Hep C Discussion Forum

skewedButNotBroken · skewedButNotBroken

Before I started therapy, if I ate a big meal of any type, 12 hours later it would still be sitting in my stomach or at least it felt like that, but now if I eat a large meal 4 or 5 hours later I'm hungry again. This is a major change for me. My ALT has dropped to 25 and my viral load is < 15. Consequently, I find m...

maddie · maddie

http://article.wn.com/view/2014/10/07/BristolMyers_Squibb_Statement_about_Asunaprevir_in_the_US_Br/

rebeca · rebeca

Do you know any research about the results after treatment with Sovaldi? There are a lot of people treating with Sovaldi, I suppose that the cure is 90% - 95% , as clinical trials said. But I would like to know if anyone is doing research on that. Thank you friends

JLynch30 · JLynch30

does anyone know if us people who failed solvaldi with interferon and rib will be able to take the new treatment? -- Edited by JLynch30 on Thursday 25th of September 2014 06:26:21 AM

Angel67 · Angel67

I have been looking at so many figures for HCV medicines recently, and I wonder how many of the relapses that patients have are actually reinfections? I suppose we could reinfect through a razor or a toothbrush, but some of us who use drugs probably reinfect through the hypodermic and obviously that...

Michaele · Michaele

Hi all, does anyone have that pulsing fluttering feeling around BG or Liver. Like bubbles bursting. Not painful, just worrisome. Been having them several times a day 24/7. Not sure which Dr, to call . The GI who referred me to the infection disease for med tx , or the med tx Dr. I just left a message at the G...

wmlj1960 · wmlj1960

Done by my PCP 2-2014

mallani · mallani

Hi all, This was on 'The 7.30 Report' last night, Australia's ABC television. This is the first time I have seen HepC mentioned on such a prestigious program. http://www.abc.net.au/7.30/content/2014/s4098645.htm

Paul B · Paul B

So the Hep C nurse told me yesterday that the Fibroscan facility on site will no longer be available for their use. Apparently they will be using ultrasound but with some new additional sensor. Can't be good and sounds like cost cutting.

wanthib · wanthib

Hi My husband was diagnosed with hcv in 1999 has never treated. He had a genotype test in 2008 that show he is 1b. He is seeing a new hepatologist and she order labs in order to start treatment on the new tx coming out Oct 10th. We picked up copy of the labs today the genotype results have me confused , what do...

Isiscat2011 · Isiscat2011

FYI: The clinical trial, called ION-2, that Gilead conducted for a small number of tx experienced cirrhotics using the Sovaldi/Ledipasvir combo showed that including Riba did not yield better results. Comments? The results were as follows: 12 weeks: Sovaldi/Ledipasvir: 86% SVR Sovaldi/Le...

rebeca · rebeca

Spain´s health ministry has reach an agreement with the drug company to be able to offer Sovaldi to some patients. The new is really good, but don´t think that we can all get it. It will be offer to patients in one of those conditions: - They have a liver transplant and they are reinfected - They are on th...

Mugsy · Mugsy

Anybody else see the AbbVie commercial during the news tonight? It was talking about HepC treatment and I figured it was just a new Gilead ad.

Isiscat2011 · Isiscat2011

Hey Everybody Who Will Be Starting Tx Soon: Try to get in for a dental checkup and teeth cleaning before starting tx. Having dental problems during tx could be a real buzz-kill!

Isiscat2011 · Isiscat2011

Here is an informative article about access to Sovaldi tx since it hit the market. It is good to keep in mind that the AASLD guidelines on who to treat are just guidelines, and I'm guessing many docs will prescribe the new DAAs to all their HCV patients, regardless of liver fibrosis stage. Insurers wi...

Isiscat2011 · Isiscat2011

According to a recent CVS study 8.1% of Sovaldi patients have discontinued tx; the total number of CVS patients was 1,965. The clinical trials saw only a 2% discontinuation rate. The article doesn't specify the percentage of those who were also using Interferon vs all orals. Just doing some quick...

pl1952 · pl1952

Back in February, at our initial meeting with our doctor, hubby was treated right away with S/O. I was told I could wait till October. Was wondering how many others here on the forum are just hanging and waiting, like me...

mallani · mallani

Hi all, The Australian Hepatitis C Support Forum has closed. The founder/ owner of the Forum decided she could no longer continue, and was unable to find anyone to take her place. I checked it out from time to time, but it was mostly a basic Chat Forum, although members had a lot of social interaction. A U...

