Hep C Discussion Forum

Karen · Karen

I have been off treatment a week today and I actually feel worse..this is crazy!!! I am not sleeping-wake in the middle of the night with my hands twitching, tightness in my jaw and spasms in the legs. I have to lay on my hands to settle them down, teeth hurt from clutching and legs just go nuts...I feel an...

Iris Dragonfly · Iris Dragonfly

Hi folks, ...I had some dental work 2 days ago, they removed a real old filling, (with mercury) prepping for a crown. I asked for a dental dam and he said it wasn't necessary. Yesterday and today I feel like crap, think it is related? BB, Iris

ios9 · ios9

Hi all, This trial could bring hope to those of us who have the "unlucky" IL28B CC genotype. Here a communication from a French Hepato from September 2013. It's written in English, so no problem. It's about the great efficacy of the combination of ABT-450/r with ABT-072 and ribavirin in t...

Matt Chris · Matt Chris

Hello Friends After reading Jumpy's post about relapse in Genotype 1 from the Abbvie Aviator study I found myself with this question about relapsed patients. " If you relapsed and did not develop Rav's can you be treated with the same type of DAA'S drugs?" Here is the URL that Jumpy listed ...

AngieV123 · AngieV123

Hello all. I have been reading some of the posts about sofosbuvir getting ready to be approved. I see that some say it will be ready as soon as December. Anyone know this for a fact? Once approved, will it be available for immediate use to the general public? I ask because I am STILL waiting to start tx. My...

tomyboy · tomyboy

Hi all, It's me Laura. Took Tom back to Mt Sinai for his first three month liver scan. Great news, the chemo is working. There is NO sign of any growth in his liver. And to really make our day, his surgeon reports the new Hep C medication will be approved by the FDA in December. I told him I read that on thi...

mallani · mallani

Hi all, My doc has lost interest in me now, so I had my last visit today. I'll miss my up-to-dates. He's given me my follow-up regime, and I'll call him if I've got any worries. I got the latest info out of him so here goes. Remember it's only his opinion, and that of his group of Hepatologists. Ankle oedema:...

supportive wife · supportive wife

Ok so since my husband is not seeing a specialist now ur doctor is going to run some more test to see where he stands with this disease so can yall tell me what kind of test he needs to run so I can take my list when we go to see the doctor? We ran the AST/ALT which were 27 and 34 on 9/4/13. If these test come...

supportive wife · supportive wife

Got the labs back from doctor the results read ALT RHC 34U/L and the AST RHC read 27U/L is this what you go by to determine if there is liver damage? His doctor says there is no significant liver damage. This is what we got so far just from reg doctor so now we will go to the specialist to see if he needs to tre...

Matt Chris · Matt Chris

Looks like the FDA is not going to drag its feet on this review of Sofosbuvir after all. Yahoo! ( how does one yodel in print) This notice announces a forthcoming meeting of a public advisory committee of the Food and Drug Administration (FDA). The meeting will be open to the public. Name of Committ...

mehru · mehru

You have to be in Washington, DC area during tx. I am considering doing this one but have to look in to cost of temporary housing. Also, I would have to be approved.Combination Therapy for Chronic Hepatitis C InfectionThis study is currently recruiting participants.Verified December 2012 by N...

gt2race · gt2race

Hi again , Im suffering to umph degree of itchy and scratchy .. I itch 24 -7 with violent icthiness all over my body .. Im raging from hep o fcourse Any one out there have A simple remedy or anything to relieve this ? God please help .. Im goin off the scale cheers Lawrence from So Cal

ios9 · ios9

Hi, As I wrote before, there is a special way for people living in France to get medicamentation not on the market yet if their doc explain to the Health Department their patient is in danger or so. It's called ATU (temparary authorization of use). Normally labs says yes as French Goverment pay for it a...

