Hep C Discussion Forum

maddie · maddie

http://depts.washington.edu/hepstudy/presentations/uploads/131/3d__master.pdf

Trainhopper · Trainhopper

Hi guys and gals.... It's been a minute since I was on last. I do apologize, I have been moving around a ton. I went to Colorado in search of better health care and.... well... it didn't work out. So I moved to Iowa.... So, when I moved here 2 weeks ago I filed for my medicaid... This state... As in Iowa, is a st...

Tig · Tig

https://www.surveymonkey.com/s/STOP_HCV_Discrimination

Stormy · Stormy

http://seekingalpha.com/news/2213455-gilead-inks-deal-with-anthem-for-harvoni

Tess1971 · Tess1971

Have most people on this site had one or the other? Just curious as all I ever had a number of years ago was a ultra sound of liver. Also did some of those fibrospect blood tests back when. I was told that some insurance require them.just curious. I did have blood work regularly for many years though si...

tomyboy · tomyboy

Hi all, Hope this message finds everyone well , in good spirit, and completing their own treatment with success. I am very sad to report that we just received Tom's latest blood work results from Mt Sinai and the treatment didn't work. His hep C has returned. Although his cancer has not returned th...

skewedButNotBroken · skewedButNotBroken

http://news.yahoo.com/wife-libyan-trial-us-embassy-bombings-dies-090900471.html

Michaele · Michaele

Only humans and chimps can contract chronic hep C , looks like the dog is safe. LOL -- Edited by Michaele on Saturday 3rd of January 2015 05:43:20 PM

Matt Chris · Matt Chris

Hey All Was looking for real world insight on how the Harvoni or other HCV drugs prescription Coupons are being processed. Question # 1 - Are most Insurance company considering the Gilead /Harvoni /Sovaldi coupon the same as out of pocket expense toward the deductible threshold? Question # 2 - Does t...

Josh Haynie · Josh Haynie

so as i understand it HCV has a viral load that can be measured and imflamation and fibrosis maybe a couple other markers...... Cancer has tumors measured in size that can get bigger or smaller... and im wondering does it have a way to measure how many cancer cells are in the body you know like a Qua...

Tess1971 · Tess1971

It seems that all info about ribavirin after treatment alway has it paired with interferon. Now that it is prescribed with sovaldi for Geno 2 that is still the case. I finished my 12 wk course in November and have bouts of feeling bad or like I am coming down with something. Even skin issues on and off y...

pauliep · pauliep

I don't know how all of this will shake out, but as of right now, Gilead's stock price is plummeting on the deal Express Scripts has made with AbbVie. Express Scripts, which is the biggest pharmacy coverage provider service to the insurance companies, will cover all prescriptions for AbbVie's newly...

Sierrajen · Sierrajen

Giving Thanks To All That Came Before Us. I want to let you all know how incredibly thankful I am to all of you pioneers of the HepC trials and former treatments. You have all made it possible for the new treatments to move forward and get better and more effective. Your sacrifices and suffering are more a...

Josh Haynie · Josh Haynie

havent posted in awhile but i read everything........ all great posts and replys... would i be remissed if i said i thought we were missing sum people that usualy post ???? im just checkin if you spot whos gone who i think is gone too.... as far as everyone helping each other ... or saying how th...

tgcd78 · tgcd78

Hey guys, It has been a while since I have been here. I have since achieved SVR. Recieved the news on my birthday November 14th. Just a few days ago I fell ill. All of a sudden I got a stomach ache, chills, and no appetite. I slept for two days and feel better but the appetite is still gone and I have pale y...

Tig · Tig

Interesting article on the newest pan-genotypic protocol in development. Is this the answer? For those interested, there is a link at the bottom (of artiicle) to the Clinical trials website with info on the current "Astral 3" study underway. We have discussed this before but the new art...

Josh Haynie · Josh Haynie

so im looking at my blood results and researching why things are low ... and i find through deduction my dear Watson that HEP C totaly beats the sh** out of your liver all be it slow.... but what is glossed over is the fact that it beats the ya u know :) out of your blood at a much faster rate... SO here i prese...

Tess · Tess

My doctor called a few days ago to say he can try to get me approved for Harvoni. I am VERY excited but I know how difficult it can be to get approval. So I checked my insurer's website, BCBS Federal Employee Program, and it sent me to a list of Prior Approval drugs with the criteria and forms. The link...

Josh Haynie · Josh Haynie

Thoughts or concerns if any of these are low ... my copper Levels look Low ??? I am negative for auto immune diseases so thats always cool :) never seen or had these done ... just proves my gastro is a keeper... HEPATITIS C RNA, QUANT, RT-PCR 12-1-14 ALLHCV Viral Load, log106.7NOTDETLog IU/mLHCV Vira...

