Hep C Discussion Forum

breaking · breaking

Hepatitis C (Genotype 3) treatment for 6 months, 1 week ago over Have a drink at the moment is OK to drink If you have a sustained virological response after 6 months after receiving a drawback temperance, will you?

libgirl07 · libgirl07

I've been going to a counselor for a year and only today told him I have hep c. He started asking questions about sex and saying about it being spread through kissing and i bit my tongue and what not.. I couldnt really understand what that had to do with me telling him about it. I already know how its sprea...

libgirl07 · libgirl07

Just trying to get an idea of where it is in the clin phases? Anyone hear anything about how soon it might be out? I'm trying to decide if I should wait or not.

mallani · mallani

I have just read an article relating to HCV Rx in Australia, as of Sept. 2012. Approx. 220,000 Australians have chronic HCV (1.1%). This compares to the US incidence of 1.8%. Only 1.7% of Australian patients have had Rx, or are being treated. I find this amazing. This may increase after December when V...

alexm1122 · alexm1122

I am now in my 8th month of tx (ribaviren, interferon & boceprevir); it has been hell with rashes, open sores, eye fatigue, SOB, etc but now comes a real problem. My Gums are bleeding & teeth are breaking not mention turning dark brown. Sores on my lips hinder some mouth hygiene but I still brush...

Daook · Daook

Lab report from yesterday 1st lab after 22 days on 3x treatment- viral load from 11,000,000 to 64. I really needed to see that! Good response to meds. Dr. wants undetected by next 2 week visit. Also, red blood count at 12.5 - all looks good. I'm always tired and rash has started on right side of stomach ju...

Michael44 · Michael44

Hi everyone, I have many questions but will start with a few. I am not a US citizen but is permanent resident. My viral load is now 10,7 million. I am obviously concerned as it has tripled in short amount of time. My question is, has any of you had to obtain medical insurance while being aware of your Hep C...

cmerduran · cmerduran

VL became undetected at 23.day of my treatment... Now i try to understand what is my chance of getting SVR? Does anybody have statistics about 4week results relations with SVR? Or how much it is possible to become positive at 12week results? I got statistics from incivo's advanced phase study that %9...

Michael44 · Michael44

Hi Everyone, right now I am sitting in a lot of fear around my results. I had 3 tests done in Mexico where I was undergoing treatments for Hep C. My initiat viral load was 8.3 million and I felt horrible. After treatments I arrived a 2.9 million and felt fantastic! These test where done in a acknowledged c...

Scout · Scout

I just listened to the Diane Rehm show referencing Hep C and the CDC. Still a lot of misinformation and dated info in the media coverage of our disease. To bad.

Michaele · Michaele

Hi all, I need to start antidepressants before starting Tx. Being Bipolar I just ride the wave up and down and have learned how to use the wave. Get house work and gardening done while manic, bake like the dough boy, get the picture . When Im depressed I sit in front of TV or PC in the same duds ; all teary ey...

12Step Guy · 12Step Guy

Diarrhea She doesn't smell like a rose and everybody knowsShe'll get you in dutchYou can look but you'd better not touch Diarrhea, DiarrheaWell late at night when you're sleepingDiarrhea comes a creeping all around She's not sweet like a DaisyBut look out man she's crazyShe'll really do you in With...

greenqueen · greenqueen

Hi Everyone, It's good that that this petition is being highlighted on the forum, but could I remind people not to use ridiculously large fonts. I understand how passionate we feel about the need to get the point across, but it is very bad net etiquette and looks terrible. It could even put people off wh...

maddog · maddog

when my dr told me i tested + for hvc he also said that i might have Hemochromatosis. i have been reading on this disease also and some of the symptons are the same. can anyone help with this.

Shocked · Shocked

I went in to my doctor's office a couple weeks ago with a sinus infection and while talking to her, my doctor noticed that I have a lot of bruises. I told her I bruise easily, so she ordered blood tests. My liver enzymes came back elevated. 70 and 112. A new set of tests was ordered a few days later and the...

johnbyrnes · johnbyrnes

how bad is portal hypertension? just been told on friday just gone ,the same day i started tx, that i have this ,and i might be put on beta blockers,i know its to do with blood pressure,i will google it see what comes back

Cinnamon Girl · Cinnamon Girl

A message of encouragement sent from Deirdre to Steve-o - "Just had this FB message from Deidre, she asked me to pass it on, I have. It May help someone." "I almost feel guilty saying this to you, because of the way your treatment turned out. But, I know you are bigger than that. So I was ho...

LC · LC

I did a search and didn't see anything about these nanozymes on here, so forgive me if this subject has been posted but this sure sounds promising doesn't it? Oh please God, let this work and get on the market fairly soon! Nanozyme shuts down production of hepatitis C virus in the body Hepatitis C Can No...

