Hep C Discussion Forum

tomyboy · tomyboy

Tom has an appt with his oncolcologist Friday and with his gastro dr next week to begin the process of hopefully stopping the oral chemo and beginning the new treatment in November. Is the name of the treatment which is set to be approved in Oct ABT-450? Hope you all are well and thanks for the help.

Josh Haynie · Josh Haynie

Metavir and Ishak Im half tempted to call my Gastro office or Gastro doctor lady and say ... do you guys have access to a fibroscan ? from what im readin from you gurus / oracles you say the fibro is better then a biopsy or<----- can they be translated like Farenheight to celcius ..... as you say i...

mallani · mallani

Hi all, I just heard a video, where an annoying US female said '......we can finally say goodbye to Interferon forever' . These are just some SVR figures, for those in countries who may have years to wait for the new DAA's. Between Feb 2012 and Jul 2013, my doc and one of his partners treated 109 patients w...

Mopey · Mopey

Hi everyone, I initially posted this question as part of a different post but I thought it would be better to ask it on its own. I was looking over the results from my liver biopsy, and I wonder if some of you may help me decipher it. Here are the scores I was given: ISHAK score: Fibrosis stage 5-6/6 Grade 6/...

JoAnneh · JoAnneh

Any thoughts, facts on how long we can live with chirrhosis? i achieved SVR, I don't drink alcohol. I am 55 and always had abdunbant energy. I struggle with extreme fatigue. I was wondering if anyone else going thru this? i have started taking vitamins, I don't smoke and have loss the desire to be in the s...

Peter M · Peter M

Hi all, I've just finished up with a 12 week course of Sovaldi and Olysio. I have had cirrhosis for about eight years and the HCV for about 45 years. My viral load was below 45 at 4 weeks and UND at 8 weeks and is now UND at 12 weeks. So on that front all is good! The problem I am having is with the actual hospital w...

Cinnamon Girl · Cinnamon Girl

One of our members who doesn`t wish to be mentioned by name sent me this poem recently and asked if I could post it on their behalf. It was written 3 days into treatment and expresses a deep desire to beat the virus. I believe that sometimes expressing our feelings in words can reinforce our determinat...

Liamc · Liamc

I have my second interview any am on the waiting list to do the sofoshuvir plus GS5816 ( a second generation ns5a inhibitor) with or without rhv.. One is a 12 week trial the other 18 weeks. Is anyone on this trial and any thoughts about it would be greatly appreciated. thanks liam

Josh Haynie · Josh Haynie

July 9th 5am PST USA my stats are in the brass tax post......... WARNING WARNING WARNING LONG POST Anyway so yesterday I went north an hour to Walla walla Washington to thier mega Hospital complex pretty good spread they have ... took little time to find correct building..... Gastro Bria...

Huey · Huey

The structural proteins of HCV encodes two distinct envelope glycoproteins, E1 and E2, and notably lacks a structural or functional homolog of the prM/M protein found in flaviviruses. However this virus is vary much like flaviviruses like the West Nile Virus,, This makes me wonder ,, Is Sovoldi...

Paul B · Paul B

A symptom of Hep C is darkened urine. Does this change upon SVR ?

Isiscat2011 · Isiscat2011

The full prescribing information for the S/L combo is not available until FDA approval, but its clinical use data MAY give some indication of what the prescribing length of tx will look like: an 8 week course for some and a 12 week course for others (including cirrhotics). Also included is a possibl...

Huey · Huey

Science has not had this kind of upset since the Boson partial. Advances in Hep-c treatment and HIV are due in part to the use of super computers like the famous KARKEN to model a single three dimensional virus core and mapping it. With the HIV virus floating around in a modal on the screen we can see th...

Huey · Huey

Abstract The structural details of hepatitis C virus (HCV) have been elusive because of the lack of a robust tissue culture system for producing an adequate amount of virions from infectious sources for in-depth three-dimensional (3D) structural analysis. Using both negative-stain and cryo-e...

