Hep C Discussion Forum

pepsi · pepsi

well found out today that i will be starting treatment in the middle of feb. my liver bisopy was a2 f1 the doc said that was good since i have been infected for 25 years. they did more blood work today to check vlload and to get a starting point for labs. -- Edited by pepsi on Friday 18th of January 2013 12:50:...

nikcoh1 · nikcoh1

Does anyone know if there is a link between type 2 diab and hep c?

pepsi · pepsi

i go to the doctor in the morning for the results of my liver bisopy as well as finding out when treatment starts, any pointers that i need to know about so that i can aask my doc

pootinlady · pootinlady

I can get all my test results online and dont have to wait but at the sametime I dont get to talk to a person and get answers so what does this test mean...AMA-M2 EP (MIT3) IgG Autoabs and UnitsREFERENCE RANGE for MITOCHONDRIA M2 ANTIBODY (IGG), EIALess than 20.1 . . . . . . Negative20.1 - 24.9 . . . . . . . Equi...

pootinlady · pootinlady

I am going to a new dr and I need to ask questions and am not sure which ones to ask, what are viral loads and where should you want yours to be, also if I have hep c does that mean it is chronic? ANd I have noticed some people put ud which I am assuming means un detected so if it is undetected does that mean you do NO...

Bills · Bills

EVERYONE YOU NEED TO SIGN THIS PETITION for Gilead sciences to get off their a$$ RIGHT NOW and release 7977 that is a big stumbling block http://www.change.org/petitions/gilead-sciences-please-collaborate-with-bristol-myers-for-the-cure-for-hepatitis-c-nowAlong the side or t...

Dopey · Dopey

I received a letter from the hep c nurses asking to make an appointment to be assessed for triple treatment.........now considering I have been waiting for this letter impatiently since what feels like forever, why now that its arrived do I feel anxious and scared!!? I have moments where I feel ready...

mallani · mallani

Hi, We are all used to seeing our Viral Load figures. To expand on this: Take a 'moderate' Viral Load of 5 million i.u./ml. Most labs now use 1 i.u.= 2.5 viral particles, so this is 12.5 million viral particles /ml. of blood. That is 12,500 million/litre. A normal adult has 5 litres of blood. That gives us...

Butcheeyboy · Butcheeyboy

Had blood work done on the 27th and the results were made avail to me today. The hospital where I do treatment has what is called 'MyChart-urmc' on the web. Any thoughts on my counts?

Lon · Lon

Hello, I had an appointment last week with a new doctor. She was part of the team that designed the current treatment that is available for Hep C. She was on the R&D team and worked the the FDA approval process for the current treatment. She left the research field to get back into patient care and n...

JoAnneh · JoAnneh

Is anyone having problem w tenderness in their mouth and tongue. Makes eating anything w salt hurt and uncomfortable to chew cereal, nuts etc... Any ideas?? I am using sensitive toothpaste. Just finished Invicek a week ago. JoAnne

e7018miller · e7018miller

I recently had bloodwork done and I am not sure what they mean? Please help. The IUl/L is 25-150 I am not sure what that means regarding viral load? If you need any more info please ask. Thank you

MadelineHather1 · MadelineHather1

Sorry, but we don`t allow people to advertise their publications on this forum, thanks! -- Edited by Cinnamon Girl on Wednesday 9th of January 2013 08:44:34 PM

mallani · mallani

It's worth revisiting this, as it is possibly the most controversial topic in HCV workup and treatment. It's not helped by the lack of consensus between Hepatologists and between countries. Chronic HCV causes liver inflammation that leads to liver fibrosis. Many factors affect this process incl...

mallani · mallani

I acually had an interesting doc's visit this morning. At least he didn't discuss his golf handicap! As I have posted, Vict. and Inciv. are not available on the PBS in Australia, but Merck supplied Victrelis to selected Hepatogy practices free of charge in Feb 2012. PBS approval is expected in March 2...

pootinlady · pootinlady

I finally got in to see the Dr. yesterday, and he said I have genotype 3 said it is easy to treat and I can statrt treatment in one month, because it takes that long to get the meds, I am very happy to know that I will be getting treated free through the county hospital, I am also on Disability for COPD an Muskos...

pepsi · pepsi

just had it done thursday wasnt too bad. just having a little lightheadness and i hurt when i breath in

polyester75 · polyester75

I just got my 1st viral load count done though i've been living with hep-c and many of it's compounded problems over the years. I had to fight to get this and have no idea how to read it. I says, HEP-C QT RT-PCR IU/ml 210000 <43 IU/ml HEP-C QU RT-PCR IU/ml 5....

archallaa · archallaa

Hello.So, here is the history behind all of this. 4 weeks ago i was with a girl that i hadsex with. I used condom during the vaginal sexbut not during the oral sex (that she gave on me).She has chronic hepatitis b with very low infectivity,but since im a little bit paranoid i decided to go andget vaccinat...