tonib · tonib

I am getting ready to take shot #10 and I can't help but feel that I may be just wasting my time. The doc said I may have to go off therapy if my VL is not at least 1000 or lower or better yet UND....AND MY RESULTS ARE NOT READY!! Sooooooooooo will this be my last shot? Will I be laying on the couch tomorrow with...

supportive wife · supportive wife

Hello again its been a while since I have been on here. I did get my husband to go to the doctor and they blood work results not in however, I did talk to his doctor and he said about the yellowing if it stays then worry but if it comes and goes and that is what I see then he is ok. Has anyone else experienced...

hepCFREEwanab · hepCFREEwanab

Let's see....Angelo stopped TX on August 16 ( 7 weeks into TX) due to very low Hgb 8.5 and Hepatocrit 25.9 levels. platelets 42 The blood transfusion and 1 injection of procrit only minimally increased the levels . So to avoid other unwanted complications NO MORE TX! Since 8/16 I gave him 2 more proc...

supportive wife · supportive wife

So I finally got my husband to go to the doctor no results back yet but is his blood pressure is up does that come from headaches or is it something to do with his liver?

rotting to the core · rotting to the core

Being as to how I am starting my 40th week of treatment, I can't help but be curious as to how many people have been able to succeed in completion of of treatment. What I have found suggests it is less than 25%. Of course that is an old study done by the VA many years ago. Does any one have more current informat...

Matt Chris · Matt Chris

Hey y'all This is a topic that needs to be understood by all people entering treatment for HCV. Its taken from the hepatitiscnewdrugs blog spot the full article can be read there this is just a excerpt. HCV education appears to improve adherence to HCV therapy.[27, 28]However, there are only limit...

OLDDUDE · OLDDUDE

Has anyone done any research on how the liver repairs itself, or if it does, when the Hep-C virus is cleared? I've heard that the liver is capable of regenerating itself, healing itself, etc. but I'm curious if this is the same for Hep-C patients. No alcohol or drugs except those prescribed by my doct...

gt2race · gt2race

Hello and best blessings .. I got a few questions had and still have chronic Hep c for ten years going just had a recent transplant Dec 10th 2012 tried ribosphere and pegentron twice .. Before transplant .. found to be intolerant .. approx 5 years ago was blessed with a 16 year olds liver dec 12th and now 8 m...

ios9 · ios9

Hi all, My friend would need some advice from all of you to tell her what could be the best Trial for her. First she lives in France. She had a blood transfusion 30 years ago and she is GENO 1a, A3/F4 (cirrhosis). She had had 3 treatments, all with interferon. She did not answer at all for the first 2, then...

supportive wife · supportive wife

Is it possible on some days to see that a person has a yellow tent or am I seeing things? Ascites I know I have posted this before but when my husband lays down his stomach goes flat to a certain degree. I asked him the other nigh to suck in his stomach while standing and he did and it also went flat to a certain...

supportive wife · supportive wife

ok so I called the doctor we were referred to but since it has been 6 years my husband has been to the doctor they want us to go to a reg. doctor and get labs to prove his has hep c so what kind of doctor do I need to try to get him in to see?

tomyboy · tomyboy

Hi all, Had our appointments with the oncologist and Tom starts his oral chemotherapy tomorrow. It is two pills twice a day which the doctor reports has had good results with liver cancer. The dose is 400 mg to start and they will see how he tolerates the treatment. don't like the fact he is calling...

Matt Chris · Matt Chris

Hey Friends Check out this article from France, that appears to correlate the level of Ribavirin in the blood plasma at the EOT with SVR. This could lead to better SVR % in all treatments that Incorparate Ribavirin in their protocol. If they take a reading of the Ribavirin level during the treatment t...