Josh Haynie · Josh Haynie

I would like to know how bad this treatment makes you feel on scale of 1-10 1 being hardly know its there 10 being profound physical and mental pain and or sadness ... basicly 10 being really bad anything above a 7 or 8 sounds barely tolerable.... #2 umm is there anyway to couteract the red blood cell lo...

Beacon · Beacon

Maybe I'm the only one behind on this, but I didn't realize that you can register with LabCorp and get copies of your lab results online at their website. I am now able to view my lab results all the back to my previous doctor. You can also view results with Kaiser and I don't know about other labs or states (...

tomyboy · tomyboy

Hi all from Laura and Tom. Went back to Mt Sinai for Tom's liver CT scan on 6/19, exactly one year to the day he had the liver resection and cancer removed. His liver is still clean of cancer and doctor's report they want Tom to start the "newest" hep c treatment this fall. They don't even k...

skewedButNotBroken · skewedButNotBroken

I talked to Dr. Martin's nurse this morning (he is on vacation this week) and she told me that all of my test results are in. One thing that Dr. Martin asked for was the liver slides from a biopsy that I had performed in late Jan. of this year. He wanted the pathologist at the University of Miami to regrade th...

znobs · znobs

With regard to liver failure from Hepatitis C, will the liver typically deteriorate slowly over many years, leading to failure, or will it typically be stable for many years then deteriorate quickly to failure? For example: A person with chronic Hepatitis C had two biopsies 15 years apart that sh...

mallani · mallani

Hi cirrhotics, I had my last gastroscopy today, and have been told I only need another one if I have problems. As I've now had 13 over the last 20 years, this is a relief. My last one was in April last year under local, and I had some mild changes of portal hypertensive gastropathy. These have now complete...

Omar · Omar

Dear All I was searching for Hep C related stuff and found the following:Here are the recommendations for HCV treatment for all genotypes from the American Association for the Study of Liver Diseases (AASLD): AASLD HCV Treatment Recommendations for treatment-naive patients who are eligible...

Isiscat2011 · Isiscat2011

Hey Guys: I just met with my hepc doc at the Liver Center at Virginia Mason in Seattle. She informed me that not only is their team expecting to begin prescribing the S/L combo immediately after its Oct 10 approval (and it should be on the shelves almost immediately too) but also she fully expects the AB...

Isiscat2011 · Isiscat2011

http://www.cdc.gov/hepatitis/HCV/HCVfaq.htm#section1Does

hummingbird · hummingbird

Hello everyone. I'm feeling like I made the wrong choice of GI. Here's what's happening. Either the dr or the nurse prescribed the 1st Pegasus/Ribosphere/Sovaldi script about 1 week ago. The problems are as follows; They sent it to the wrong specialty pharmacy & my insurance did not approve P...

Crossfitgirl · Crossfitgirl

Hi! I donated blood recently and received a letter yesterday from the Red Cross stating #you most likely are infected with Hepatitis C". Their results state I was Reactive for Hep C Virus Antibodies and Positive for HCV Supplemental Test. They refer to the supplemental test later on in the pape...

TazKat · TazKat

interferon shot? it feels as tho someone has their hand in there & pulling really hard. hurts like heck.. when I get up I can barely straighten up. & I feel like I have the flu 5 times over. I have been on this stuff for 8 weeks now.. why now? so uncomfortable!!!!!! -- Edited by TazKat on Saturday 14...

Beacon · Beacon

Hey everyone, I started doing a little cardiovascular exercise (hiking and light jogging) on some hilly trails and then I became concerned that maybe I was pushing too much blood through my cirrhotic liver. But I need the exercise to keep other potential problems (diabetes, cholesterol, triglyce...

