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Stopping Victrelis Early
(Preview)
Hi, I cleared the virus using a new clinical trial but I have a friend of mine who is on victrelis and wants to know if he can stop it two weeks early. He's on the Response Guided Therapy and is due to end at 28 weeks, but feels like his doctor is hinting that he can stop any time he wants to (he has three weeks to g...
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findingthecure
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6
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951
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Are the new medications by Gilead too expensive?
(Preview)
Julia has been waiting for the new medicines to come out so she won't have to take interferon. Now we read that the new medicines will cost $1000 a pill! Is this really true? Will the new medicines be too expensive? Will insurance not pay for them? thanks.
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gerewolf
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1
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1068
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is anyone on new non interferon Tx using Medicare Part D
(Preview)
Does anyone know if the boomers on Medicare Part D are covered for new non interferon drugs. I thought I read yes , then no , then alot of iffy bits. And also if you have Medicare D you are not eligible for asst with cost from drug companies. All response welcome. Thank you Michaele
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Michaele
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26
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1559
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Is It Ethical for Pharmaceutical Companies to Advertise Agressively
(Preview)
When I read that Pharmasset was able to clear the Hepatitis C virus in two weeks (including genotype 1) in 15 out of 16 patients without using interferon, I immediately had a strong suspicion that other pharmaceutical companies were going to start pushing their long and drawn out cures. Within a wee...
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Lizzy
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3
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1373
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Gilead CoPay Experience And Information
(Preview)
I got this post (below) from another forum I am on and felt it Could really help with the new FDA approved meds. SuziQ "I was a non-believer. My drugs were approved today by CIGNafter an appeal. The CIgna specialty pharmacy called me and rather embarrassed told me my copay was $3,500. They gav...
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suziq
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4
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1408
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Hep C and information
(Preview)
Hi everyone, I am considering making a documentary about Hep C. One thing is clear, the information available is poor, hard to research if you don't know what you are looking for, data is hard to decipher, and a lot of information is outdated or miss understood. I checked with Jill if it was Ok to ask the p...
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Loopy Lisa
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2
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1016
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hep c on tv
(Preview)
Heres a link to a site I saw in a tv commercial. Click the link "see our tv add" on the right top of page. This was a first for me to see hep c treatment commercial on TV. http://www.hepchope.com/
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Scruffy
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1
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997
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The Amazing new off Label Combo Olysio & Sovaldi
(Preview)
Its quite amazing and great news that this combo (Olysio & Sovaldi) is being prescribed and then approved by insurance companies since its off label from FDA. I guess that the medical machine has more power and influence with the insurance that we thought. With all the patients being prescribed...
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Matt Chris
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1
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1177
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One less worry!
(Preview)
Just wanted to share- My husband tested & came back clear. We've been together since 1988, so I was worried for him. I had to pressure him a bit to get tested, because he was avoiding it. His test was negative, which is a great relief. His response, "Thank God, I can still drink!". T...
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LTChaos
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4
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804
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wa. state treatment
(Preview)
Are there any type 2 with cirrhosis folks not in treatment out there
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robertsamx
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0
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714
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Telaprevir failure and Sovaldi-Olysio combo
(Preview)
Are any of the folks taking this new combo Telaprevir Null Responders?
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Alaska Fred
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0
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837
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Count down to treatment
(Preview)
Well in March I go to the specialist to give more blood and begin treatment. I am actually a little scared to start these drugs. I know its not really rational, but considering I hate even taking mild pain killers - before I knew I had hep, it is really a big deal for me. I know the new drugs are much easier and...
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Loopy Lisa
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12
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1191
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Info on New Clinical Trials
(Preview)
Hi All, Went for my 4 week EOT appointment yesterday. My coordinator mentioned that she has 2 new trials for geno 1 coming up this Spring. Anyone living near the Dallas Ft Worth Texas area can private message me for the contact info--or look up Texas Medical Research Center in Arlington Texas. I do...
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suziq
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1
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719
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Meloxicam
(Preview)
I am taking meloxicam (a NSAID) for back pain - any worries for my liver?
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JLynch30
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2
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1444
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Testosterone Therapy
(Preview)
Hi folks. Been a while and all is good. Coming up on a year post Tx cleared. All is good except libedo is gone and other symptoms of "Low-T" although my total is 445 which is in the lower normal range of the scale. I am 48 yoa. Funny thing is that when the Hep C was active (blood work including T chec...
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gsx1250fa
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2
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1229
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Anti HCV Postive but PCR Negative (Report says "Not detected").
(Preview)
Dear All, My anti HCV test Positive with value 2.69 but my PCR test negative (Report says "Not detected"). I have few questions. 1) I am clear from HCV ? 2) Can i transfer HCV to other as Anti HCV test positive. 3) I need the treatment? 4) I need to take any special care regarding relationship w...
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Asif C
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9
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3559
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Help/advice please!