JLynch30 · JLynch30

Any news on the Abvie release? I can stick with kesier or go to Blue cross HMO. Seems Keiser has dropped the ball on treatment for me a few times. Any experience?

Loopy Lisa · Loopy Lisa

Is anyone on this trial currently? I contacted regarding this trial and have been given contacts etc to see if I can get on it in France being a G3. Finally a bit of luck! :D

Scruffy · Scruffy

Just thought would post this link http://finance.yahoo.com/news/gilead-raise-price-hepatitis-c-110000872.html

Josh Haynie · Josh Haynie

http://www.hepatitiscentral.com/mt/archives/2014/08/new-research-finds-pomegranates-help-battle-hepatitis-c.html?eml=he...

gerewolf · gerewolf

My wife, Julia, and I have written on this forum before. She has been waiting for the new medicine because she's afraid of interferon, but her viral load keeps climbing. It was at 4,000,000 in the beginning and now it's at 10 million. We get conflicting information from doctors. So far she has been...

Isiscat2011 · Isiscat2011

Has anyone here ever had an esophageal capsule endoscopy (you swallow a pill sized camera that takes pictures to detect varices) ? Pros and cons?

JLynch30 · JLynch30

Any idea why there is a tightness and dull ache lower than the liver? It is not under the ribs - it is lower.

Josh Haynie · Josh Haynie

Ya im reading through the responses on the other thread of stupidity i posted yesterday but i thought i should let you know .... lets see they say deffinete tumor or cancer in his prostate ... deffinite tumor in 1 kidney.. and just minute traces of cancer in his bones.... i hear thier operable........

CandaceV · CandaceV

My husband was diagnosed with Hep C several years ago. At that point, he had 5 million copies. He refused to see a liver doctor or even discuss treatment until he was eligible for Medicare because of the cost of treatment. In the meantime, he took milk thistle every day. He got Medicare on August 1st,...

Bombeni · Bombeni

Good morning All, im im calling for an appt. this week, to determine the severity of my hep c. I want to have a list of questions to ask after the tests have been run, so I will have all the info like most of you have at the bottom of your posts. I don't know what any of it means yet but you guys could help me furt...

Bombeni · Bombeni

I started medicare two years ago. I kept the health insurance I had carried for twenty five years with my job, as the supplemental. I pay thru the nose for the supplemental but now of course I'm very glad I have it. I see a specialist every month for chronic pain, have been for 17 years and since I've sta...

wmlj1960 · wmlj1960

The Methodist University Hospital complex where I go to see my Tx Dr. is comprised of a huge area with acres and acres of buildings built in various different decades and re-engineered to all "fit together" and work fine. (And if you believe that then I have my bridge on sale today for 1/2 pri...