Loopy Lisa · Loopy Lisa

Good morning everyone, Today is a good day for me!!!! As each European country has their own governing bodies, the Zorginstituut has approved Solvadi WITHOUT restriction with Riba at a cost of 98.584 Euro for a 24 week course. The hospital also called yesterday for a new appointment so I suspect I'm...

skewedButNotBroken · skewedButNotBroken

Hello everyone. I have my results from a CT scan from the EPIC medical record system (I have not heard from Dr. Martin's office yet). I would like to get some feedback on the results: (Note: In the past, one radiologist believed I had hemangioma and another argued against it). I was wondering if anythin...

TazKat · TazKat

iwant to keep on going on. my son is ad bipolar & blames all his freaking probs on me because I tell his wife what I think,. they have twins. I am not so sure they are earting right, I got a chat message of him dogging her but today oh it is her steroids. she is queen. my mom is havng to leave the state to et awa...

Topic		Started By	Replies	Views	Last Post
	Hi Question - (Preview) Tom has an appt with his oncolcologist Friday and with his gastro dr next week to begin the process of hopefully stopping the oral chemo and beginning the new treatment in November. Is the name of the treatment which is set to be approved in Oct ABT-450? Hope you all are well and thanks for the help.	tomyboy	3	804	Jul 17, 2014 by tomyboy
	WORD OF THE DAY or words :) (Preview) Metavir and Ishak Im half tempted to call my Gastro office or Gastro doctor lady and say ... do you guys have access to a fibroscan ? from what im readin from you gurus / oracles you say the fibro is better then a biopsy or<----- can they be translated like Farenheight to celcius ..... as you say i...	Josh Haynie	5	965	Jul 16, 2014 by Huey
	For those outside the USA (Preview) Hi all, I just heard a video, where an annoying US female said '......we can finally say goodbye to Interferon forever' . These are just some SVR figures, for those in countries who may have years to wait for the new DAA's. Between Feb 2012 and Jul 2013, my doc and one of his partners treated 109 patients w...	mallani	17	2225	Jul 16, 2014 by Jaded
	Deciphering liver biopsy report (Preview) Hi everyone, I initially posted this question as part of a different post but I thought it would be better to ask it on its own. I was looking over the results from my liver biopsy, and I wonder if some of you may help me decipher it. Here are the scores I was given: ISHAK score: Fibrosis stage 5-6/6 Grade 6/...	Mopey	4	1701	Jul 15, 2014 by mallani
	Life expectancy with chirrhosis (Preview) Any thoughts, facts on how long we can live with chirrhosis? i achieved SVR, I don't drink alcohol. I am 55 and always had abdunbant energy. I struggle with extreme fatigue. I was wondering if anyone else going thru this? i have started taking vitamins, I don't smoke and have loss the desire to be in the s...	JoAnneh	14	1978	Jul 15, 2014 by Isiscat2011
	Sovaldi and Olysio Treatment Protocols question - LONG LONG post (Preview) Hi all, I've just finished up with a 12 week course of Sovaldi and Olysio. I have had cirrhosis for about eight years and the HCV for about 45 years. My viral load was below 45 at 4 weeks and UND at 8 weeks and is now UND at 12 weeks. So on that front all is good! The problem I am having is with the actual hospital w...	Peter M	7	1434	Jul 14, 2014 by Peter M
	Hep C Poem, an expression of hope and determination.. (Preview) One of our members who doesn`t wish to be mentioned by name sent me this poem recently and asked if I could post it on their behalf. It was written 3 days into treatment and expresses a deep desire to beat the virus. I believe that sometimes expressing our feelings in words can reinforce our determinat...	Cinnamon Girl	5	963	Jul 13, 2014 by ucbgal
	Solvaldi plus GS5816 trials ...anyone on them? (Preview) I have my second interview any am on the waiting list to do the sofoshuvir plus GS5816 ( a second generation ns5a inhibitor) with or without rhv.. One is a 12 week trial the other 18 weeks. Is anyone on this trial and any thoughts about it would be greatly appreciated. thanks liam	Liamc	0	755	Jul 10, 2014 by Liamc