Carolinca · Carolinca

Who do people often compare HCV antiviral treatment to chemotherapy. Is is really considered chemotherapy, or are the two actually different?

Carolinca · Carolinca

When people on these boards talk about fatigue from the HCV, are they talking about fatigue caused from the virus pretreatment, fatigue caused from the treatment, or both?

erindae · erindae

I have just started learning about hep c and I am hoping for some suggestions/advice. My husband (has hep c) has started getting horrible abdominal pain and hasn't been able to go to work. he has just recently started seeing a doctor for his hep c and just had lab work and an ultrasound done-we don't know...

LUV2RYDE · LUV2RYDE

So I go in for all the blood work,weight,EKG and a urinalysis. Results come back and my RN says I had bacteria in my urine sample(could be because I was spotting on my period) and my liver enzymes were two points higher then the "allowed"limit. I am on type 2 diabetes med and take birth control...

12Step Guy · 12Step Guy

Top Ten things to love about Incivek/Victrelis/Peg/Rib #10 You can get a bad case of the flu and not feel any different #9 The chances of getting Hep C from a dirty needle are a lot less #8 Rash is not just an impulsive response #7 People from around the World get together to discuss anal itching...

joe oil · joe oil

http://www.hivandhepatitis.com/hepatitis-c/hepatitis-c-topics/hcv-treatment/3925-hepatitis-c-cirrhosis-patients-with-sustained-treatment-response-have-lower-risk-of-death-- Edited by joe oil on Friday 28th of December 2012 07:03:45 AM

mallani · mallani

We are looking for a treatment combination that will do the following: 1. Achieve close to 100% SVR rate in all Genotypes and subgroups 2. Be effective in all treatment groups, including age, sex, ethnicity, fibrosis stage and previous treatment history. 3. Be interferon-free and possibly ribavi...

dailyrx · dailyrx

(http://www.rxwiki.com/news-release/incivek-has-small-risk-fatal-and-nonfatal-serious-skin-eactions),

mallani · mallani

In the USA, Genotype 1 accounts for ~75% of all HCV cases. Geno 2 is ~ 15% and Geno 3 about 7%. Geno 1 is 'difficult to treat', so not surprisingly, most research has been aimed at treating this Genotype. However in some countries, Geno 2 and 3 are much more common. Using Peg. and Riba, SVR rates for Geno 2...

Suzanneaz · Suzanneaz

My car broke and I cant fix it. A taxi would be up to 75.00 one way, plus 50.00 to the Dr and 25.00 to the lab. I have no income, ssi turned me down as well as medicaid for my state, so now I have a immune system problem. I have gross mini boils for a few months now under my eye lids, and giant white heads surrounded...

Rickk · Rickk

2 failed hep c treatments. Last treatment ended in april. My new Dr @ loyola in Chicago (June Visit) said my Hep was causing my nose to get a little red. Now months later its super red. I mean dark red. Its been going on for two weeks. medicine did not help. Im getting nervous. Is this common? Thanks Rick

