Hep C Discussion Forum

Tig · Tig

I was searching for some information and came across this website of liver function test descriptions. It may be of benefit to you and another place here that you can refer a member to that has a question regarding these tests. I'd also like to suggest that anyone with questions regarding their person...

suziq · suziq

Just had to share this and don't know anyone who might understand but you all. I called the Sheriff yesterday as a new "druggie" in the neighborhood stole things from a rental property I own. She (the druggie) got very confrontational and I apparently got confrontational back.(verbally...

tomyboy · tomyboy

Hi all, Tom and I go back to Mt Sinai tomorrow for his second liver CT scan (6 mos). Keep us in your prayers that the cancer hasn't returned. Heard the new treatment for hep c has been approved. If all goes well for Tom, the doctors want him to stop chemo and try to beat his hep c using the new treatment. Has...

shadow10cats · shadow10cats

Just saw my Dr today & he was all excited about the new "game changer" - (ya right I thought). He told me about the FDA approving Sovaldi (sofosbuvir) with Ribavirin & he could get me on it today if I wanted. He was way more excited about it than I was since I'd be the one who'd be feeling l...

Erix · Erix

I started the second therapy (Ribavirin+Interferon+Telaprevir) in Norway, but during the therapy moved back to Latvia, and have now two different recommendations from doctors regarding the therapy length. Norwegian doctor says that therapy can be finished after 24 weeks while the doctor in La...

JoAnneh · JoAnneh

I have achieved SVR, I am 6 1/2 months post treatment. I am having difficulty saying the right words at times during conversations. My husband said it's like a stroke victim. Its scary and embarrassing. This happen while on treatment and has really been happening the last few days. Could it be from ex...

JIme · JIme

Happy Thanksgiving to all the Hepsters out there. it has been a pleasure to be a part of this wonderful forum and I feel like you are all a part of my life in the most positive way. Have a great day and may your sx be few. Keep moving forward and drink water!........:)

JLynch30 · JLynch30

Has anyone heard of benign hemangioma? I think one came out on my ct scan

Tig · Tig

I just got back from my Hepa's office and I got the information that we all work so hard to hear. While I'm not finished with treatment, I think one week is pretty darn close! After the exam and the chance to discuss what has gone on over the last 6 months, I heard something I wasn't expecting today, but welc...

Loopy Lisa · Loopy Lisa

I was thinking today about the data for Genotype 3 non-responders using Sofosbuvir, Ribaviren, and Interferon. It was 90% plus. This was only a three month treatment plan. Shouldn't this be a first option for treatment naive as this is a very high percentage and a shorter treatment time compared to 6...

Cinnamon Girl · Cinnamon Girl

Hi folks, the HCV Advocate website has brought out a new fact sheet which recommends that people living with Hep C or on treatment should get a flu shot, and I thought this would be a good time to bring the subject up again. Many doctors are in favour of flu shots, while on the other hand I know that quite a f...

triple6dc2 · triple6dc2

Hi, I'm new to this forum, but I have questions regarding Hep C. First off, I'm a male, 24 years old. Last year I began using heroin and prescription pain medication. i then started to IV the drugs, which led to me being diagnosed with Hep C (about a year ago from this past October). I regularly visited my d...

Loopy Lisa · Loopy Lisa

I was wondering if you have family members with type 2 diabetes if there is any genetic relation to being disposed to it? I read that Hep C can make chances of becoming diabetetic much higher. I don't know if I was tested as there was a range of tests and I was too overwhelmed to ask at the time. Would that hav...

joyce · joyce

Hello Everyone, Sorry i have not been around recently. Have been reading but as ive no news to report didn't seem much point in posting. Still no news on when treatment will start for hubby but must be getting close. Been thinking of diet and times to eat with the new meds. I know there is a lot on here...

newmex · newmex

Currently have stage 4 cirrhosis, and am on first week of triple therapy with boceprevir after initial start with ribo and interferon. Seeing how close the new drugs are would I would I be better off not starting bocep and waiting for sofosbuvir? Don't think a month or so would be critical but a year m...

lonewolf · lonewolf

My Dr. at the VA wants me to start the latest and whats supposed to be the most effective drug Sofosbuvir shortly after its approved by the FDA. It was endorsed by all 15 members on Oct. 23, 2013 and is all but certain to be approved in early Dec. I am type 1a so I will be taking it in combination with Ribavir...

JLynch30 · JLynch30

I am a non responder - any word on new meds?

mallani · mallani

Hi all, Just had a round of golf with my doc. Boy, it's hard to get info out of him on a golf course. His Geno 3 patients will be given Sofosbuvir/Riba for 24 weeks, as they are all previous relapsers, and are either F3-4 or F4. There is a lot of speculation about the price Gilead will put on 12 weeks of Sofosb...