(Preview)
Hello, I just joined this forum looking for some help/advice. My husband (25 yrs old) was diagnosed with hep c in September 2013 (traced back to tainted blood scandal and an in utero blood transfusion). We have yet to see a specialist. I have been tested and am hep C negative (we have been in a relationsh...
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Believeinmiracles
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3
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1249
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Viral load explained
(Preview)
Hi, I just got my viral load results back, HCV RNA 207,952 and my HCV log 5.32 iu/ml Is there a link explaining viral loads on the forum?Unfortunately due to my location I have to wait another week to see doctor, just anxious to know. thankyou liam
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Liamc
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739
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Hepatits C antibodies in test (AGAIN) What to do now?
(Preview)
Hello. For over 1 year ago i took some blood tests that showed that I was positive for the antibodies for Hepatitis C but no virus. They then took 2 more blood tests (RIBA included) that showed that i didnt even have the antibodies and the later tests showed no infection (no test has showed any infection...
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markymark
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12
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1214
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Happy you people exist...
(Preview)
Hey all. It's been a long 11 months since I've posted here... (that doesn't mean I haven't been watching **wink**) My doctor called me at the end of November, over the moon about Sofosbuvir + Ribavirin and so I've got myself an appointment 1/30 to discuss. I have never treated before (+ since birth in 1...
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Enavigo3891
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1
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1194
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Help with the following Questions and an endoscopy report
(Preview)
Hi, My mother has been diagnosed with HCV positive. She had some pain in her abdomen. We went to the doctor and then HCV was diagnosed. She also had black stools. The doctor told us that there is internal bleeding. This happened on 4th Jan, 2014. Now the doctor has done endoscopy but they are saying not s...
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a2usmani
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2
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881
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Olysio Financial Help
(Preview)
OLYSIO: THERE ARE AFFORDABLE OPTIONS AVAILABLE. There are several options for helping you reduce out-of-pocket costs of treatment, whether you have commercial insurance or government insurance, or you are uninsured. Find the option below that best applies to you.I Have Commercial Insurance...
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suziq
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1287
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Achillion New Clinical Trials for 2014
(Preview)
Another Drug Company has posted plans for their new clinical trials for 2014. Just more and more good news!!! SuziQ Achillion 2014 Milestones -- ACH-3422: HCV Nucleotide NS5B Polymerase Inhibitor - To date, all of the Company's preclinical studies support the advancement of ACH-3422 into cl...
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suziq
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889
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Bristol Meyers is back in the race ALL genotypes
(Preview)
Found This article today. There will be more clinical trials in the coming year. SuziQ 2014-Daclatasvir Accelerated Review By European RegulatorsSubmission includes EUs first all-oral and ribavirin-free investigational regimen for use in treatment naïve genotype 1, 2, 3 patients and prote...
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suziq
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22
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1975
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Idenix Clinical Trial Info for 2014
(Preview)
Another announcement about new clinical trials. SuziQ Simeprevir and Samatasvir (IDX719) for the treatment of hepatitis C STOCKHOLM, Sweden--(BUSINESS WIRE)--January 13, 2014-- Regulatory News: Sweden--Medivir AB (STO:MVIR-B), announces that Idenix Pharmaceuticals, Inc. today rele...
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suziq
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0
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964
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Caffeine and Liver Disease
(Preview)
While looking for information on fibrosis I came across this website/article. It mentions "an increasing number of studies suggesting that the consumption of caffeine may reduce liver inflammation in people with chronic liver disease." Makes me wonder if there was any chance of that...
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Tig
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9
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1794
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Side Effects vs SVR
(Preview)
Is there any correlation between side effects and treatment results? Does anybody know what the ratios are or if there is any difference between those that get the rash, butt burn, etc against those that don't? I am feeling pretty good today and am worried that means theI treatment isn't working (sho...
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Gracie
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5
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1022
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My 2nd Hepatitis C & Liver Transplant Video Diary
(Preview)
Hi Folks, Number 2 of my Hep C / Liver Traansplant Video Diary! Just thought I'd share my morning routine with you, including the medication I'm taking and my progress so far. Plus my plea to ask you to join the organ donation register, follo...
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rio
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2570
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Video on the combo of FDA approved Solvadi and Olysio
(Preview)
Found this video about the COSMOS trial of the two newly FDA approved drugs now available in the US. Good information to share with your doctor and MAYBE you can get this. Of course, there is still insurance to worry about. Very short--just a little over 2 minutes. Eric J. Lawitz, MD: Digestive Dis...
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suziq
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824
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HCV direct-acting antiviral agents: the best interferon-free combinations
(Preview)
Hey all Thought this was a easily understandable article from Liver International ISSN about the current DAA's that will be coming to market in the next year. Remembering all the DAA's and what part of the protein they inhibit (whether they are a NS5a or NS5b , NS3, etc) is always confusing. This art...
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Matt Chris
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