Zlikster · Zlikster

http://www.giantmicrobes.com/us/products/whitebloodcell.html

hepCFREEwanab · hepCFREEwanab

Up to 2004 all of Angelo's blood work only showed elevated AST & ALT (nothing too high) Everything else was in range! In 2012 all of a sudden other results came out of range as follows: April 2013 results Albunim L 3.5 range 3.6 - 5.3 ...

supportive wife · supportive wife

Ascites or is it fat in the stomach area I read that yellow in the eyes can mean Cirrhosis my husband has had yellowing in his eyes had biopsy done in 06 since he had hep c also can a person go from stage 1 grade 1 to having Cirrhosis in 6 years. And what is considered to be a large comsumption of alcohol? th...

ios9 · ios9

Hi all, I have been informed this morning that my vitamine D amount, already low before the treatment (21) has dramatically dropt down to 8 at end of treatment (12 week). Does any one had the same problem, and do you think it's the treatment or else ? Thanks a lot, Do

Topic		Started By	Replies	Views	Last Post
	What is going on??? (Preview) I have been off treatment a week today and I actually feel worse..this is crazy!!! I am not sleeping-wake in the middle of the night with my hands twitching, tightness in my jaw and spasms in the legs. I have to lay on my hands to settle them down, teeth hurt from clutching and legs just go nuts...I feel an...	Karen	17	1475	Oct 18, 2013 by shotgungirl
	Mercury fillings (Preview) Hi folks, ...I had some dental work 2 days ago, they removed a real old filling, (with mercury) prepping for a crown. I asked for a dental dam and he said it wasn't necessary. Yesterday and today I feel like crap, think it is related? BB, Iris	Iris Dragonfly	1	685	Oct 10, 2013 by Karen
	AbbVie results for a small trial of patients geno 1 bearing the IL28B CC genotype. (Preview) Hi all, This trial could bring hope to those of us who have the "unlucky" IL28B CC genotype. Here a communication from a French Hepato from September 2013. It's written in English, so no problem. It's about the great efficacy of the combination of ABT-450/r with ABT-072 and ribavirin in t...	ios9	1	715	Oct 6, 2013 by garfield
	If you relapsed and did not develop Rav's can you be treated with the same type of DAA'S drugs? (Preview) Hello Friends After reading Jumpy's post about relapse in Genotype 1 from the Abbvie Aviator study I found myself with this question about relapsed patients. " If you relapsed and did not develop Rav's can you be treated with the same type of DAA'S drugs?" Here is the URL that Jumpy listed ...	Matt Chris	7	1898	Oct 3, 2013 by mallani
	Anyone have the facts about sofosbuvir approval date? (Preview) Hello all. I have been reading some of the posts about sofosbuvir getting ready to be approved. I see that some say it will be ready as soon as December. Anyone know this for a fact? Once approved, will it be available for immediate use to the general public? I ask because I am STILL waiting to start tx. My...	AngieV123	2	1003	Sep 23, 2013 by AngieV123
	First 3 month CT Scan (Preview) Hi all, It's me Laura. Took Tom back to Mt Sinai for his first three month liver scan. Great news, the chemo is working. There is NO sign of any growth in his liver. And to really make our day, his surgeon reports the new Hep C medication will be approved by the FDA in December. I told him I read that on thi...	tomyboy	4	905	Sep 23, 2013 by tomyboy
	Last visit with my Hepatologist! (Preview) Hi all, My doc has lost interest in me now, so I had my last visit today. I'll miss my up-to-dates. He's given me my follow-up regime, and I'll call him if I've got any worries. I got the latest info out of him so here goes. Remember it's only his opinion, and that of his group of Hepatologists. Ankle oedema:...	mallani	11	1806	Sep 21, 2013 by Karen
	test (Preview) Ok so since my husband is not seeing a specialist now ur doctor is going to run some more test to see where he stands with this disease so can yall tell me what kind of test he needs to run so I can take my list when we go to see the doctor? We ran the AST/ALT which were 27 and 34 on 9/4/13. If these test come...	supportive wife	7	1104	Sep 19, 2013 by Dover514