Matt Chris · Matt Chris

Hello all By now most of the members might have read some of the reports / abstracts coming out of the Nov. 1-5 meetings in Washington D.C. Their is a lot of ways to learn about the latest research and trial results I ran across this link from the AASLD web site, it has videos from some Doctors discussing to...

Matt Chris · Matt Chris

Hey All Great news from Gilead's presentation at the AASLD about cirrhotic patient treatments. Here is a small excerpt from the article In the first comparison, 100% of people with cirrhosis treated with sofosbuvir/ledipasvir plus ribavirin achieved SVR12, compared to only 70% of those treated...

tonib · tonib

I just read an interestng article about this Garcinia Cambodia miracle for weight loss, and lowering trigs and help for diabetes and hdl levels. It all sounds promising, however this is a supplement and will be primarily used with the liver. As a person with active HCV with moderate liver damage, I...

nurschic · nurschic

Does anyone know of a liver friendly diet that will also promote liver healing? I have read a few about low protien, low sugar and low fat with herb supplements, but I am leary about some of the things that I have read. My Dr said just eat healthy. Any suggestions???

smccune · smccune

I am new to all this. What causes relapse? Does it just go undetected after treatment and then show up again? How do you know you are negative for good?

shotgungirl · shotgungirl

Hello everyone! So, I haven't started treatment yet-just waiting on insurance to come through! Anyhow, my doctor took one more set of labs before I start treatment. My first viral load (in August) was 1,020,000. This time (about 10 days ago) it was 750! Is this a normal change without treatment, or d...

gerewolf · gerewolf

A doctor told me that 50% of hep c patients don't develop liver damage, especially the ones who have had the infection a long time. Of the lower 50%, he said 25% develop some liver damage but don't get the more severe damage (cancer, etc.). Of the lowest 25%, some develop cirrosis and about 5% cancer. ...

JLynch30 · JLynch30

My alkaline phosphate climbed from 125 to 175 My bilirubin climbed from 1.2 to 1.9 Reason for concern?

jerseygrl · jerseygrl

Probably being paranoid but I have this weird foaming in my eyes:/ also a LOT OF White stuff in corners of eyes:/ not thick. Betwwen the weird sores and my eyes i'm starting to freak out:( i'm at wk 16.

Michaele · Michaele

Hi, went to Dr today and was told new interferon free tx out soon. She said goverment/drug companies are being so secretive ,that even drs dont know much yet. I was told here in , the drs she knows are holding off starting pts on tx until end of year when new tx is available to pts. not much info, but it sound...

shotgungirl · shotgungirl

Hey everybody, its been several weeks since I've been on! So I saw my GI specialist on Tuesday. I am going to start triple therapy with Incivek. Insurance takes from 1-21 days to come through, and my medications will be delivered as soon as that happens. Excited, nervous, ready!

Karen · Karen

I have been off treatment a week today and I actually feel worse..this is crazy!!! I am not sleeping-wake in the middle of the night with my hands twitching, tightness in my jaw and spasms in the legs. I have to lay on my hands to settle them down, teeth hurt from clutching and legs just go nuts...I feel an...

