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2 weeks deep in treatment..
(Preview)
Soo this is my second week into treatment. I took shot number 2 this past Sunday. I have been feeling slightly more lazy than I usually do but other than that everything else seems normal. I'm by no means complaining.. But i'm confused about all of these symptoms. Does it get progressively worse??? Is t...
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echoneko1
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6
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899
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When the Pegasys syringe malfunctions...
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Wow, I can't beleive it. I have completed 9 weeks and 9 shots! I also was UNDETECTABLE at week 7. Yay me! I also had a Pegasys malfunction a few weeks back I thought I'd share with you: I had the needle in, pulled back on the red plunger to make sure I wasn't in a vein and the plunger CAME OFF in my hand. I cou...
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Piggles925
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7
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1044
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shot 24 out of 24 done
(Preview)
triple x rough on one but is well worth it to kill the beast
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robert d
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9
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777
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Old Dude Cries Over Last Dose of T375 - VIDEO!
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Hey guys! Well, it aint pretty but I wanted to share this real moment with all my buddies on chemo and those who have lived through it. May all your days be with minimal SX!!!  and may the "healing" fo...
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innerview
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24
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1271
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Riba Dose Reduction
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Started week 11 yesterday (2 more weeks of Incivek). My dr just told me to reduce my riba dose to 600 mg because my hgb is now 8.6, down from 9.3 six days ago and 10 the week before. I was on 1,200 mg thru 9 weeks and then 1,000 mg for week ten. She has also ordered Procrit. I was undetectable at week four and...
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Sunrise747
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34
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2873
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OK! I need some help in understanding something!!
(Preview)
was the incivek mainly for the non responders? or what? i have been doing treatment for 30 weeks. i had a meltdown saturday. i quit taking the riba's. doc tells me today that i must try to do the 48 weeks. well number 1 i have a tooth that broke off into the gum about a month ago & i know it is not tgoing to s...
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TazKat
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5
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854
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Retinopathy, aka eye problems
(Preview)
Hi all, I have completed 9 weeks of treatment so far. It is kicking my butt big time, but I was UNDETECTABLE at 7 weeks. YAY! Now I have a new treatment-related problem on my plate and I am so confused as to how this is SUPPOSED to be managed. At the eye MD last week, she found mild retinopathy in both of my ey...
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Piggles925
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1
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1183
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GLAD TO BE HOME
(Preview)
hello all, i hope everyone is feeling alright today! this past weekend i had a family reunion in mississippi.. it was great! it was a much needed break. today was my first full day back and i had 3 dr appointments!! im wore out.. my last apt was just a hep a and b vaccine but for some reason i almost passed...
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echoneko1
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1
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696
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Very Delicate Skin?
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I have been meaning to ask this for a long time, but the treatment related topics kept me busy. But for the past few years, I have noticed that my skin is real delicate, and injures very easily. If I bang the back of my hand on a shelf, trying to catch something I dropped, a big flap of skin might tear, and it se...
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news
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6
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1734
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Low white blood cells at week three?!?!
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I am at week three of triple therapy and so far other than my first day things have been very easy for me. I read about all of your stories and I feel guilty that I don't feel run down. I'm so sorry to all of you that are feeling sick and tired. I wish you all the best. I did just get bad news, however, and am unsur...
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Lara441983
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10
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2080
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Just Took My Last PDP
(Preview)
The Purple Devil Pills are out of my life forever. I even burned the final box in symbolic retaliation for all the burning its done to me. Felt pretty darn good.
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davesf
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12
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922
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Some good news for a change!
(Preview)
Breast biopsy came back negative, so no need to stop one unpleasant treatment to begin another! Blood count up some, so back on full dose of Riba and Pegasys. Only 15 more weeks!!
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nohcvforme
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6
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790
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CBCs During Incivek Triple
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I took the lab reports from my entire treatment and put them into a spreadsheet to make it easier to see trends and compare different levels at times when things happened. Makes a pretty interesting exhibit, to me anyway, and I was wondering if any Incivek triple starters would want to see it. Could be a...
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news
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7
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1061
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Still undetectable at 18 weeks despite lowered Ribavirin
(Preview)
I must confess I always hold my breath when I am about to hear the results of my viral load test. I suspect this is particularly true for those of us relapsers who lived through 48 weeks of combo treatment (as I did in 2001) with an undetectable viral load -- only to be told "It's back" six month...
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Sunrise747
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11
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932
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Ferritin jumps in Tx – is it normal?
(Preview)
Ferritin serum level was always in range 180-230, but after first week Tx jumped up to 800-950. Is it normal for Tx? Who is familiar with the issue? Thanks
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Uval951
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3
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1109
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1st Proclick dose
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Im pretty weak and after almost stabbing my hand with the usual syringe, I asked to try to the new ProClick. Did my first does tonight, works good, The directions say ti hold it flat to your pinched up skin, but later says at a right angle, I couldnt inject with the right angle, flat worked great, it autom...
