Hep C Discussion Forum

Isiscat2011 · Isiscat2011

This campaign for Gilead to reduce the costs of Sovaldi sprung up fairly recently. The National Coalition on Health Care is primarily a lobbying group funded by insurance companies. http://www.csrxp.org/ Two US Senators are on board, a Democrat and a Republican. Here is the demand letter the...

Isiscat2011 · Isiscat2011

Nezam Afdhal, MD, director of hepatology at Beth Israel Deaconess Medical Center, recently stated that "there is no advantage to treating with sofosbuvir/ledipasvir for more than 12-weeks." "Responding to a question about whether there was any benefit for extended treatme...

Marypetrecz · Marypetrecz

So...I was thinking,,,,dangerous...I know....uncle mo.....a famous race horse was retired as a three year old because he had hepititus. im going to assume.....(yes, I know....and ass of you and me).....cows can be infected with hep.....can it be transmitted to people that eat the meat of an infe...

Josh Haynie · Josh Haynie

think i weigh in at 59.5 kilos which is like 130 to 135 lbs.. so thats accuarte checked in at 7am and was total done by like 1015 am like a little over 3 hours... had me get naked and put on one of those gowns... hit a vein with lidacaine then inserted iv drip 1 liter water ... made me pee alot later...... um the O...

hrsetrdr · hrsetrdr

I "transplanted" this Chatbox message posted by Sheila, who is a new member. I did this because we encourage members to start a message thread in one of the Forum's sub-sections, thus giving other members an opportunity to convey information and comments. After my hep c treatments end...

mallani · mallani

Hi all, With the increased availability of on-line portals for test results and Tazkat's recent post, it's worth revisiting what your report means. There's a 'Sticky' on this, but some things change. Most Labs now use a PCR Test from Roche or Abbott. The TMA tests from Quest and Labcorp do not seem to b...

Huey · Huey

What is HDV? Resource Update: Hepatitis Delta VirusHow current is your knowledge of the hepatitis delta virus (HDV)? inPractice® has been updated to include:New data on the correlation between HDV RNA levels and the development of cirrhosis and hepatocellular carcinoma Long-term follow-up o...

JLynch30 · JLynch30

It came back 16.3 Thoughts?

Huey · Huey

The only report I have so far on the Liver biopsy part of my ordeal, The Sergen told me the liver biopsy came in, I ask if he had a screen shot of it so Dr,Grandhi {That is the Doc that got me the meds} could see it. He said no but it Looked relay good! was the words he used. /That is better than nothing I guess.

Isiscat2011 · Isiscat2011

http://hcvadvocate.blogspot.com/2014/07/patients-firs...

Pep · Pep

Has anyone with Geno 1 failed to achieve sustained virologic response after 90 days of S/O treatment? I am about to complete my first 30 days of treatment. Anxious to see lab results next week. Side effects have been minimal. Dull headache, some lethargy.

Josh Haynie · Josh Haynie

it,s 5:16 am thats 0516... check in time is 0700 leaving here via ride in about 30 minuets to travel bout 40 miles or less to Walla Walla Ive seen a video on a biopsy ... looks fun .... hopefully there sedatives are good im sure they are... either fetanil or a benozdiazepine concocsion... should be the...

Isiscat2011 · Isiscat2011

I thought this was interesting because it illuminates that there are more expensive treatments than HepC tx ($300,000. per year for a cystic fibrosis drug) and all but one state (Arkansas) is paying for those on Medicaid who need it. Arkansas is being sued for civil rights violations for its refusa...

Isiscat2011 · Isiscat2011

https://www.youtube.com/playlist?list=PLkfBg8ML-gIngk82SUbTp6Og_KkY...

Isiscat2011 · Isiscat2011

Just wanted to wish Huey the best of luck for his gallbladder surgery tomorrow! I believe they will be doing a liver biopsy while they are at it, right? Keep us posted, Huey.

Karen · Karen

When I was diagnosed with Hep C, I received a letter from the State of MI stating that I was on the registry of infection diseases. On my first visit to the Hepatologist, I was treated as if I had done something so terrible that some how I deserved this life sentence. I also found it hard to find anyone will...

wmlj1960 · wmlj1960

Just want to compare Sx's and possible solutions. I'm also on Tx taking Sovaldi / Ribavirin although that may be irrelevant concerning food digestion / constipation etc.

Josh Haynie · Josh Haynie

I mean i even heard my gastro say when the virus is gone its gone ...... biopsy every couple months or years after SVR should without any shadow of a doubt confirm regeneration of GOOD healthy stuff or show resdiual damage that never healed right ??? and follow up blood draws will show viral l...