Topic		Started By	Replies	Views	Last Post
	Test results explained (Preview) I was searching for some information and came across this website of liver function test descriptions. It may be of benefit to you and another place here that you can refer a member to that has a question regarding these tests. I'd also like to suggest that anyone with questions regarding their person...	Tig	0	1316	Dec 30, 2013 by Tig
	Ribavirin and Sheriff (Preview) Just had to share this and don't know anyone who might understand but you all. I called the Sheriff yesterday as a new "druggie" in the neighborhood stole things from a rental property I own. She (the druggie) got very confrontational and I apparently got confrontational back.(verbally...	suziq	9	1206	Dec 24, 2013 by suziq
	Mt Sinai (Preview) Hi all, Tom and I go back to Mt Sinai tomorrow for his second liver CT scan (6 mos). Keep us in your prayers that the cancer hasn't returned. Heard the new treatment for hep c has been approved. If all goes well for Tom, the doctors want him to stop chemo and try to beat his hep c using the new treatment. Has...	tomyboy	9	1722	Dec 23, 2013 by mallani
	Sofosbuvir Looking for Info on - Anyone who Participated in Clinical Trials etc (Preview) Just saw my Dr today & he was all excited about the new "game changer" - (ya right I thought). He told me about the FDA approving Sovaldi (sofosbuvir) with Ribavirin & he could get me on it today if I wanted. He was way more excited about it than I was since I'd be the one who'd be feeling l...	shadow10cats	11	1575	Dec 20, 2013 by Cinnamon Girl
	Hepatitis c treatment length for triple therapy with Telaprevir (Incivek/Incivo) (Preview) I started the second therapy (Ribavirin+Interferon+Telaprevir) in Norway, but during the therapy moved back to Latvia, and have now two different recommendations from doctors regarding the therapy length. Norwegian doctor says that therapy can be finished after 24 weeks while the doctor in La...	Erix	7	1733	Dec 10, 2013 by Biggyb
	Speech problem (Preview) I have achieved SVR, I am 6 1/2 months post treatment. I am having difficulty saying the right words at times during conversations. My husband said it's like a stroke victim. Its scary and embarrassing. This happen while on treatment and has really been happening the last few days. Could it be from ex...	JoAnneh	9	1786	Dec 1, 2013 by newmex
	Happy Thanksgiving everybody! (Preview) Happy Thanksgiving to all the Hepsters out there. it has been a pleasure to be a part of this wonderful forum and I feel like you are all a part of my life in the most positive way. Have a great day and may your sx be few. Keep moving forward and drink water!........:)	JIme	9	948	Nov 29, 2013 by Loopy Lisa
	Anyone? (Preview) Has anyone heard of benign hemangioma? I think one came out on my ct scan	JLynch30	25	2268	Nov 28, 2013 by mallani
	A Happy Day! (Preview) I just got back from my Hepa's office and I got the information that we all work so hard to hear. While I'm not finished with treatment, I think one week is pretty darn close! After the exam and the chance to discuss what has gone on over the last 6 months, I heard something I wasn't expecting today, but welc...	Tig	13	987	Nov 27, 2013 by Tig
	Data - Liver Conference (Preview) I was thinking today about the data for Genotype 3 non-responders using Sofosbuvir, Ribaviren, and Interferon. It was 90% plus. This was only a three month treatment plan. Shouldn't this be a first option for treatment naive as this is a very high percentage and a shorter treatment time compared to 6...	Loopy Lisa	5	1156	Nov 23, 2013 by Loopy Lisa
	Flu Shots (Preview) Hi folks, the HCV Advocate website has brought out a new fact sheet which recommends that people living with Hep C or on treatment should get a flu shot, and I thought this would be a good time to bring the subject up again. Many doctors are in favour of flu shots, while on the other hand I know that quite a f...	Cinnamon Girl	6	1034	Nov 18, 2013 by news
	Questions after being cleared (Preview) Hi, I'm new to this forum, but I have questions regarding Hep C. First off, I'm a male, 24 years old. Last year I began using heroin and prescription pain medication. i then started to IV the drugs, which led to me being diagnosed with Hep C (about a year ago from this past October). I regularly visited my d...	triple6dc2	8	1914	Nov 16, 2013 by Cinnamon Girl
	Diabetes (Preview) I was wondering if you have family members with type 2 diabetes if there is any genetic relation to being disposed to it? I read that Hep C can make chances of becoming diabetetic much higher. I don't know if I was tested as there was a range of tests and I was too overwhelmed to ask at the time. Would that hav...	Loopy Lisa	6	1063	Nov 16, 2013 by Matt Chris
	Quick Update (Preview) Hello Everyone, Sorry i have not been around recently. Have been reading but as ive no news to report didn't seem much point in posting. Still no news on when treatment will start for hubby but must be getting close. Been thinking of diet and times to eat with the new meds. I know there is a lot on here...	joyce	19	1772	Nov 15, 2013 by joyce