Topic		Started By	Replies	Views	Last Post
	Starting treatment in feb (Preview) well found out today that i will be starting treatment in the middle of feb. my liver bisopy was a2 f1 the doc said that was good since i have been infected for 25 years. they did more blood work today to check vlload and to get a starting point for labs. -- Edited by pepsi on Friday 18th of January 2013 12:50:...	pepsi	1	788	Jan 18, 2013 by mallani
	hep c and diabetes (Preview) Does anyone know if there is a link between type 2 diab and hep c?	nikcoh1	4	1153	Jan 17, 2013 by nikcoh1
	Doctor Appt in the am results (Preview) i go to the doctor in the morning for the results of my liver bisopy as well as finding out when treatment starts, any pointers that i need to know about so that i can aask my doc	pepsi	2	708	Jan 17, 2013 by pepsi
	what does this mean (Preview) I can get all my test results online and dont have to wait but at the sametime I dont get to talk to a person and get answers so what does this test mean...AMA-M2 EP (MIT3) IgG Autoabs and UnitsREFERENCE RANGE for MITOCHONDRIA M2 ANTIBODY (IGG), EIALess than 20.1 . . . . . . Negative20.1 - 24.9 . . . . . . . Equi...	pootinlady	3	734	Jan 17, 2013 by mallani
	viral load (Preview) I am going to a new dr and I need to ask questions and am not sure which ones to ask, what are viral loads and where should you want yours to be, also if I have hep c does that mean it is chronic? ANd I have noticed some people put ud which I am assuming means un detected so if it is undetected does that mean you do NO...	pootinlady	7	1330	Jan 16, 2013 by pootinlady
	EVERYONE YOU NEED TO SIGN THIS PETITION Now (closed) (Preview) EVERYONE YOU NEED TO SIGN THIS PETITION for Gilead sciences to get off their a$$ RIGHT NOW and release 7977 that is a big stumbling block http://www.change.org/petitions/gilead-sciences-please-collaborate-with-bristol-myers-for-the-cure-for-hepatitis-c-nowAlong the side or t...	Bills	4	1096	Jan 15, 2013 by Cinnamon Girl
	Good news or bad?!!!! (Preview) I received a letter from the hep c nurses asking to make an appointment to be assessed for triple treatment.........now considering I have been waiting for this letter impatiently since what feels like forever, why now that its arrived do I feel anxious and scared!!? I have moments where I feel ready...	Dopey	7	1202	Jan 14, 2013 by Bills
	Viral Load- in perspective (Preview) Hi, We are all used to seeing our Viral Load figures. To expand on this: Take a 'moderate' Viral Load of 5 million i.u./ml. Most labs now use 1 i.u.= 2.5 viral particles, so this is 12.5 million viral particles /ml. of blood. That is 12,500 million/litre. A normal adult has 5 litres of blood. That gives us...	mallani	2	864	Jan 14, 2013 by news
	Blood work results (Preview) Had blood work done on the 27th and the results were made avail to me today. The hospital where I do treatment has what is called 'MyChart-urmc' on the web. Any thoughts on my counts?	Butcheeyboy	17	1343	Jan 13, 2013 by Butcheeyboy
	Doc Appointment (Preview) Hello, I had an appointment last week with a new doctor. She was part of the team that designed the current treatment that is available for Hep C. She was on the R&D team and worked the the FDA approval process for the current treatment. She left the research field to get back into patient care and n...	Lon	1	708	Jan 12, 2013 by JIme
	Sore tongue (Preview) Is anyone having problem w tenderness in their mouth and tongue. Makes eating anything w salt hurt and uncomfortable to chew cereal, nuts etc... Any ideas?? I am using sensitive toothpaste. Just finished Invicek a week ago. JoAnne	JoAnneh	26	3858	Jan 11, 2013 by JoAnneh
	please help (Preview) I recently had bloodwork done and I am not sure what they mean? Please help. The IUl/L is 25-150 I am not sure what that means regarding viral load? If you need any more info please ask. Thank you	e7018miller	1	583	Jan 10, 2013 by Bouba
	Reviewers Wanted, New Book CURING HEPATITIS C (Preview) Sorry, but we don`t allow people to advertise their publications on this forum, thanks! -- Edited by Cinnamon Girl on Wednesday 9th of January 2013 08:44:34 PM	MadelineHather1	0	897	Jan 9, 2013 by MadelineHather1
	Assessment of liver damage (Preview) It's worth revisiting this, as it is possibly the most controversial topic in HCV workup and treatment. It's not helped by the lack of consensus between Hepatologists and between countries. Chronic HCV causes liver inflammation that leads to liver fibrosis. Many factors affect this process incl...	mallani	5	820	Jan 8, 2013 by bauhaus76
	How others are doing. (Preview) I acually had an interesting doc's visit this morning. At least he didn't discuss his golf handicap! As I have posted, Vict. and Inciv. are not available on the PBS in Australia, but Merck supplied Victrelis to selected Hepatogy practices free of charge in Feb 2012. PBS approval is expected in March 2...	mallani	13	1390	Jan 7, 2013 by mallani