Isiscat2011 · Isiscat2011

The good news is that Gilead is talking about not pricing Ledipasvir as high as Sovaldi: "Another Gilead executive, Paul Carter, suggested the company may not price ledipasvir as high as Sovaldi, saying the "majority of value" in its combination with Sovaldi would be in Sovaldi....

Isiscat2011 · Isiscat2011

When you think of fatty liver disease you may think of someone sitting on the couch watching tv and eating bon bons all day. Unfortunately, HepC is linked to fatty liver disease, and about 40% of hepc sufferers have fatty liver disease. A small study showed that eating healthy and exercising can not...

Few questions from a new member · kimin661

Hi everyone.... my name is Kim and I've been living with Hep C since I was 12 years old, I'm 25 now. I recently had some bloodwork done and have results from my AST and ALT and are not sure what they mean. Two years ago in 2012 my AST was 16 IU/L.. My bloodwork from yesterday shows my AST as 28 IU/L. My ALT in 2012...

wmlj1960 · wmlj1960

I'm trying to learn some about reading labs by searching this forum but it's very confusing with my pickled brain after 40+ yrs alcoholic/drugs or from hepatic encephalopathy confusion, or stress or all of the above. I read through Understanding Lab test: Entire Lesson. and am getting more famili...

Isiscat2011 · Isiscat2011

Don't know if you all heard but the plane that crashed on route to Australia was carrying a group of Aids researchers. Very sad news. May they rest in peace. Aids conference says 100 researchers may have been on flight MH17 As many as 100 of the worlds leading HIV/Aids researchers and advocates may...

Huey · Huey

Am I the only one that see's this,, ?Study offers hope for HIV and Hepatitis C patients July 19, 2014 11:23 AM .View photoA nurse tests for hepatitis C at a hospital in France (AFP Photo/Francois Nascimbeni) Washington (AFP) - A new hepatitis C drug has shown early promise in patients whose infection w...

Josh Haynie · Josh Haynie

high tech... avatar and signature updated ....... hope everyone is having a good weekend ...... gota go mow my friends lawn and wire his nieces stereo.....

LadyAlaise · LadyAlaise

Hi All!! I wanted to give a shout out to all my friends on here! I know I have been MIA/Absent for damned near a year and I am sorry for that; life got busy and I get distracted easily (even when I wasn't on TX

). I just wanted to say to Jill and Shep, Alan & Kiwi, Mallan...

Josh Haynie · Josh Haynie

I will eventualy make a signature thingy thing..... Anyway gota call from the gastro office Biopsy for July 30th at 7am so the can dope me up and yada yada they say hold your breath when they stab you I say ya ill remember that .... sure theyll tell me again... gota get another blood draw from my FNP here i...

Josh Haynie · Josh Haynie

may as well since im here as i pa-rOOse the forum for insight once a day or more ....... um so you get a biopsy then im guessin you wait a week or two for results..... what will the biopsy reveal ??? whther thers cirrosis or not ..scarring .... can they tell if theres any fibrosis or at what level ???? b...

TazKat · TazKat

A Jim Morrison would say "This is the end" I say the end my friend.. 3 more sovaldi. 13 or 13 riba. woooohoooooo... damn i will glad to get this crap out of my system jsut for nerves sakes.. lol

tomyboy · tomyboy

Tom has an appt with his oncolcologist Friday and with his gastro dr next week to begin the process of hopefully stopping the oral chemo and beginning the new treatment in November. Is the name of the treatment which is set to be approved in Oct ABT-450? Hope you all are well and thanks for the help.