Topic		Started By	Replies	Views	Last Post
	I find myself slipping into bad eating habits (Preview) Before I started therapy, if I ate a big meal of any type, 12 hours later it would still be sitting in my stomach or at least it felt like that, but now if I eat a large meal 4 or 5 hours later I'm hungry again. This is a major change for me. My ALT has dropped to 25 and my viral load is < 15. Consequently, I find m...	skewedButNotBroken	20	1866	Oct 9, 2014 by Huey
	BMS withdraws New Drug Application for Asunaprevir (Preview) http://article.wn.com/view/2014/10/07/BristolMyers_Squibb_Statement_about_Asunaprevir_in_the_US_Br/	maddie	0	645	Oct 9, 2014 by maddie
	Results after treatment with Sovaldi (Preview) Do you know any research about the results after treatment with Sovaldi? There are a lot of people treating with Sovaldi, I suppose that the cure is 90% - 95% , as clinical trials said. But I would like to know if anyone is doing research on that. Thank you friends	rebeca	3	872	Oct 8, 2014 by Huey
	retreated with solvaldi (Preview) does anyone know if us people who failed solvaldi with interferon and rib will be able to take the new treatment? -- Edited by JLynch30 on Thursday 25th of September 2014 06:26:21 AM	JLynch30	1	878	Oct 8, 2014 by Huey
	Relapse or reinfection (Preview) I have been looking at so many figures for HCV medicines recently, and I wonder how many of the relapses that patients have are actually reinfections? I suppose we could reinfect through a razor or a toothbrush, but some of us who use drugs probably reinfect through the hypodermic and obviously that...	Angel67	19	1049	Oct 8, 2014 by Isiscat2011
	pulsing flutter in liver and gallbladder area (Preview) Hi all, does anyone have that pulsing fluttering feeling around BG or Liver. Like bubbles bursting. Not painful, just worrisome. Been having them several times a day 24/7. Not sure which Dr, to call . The GI who referred me to the infection disease for med tx , or the med tx Dr. I just left a message at the G...	Michaele	13	3368	Oct 8, 2014 by Huey
	What test is this and what significance for HCV? (Preview) Done by my PCP 2-2014	wmlj1960	3	1112	Oct 5, 2014 by wmlj1960
	Sovaldi in the News (Preview) Hi all, This was on 'The 7.30 Report' last night, Australia's ABC television. This is the first time I have seen HepC mentioned on such a prestigious program. http://www.abc.net.au/7.30/content/2014/s4098645.htm	mallani	12	2092	Oct 4, 2014 by mallani
	Fibroscans no more at my clinic. (Preview) So the Hep C nurse told me yesterday that the Fibroscan facility on site will no longer be available for their use. Apparently they will be using ultrasound but with some new additional sensor. Can't be good and sounds like cost cutting.	Paul B	1	662	Oct 1, 2014 by mallani
	need help understanding test results (Preview) Hi My husband was diagnosed with hcv in 1999 has never treated. He had a genotype test in 2008 that show he is 1b. He is seeing a new hepatologist and she order labs in order to start treatment on the new tx coming out Oct 10th. We picked up copy of the labs today the genotype results have me confused , what do...	wanthib	5	825	Sep 30, 2014 by mallani
	L/S for Cirrhotics (Preview) FYI: The clinical trial, called ION-2, that Gilead conducted for a small number of tx experienced cirrhotics using the Sovaldi/Ledipasvir combo showed that including Riba did not yield better results. Comments? The results were as follows: 12 weeks: Sovaldi/Ledipasvir: 86% SVR Sovaldi/Le...	Isiscat2011	11	1160	Sep 29, 2014 by Dzdayscomin
	Sovaldi in Spain (Preview) Spain´s health ministry has reach an agreement with the drug company to be able to offer Sovaldi to some patients. The new is really good, but don´t think that we can all get it. It will be offer to patients in one of those conditions: - They have a liver transplant and they are reinfected - They are on th...	rebeca	2	1365	Sep 28, 2014 by mallani
	Abbvie commercial on TV (Preview) Anybody else see the AbbVie commercial during the news tonight? It was talking about HepC treatment and I figured it was just a new Gilead ad.	Mugsy	9	1334	Sep 27, 2014 by Isiscat2011
	Note to Self: See Dentist Before Tx (Preview) Hey Everybody Who Will Be Starting Tx Soon: Try to get in for a dental checkup and teeth cleaning before starting tx. Having dental problems during tx could be a real buzz-kill!	Isiscat2011	2	655	Sep 24, 2014 by pl1952
	Access to New DAAs Looks Promising (Preview) Here is an informative article about access to Sovaldi tx since it hit the market. It is good to keep in mind that the AASLD guidelines on who to treat are just guidelines, and I'm guessing many docs will prescribe the new DAAs to all their HCV patients, regardless of liver fibrosis stage. Insurers wi...	Isiscat2011	1	699	Sep 24, 2014 by Josh Haynie