	Results Outline Timetable of my first Gastro Encounter (Preview) July 9th 5am PST USA my stats are in the brass tax post......... WARNING WARNING WARNING LONG POST Anyway so yesterday I went north an hour to Walla walla Washington to thier mega Hospital complex pretty good spread they have ... took little time to find correct building..... Gastro Bria...	Josh Haynie	3	1193	Jul 9, 2014 by Josh Haynie
	Result from Cryo-Microscope (Preview) The structural proteins of HCV encodes two distinct envelope glycoproteins, E1 and E2, and notably lacks a structural or functional homolog of the prM/M protein found in flaviviruses. However this virus is vary much like flaviviruses like the West Nile Virus,, This makes me wonder ,, Is Sovoldi...	Huey	0	740	Jul 8, 2014 by Huey
	Urine colour (Preview) A symptom of Hep C is darkened urine. Does this change upon SVR ?	Paul B	10	2210	Jul 6, 2014 by Tig
	Treatment Length for Sovaldi/Ledipasvir (Preview) The full prescribing information for the S/L combo is not available until FDA approval, but its clinical use data MAY give some indication of what the prescribing length of tx will look like: an 8 week course for some and a 12 week course for others (including cirrhotics). Also included is a possibl...	Isiscat2011	0	1378	Jul 5, 2014 by Isiscat2011
	Open Source and how it effects Hep-c (Preview) Science has not had this kind of upset since the Boson partial. Advances in Hep-c treatment and HIV are due in part to the use of super computers like the famous KARKEN to model a single three dimensional virus core and mapping it. With the HIV virus floating around in a modal on the screen we can see th...	Huey	5	1014	Jul 5, 2014 by Huey
	more on 3-D rendering of HCV (Preview) Abstract The structural details of hepatitis C virus (HCV) have been elusive because of the lack of a robust tissue culture system for producing an adequate amount of virions from infectious sources for in-depth three-dimensional (3D) structural analysis. Using both negative-stain and cryo-e...	Huey	1	862	Jul 5, 2014 by Huey
	Oh K down to brass tax :) haha (Preview) I would like to know how bad this treatment makes you feel on scale of 1-10 1 being hardly know its there 10 being profound physical and mental pain and or sadness ... basicly 10 being really bad anything above a 7 or 8 sounds barely tolerable.... #2 umm is there anyway to couteract the red blood cell lo...	Josh Haynie	8	1647	Jul 5, 2014 by Cinnamon Girl
	Blood work (Preview) Maybe I'm the only one behind on this, but I didn't realize that you can register with LabCorp and get copies of your lab results online at their website. I am now able to view my lab results all the back to my previous doctor. You can also view results with Kaiser and I don't know about other labs or states (...	Beacon	4	1010	Jun 27, 2014 by Tig
	I'm back and happy (Preview) Hi all from Laura and Tom. Went back to Mt Sinai for Tom's liver CT scan on 6/19, exactly one year to the day he had the liver resection and cancer removed. His liver is still clean of cancer and doctor's report they want Tom to start the "newest" hep c treatment this fall. They don't even k...	tomyboy	11	1327	Jun 27, 2014 by mallani
	It looks like I'm going to have to wait for treatment... (Preview) I talked to Dr. Martin's nurse this morning (he is on vacation this week) and she told me that all of my test results are in. One thing that Dr. Martin asked for was the liver slides from a biopsy that I had performed in late Jan. of this year. He wanted the pathologist at the University of Miami to regrade th...	skewedButNotBroken	6	1004	Jun 27, 2014 by skewedButNotBroken
	Time line of Chronic Hepatitis C that Ends in Liver Failure? (closed) (Preview) With regard to liver failure from Hepatitis C, will the liver typically deteriorate slowly over many years, leading to failure, or will it typically be stable for many years then deteriorate quickly to failure? For example: A person with chronic Hepatitis C had two biopsies 15 years apart that sh...	znobs	35	1883	Jun 27, 2014 by mallani
