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My treatment saga
(Preview)
I am 66 years old. I contracted Hep C during a three week period of madness in 1970. It wasn't until 1992, when an assay became available, that I discovered I had the disease. In the 1990's I underwent two seperate year-long treatments of interferon/ribavirin, but while my viral load decreased signif...
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Damdifino
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8
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1207
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Can't sleep?
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I have a new Sx I only sleep for maybe 4 hrs a night then I'm wide awake but wanting to sleep? I Was Rx Valium and sleeping aids but they just make me feel wonky the next day and sometimes I still only get four hours? Really Weird!
Thanks Brian
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gatekeep
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8
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1023
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Thyroid high before treatment?
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Has anyone has a high number on their thyroid test before they started treatment? And if so, were you still able to start treatment? This may be an issue for me (I am waiting for my test results). Last summer I had a high number, but a month later I was normal. Last month I had a high number again, so I ret...
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DJ
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3
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800
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Undetected @ 12 wks !
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Yeah ! It was a long 12 wks. MD said liver functions are normal, keep up the good work until August.
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gatekeep
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7
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877
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On week 36 of 48
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Yikes!! I am glad it's almost over with!! Seems like these past few weeks have gotten worse. My eyes are blurring. no energy, cramping legs, out of breath and on and on...... Viral load is NEG. but red and white counts have been low. Also had thyroid problem about 2 months ago and had to drink the 'radioac...
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Butcheeyboy
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5
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837
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Feeling Great at 13Wks.!
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Just wanted to let everyone know that there is a better life waiting after the incivek. I have not felt this good in years (really). My hope is its not just from the last twelve week shock of the Teleparvar..But for now im just going to be thankful. Merry Christmas! Happy Holidays! Brian
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gatekeep
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6
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980
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Treatment roulette
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I'm in treatment week 16 with triple/Victrelis. I'm fortunate that I was UND at week 4 and have been ever since. The problem is that my blood chemicals are in the tank: I'm on Procrit for low red cells and my ribivirin has been reduced to 2x200mg tabs a day. As soon as it arrives, I'll be starting neupogen f...
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Damdifino
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6
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1008
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8 week blood draw results
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Undetected at 8 weeks. But now my WBC too high, a day after nuelasta injection. But can't seem to be happy as I have lost one of my four legged best friends Sat. She has gone to the bridge and I miss her horribly.
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onabugeisha
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7
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942
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Anyone go on a trip on treatment?
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If you read my other post, you know I am switching doctors and starting all over again. So I have no idea when I will be able to start treatment. We had planned a vacation in August thinking by then I would be done, but now that doesn't seem like the case. So has anyone gone on a trip during treatment? Our f...
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DJ
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5
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853
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Painful Calf Muscle Pain?
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Has anyone experienced extreme calf muscle pains? We're trying to figure out if this is another new sx or if it's the bananas he's been eating. thanks!
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elizabeth
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18
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2305
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Four weeks left
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Well I have four weeks left of taking Riba and interferon. Keeping fingers crossed.
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packerfan24
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6
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748
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Umm...now what?
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I emailed my RN who forwarded the email to my MD.Due to my rash (and open lesions) they want me to stop the incivek now (2 weeks early). That is good news and bad news, isn't it?
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zuzusfam
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7
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850
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UND at 8 weeks!!
(Preview)
Just had my blood results for 8 week v/l. Its come back UND My consultant said he wants to see how it is at week 12 before making a decision to extend the riba and interferon to 48 weeks. He flagged this up as an option because I was still detected (albeit it just detectable at 12) at week 4. He said as I seem to b...
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Adamos40
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17
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923
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So discouraged
(Preview)
I found out 6 months ago I have Hep C and have been doing everything the doctor has told me to prepare for treatment. Last week I thought I was ready to go and today she called and said she can't start because of something she saw on my EKG (even though at the hospital when I took it they told me it was fine!). E...
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DJ
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22
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1529
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week one in the books
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so week one is in the books and i went for my first blood draw this morning. i have to say that i feel blessed, as other than being a little more tired than usual, i have had no other adverse reactions. been going to the gym, and doing the same workouts, but i have lowered the weight, just increased the repi...
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2ndTimeAround
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5
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793
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Rash
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I'm sure the sbject line brings back horrible memories for some of you. I am near the end of week #10 and this rash is driving me nuts!! When I finish the incevik, will it go away? It is on my FACE(!!) chest, arms, legs, back and shoulders. The anti-itch cream seems to be doing an ok job but it is not 100%. I als...
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zuzusfam
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8
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1326
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UND!!!!
(Preview)
Great news today! My VL is UND at 6 months treatment meaning the Invicek
Worked! I know this increases my chances!