Mary Jane · Mary Jane

Update about "Gilead Sciences: Please collaborate with Bristol Myers for the Cure for Hepatitis C NOW!" Inbox x Change.org mail@change.org5:18 AM (13 hours ago) to me Images are not displayed. Display images below - Always display images from mail@change.org Dear Supporter...

12Step Guy · 12Step Guy

Welcome to HEPPER Cruises the fun carnival party ship's HMS Victrelis and USS Incivek . This extended cruise promises to fulfill youre every expectation of leisure and relaxation - with an exciting cuisine to boot! Your journey begins with a buffet dinner provided by Vertex Pharmaceuticals and f...

alexm1122 · alexm1122

My med'l records are posted on line (VA) & I'm trying to read my enzeme levels; what would it be under? There is no 'enzeme' heading. That would be way to easy for the VA. I think they like to play ';hide the ball'. Thanx.

innerview · innerview

Three anemia drugs -- Epogen, Procrit and Aranesp -- have been among the best-selling prescription drugs in the United States for years, generating more than $8 billion a year for their makers, Amgen and Johnson & JohnsonAfter millions of people have taken these drugs, an investigation by the...

mallani · mallani

I have been concerned because we do not have access to the more sensitive VL tests in Australia. In the US, many people use Heptimax and other TMA tests, that can quantify down to 5 copies. A recent Pathology Meeting here has reassured me. The test most used here is the COBAS Ampliprep/Cobas Taqman HCV a...

mallani · mallani

Increasingly, the decision of when to treat, how to treat and how long to treat, is being based on the degree of liver damage(fibrosis). The hepC virus does not directly cause liver damage. It is our bodies reactive response that causes our problems. Many patients with chronic HCV never develop sign...

news · news

I recently noticed that my status on the forum had been elevated to Guru. While I am flattered and pleased, I wonder if I actually qualify. How is this designation made?

Janiam · Janiam

I'm one of the 30 people that was in the this trial and have just been released from a five day hospital stay that has ended up with my having a diagnosis of cardiomyopathy due to drug toxicity. I am scared and don't know how much damage I will be facing for the rest of my life. I was told there were 70 people th...

wnose · wnose

http://www.soros.org/voices/pharma-greed-kills-aids-activists-take-hepatitis-c

mallani · mallani

It is an unfortunate fact that not all of us undergoing Rx will achieve SVR. To understand why, it is necessary to understand some features of our virus, and the effects of Rx. HCV first appeared in the early 1900's, and all genotypes and their subgroups are thought to have evolved from the original 1b g...

whirlwind · whirlwind

November of last year I finally crossed the line into IV drug use after 9 years of opioid depencence. I didn't share needles until February, with my then-boyfriend. That's also when I began injecting pills I bought from a dealer as opposed to pills I was prescribed, fresh from the pharmacy. By late Mar...

Mahmoud · Mahmoud

I suffer from bleeding gum , and i regularly eat in restaurants , I live in Egypt which suffers the highest rate of infection , i was wondering is it possible to get infected if ur gum was bleeding while eating in restaurant ? -- Edited by Mahmoud on Tuesday 21st of August 2012 03:35:33 AM

