle. Tomorrow is injection #2 and I am feeling anxiety over the thought of having to stick myself again (and it is still a day away). Has anyone else gone into this with a...
|
DJ
|
20
|
1038
|
|
|
|
|
help with viral load data
(Preview)
Well finally I got the results of Viral Load done December 24 I won't see my doctor or nurse until end of month, It says "Hepatitis C rna Viral Load Detected, the result for HCV RNA is below the linear range of the essay which is 15 IU/ml and thus the exact value cannot be calculated" Don't unde...
|
2willy
|
5
|
1029
|
|
|
|
|
What to expect
(Preview)
Can anyone give some feedback regarding how you felt on your first day of triple treatment with incivek?
|
Caryn
|
6
|
1161
|
|
|
|
|
Week 24 results.
(Preview)
The day I've been waiting for. Hi Neil, your virus was not detected at week 24. So, that's great news and we will continue as planned.Thanks and Happy new year, Treatment will continue for the balance of the 48 weeks. Sooooo happy....what a rush !!!!
|
Neil_Canuck
|
11
|
1030
|
|
|
|
|
second time around on treatment/FAILURE!
(Preview)
well dr just stopped my treatment again! incivick was working,dropped viral load to 5, before christmas then did another viral load and they told me it went back up and they stopped it. told me that theyll look at something else in ayear or two!!!!! WTF????????????????
|
willardt71
|
6
|
940
|
|
|
|
NEW TREATMENT - NO INTERFERON - RIBAVIRIN
(closed)
(Preview)
Hi All, I have had hep C genotype 1a now for 42 years, I was diagnosed with hep before they had tests to tell the genotype. 12 years ago I looked into the treatments for hep C and was horrified at what they did to you. I have been very fortunate until recently. My ALT and AST were always in the normal range,...
|
Marilyn
|
14
|
2286
|
|
|
|
|
? about non-interferon treatment in trials
(Preview)
I was looking online last night and say that in 2014 a new non interferon treatment will be available here in the USA, been in trials with good results. Way less or no side effects. I'm stage one chirrosis I'm considering waiting, was scheduled to start treatment this next week. Thoughts????
|
GodsGrl
|
5
|
1451
|
|
|
|
|
How many Tylenol is too many?
(Preview)
9 days ago i had a tooth pulled and things kinda went bad. A chunk of bone broke loose from my jaw and is sticking out the inside of my gum. I saw the oral surgeon friday and he said since the other end of the chunk is still alive and attached to the jaw, he cant remove it until it either breaks loose on its own o...
|
marktrux
|
4
|
1006
|
|
|
|
|
Painful lymph nodes
(Preview)
Anyone experienced painful lymph nodes? Underarms and ground area are especially bothersome...does low WBC levels have to do with anything?
|
Margo
|
10
|
2236
|
|
|
|
|
WEEK 24 RESULTS
(Preview)
Dr. office called this morning with my VL resultd. I am happy to say it was UND.YEAH!!!!!!!!! Ken
|
packerfan24
|
11
|
935
|
|
|
|
|
Is water flushing the virus out?
(Preview)
I will be starting tx in a few weeks. My nurse told me to drink a lot of water so I wil flush the virus out. That comment seemed a little strange to me. I know we need to drink water while on tx and otherwise for that matter, but I have never heard it put that way. Has anyone else heard this?
|
Caryn
|
1
|
1162
|
|
|
|
|
Shots
(Preview)
Well it has been a long road,but On Monday January 7,2013 I am taking my last shot . I go to doctor on Thursday to get my results for my VL. So for all you people just starting out there is a light at the end of the tunnel. Hang in there we are all behind you. Ken
|
packerfan24
|
16
|
1103
|
|
|
|
|
Ribavirin dosage
(Preview)
I am starting treatment tomorrow, and will be taking 600mg of Ribavirin twice a day (total of 1200mg). Does this sound like what others have taken? Just wondering.
|
DJ
|
13
|
1352
|
|
|
|
|
Immunizations for Hep A, B and Flu and Incivek vs Victrellis
(Preview)
I think I read somewhere that if I go ahead and get the immunizations for Hep A, B and Flu that it will speed the process. Is this correct? I am one month from having lab work and radiology, as well as finally meeting with the Hepatologist (after 6 months).
Also what determines whether you get Incivek or...
|
ArtiesGarden
|
7
|
1147
|
|
|
|
|
4 weeks in....