	Better to wait for sofosbuvir? (Preview) Currently have stage 4 cirrhosis, and am on first week of triple therapy with boceprevir after initial start with ribo and interferon. Seeing how close the new drugs are would I would I be better off not starting bocep and waiting for sofosbuvir? Don't think a month or so would be critical but a year m...	newmex	3	1059	Nov 13, 2013 by Biggyb
	The new drug Sofosbuvir (Preview) My Dr. at the VA wants me to start the latest and whats supposed to be the most effective drug Sofosbuvir shortly after its approved by the FDA. It was endorsed by all 15 members on Oct. 23, 2013 and is all but certain to be approved in early Dec. I am type 1a so I will be taking it in combination with Ribavir...	lonewolf	3	771	Nov 13, 2013 by Loopy Lisa
	new meds (Preview) I am a non responder - any word on new meds?	JLynch30	1	724	Nov 12, 2013 by mallani
	Golf with my doc (Preview) Hi all, Just had a round of golf with my doc. Boy, it's hard to get info out of him on a golf course. His Geno 3 patients will be given Sofosbuvir/Riba for 24 weeks, as they are all previous relapsers, and are either F3-4 or F4. There is a lot of speculation about the price Gilead will put on 12 weeks of Sofosb...	mallani	12	1846	Nov 12, 2013 by Loopy Lisa
	2013 AASLD Annual Liver Meeting (Preview) Hello all By now most of the members might have read some of the reports / abstracts coming out of the Nov. 1-5 meetings in Washington D.C. Their is a lot of ways to learn about the latest research and trial results I ran across this link from the AASLD web site, it has videos from some Doctors discussing to...	Matt Chris	1	889	Nov 10, 2013 by mallani
	In ELECTRON trial, 100% of hard-to-treat patients cured with sofosbuvir/ledipasvir plus ribavirin or GS-9669 (Preview) Hey All Great news from Gilead's presentation at the AASLD about cirrhotic patient treatments. Here is a small excerpt from the article In the first comparison, 100% of people with cirrhosis treated with sofosbuvir/ledipasvir plus ribavirin achieved SVR12, compared to only 70% of those treated...	Matt Chris	12	1261	Nov 9, 2013 by Matt Chris
	HCV and Garcinia Cambodia extract? (Preview) I just read an interestng article about this Garcinia Cambodia miracle for weight loss, and lowering trigs and help for diabetes and hdl levels. It all sounds promising, however this is a supplement and will be primarily used with the liver. As a person with active HCV with moderate liver damage, I...	tonib	2	756	Nov 4, 2013 by hrsetrdr
	Liver friendly diet? (Preview) Does anyone know of a liver friendly diet that will also promote liver healing? I have read a few about low protien, low sugar and low fat with herb supplements, but I am leary about some of the things that I have read. My Dr said just eat healthy. Any suggestions???	nurschic	19	2678	Nov 1, 2013 by dustbear
	Relapse question? (Preview) I am new to all this. What causes relapse? Does it just go undetected after treatment and then show up again? How do you know you are negative for good?	smccune	5	1655	Oct 31, 2013 by smccune
	BIG change in Viral Load count (Preview) Hello everyone! So, I haven't started treatment yet-just waiting on insurance to come through! Anyhow, my doctor took one more set of labs before I start treatment. My first viral load (in August) was 1,020,000. This time (about 10 days ago) it was 750! Is this a normal change without treatment, or d...	shotgungirl	6	1036	Oct 25, 2013 by Zlikster
	50% of Hep C patients don't develop liver damage? (Preview) A doctor told me that 50% of hep c patients don't develop liver damage, especially the ones who have had the infection a long time. Of the lower 50%, he said 25% develop some liver damage but don't get the more severe damage (cancer, etc.). Of the lowest 25%, some develop cirrosis and about 5% cancer. ...	gerewolf	7	1514	Oct 25, 2013 by Loopy Lisa
	Recent labs (Preview) My alkaline phosphate climbed from 125 to 175 My bilirubin climbed from 1.2 to 1.9 Reason for concern?	JLynch30	7	1513	Oct 24, 2013 by garfield
	Eyes Foaming??? (Preview) Probably being paranoid but I have this weird foaming in my eyes:/ also a LOT OF White stuff in corners of eyes:/ not thick. Betwwen the weird sores and my eyes i'm starting to freak out:( i'm at wk 16.	jerseygrl	8	1622	Oct 21, 2013 by intothelight
	My Dr said end of year (Preview) Hi, went to Dr today and was told new interferon free tx out soon. She said goverment/drug companies are being so secretive ,that even drs dont know much yet. I was told here in , the drs she knows are holding off starting pts on tx until end of year when new tx is available to pts. not much info, but it sound...	Michaele	8	1219	Oct 19, 2013 by Loopy Lisa
	Starting Tx! (Preview) Hey everybody, its been several weeks since I've been on! So I saw my GI specialist on Tuesday. I am going to start triple therapy with Incivek. Insurance takes from 1-21 days to come through, and my medications will be delivered as soon as that happens. Excited, nervous, ready!	shotgungirl	6	865	Oct 19, 2013 by shotgungirl
	What is going on??? (Preview) I have been off treatment a week today and I actually feel worse..this is crazy!!! I am not sleeping-wake in the middle of the night with my hands twitching, tightness in my jaw and spasms in the legs. I have to lay on my hands to settle them down, teeth hurt from clutching and legs just go nuts...I feel an...	Karen	17	1465	Oct 18, 2013 by shotgungirl
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