	answers finally (Preview) I finally got in to see the Dr. yesterday, and he said I have genotype 3 said it is easy to treat and I can statrt treatment in one month, because it takes that long to get the meds, I am very happy to know that I will be getting treated free through the county hospital, I am also on Disability for COPD an Muskos...	pootinlady	7	1135	Jan 6, 2013 by Cinnamon Girl
	liver bisopy (Preview) just had it done thursday wasnt too bad. just having a little lightheadness and i hurt when i breath in	pepsi	0	510	Jan 5, 2013 by pepsi
	VIRAL LOAD (Preview) I just got my 1st viral load count done though i've been living with hep-c and many of it's compounded problems over the years. I had to fight to get this and have no idea how to read it. I says, HEP-C QT RT-PCR IU/ml 210000 <43 IU/ml HEP-C QU RT-PCR IU/ml 5....	polyester75	6	3843	Jan 4, 2013 by Adamos40
	antibodies against hepatitis C, but no virus? How is this possible? (Preview) Hello.So, here is the history behind all of this. 4 weeks ago i was with a girl that i hadsex with. I used condom during the vaginal sexbut not during the oral sex (that she gave on me).She has chronic hepatitis b with very low infectivity,but since im a little bit paranoid i decided to go andget vaccinat...	archallaa	2	676	Jan 4, 2013 by Cinnamon Girl
	Antivirals and Chemotherapy? (Preview) Who do people often compare HCV antiviral treatment to chemotherapy. Is is really considered chemotherapy, or are the two actually different?	Carolinca	1	626	Jan 3, 2013 by mallani
	Fatigue From HCV (Preview) When people on these boards talk about fatigue from the HCV, are they talking about fatigue caused from the virus pretreatment, fatigue caused from the treatment, or both?	Carolinca	1	584	Jan 3, 2013 by mallani
	Question- (Preview) I have just started learning about hep c and I am hoping for some suggestions/advice. My husband (has hep c) has started getting horrible abdominal pain and hasn't been able to go to work. he has just recently started seeing a doctor for his hep c and just had lab work and an ultrasound done-we don't know...	erindae	1	536	Jan 3, 2013 by JoAnneh
	Supposed to start my clinical trial but...... (Preview) So I go in for all the blood work,weight,EKG and a urinalysis. Results come back and my RN says I had bacteria in my urine sample(could be because I was spotting on my period) and my liver enzymes were two points higher then the "allowed"limit. I am on type 2 diabetes med and take birth control...	LUV2RYDE	15	2436	Jan 3, 2013 by mallani
	Top Ten things to love about Incivek/Victrelis/Peg/Rib (Preview) Top Ten things to love about Incivek/Victrelis/Peg/Rib #10 You can get a bad case of the flu and not feel any different #9 The chances of getting Hep C from a dirty needle are a lot less #8 Rash is not just an impulsive response #7 People from around the World get together to discuss anal itching...	12Step Guy	16	1199	Jan 3, 2013 by TazKat
	To Treat Or Not To Treat (Preview) http://www.hivandhepatitis.com/hepatitis-c/hepatitis-c-topics/hcv-treatment/3925-hepatitis-c-cirrhosis-patients-with-sustained-treatment-response-have-lower-risk-of-death-- Edited by joe oil on Friday 28th of December 2012 07:03:45 AM	joe oil	0	683	Dec 28, 2012 by joe oil
	The ideal HCV treatment drug combination (Preview) We are looking for a treatment combination that will do the following: 1. Achieve close to 100% SVR rate in all Genotypes and subgroups 2. Be effective in all treatment groups, including age, sex, ethnicity, fibrosis stage and previous treatment history. 3. Be interferon-free and possibly ribavi...	mallani	2	819	Dec 23, 2012 by mallani
	Beware Incivek (Preview) (http://www.rxwiki.com/news-release/incivek-has-small-risk-fatal-and-nonfatal-serious-skin-eactions),	dailyrx	9	1550	Dec 24, 2012 by Northern
	2 and 3- the forgotten genotypes? (Preview) In the USA, Genotype 1 accounts for ~75% of all HCV cases. Geno 2 is ~ 15% and Geno 3 about 7%. Geno 1 is 'difficult to treat', so not surprisingly, most research has been aimed at treating this Genotype. However in some countries, Geno 2 and 3 are much more common. Using Peg. and Riba, SVR rates for Geno 2...	mallani	1	704	Dec 21, 2012 by news
	Now what? (Preview) My car broke and I cant fix it. A taxi would be up to 75.00 one way, plus 50.00 to the Dr and 25.00 to the lab. I have no income, ssi turned me down as well as medicaid for my state, so now I have a immune system problem. I have gross mini boils for a few months now under my eye lids, and giant white heads surrounded...	Suzanneaz	2	673	Dec 18, 2012 by JoAnneh
	Bright red nose. Help (Preview) 2 failed hep c treatments. Last treatment ended in april. My new Dr @ loyola in Chicago (June Visit) said my Hep was causing my nose to get a little red. Now months later its super red. I mean dark red. Its been going on for two weeks. medicine did not help. Im getting nervous. Is this common? Thanks Rick	Rickk	4	648	Dec 18, 2012 by 12Step Guy
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