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Suzanneaz
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1
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650
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Need advice
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Hey Friends & Fellow Dragon Slayers I need some friendly advice--this week thinking that I was going to sail through the last 10 weeks--came down with strep throat. It is killing me--went to my PCP on Monday--and she prescribed me some 5 day anti-biotics. Yesterday (Wednesday) they seemed to be...
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Shep
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12
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849
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20 grams of Fat
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With the new ****tail treatment you have to eat 20 grams of fat, here's a list of things you can have. http://www.squidoo.com/slaying-the-dragon This is a working list, meaning as new things are mentioned or discovered they will be added. Anything you have to add feel free to post here if you want...
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gothtini
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5
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4617
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Feeling a bit more positive!
(Preview)
Gidday, After 2 weeks of Vict., saw my doc today. After complaining about the Sx he said ' at your age with cirrhosis, what do you expect'. I guess after breezing thru the 4 weeks leadin, and after having had no real problems with my 26 weeks of SOC in 2000, it was a shock to feel so bad after 4 days of Vict. Rea...
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mallani
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4
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864
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pre tx prep
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I'm gonna be starting triple tx in the next few weeks, I've done peg/riba 3 times but it's been about 10 years since last tx. I am wondering if there are any special preperations I need to take/make before tx to make it more tollerable and effective. Thanks for any help you can give me.
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marktrux
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5
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1014
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8 weeks UND
(Preview)
Well I met with my doc today. I'm UND at 8 weeks, with normal AST and ALT. Blood is a little thin but over all I'm holding up well. Tired with a rash and burnin' bum but I can live with that for another 4 weeks and then 12 more weeks on Peg & riba. I see the train a comin'. Triple therapy, Incivek, Peg & Ri...
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Scout
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5
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743
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Any tips for minimising fatigue
(Preview)
Hi all, 69yo.m.,cirrhotic, geno 1b, VL at start 1.28M., after 4 weeks leadin with SOC, VL 3,030. Started Victrelis 10 days ago, Hb had dropped from 148 to 104. on SOC. Have been feeling dreadful since day 4 of Vict. Extreme lethargy, nausea. Finally called clinic today, and had FBC. Hb 107, so not sever...
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mallani
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6
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1492
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riba rash in the throat?
(Preview)
I've had a sore throat last couple of days, so I did the salt water gargle, then today i looked at the back of my throat with a light, and it looked just like the red bumps on my elbows. Anyone else encounter this? If so any solution? swallowing is quite painful if eating anything non soft. hope this makes se...
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bstanga
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4
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984
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Got my Pegasys Proclick delivered today.
(Preview)
I use it the first time next friday. Has anyone used this yet? Last time I asked about this I dont think there were any responses? Like it, dont like it, give it your review if you have tried it yet. They gave me 3 months supplies of the Proclick and Copegasus
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Suzanneaz
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3
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910
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How can you exercise?
(Preview)
Hi all, I was pretty good until I started Vict. After 4 days I can barely get from bed to the TV. My Hb had dropped to 106 from 158, and presumably will drop further. Next labs in 10 days. Last week I played golf 3 times ( in an electric buggy) and I desperately want to do some exercise. I wonder how much is in the...
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mallani
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12
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1005
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Week 12 results
(Preview)
Hi everyone! Hope you are all getting on ok. I've had it pretty rough these last few weeks with anemia and all the rest. Feeling really weak and just out-of-it! But got some good news... I have completed 12 weeks and am now finished with the Incivo/Incivek!!! YAY!!! Oh Happy Day! Man, that is a load...
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innerview
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26
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1226
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Ordering Prescriptions a Week Early
(Preview)
After listening to the horror stories about last minute drug delivery, and risks of interrupting treatment, I began to move my call ahead a couple of days each month, and today a new shipment of peg and riba arrived, which will be used to start week 25 and go through 28. I am in the middle of week 23, with a f...
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news
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3
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771
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4 weeks in
(Preview)
Hi all, Just finished my leadin 4 weeks of Peg and riba. Start victrelis tomorrow. VL has dropped from 1.28m to 3,030. Hb has dropped from 148 to 104, and platelets from 138,000 to 94,000. Gen 1b, cirrhotic, 69y old. Just a bit of lethargy. Is anyone on victrelis, and what have they experienced regardin...
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mallani
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7
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945
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My 4-Week Labs
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Well, I got my 4-week labs back. I did the labs at day 26 (not 28), on April 4. I didn't start Victrelis until 2 days later, on April 6. These results are from 26 days on PegIntron and Ribavirin: Viral Load - 371. (Was 4,698,302 before TX.) That's more than 2-Log drop. AST - 36 ALT - 44 WBC - 2.1 (range 4 -...
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Judy S
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17
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1088
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My turn at bat
(Preview)
After having been here[mostly lurking] for over a year, I finally get to join the ranks of those here "on treatment". I do my first Pegasys shot today at the "give-yourself-a-shot" training class at Kaiser-Permanente; not doubt I'll also be gulping down Ribavirin caps li...
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hrsetrdr
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14
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1035
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