Josh Haynie · Josh Haynie

ahhh lets see here ...... 6-3-14Prothrombin Time13.2CBC W/DIFFERENTIALComponentYour ValueStandard RangeUnitsRBC4.72 10*6/uLMCV96.0 fLRDW12.3 %MCH34.027.0 - 33.0pgMCHC35.0 %NEUTROPHILS %37.839.0 - 80.0%LYMPHOCYTES %49.024.0 - 44.0%MONOCYTES %11.3 %EOSINOPHILS %1.5 %BAS...

Josh Haynie · Josh Haynie

ya i enjoy your guys pictures of yourselfs.. your pets and places youve visted.. as well as other novelty pictures of things we all like .... i see a picture and to myself inner voice in head say wow thats a great picture ..... lol iLL change mine here soon

Michaele · Michaele

Hi, I got my results and its almost funny. The Drs assistant asked, "Why are you here, you've had this for over five yrs and its hardly grown, you have no S&S of pancreatic Ca. " All I could say is someone at the ECU family pratice didnt read the Hx and didnt ask questions." They jus...

skewedButNotBroken · skewedButNotBroken

http://www.liversupport.com/wordpress/2014/11/the-holy-grail-of-advanced-liver-disease-treatment/?eml=l...

darkstar · darkstar

As you all know, this agent was FDA approved on Friday. Although I would have expected that it would be available immediately, it is not. When I spoke to the pharmacist who works at the specialty pharmacy, Mckesson a large distributor does not have it in stock and the insurance company does not have t...

Josh Haynie · Josh Haynie

well the plan set forth is she put in for 8wk course of Harvoni...... she says more then likely they will deny :) of course they will but she says if they deny you 2 times then you can go to Gillead on that support path thing and go that route...... she explained it very methodicly as to state that this how i...

RudiRoo · RudiRoo

Not sure if this is the correct area but I posted here since it is related to the drug access problem that has been our forum's focus of late. For those of you shopping today who would like to help the Treatment Action Group to fight the insurance & pharmaceutical companies you can choose to shop on Am...

Josh Haynie · Josh Haynie

please enjoy your turkey coma and leftovers... and if you live outside of the U.S i say eat sumthing and um give thanks for faily friends... things you like.. and give thanks for Hep C Discussion Forum my gastro appointment is monday iLL let you know what she intends to outline as far TX now that my six m...

Matt Chris · Matt Chris

What I've Gained & what I've Lost after all these years with HCV Generally most people gain perspective over time regarding events that happen in their lives. We who have lived with HCV for many years, some of us for up to 40 years and beyond have learned many things about ourselves. We have learn...

robertsamx · robertsamx

Has anyone heard of Abbvie trial number M14-242 I can"t find any info on this trial. Thanks RC

Zlikster · Zlikster

Considering Ledipasvir and Daclatasvir results for GT3 were pretty mediocre, new gen of NS5A inhibitor GS-5816 showed great results in Phase II (Astral 2) study. Could this be THE combo Sofosbuvir+GS-5816 for all genotypes? Phase III study for us GT3s soon to start, wish Gilead would provide prec...