	Yearly gastroscopies for cirrhotics (Preview) Hi cirrhotics, I had my last gastroscopy today, and have been told I only need another one if I have problems. As I've now had 13 over the last 20 years, this is a relief. My last one was in April last year under local, and I had some mild changes of portal hypertensive gastropathy. These have now complete...	mallani	16	2355	Jun 27, 2014 by Tig
	Triple Therapy works for GT-3? (Preview) Dear All I was searching for Hep C related stuff and found the following:Here are the recommendations for HCV treatment for all genotypes from the American Association for the Study of Liver Diseases (AASLD): AASLD HCV Treatment Recommendations for treatment-naive patients who are eligible...	Omar	20	2453	Jun 26, 2014 by Omar
	ABBVie TX --Coming Soon (Preview) Hey Guys: I just met with my hepc doc at the Liver Center at Virginia Mason in Seattle. She informed me that not only is their team expecting to begin prescribing the S/L combo immediately after its Oct 10 approval (and it should be on the shelves almost immediately too) but also she fully expects the AB...	Isiscat2011	12	1190	Jun 26, 2014 by Isiscat2011
	Possible Non-Liver HCV Complications (Preview) http://www.cdc.gov/hepatitis/HCV/HCVfaq.htm#section1Does	Isiscat2011	0	816	Jun 25, 2014 by Isiscat2011
	worried about unprofessional medical staff (Preview) Hello everyone. I'm feeling like I made the wrong choice of GI. Here's what's happening. Either the dr or the nurse prescribed the 1st Pegasus/Ribosphere/Sovaldi script about 1 week ago. The problems are as follows; They sent it to the wrong specialty pharmacy & my insurance did not approve P...	hummingbird	14	1265	Jun 24, 2014 by Huey
	Hi. Question about Red Cross letter and tests. (Preview) Hi! I donated blood recently and received a letter yesterday from the Red Cross stating #you most likely are infected with Hepatitis C". Their results state I was Reactive for Hep C Virus Antibodies and Positive for HCV Supplemental Test. They refer to the supplemental test later on in the pape...	Crossfitgirl	27	1644	Jun 24, 2014 by Crossfitgirl
	My lower back is hurting really bad. (Preview) interferon shot? it feels as tho someone has their hand in there & pulling really hard. hurts like heck.. when I get up I can barely straighten up. & I feel like I have the flu 5 times over. I have been on this stuff for 8 weeks now.. why now? so uncomfortable!!!!!! -- Edited by TazKat on Saturday 14...	TazKat	25	3311	Jun 21, 2014 by TazKat
	Alpha-fetoprotein(AFP) test (Preview) Hey everyone, I started doing a little cardiovascular exercise (hiking and light jogging) on some hilly trails and then I became concerned that maybe I was pushing too much blood through my cirrhotic liver. But I need the exercise to keep other potential problems (diabetes, cholesterol, triglyce...	Beacon	34	9105	Jun 21, 2014 by Cinnamon Girl
	Solvadi approved in the Netherlands without restrictions (Preview) Good morning everyone, Today is a good day for me!!!! As each European country has their own governing bodies, the Zorginstituut has approved Solvadi WITHOUT restriction with Riba at a cost of 98.584 Euro for a 24 week course. The hospital also called yesterday for a new appointment so I suspect I'm...	Loopy Lisa	23	1498	Jun 20, 2014 by Loopy Lisa
	CT Scan results (Preview) Hello everyone. I have my results from a CT scan from the EPIC medical record system (I have not heard from Dr. Martin's office yet). I would like to get some feedback on the results: (Note: In the past, one radiologist believed I had hemangioma and another argued against it). I was wondering if anythin...	skewedButNotBroken	1	819	Jun 20, 2014 by mallani
	venting need a friend (Preview) iwant to keep on going on. my son is ad bipolar & blames all his freaking probs on me because I tell his wife what I think,. they have twins. I am not so sure they are earting right, I got a chat message of him dogging her but today oh it is her steroids. she is queen. my mom is havng to leave the state to et awa...	TazKat	19	1397	Jun 17, 2014 by Groupergetter
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