Topic		Started By	Replies	Views	Last Post
	NCHC Campaign to Reduce Sovaldi Costs (Preview) This campaign for Gilead to reduce the costs of Sovaldi sprung up fairly recently. The National Coalition on Health Care is primarily a lobbying group funded by insurance companies. http://www.csrxp.org/ Two US Senators are on board, a Democrat and a Republican. Here is the demand letter the...	Isiscat2011	4	941	Aug 4, 2014 by Isiscat2011
	Tx Experienced Cirrhotics: 12 vs 24 weeks (Preview) Nezam Afdhal, MD, director of hepatology at Beth Israel Deaconess Medical Center, recently stated that "there is no advantage to treating with sofosbuvir/ledipasvir for more than 12-weeks." "Responding to a question about whether there was any benefit for extended treatme...	Isiscat2011	6	1102	Aug 3, 2014 by Isiscat2011
	Hep In animals. (closed) (Preview) So...I was thinking,,,,dangerous...I know....uncle mo.....a famous race horse was retired as a three year old because he had hepititus. im going to assume.....(yes, I know....and ass of you and me).....cows can be infected with hep.....can it be transmitted to people that eat the meat of an infe...	Marypetrecz	18	1543	Aug 3, 2014 by mallani
	How my Biopsy went for 7-30-14 (Preview) think i weigh in at 59.5 kilos which is like 130 to 135 lbs.. so thats accuarte checked in at 7am and was total done by like 1015 am like a little over 3 hours... had me get naked and put on one of those gowns... hit a vein with lidacaine then inserted iv drip 1 liter water ... made me pee alot later...... um the O...	Josh Haynie	2	689	Aug 3, 2014 by Huey
	Am I infected again? (Preview) I "transplanted" this Chatbox message posted by Sheila, who is a new member. I did this because we encourage members to start a message thread in one of the Forum's sub-sections, thus giving other members an opportunity to convey information and comments. After my hep c treatments end...	hrsetrdr	6	1228	Aug 3, 2014 by Huey
	More on Viral Load test results (Preview) Hi all, With the increased availability of on-line portals for test results and Tazkat's recent post, it's worth revisiting what your report means. There's a 'Sticky' on this, but some things change. Most Labs now use a PCR Test from Roche or Abbott. The TMA tests from Quest and Labcorp do not seem to b...	mallani	4	854	Aug 3, 2014 by Huey
	OK,,,Ill admit it, I don't know everything. (Preview) What is HDV? Resource Update: Hepatitis Delta VirusHow current is your knowledge of the hepatitis delta virus (HDV)? inPractice® has been updated to include:New data on the correlation between HDV RNA levels and the development of cirrhosis and hepatocellular carcinoma Long-term follow-up o...	Huey	10	1023	Aug 2, 2014 by Huey
	Fibroscan (Preview) It came back 16.3 Thoughts?	JLynch30	3	811	Aug 2, 2014 by mallani
	MY biopsy (Preview) The only report I have so far on the Liver biopsy part of my ordeal, The Sergen told me the liver biopsy came in, I ask if he had a screen shot of it so Dr,Grandhi {That is the Doc that got me the meds} could see it. He said no but it Looked relay good! was the words he used. /That is better than nothing I guess.	Huey	0	570	Aug 2, 2014 by Huey
	Preparing for Treatment (Preview) http://hcvadvocate.blogspot.com/2014/07/patients-firs...	Isiscat2011	0	605	Aug 1, 2014 by Isiscat2011
	Geno 1 treatment Sovaldi and Olysio for 90 days (Preview) Has anyone with Geno 1 failed to achieve sustained virologic response after 90 days of S/O treatment? I am about to complete my first 30 days of treatment. Anxious to see lab results next week. Side effects have been minimal. Dull headache, some lethargy.	Pep	0	631	Jul 31, 2014 by Pep
	Biopsy Day (Preview) it,s 5:16 am thats 0516... check in time is 0700 leaving here via ride in about 30 minuets to travel bout 40 miles or less to Walla Walla Ive seen a video on a biopsy ... looks fun .... hopefully there sedatives are good im sure they are... either fetanil or a benozdiazepine concocsion... should be the...	Josh Haynie	1	608	Jul 30, 2014 by Tig
	Medicaid pays big bucks for meds (Preview) I thought this was interesting because it illuminates that there are more expensive treatments than HepC tx ($300,000. per year for a cystic fibrosis drug) and all but one state (Arkansas) is paying for those on Medicaid who need it. Arkansas is being sued for civil rights violations for its refusa...	Isiscat2011	3	777	Jul 29, 2014 by Isiscat2011
	International Health Care Systems (Preview) https://www.youtube.com/playlist?list=PLkfBg8ML-gIngk82SUbTp6Og_KkY...	Isiscat2011	0	602	Jul 29, 2014 by Isiscat2011
	The Gallbladder Thread (Preview) Just wanted to wish Huey the best of luck for his gallbladder surgery tomorrow! I believe they will be doing a liver biopsy while they are at it, right? Keep us posted, Huey.	Isiscat2011	5	819	Jul 29, 2014 by wmlj1960
	World Hepatitis Day (July 28, 2012)-Bringing awareness to Hep C (Preview) When I was diagnosed with Hep C, I received a letter from the State of MI stating that I was on the registry of infection diseases. On my first visit to the Hepatologist, I was treated as if I had done something so terrible that some how I deserved this life sentence. I also found it hard to find anyone will...	Karen	20	4731	Jul 29, 2014 by Jaded