Topic		Started By	Replies	Views	Last Post
	Viekira Pak...Informative power point (Preview) http://depts.washington.edu/hepstudy/presentations/uploads/131/3d__master.pdf	maddie	3	1151	Jan 11, 2015 by maddie
	Hi people!!! Not sure what to do (Preview) Hi guys and gals.... It's been a minute since I was on last. I do apologize, I have been moving around a ton. I went to Colorado in search of better health care and.... well... it didn't work out. So I moved to Iowa.... So, when I moved here 2 weeks ago I filed for my medicaid... This state... As in Iowa, is a st...	Trainhopper	3	1207	Jan 10, 2015 by Groupergetter
	Medicare/Medicaid Survey (Preview) https://www.surveymonkey.com/s/STOP_HCV_Discrimination	Tig	0	682	Jan 9, 2015 by Tig
	Anthem and Gilead (Preview) http://seekingalpha.com/news/2213455-gilead-inks-deal-with-anthem-for-harvoni	Stormy	3	959	Jan 9, 2015 by Tig
	Biopsy or Fibroscan - Was one or other required for most? (Preview) Have most people on this site had one or the other? Just curious as all I ever had a number of years ago was a ultra sound of liver. Also did some of those fibrospect blood tests back when. I was told that some insurance require them.just curious. I did have blood work regularly for many years though si...	Tess1971	8	1591	Jan 8, 2015 by Tess1971
	update Mt Sinai (Preview) Hi all, Hope this message finds everyone well , in good spirit, and completing their own treatment with success. I am very sad to report that we just received Tom's latest blood work results from Mt Sinai and the treatment didn't work. His hep C has returned. Although his cancer has not returned th...	tomyboy	5	1263	Jan 5, 2015 by tomyboy
	Libyan charged in 1998 US embassy bombings dies of hep c related complications (Preview) http://news.yahoo.com/wife-libyan-trial-us-embassy-bombings-dies-090900471.html	skewedButNotBroken	0	724	Jan 3, 2015 by skewedButNotBroken
	fun fact (Preview) Only humans and chimps can contract chronic hep C , looks like the dog is safe. LOL -- Edited by Michaele on Saturday 3rd of January 2015 05:43:20 PM	Michaele	2	742	Jan 3, 2015 by Jaded
	Insurance Co-Pay / Out of Pocket / Deductable with Drug Companies Coupon Program (Preview) Hey All Was looking for real world insight on how the Harvoni or other HCV drugs prescription Coupons are being processed. Question # 1 - Are most Insurance company considering the Gilead /Harvoni /Sovaldi coupon the same as out of pocket expense toward the deductible threshold? Question # 2 - Does t...	Matt Chris	2	849	Jan 1, 2015 by Matt Chris
	My Dads Cancer...... (Preview) so as i understand it HCV has a viral load that can be measured and imflamation and fibrosis maybe a couple other markers...... Cancer has tumors measured in size that can get bigger or smaller... and im wondering does it have a way to measure how many cancer cells are in the body you know like a Qua...	Josh Haynie	2	947	Jan 1, 2015 by Tig
	Ribavirin after treatment (Preview) It seems that all info about ribavirin after treatment alway has it paired with interferon. Now that it is prescribed with sovaldi for Geno 2 that is still the case. I finished my 12 wk course in November and have bouts of feeling bad or like I am coming down with something. Even skin issues on and off y...	Tess1971	3	970	Dec 28, 2014 by Tess1971
	The Hep-C Treatment Price Wars Have Begun! (Preview) I don't know how all of this will shake out, but as of right now, Gilead's stock price is plummeting on the deal Express Scripts has made with AbbVie. Express Scripts, which is the biggest pharmacy coverage provider service to the insurance companies, will cover all prescriptions for AbbVie's newly...	pauliep	5	1182	Dec 26, 2014 by Harvoninme
	Giving Thanks To All That Came Before Us. (Preview) Giving Thanks To All That Came Before Us. I want to let you all know how incredibly thankful I am to all of you pioneers of the HepC trials and former treatments. You have all made it possible for the new treatments to move forward and get better and more effective. Your sacrifices and suffering are more a...	Sierrajen	2	1124	Dec 21, 2014 by bassetgirl
	Great Stuff Everyone (Preview) havent posted in awhile but i read everything........ all great posts and replys... would i be remissed if i said i thought we were missing sum people that usualy post ???? im just checkin if you spot whos gone who i think is gone too.... as far as everyone helping each other ... or saying how th...	Josh Haynie	2	908	Dec 20, 2014 by beingsassy
	Achieved SVR - but weird stool color freaking me out (Preview) Hey guys, It has been a while since I have been here. I have since achieved SVR. Recieved the news on my birthday November 14th. Just a few days ago I fell ill. All of a sudden I got a stomach ache, chills, and no appetite. I slept for two days and feel better but the appetite is still gone and I have pale y...	tgcd78	2	1322	Dec 17, 2014 by skewedButNotBroken
	Sofosbuvir + GS-5816 (Preview) Interesting article on the newest pan-genotypic protocol in development. Is this the answer? For those interested, there is a link at the bottom (of artiicle) to the Clinical trials website with info on the current "Astral 3" study underway. We have discussed this before but the new art...	Tig	4	1336	Dec 14, 2014 by robertsamx