	lab results (Preview) Got the labs back from doctor the results read ALT RHC 34U/L and the AST RHC read 27U/L is this what you go by to determine if there is liver damage? His doctor says there is no significant liver damage. This is what we got so far just from reg doctor so now we will go to the specialist to see if he needs to tre...	supportive wife	4	824	Sep 19, 2013 by supportive wife
	Gilead's (GILD) Sofosbuvir FDA Panel Review Date Set for October 25th (Preview) Looks like the FDA is not going to drag its feet on this review of Sofosbuvir after all. Yahoo! ( how does one yodel in print) This notice announces a forthcoming meeting of a public advisory committee of the Food and Drug Administration (FDA). The meeting will be open to the public. Name of Committ...	Matt Chris	4	1279	Sep 14, 2013 by mehru
	New Gilead non-Peg non-Riba study starting between 10/2013 - 11/2013 for Genotype 1's & 4's at NIH. (Preview) You have to be in Washington, DC area during tx. I am considering doing this one but have to look in to cost of temporary housing. Also, I would have to be approved.Combination Therapy for Chronic Hepatitis C InfectionThis study is currently recruiting participants.Verified December 2012 by N...	mehru	2	908	Sep 12, 2013 by mehru
	itchy and scrathchy forever ... or help (Preview) Hi again , Im suffering to umph degree of itchy and scratchy .. I itch 24 -7 with violent icthiness all over my body .. Im raging from hep o fcourse Any one out there have A simple remedy or anything to relieve this ? God please help .. Im goin off the scale cheers Lawrence from So Cal	gt2race	3	922	Sep 12, 2013 by mehru
	GILEAD REFUSAL (Preview) Hi, As I wrote before, there is a special way for people living in France to get medicamentation not on the market yet if their doc explain to the Health Department their patient is in danger or so. It's called ATU (temparary authorization of use). Normally labs says yes as French Goverment pay for it a...	ios9	5	1381	Sep 10, 2013 by ios9
	Shot 10 may be a waste (Preview) I am getting ready to take shot #10 and I can't help but feel that I may be just wasting my time. The doc said I may have to go off therapy if my VL is not at least 1000 or lower or better yet UND....AND MY RESULTS ARE NOT READY!! Sooooooooooo will this be my last shot? Will I be laying on the couch tomorrow with...	tonib	11	898	Sep 8, 2013 by nurschic
	First step after 6 years (Preview) Hello again its been a while since I have been on here. I did get my husband to go to the doctor and they blood work results not in however, I did talk to his doctor and he said about the yellowing if it stays then worry but if it comes and goes and that is what I see then he is ok. Has anyone else experienced...	supportive wife	7	1047	Sep 8, 2013 by mallani
	Hello everyone fron Angelo & Mena ----update after stoping treatment!!! (Preview) Let's see....Angelo stopped TX on August 16 ( 7 weeks into TX) due to very low Hgb 8.5 and Hepatocrit 25.9 levels. platelets 42 The blood transfusion and 1 injection of procrit only minimally increased the levels . So to avoid other unwanted complications NO MORE TX! Since 8/16 I gave him 2 more proc...	hepCFREEwanab	5	800	Sep 7, 2013 by Cinnamon Girl
	headache and blood pressure issues (Preview) So I finally got my husband to go to the doctor no results back yet but is his blood pressure is up does that come from headaches or is it something to do with his liver?	supportive wife	0	724	Sep 7, 2013 by supportive wife
	% Rates of people who complete treatment (Preview) Being as to how I am starting my 40th week of treatment, I can't help but be curious as to how many people have been able to succeed in completion of of treatment. What I have found suggests it is less than 25%. Of course that is an old study done by the VA many years ago. Does any one have more current informat...	rotting to the core	3	775	Sep 5, 2013 by mallani
	Education and Adherence ; How Important ? (Preview) Hey y'all This is a topic that needs to be understood by all people entering treatment for HCV. Its taken from the hepatitiscnewdrugs blog spot the full article can be read there this is just a excerpt. HCV education appears to improve adherence to HCV therapy.[27, 28]However, there are only limit...	Matt Chris	9	1250	Sep 4, 2013 by dustbear