	Anyone co-infected / cirrhotic taking Prezista, or Viread, or Intelence as HIV Rx? (Preview) Just want to compare Sx's and possible solutions. I'm also on Tx taking Sovaldi / Ribavirin although that may be irrelevant concerning food digestion / constipation etc.	wmlj1960	0	590	Jul 27, 2014 by wmlj1960
	CAN A PERSON who Achievs SVR say 12 wks ... 24wks etc etc Ever become infected by Hep C that they thought was gone? (Preview) I mean i even heard my gastro say when the virus is gone its gone ...... biopsy every couple months or years after SVR should without any shadow of a doubt confirm regeneration of GOOD healthy stuff or show resdiual damage that never healed right ??? and follow up blood draws will show viral l...	Josh Haynie	3	805	Jul 25, 2014 by Josh Haynie
	Good News, Bad News (Preview) The good news is that Gilead is talking about not pricing Ledipasvir as high as Sovaldi: "Another Gilead executive, Paul Carter, suggested the company may not price ledipasvir as high as Sovaldi, saying the "majority of value" in its combination with Sovaldi would be in Sovaldi....	Isiscat2011	3	744	Jul 24, 2014 by Josh Haynie
	Hep C and Fatty Liver (Preview) When you think of fatty liver disease you may think of someone sitting on the couch watching tv and eating bon bons all day. Unfortunately, HepC is linked to fatty liver disease, and about 40% of hepc sufferers have fatty liver disease. A small study showed that eating healthy and exercising can not...	Isiscat2011	0	811	Jul 24, 2014 by Isiscat2011
	Few questions from a new member (Preview) Hi everyone.... my name is Kim and I've been living with Hep C since I was 12 years old, I'm 25 now. I recently had some bloodwork done and have results from my AST and ALT and are not sure what they mean. Two years ago in 2012 my AST was 16 IU/L.. My bloodwork from yesterday shows my AST as 28 IU/L. My ALT in 2012...	kimin661	5	778	Jul 24, 2014 by Huey
	Lab results questions from slow learner (Preview) I'm trying to learn some about reading labs by searching this forum but it's very confusing with my pickled brain after 40+ yrs alcoholic/drugs or from hepatic encephalopathy confusion, or stress or all of the above. I read through Understanding Lab test: Entire Lesson. and am getting more famili...	wmlj1960	27	3267	Jul 22, 2014 by wmlj1960
	Aids Researchers Killed (Preview) Don't know if you all heard but the plane that crashed on route to Australia was carrying a group of Aids researchers. Very sad news. May they rest in peace. Aids conference says 100 researchers may have been on flight MH17 As many as 100 of the worlds leading HIV/Aids researchers and advocates may...	Isiscat2011	8	1157	Jul 21, 2014 by Tig
	No gloves,,, (Preview) Am I the only one that see's this,, ?Study offers hope for HIV and Hepatitis C patients July 19, 2014 11:23 AM .View photoA nurse tests for hepatitis C at a hospital in France (AFP Photo/Francois Nascimbeni) Washington (AFP) - A new hepatitis C drug has shown early promise in patients whose infection w...	Huey	0	737	Jul 21, 2014 by Huey
	check 1-2 check 1-2 (Preview) high tech... avatar and signature updated ....... hope everyone is having a good weekend ...... gota go mow my friends lawn and wire his nieces stereo.....	Josh Haynie	0	587	Jul 19, 2014 by Josh Haynie
	I HUGE BIG THANK YOU (Preview) Hi All!! I wanted to give a shout out to all my friends on here! I know I have been MIA/Absent for damned near a year and I am sorry for that; life got busy and I get distracted easily (even when I wasn't on TX ). I just wanted to say to Jill and Shep, Alan & Kiwi, Mallan...	LadyAlaise	23	1838	Jul 18, 2014 by Cinnamon Girl
	Biopsy Layout (Preview) I will eventualy make a signature thingy thing..... Anyway gota call from the gastro office Biopsy for July 30th at 7am so the can dope me up and yada yada they say hold your breath when they stab you I say ya ill remember that .... sure theyll tell me again... gota get another blood draw from my FNP here i...	Josh Haynie	2	702	Jul 18, 2014 by Josh Haynie
	Biopsy Questions and other Jibber Jabber (Preview) may as well since im here as i pa-rOOse the forum for insight once a day or more ....... um so you get a biopsy then im guessin you wait a week or two for results..... what will the biopsy reveal ??? whther thers cirrosis or not ..scarring .... can they tell if theres any fibrosis or at what level ???? b...	Josh Haynie	7	1418	Jul 17, 2014 by Luckydog1953
	oh my!!!! can't believe the end of pills are near (Preview) A Jim Morrison would say "This is the end" I say the end my friend.. 3 more sovaldi. 13 or 13 riba. woooohoooooo... damn i will glad to get this crap out of my system jsut for nerves sakes.. lol	TazKat	6	806	Jul 17, 2014 by TazKat
	Hi Question - (Preview) Tom has an appt with his oncolcologist Friday and with his gastro dr next week to begin the process of hopefully stopping the oral chemo and beginning the new treatment in November. Is the name of the treatment which is set to be approved in Oct ABT-450? Hope you all are well and thanks for the help.	tomyboy	3	696	Jul 17, 2014 by tomyboy
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