	CVS Reports 8% Discontinuation of Sovaldi (Preview) According to a recent CVS study 8.1% of Sovaldi patients have discontinued tx; the total number of CVS patients was 1,965. The clinical trials saw only a 2% discontinuation rate. The article doesn't specify the percentage of those who were also using Interferon vs all orals. Just doing some quick...	Isiscat2011	15	1966	Sep 23, 2014 by Isiscat2011
	Who's waiting for treatment with ledipasvir and sofosbuvir? ( 1 2 ) (Preview) Back in February, at our initial meeting with our doctor, hubby was treated right away with S/O. I was told I could wait till October. Was wondering how many others here on the forum are just hanging and waiting, like me...	pl1952	56	6118	Sep 23, 2014 by pl1952
	Another Forum closed (Preview) Hi all, The Australian Hepatitis C Support Forum has closed. The founder/ owner of the Forum decided she could no longer continue, and was unable to find anyone to take her place. I checked it out from time to time, but it was mostly a basic Chat Forum, although members had a lot of social interaction. A U...	mallani	14	1223	Sep 16, 2014 by Dzdayscomin
	waiting... (Preview) Any news on the Abvie release? I can stick with kesier or go to Blue cross HMO. Seems Keiser has dropped the ball on treatment for me a few times. Any experience?	JLynch30	0	615	Sep 16, 2014 by JLynch30
	Astral 3 trial (Preview) Is anyone on this trial currently? I contacted regarding this trial and have been given contacts etc to see if I can get on it in France being a G3. Finally a bit of luck! :D	Loopy Lisa	0	892	Sep 15, 2014 by Loopy Lisa
	Price of new drugs (Preview) Just thought would post this link http://finance.yahoo.com/news/gilead-raise-price-hepatitis-c-110000872.html	Scruffy	1	725	Sep 14, 2014 by Tig
	Hepatitis Central Headlines (Preview) http://www.hepatitiscentral.com/mt/archives/2014/08/new-research-finds-pomegranates-help-battle-hepatitis-c.html?eml=he...	Josh Haynie	3	1183	Sep 13, 2014 by Josh Haynie
	Julia is ready to start treatment. Questions... (Preview) My wife, Julia, and I have written on this forum before. She has been waiting for the new medicine because she's afraid of interferon, but her viral load keeps climbing. It was at 4,000,000 in the beginning and now it's at 10 million. We get conflicting information from doctors. So far she has been...	gerewolf	7	1151	Sep 13, 2014 by Isiscat2011
	Esophageal Capsule Endoscopy (Preview) Has anyone here ever had an esophageal capsule endoscopy (you swallow a pill sized camera that takes pictures to detect varices) ? Pros and cons?	Isiscat2011	3	713	Sep 12, 2014 by Isiscat2011
	Dull ache lower right (Preview) Any idea why there is a tightness and dull ache lower than the liver? It is not under the ribs - it is lower.	JLynch30	0	657	Sep 12, 2014 by JLynch30
	My Dads ever changing cancer prognosis.....Also thanks for responding to my stupidity thread (Preview) Ya im reading through the responses on the other thread of stupidity i posted yesterday but i thought i should let you know .... lets see they say deffinete tumor or cancer in his prostate ... deffinite tumor in 1 kidney.. and just minute traces of cancer in his bones.... i hear thier operable........	Josh Haynie	0	626	Sep 10, 2014 by Josh Haynie
	How is this even possible?! (Preview) My husband was diagnosed with Hep C several years ago. At that point, he had 5 million copies. He refused to see a liver doctor or even discuss treatment until he was eligible for Medicare because of the cost of treatment. In the meantime, he took milk thistle every day. He got Medicare on August 1st,...	CandaceV	8	1169	Sep 10, 2014 by CandaceV
	Going for tests. What questions should I ask? (Preview) Good morning All, im im calling for an appt. this week, to determine the severity of my hep c. I want to have a list of questions to ask after the tests have been run, so I will have all the info like most of you have at the bottom of your posts. I don't know what any of it means yet but you guys could help me furt...	Bombeni	9	980	Sep 9, 2014 by wmlj1960
	Can anyone comment on Medicare and hep c? (Preview) I started medicare two years ago. I kept the health insurance I had carried for twenty five years with my job, as the supplemental. I pay thru the nose for the supplemental but now of course I'm very glad I have it. I see a specialist every month for chronic pain, have been for 17 years and since I've sta...	Bombeni	15	2510	Sep 8, 2014 by Bombeni
	The hospital where my liver transplant center is finally fixed their prehistoric ER (Preview) The Methodist University Hospital complex where I go to see my Tx Dr. is comprised of a huge area with acres and acres of buildings built in various different decades and re-engineered to all "fit together" and work fine. (And if you believe that then I have my bridge on sale today for 1/2 pri...	wmlj1960	0	655	Sep 8, 2014 by wmlj1960
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