I am in awe the medicine working this time as It did not work for me 11 years ago.
Incivek was tough but it worked and my blood work looks good too.
Week 26 of 42! Here we go!
PTL! I will do wha...
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JoAnneh
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32
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1600
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Good Riddins Incevek
(Preview)
Last night was the last Telepavar it was a long twelve weeks. My butt already feels better!
Also did my labs today. Fingers Crossed...
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gatekeep
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6
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819
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6 monthly Ultrasound
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Had my 6 monthly Ultrasound today. No change so I don't have to worry about HCC for another 6 months. I've had an annoying cough since week 30 (10 weeks). I explained it as a Ribavirin cough to my wife, but she insisted I get a Chest XR as well. It was normal so she's happy. The question about followup imagin...
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mallani
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3
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760
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Non-Responder going for round 2
(Preview)
hey all, i am a non responder who finished my first round of treatment over 10 years ago. it didn't "take" and my lateset liver biopsy, puts me at high stage 3 - stage 4. i am now waiting to start peg-interferon-telaprevir-ribavirin regimen. i am 53 now, in good shape and wondering how muc...
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2ndTimeAround
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12
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1364
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Anti-Itch Cream
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Picked up the anti-itch cream my doc prescribed. The compound is "Triamcinolone 0.1% crm in cetaphil. Apply to rash three times daily" I used it 2x yesterday and 1x so far today. Seems to be helping as the injection site reactions on my thighs do not look so angry. I have also been taking oatm...
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zuzusfam
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6
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1004
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Anal Itching and Discomfort, and other Anorectal Complaints with Incivek (Telaprevir) - Fact Sheet
(Preview)
One of the newest medications used to treat chronic hepatitis C virus (HCV) infection is Incivek (telaprevir). Incivek is a protease inhibitor, taken with peginterferon and ribavirin, and used for HCV patients with genotype 1. A common side effect of Incivek is anorectal discomfort, including a...
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Cinnamon Girl
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6
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4366
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Back on Treatment
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Well they kinda got it sorted out so as of tommoro I will be back on 600 rib the 12 vict and on monday go for blood then the eprex and peg shot. Haveing a week off and told to go back on treatmnet is or was questionable but heck I use to play in traffic down town at rush hour so I am back with use again. Hemo only m...
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2willy
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6
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1132
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20 grams of fat
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1 2
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(Preview)
I am really surprised that one of the hardest things about this tripple tx, for me anyway, is choking down 20 grams of fat at 6am and 10pm. I manage to fix a fried egg, bacon, and toast with butter and force feed myself at 5:45 so that I can take my meds, but I still get so hungry thoughout the morning and crave...
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BeccaJune
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55
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14519
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And the rash to my list
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I've just entered 8 th week of tx. I now officially have the rash, Its on my arms, legs back of neck, I've takin oat meal baths,soaked myself with Aveeno,script of 2.5 hydrocortisone and a script of Hydroxyzine HCL 10 mg. I've been through the ringer with treatment. I have resorted to Xanax at night. The...
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gatekeep
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25
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3774
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Triple Therapy Workbooks
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These two workbooks are designed for patients to keep on hand throughout their treatment course with triple therapy--pegylated interferon, ribavirin and one of the two new drugs: boceprevir or telaprevir. You can download either one in PDF format from this link. http://www.hepatitis.va.gov/...
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greenqueen
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6
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4106
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Day One
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so i started tx today. interferon, ribavirin plus my first dose of incivek....went to the gym and worked out, feel a little "coldy", but so far so good. let's hope it stays that way!
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2ndTimeAround
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10
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939
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UND @ Week 8
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As you can see from the subject line, I am und. If I werent so flippin' tired, I would actually jump up and down. I am in the middle of week 9 so that means only 3 more to go on the nasty incivek. My other blood work came back with low platelets, wbc, hcb and I am slightly anemic. They are reducing my interferon t...
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zuzusfam
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8
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1033
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should i extend treatment?
(Preview)
you know, standart treatment period is 24weeks at triple therapy if you succeed rapid response.. i got UND at 23rd day, my last test was at 12th week and it was UND also.. now i am at week 17... but at last meeting my doctor told me that he wanted to extend tx 8 more weeks to guarantee SVR because i tolorate tx...
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cmerduran
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12
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1180
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BP a ltttle high, pulse a little low
(Preview)
Anyone one else seeing this? Side effect of Rx? BP 178/65 Pulse 40. Seems that this week instead of getting a little dizzy when I stand up, now it can occur while sitting. All labs seem to be stable. I've been accused of being thickheaded, thick-skinned but never lightheaded (LOL). (Well, for full-di...
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12Step Guy
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5
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890
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