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EOT and Milk Thistle
(Preview)
This is not a doctor question as they never suggest milk thistle. I took pharmaceutical grade milk thistle for 20 years when I was diagnosed with HCV. I'm convinced it kept my liver in reasonable shape. I did stop milk thistle while on Harvoni at doctor request as it could affect LFT's. But once I wa...
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singsong
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5
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1391
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Only 2 more weeks of Treatment - EOT July 17 -
(Preview)
Hi friends I have been meaning to post good news. It is a little over a week since Doc lowered the RIBA to 600 mg with the Solvadi. Started to feel better a few days ago. Second blood test after 2 months of tx is still undetectable . I finish meds on 7/17. Plan a little celebration and ceremony tonite when...
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K8
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9
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1163
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Feeling water logged...harvoni
(Preview)
What else besides water is good to drink besides water while on harvoni,? Not coffee or tea? I just have 1 cup of decaf coffee at breakfast.
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marjim48
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7
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1626
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The Train has left the station.
(Preview)
I've moved over here from the New Members Area because I started treatment yesterday. I'm G3a diagnosed in February and approved June 24th, 2016 for 24 weeks of: Daklinza 60mg Sovaldi 400mg & Ribavirin 1200mg I'm a 62yo male, treatment Naïve with an unknown fibrosis or cirrhosis score. Altho...
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GrayEagle
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2
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1018
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Not quite sure what to do here
(Preview)
Hey all.....This is Dave ..I'm ten weeks in to my 12 week trip on 1200 Riba, 60 Dak, 400 Sol...../ At start I had hep C, G-3, with early onset Grade 1-2 cirrhosis...2mil VL, ALT-70, AST-66.....treatment naive..........16 days into treatment I was <12, ALT-19, AST-24..... This for my Hepotoligis...
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Winfrey50
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5
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1640
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Reflections on "Harvoni" - Before, During & After
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As we reflect on our personal experience with the "Harvoni" treatment,we ask what stands out in your mind, and what happened that you did not expect, what would you change if you could do it again, Positive or Negative, Before, During & After treatment. Before- It takes some Insuran...
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Matt Chris
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23
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10439
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BUCKING THE SYSTEM
(Preview)
Most HCV sufferers in the world are genome type 1 and can be treated with either sofosbuvir or the sofosbuvir/ledipasvir compound (Brandnames: Sovaldi and Harvoni,) possibly with ribavirin supplements. Unless there are specific MEDICAL reasons why a genome type 1 patient cannot be treated wi...
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Michael1037
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7
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1180
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One more month
(Preview)
so I was counting on seeing my liver Dr last thurs in great hopes that he may lower the RIBA the appt was cancelled and I sobbed for a 1/2 hour! I see Dr this thurs which according to my calculations is one month until EOT TX is 3 months long, started 4/25. I was undetectable at 5 weeks, next blood test on t...
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K8
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8
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2166
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I gave in my prescription today :D
(Preview)
Hi everyone, I don't have any other Hep, I got all the all clear, it was pesky stones after all, my stats are already lowering :D I gave in my prescription and pick it up Friday. I am so excited I can't wait. I thought I'd share my good news. Hurrah :D x
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Loopy Lisa
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31
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1942
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Understanding the availability of Hep C treatments in the US
(Preview)
Hi everyone! Right now, two of my ex-students are researching the current availability of Hepatitis treatments in the US, and they asked me to release this survey to any groups I was a part of. It is very short and quick to fill out. Any responses at all would be appreciated! If you want, feel free to em...
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EricB85
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1
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924
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Missed day 73... Oops...
(Preview)
Took a five-day vacay in N. CA, then missed dose on day 73... Called Drs office, and when pill count on day 74 revealed one too many. I was horrified and remorseful, but was told no big deal, just extend Tx to 85 days. I was embarrassed to ask if anyone else had screwed up like this. so day 76 today, last pill...
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Tom
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6
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1127
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Painkillers and treatment
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1 2
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(Preview)
hi, i am on week 10 of 24 riba/solvaldi, i have a lot of shoulder pain that has got worse since I started treatment and it is really effecting my sleeping. The doc has said its ok to take panadol but I need something stronger, the lack of sleep is getting to me.i am going to see him in 2 days but has been reluct...
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Liamc
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53
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8420
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Starting Harvoni treatment
(Preview)
Hi all, Going to start my 12 week treatment tomorrow with Harvoni. Any I should know?
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Lock
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12
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1102
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I feel very rich having 20 thousend Euros pills sitting in my cupboard
(Preview)
Good morning/afternoon/ evening, I picked up my prescription yesterday. I have 20 thousand euros sitting in the cupboard, that kind of feels crazy! :D I am still starting on the 21st as I have guests arriving in a few days, but wow, its going to be the most expensive thing I've ever swallowed. I don't k...
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Loopy Lisa
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17
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1183
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Dak/Sov Geno3 progress
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1 2
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(Preview)
Hi all, Fri will be 2 weeks. Feeling good, SX are minimal. Keeping hydrated is truly the key. We do Blood Nov 20 then see the Dr on Dec 4th.