	Liver Regeneration? (Preview) Has anyone done any research on how the liver repairs itself, or if it does, when the Hep-C virus is cleared? I've heard that the liver is capable of regenerating itself, healing itself, etc. but I'm curious if this is the same for Hep-C patients. No alcohol or drugs except those prescribed by my doct...	OLDDUDE	15	5001	Sep 4, 2013 by dustbear
	Newbie .. but and Oldie .. a few questions please (Preview) Hello and best blessings .. I got a few questions had and still have chronic Hep c for ten years going just had a recent transplant Dec 10th 2012 tried ribosphere and pegentron twice .. Before transplant .. found to be intolerant .. approx 5 years ago was blessed with a 16 year olds liver dec 12th and now 8 m...	gt2race	1	651	Sep 3, 2013 by mallani
	Some help for my friend relapser 3 times (Preview) Hi all, My friend would need some advice from all of you to tell her what could be the best Trial for her. First she lives in France. She had a blood transfusion 30 years ago and she is GENO 1a, A3/F4 (cirrhosis). She had had 3 treatments, all with interferon. She did not answer at all for the first 2, then...	ios9	9	1235	Sep 3, 2013 by 52baddog
	questions (Preview) Is it possible on some days to see that a person has a yellow tent or am I seeing things? Ascites I know I have posted this before but when my husband lays down his stomach goes flat to a certain degree. I asked him the other nigh to suck in his stomach while standing and he did and it also went flat to a certain...	supportive wife	0	575	Aug 29, 2013 by supportive wife
	help (Preview) ok so I called the doctor we were referred to but since it has been 6 years my husband has been to the doctor they want us to go to a reg. doctor and get labs to prove his has hep c so what kind of doctor do I need to try to get him in to see?	supportive wife	3	630	Aug 29, 2013 by mallani
	Update of Mt Sinai (Preview) Hi all, Had our appointments with the oncologist and Tom starts his oral chemotherapy tomorrow. It is two pills twice a day which the doctor reports has had good results with liver cancer. The dose is 400 mg to start and they will see how he tolerates the treatment. don't like the fact he is calling...	tomyboy	9	938	Aug 28, 2013 by Biggyb
	The End-of-Treatment Ribavirin Concentration Predicts Hepatitis C Virus Relapse. (Preview) Hey Friends Check out this article from France, that appears to correlate the level of Ribavirin in the blood plasma at the EOT with SVR. This could lead to better SVR % in all treatments that Incorparate Ribavirin in their protocol. If they take a reading of the Ribavirin level during the treatment t...	Matt Chris	5	1467	Aug 19, 2013 by Kellie
	How to raise your white blood cells count! (Preview) http://www.giantmicrobes.com/us/products/whitebloodcell.html	Zlikster	3	891	Aug 17, 2013 by tonib
	MALLANI and anyone else knowledgeble can you please give me your opinion on these results? (Preview) Up to 2004 all of Angelo's blood work only showed elevated AST & ALT (nothing too high) Everything else was in range! In 2012 all of a sudden other results came out of range as follows: April 2013 results Albunim L 3.5 range 3.6 - 5.3 ...	hepCFREEwanab	2	801	Aug 16, 2013 by hepCFREEwanab
	Ascites (Preview) Ascites or is it fat in the stomach area I read that yellow in the eyes can mean Cirrhosis my husband has had yellowing in his eyes had biopsy done in 06 since he had hep c also can a person go from stage 1 grade 1 to having Cirrhosis in 6 years. And what is considered to be a large comsumption of alcohol? th...	supportive wife	7	1274	Aug 15, 2013 by Cinnamon Girl
	Treatment and lost of vitamine D (Preview) Hi all, I have been informed this morning that my vitamine D amount, already low before the treatment (21) has dramatically dropt down to 8 at end of treatment (12 week). Does any one had the same problem, and do you think it's the treatment or else ? Thanks a lot, Do	ios9	4	706	Aug 15, 2013 by ios9
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