(Preview)
nurse called and just told my vl is down from 7.5 to 2.4. still no major side effects except for being a little more tired than usual. still hitting the gym, trying to make mind body and spirit stronger. stick it out my friends!
|
2ndTimeAround
|
6
|
860
|
|
|
|
|
Advice for travel....implications of SUN on rash
(Preview)
Hi everyone Was wondering if anyone has any guidance around travel to hot climates. My mother in law has treated my wife and I to a holiday in the sun, 3 weeks in Goa, India (my mother in law is coming too.....which is nice, I can hear all the mother in law jokes as i write  ) Have not had rash but skin has bee...
|
Adamos40
|
8
|
1073
|
|
|
|
|
Just a word of thanks
(Preview)
Thank you for being here. Sort of dropped out because I was becoming hypochondriac reading all the treatment symptoms, but guess what? They happened anyway! Ha ha.
Last shot is TONIGHT! Last riba on the 14th. Waiting for treatment symptom abatement. Best of luck and wishes to everyone just startin...
|
suey
|
2
|
737
|
|
|
|
|
Shortage of 135 pegasys pro-click
(Preview)
I was a day late with my shot cause they said there was a shortage of the 135 pro-click pegasys. Finally got the 180 syringe called in and just squirted out medicine to the 135 marker. The pharmacy wouldnt just give me the 180 without a script and made me a day late..What a nerve racking hassle.
|
Biggyb
|
1
|
817
|
|
|
|
|
Pain in my heals
(Preview)
I just started having sharp pain in my heals? Very Wierd. Anybody?
|
gatekeep
|
0
|
644
|
|
|
|
|
Copy of email conversation between me and RN
(Preview)
Copy of email conversation between me and my doctor's office: Hi Cindy, Just wanted to send you a note on my progress so far. The rash is definitely getting better. I do not have a lot of large, raised bumps anymore. They are mostly flat and are changing color from fiery red to a brownish color. I have not h...
|
zuzusfam
|
0
|
797
|
|
|
|
|
Ringing in the New year :)
(Preview)
I am stil waiting for my new doctor to get the meds approved by my insurance company, but they said they would be out of the office until Jan 2 so I wasn't expecting anything over the holidays. But tonight, as I celebrate the New Year, I am telling myself that this is my year! I will be starting my treatment...
|
DJ
|
4
|
1038
|
|
|
|
|
Hair loss
(Preview)
After being off the dreaded Ineveck for a couple of weeks I'm noticing a bit more hair loss. It's not so much on my head but everywhere else seems to be thinning ? I wish it would effect my back hair more
|
gatekeep
|
4
|
1598
|
|
|
|
|
Wired after interferon shot...
(Preview)
After taking my interferon shot, I'm wired for about 36 hours. Are there others with similar experience?
|
Marky
|
6
|
975
|
|
|
|
|
Good News I think or just brain Fog
(Preview)
Well I am not on odd ball treatment any longer. Specialist said 48 weels so have 34 to go. The Crieten level dropped with more water intake and the kidney specialist strongly suggested that I try a zinc suppliment to help with the taste of rusty nails in my mouth ???. Also they stopped my Arthrotec, whi...
|
2willy
|
2
|
826
|
|
|
|
|
Problems with treatment
(Preview)
I only have a few weeks left of the Incivek but my blood counts could not take it any more. On Wednesday I came down with some type intense nerve pain in my left buttocks while I was at work. I could not sit down. Every time I tried to I got this 10/10 pain, like a red hot wire searing in my flesh. It would slowly g...
|
Northern
|
1
|
969
|
|
|
|
|
Incivek Rash
(Preview)
[quote="karentaliesin"]ody) wasnt zuzusfam taken off the tele early , for this reason, On Thursday afternoon, I ended up in the ER because of the rash. (I had stopped the incivek on Monday because of the rash) The med staff at the ER were very good but none had ever seen a rash like I have. T...
|
zuzusfam
|
18
|
2221
|
|
|
|
|
Happy Holidays to all
(Preview)
Wishing everyone no matter your belief.. a Happy Holiday .. may your side effects be few, your labs results be spot on, and your days tolerable... peace and love MJ -- Edited by Mary Jane on Tuesday 25th of December 2012 10:02:07 PM
|
Mary Jane
|
3
|
987
|
|
|
|
|
Low WBC / Interferon reduction
(Preview)
Hi All! I have another question. My doctor called today with the results of my 2 week blood work and said that it does not look like I am tolerating the treatment well. My white blood cells specifically are very low (1.8). She is reducing my interferon dose and having me skip this next injection which...
|
EB
|
6
|
2844
|
|
|