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Max
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51
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4975
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Just numbers
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168, 05/15/16, 09/29/16, 12/22/16, 55, 113, 06/23/16, 67%, 33%, 29, 06/10/16, 144
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JimmyK
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13
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1576
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kind of lost
(Preview)
This is so new to me I don't even understand all the blood work results yet. Just started the Viekira pak with the 4 pills on Thursday "ombitasvir, paritaprevir, ritonavir and dasabuvir . I also take Xanax and remeron, the Dr. told me the viekira could cause my other meds to seem stronger so I'...
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Bob57
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46
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3949
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Which UK hospital is following up patients on generic DAAs?
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I've got 2 friends in the UK who bought generic DAAs through FixHepC and Dr Freeman, and I'm on a mission to try and find out which hospital in the UK is following up such patients. A doctor at my hospital mentioned this to me at an appointment in passing a while back before I even knew about the whole gener...
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Pablito
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1
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989
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Solvadi and Daclatasvir
(Preview)
I had my scan today, and I've passed all my gallstones through. I am gallstone free YEAH! Everything looks normal, no swelling, no fibroses, kidneys are great, stomach is good. So I am left mystified why my panels are so bad, if everything looks normal? I am not complaining, but have to wait until the 7t...
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Loopy Lisa
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17
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1369
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GT3 relapser on a new ride (Sof+Dac+Riba) :)
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1 2
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(Preview)
Hi folks, today is my first day of this new tx. 12 weeks of Sofosbuvir (400mg) + Daclatasvir (60mg) + 800mg Riba (non weight based). I have obtained Sofosbuvir and Daclatasvir (via Dr.Freeman) from Australia (NMR verfied chinese APIs compaunded in Sydney) and 160pills Ribavirin from India (Mepro)...
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Zlikster
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74
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6321
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Week 5 results...
(Preview)
Had bloodwork done on day 36 (required by insurance to secure the third 28 day Px). Initial VL of 10M is down to <15. The PA at my MD's office seemed stoked. Day 44 today... ...40 to go. I've seen several "undetectables" at four weeks, but with that high an initial VL, I hope I'm in business. Insom...
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Tom
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8
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1234
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Starting 12-week course of Harvoni next week, some questions
(Preview)
HiIm starting a 12-week course of Harvoni on Friday the 13th.I'm curious what others think about:Ive been taking Milk Thistle for years. Recently started taking Turmeric. Im thinking Ill just take a break from them while on Harvoni.Should I stay away from high sugar products, like chocolate, ice c...
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rkevins
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6
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1395
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An Odd experience on Harvoni
(Preview)
Well, today I start week #4. Yesterday and previous days I will all of a sudden get tired and go to sleep. The sleep is so deep and I have crazy dreams. I am a dreamer anyway, but on this Tx my dreams are almost stressful. I never have nightmares I just go through so many events that are actually stressful. I n...
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WarriorWolf
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47
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4677
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How long after treatment to get Sovaldi and Ribavirin out of system?
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1 2
)
(Preview)
I have 3 more days of treatment after today. A nurse told me today that it can take up to 6 months to clear these drugs from my system and that they remain in the body's fat cells for a long time. I am wondering how long before I can sleep without taking narcotics. I skipped my sleeping pill a couple of nights...
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Larry2384
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56
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14737
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Harvoni working well:)
(Preview)
Hello everyone. I just received an email from my nurse at the Gastro Doctor's office and she reported my V/L went from 1,964,807 to 60.0 Also they (Doctor and Nurse) are suspecting I will be negative by the end of eight weeks. I am 4.5 weeks into it thus far. I am pretty excited about this news, wanted to s...
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Mike
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12
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1700
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cant find my previous posts??!
(Preview)
Hey everybody, this is cayohueso1. Ive been looking for responders to previous posts except that I cant find my previous posts! Id like to blame it on the constant migraines and the deep brain fog, but I'm thinking that its probably a simple case of I don't know how to navigate around the forum. Got some...
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cayohueso1
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3
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1420
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Moving to Post Treatment
(Preview)
CURED....As in the dragon is dead. I am so grateful to this community. I don't post often, but read most every thread. I will stay in touch. Happy Mother's day to all. Guess I got over excited and didn't add: Just got the call 12 week post treatment results...CURED. -- Edited by justvlm on Thursday 5...
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justvlm
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10
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1112
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Hepcinat LP for Hepatitis C really works
(Preview)
Having a post here earlier, bought 3 bottles (84 tablets) of greenish color Hepcinat LP. 6th Feb starts the treatment and blood test on 5th March after 28 days (tablets). The VL is <15 IU/mL. Doctor suggested me to finish all 3 bottles to hit over 97% SVR.
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ckfu
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3
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1758
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Harvoni Day 31 - Great Blood Results
(Preview)
Hey All, I am on a 8 week course of Harvoni and just passed HUMP day. I have had very little in the way of side effects. My energy is really good and my fatigue when doing sport is gone. I did blood work on day 29 and the results were great, RNA PCR was undetectable though i understand the result 3 months after i...
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doodaman
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12
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1882
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Ribavirin reduction
(Preview)
Hello all, Doctor's NP called yesterday with 2 week CBC. They are are a GI office, but consult with a Hep doctor when needed. Based on my pre-tx and 2 week labs they had me reduce my Riba from 1000 / day to 600 / per day due to significant drop in some Hgb, while not anemic - she wants to get ahead of this. We ta...
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justvlm
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14
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1956
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