	Connecting the Dots or possible catastrophic effects What say you??? (Preview) so im looking at my blood results and researching why things are low ... and i find through deduction my dear Watson that HEP C totaly beats the sh** out of your liver all be it slow.... but what is glossed over is the fact that it beats the ya u know :) out of your blood at a much faster rate... SO here i prese...	Josh Haynie	5	1214	Dec 11, 2014 by Josh Haynie
	My insurer's Prior Approval criteria for Harvoni - looking for your comments! (Preview) My doctor called a few days ago to say he can try to get me approved for Harvoni. I am VERY excited but I know how difficult it can be to get approval. So I checked my insurer's website, BCBS Federal Employee Program, and it sent me to a list of Prior Approval drugs with the criteria and forms. The link...	Tess	13	2503	Dec 11, 2014 by Tess
	More Sophisticated Lab Results ...had to use wikipedia (Preview) Thoughts or concerns if any of these are low ... my copper Levels look Low ??? I am negative for auto immune diseases so thats always cool :) never seen or had these done ... just proves my gastro is a keeper... HEPATITIS C RNA, QUANT, RT-PCR 12-1-14 ALLHCV Viral Load, log106.7NOTDETLog IU/mLHCV Vira...	Josh Haynie	2	868	Dec 10, 2014 by Josh Haynie
	Blood Work test results with comparisons to 6 months ago......WARNING too much crap to read (Preview) ahhh lets see here ...... 6-3-14Prothrombin Time13.2CBC W/DIFFERENTIALComponentYour ValueStandard RangeUnitsRBC4.72 10*6/uLMCV96.0 fLRDW12.3 %MCH34.027.0 - 33.0pgMCHC35.0 %NEUTROPHILS %37.839.0 - 80.0%LYMPHOCYTES %49.024.0 - 44.0%MONOCYTES %11.3 %EOSINOPHILS %1.5 %BAS...	Josh Haynie	11	1276	Dec 5, 2014 by Josh Haynie
	NICE pictures of yourselfs everybody... proabably belongs in off topic (Preview) ya i enjoy your guys pictures of yourselfs.. your pets and places youve visted.. as well as other novelty pictures of things we all like .... i see a picture and to myself inner voice in head say wow thats a great picture ..... lol iLL change mine here soon	Josh Haynie	0	817	Dec 4, 2014 by Josh Haynie
	Results are in (Preview) Hi, I got my results and its almost funny. The Drs assistant asked, "Why are you here, you've had this for over five yrs and its hardly grown, you have no S&S of pancreatic Ca. " All I could say is someone at the ECU family pratice didnt read the Hx and didnt ask questions." They jus...	Michaele	15	1332	Dec 2, 2014 by Michaele
	Hope for end stage liver disease (Preview) http://www.liversupport.com/wordpress/2014/11/the-holy-grail-of-advanced-liver-disease-treatment/?eml=l...	skewedButNotBroken	3	1185	Dec 2, 2014 by LC
	Harvoni (Preview) As you all know, this agent was FDA approved on Friday. Although I would have expected that it would be available immediately, it is not. When I spoke to the pharmacist who works at the specialty pharmacy, Mckesson a large distributor does not have it in stock and the insurance company does not have t...	darkstar	13	4109	Dec 1, 2014 by Isiscat2011
	12-1-14 Gastro visit for TX (Preview) well the plan set forth is she put in for 8wk course of Harvoni...... she says more then likely they will deny :) of course they will but she says if they deny you 2 times then you can go to Gillead on that support path thing and go that route...... she explained it very methodicly as to state that this how i...	Josh Haynie	0	800	Dec 1, 2014 by Josh Haynie
	If you are shopping anyway (Preview) Not sure if this is the correct area but I posted here since it is related to the drug access problem that has been our forum's focus of late. For those of you shopping today who would like to help the Treatment Action Group to fight the insurance & pharmaceutical companies you can choose to shop on Am...	RudiRoo	4	925	Nov 28, 2014 by hrsetrdr
	HAPPY THANKSGIVING everybody (Preview) please enjoy your turkey coma and leftovers... and if you live outside of the U.S i say eat sumthing and um give thanks for faily friends... things you like.. and give thanks for Hep C Discussion Forum my gastro appointment is monday iLL let you know what she intends to outline as far TX now that my six m...	Josh Haynie	5	946	Nov 28, 2014 by Angel67
	What I've Gained & what I've Lost after all these years with HCV (Preview) What I've Gained & what I've Lost after all these years with HCV Generally most people gain perspective over time regarding events that happen in their lives. We who have lived with HCV for many years, some of us for up to 40 years and beyond have learned many things about ourselves. We have learn...	Matt Chris	24	3863	Nov 27, 2014 by Harvoninme
	Abbvie M14-242 (Preview) Has anyone heard of Abbvie trial number M14-242 I can"t find any info on this trial. Thanks RC	robertsamx	3	1210	Nov 27, 2014 by LC
	GS-5816 new pangenotype NS5A inhibitor in mighty DAA combo trial (Preview) Considering Ledipasvir and Daclatasvir results for GT3 were pretty mediocre, new gen of NS5A inhibitor GS-5816 showed great results in Phase II (Astral 2) study. Could this be THE combo Sofosbuvir+GS-5816 for all genotypes? Phase III study for us GT3s soon to start, wish Gilead would provide prec...	Zlikster	7	3709	Nov 27, 2014 by Isiscat2011
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