Topic		Started By	Replies	Views	Last Post
	Drink (Preview) Hepatitis C (Genotype 3) treatment for 6 months, 1 week ago over Have a drink at the moment is OK to drink If you have a sustained virological response after 6 months after receiving a drawback temperance, will you?	breaking	3	797	Sep 12, 2012 by jrc
	Does counseling help? (Preview) I've been going to a counselor for a year and only today told him I have hep c. He started asking questions about sex and saying about it being spread through kissing and i bit my tongue and what not.. I couldnt really understand what that had to do with me telling him about it. I already know how its sprea...	libgirl07	6	856	Sep 11, 2012 by Mary Jane
	what clinical trial phase is psi7977 in? (Preview) Just trying to get an idea of where it is in the clin phases? Anyone hear anything about how soon it might be out? I'm trying to decide if I should wait or not.	libgirl07	1	671	Sep 10, 2012 by Zlikster
	Alarming Statistics (Preview) I have just read an article relating to HCV Rx in Australia, as of Sept. 2012. Approx. 220,000 Australians have chronic HCV (1.1%). This compares to the US incidence of 1.8%. Only 1.7% of Australian patients have had Rx, or are being treated. I find this amazing. This may increase after December when V...	mallani	3	909	Sep 10, 2012 by mallani
	Search For Dentist... (Preview) I am now in my 8th month of tx (ribaviren, interferon & boceprevir); it has been hell with rashes, open sores, eye fatigue, SOB, etc but now comes a real problem. My Gums are bleeding & teeth are breaking not mention turning dark brown. Sores on my lips hinder some mouth hygiene but I still brush...	alexm1122	7	1176	Sep 10, 2012 by alexm1122
	Latest lab report (Preview) Lab report from yesterday 1st lab after 22 days on 3x treatment- viral load from 11,000,000 to 64. I really needed to see that! Good response to meds. Dr. wants undetected by next 2 week visit. Also, red blood count at 12.5 - all looks good. I'm always tired and rash has started on right side of stomach ju...	Daook	12	949	Sep 7, 2012 by Daook
	Starting from scratch (closed) (Preview) Hi everyone, I have many questions but will start with a few. I am not a US citizen but is permanent resident. My viral load is now 10,7 million. I am obviously concerned as it has tripled in short amount of time. My question is, has any of you had to obtain medical insurance while being aware of your Hep C...	Michael44	10	1313	Sep 6, 2012 by greenqueen
	what is importance of 4week results with incivek? (Preview) VL became undetected at 23.day of my treatment... Now i try to understand what is my chance of getting SVR? Does anybody have statistics about 4week results relations with SVR? Or how much it is possible to become positive at 12week results? I got statistics from incivo's advanced phase study that %9...	cmerduran	1	787	Sep 6, 2012 by mallani
	Translating my Viral load results (closed) (Preview) Hi Everyone, right now I am sitting in a lot of fear around my results. I had 3 tests done in Mexico where I was undergoing treatments for Hep C. My initiat viral load was 8.3 million and I felt horrible. After treatments I arrived a 2.9 million and felt fantastic! These test where done in a acknowledged c...	Michael44	3	1296	Sep 6, 2012 by Cinnamon Girl
	The stigma is still alive (Preview) I just listened to the Diane Rehm show referencing Hep C and the CDC. Still a lot of misinformation and dated info in the media coverage of our disease. To bad.	Scout	2	677	Sep 5, 2012 by Mary Jane
	Antidepressants (Preview) Hi all, I need to start antidepressants before starting Tx. Being Bipolar I just ride the wave up and down and have learned how to use the wave. Get house work and gardening done while manic, bake like the dough boy, get the picture . When Im depressed I sit in front of TV or PC in the same duds ; all teary ey...	Michaele	23	1050	Sep 4, 2012 by Mary Jane
	Song of the Day Diarrhea (apologies to the Boys) (Preview) Diarrhea She doesn't smell like a rose and everybody knowsShe'll get you in dutchYou can look but you'd better not touch Diarrhea, DiarrheaWell late at night when you're sleepingDiarrhea comes a creeping all around She's not sweet like a DaisyBut look out man she's crazyShe'll really do you in With...	12Step Guy	3	775	Sep 3, 2012 by Margo
	Gilead Sciences Petition - Members please read! (Preview) Hi Everyone, It's good that that this petition is being highlighted on the forum, but could I remind people not to use ridiculously large fonts. I understand how passionate we feel about the need to get the point across, but it is very bad net etiquette and looks terrible. It could even put people off wh...	greenqueen	7	1128	Sep 3, 2012 by Bills
	looking for info-Hemochromatosis (Preview) when my dr told me i tested + for hvc he also said that i might have Hemochromatosis. i have been reading on this disease also and some of the symptons are the same. can anyone help with this.	maddog	5	956	Sep 3, 2012 by Mary Jane
	Not sure what to say or ask.... (Preview) I went in to my doctor's office a couple weeks ago with a sinus infection and while talking to her, my doctor noticed that I have a lot of bruises. I told her I bruise easily, so she ordered blood tests. My liver enzymes came back elevated. 70 and 112. A new set of tests was ordered a few days later and the...	Shocked	12	1352	Sep 3, 2012 by Tattoo Bear
	portal hypertension (Preview) how bad is portal hypertension? just been told on friday just gone ,the same day i started tx, that i have this ,and i might be put on beta blockers,i know its to do with blood pressure,i will google it see what comes back	johnbyrnes	4	1957	Sep 2, 2012 by Michaele
	Message of encouragement from Deirdre, a former member... (Preview) A message of encouragement sent from Deirdre to Steve-o - "Just had this FB message from Deidre, she asked me to pass it on, I have. It May help someone." "I almost feel guilty saying this to you, because of the way your treatment turned out. But, I know you are bigger than that. So I was ho...	Cinnamon Girl	3	966	Sep 2, 2012 by JIme
	Nanozyme technology: A 100% HCV Cure? (Preview) I did a search and didn't see anything about these nanozymes on here, so forgive me if this subject has been posted but this sure sounds promising doesn't it? Oh please God, let this work and get on the market fairly soon! Nanozyme shuts down production of hepatitis C virus in the body Hepatitis C Can No...	LC	14	1751	Sep 2, 2012 by Bills
	Sharing again reposting from FB petition to sign and pass along- I got my 5 (Preview) Update about "Gilead Sciences: Please collaborate with Bristol Myers for the Cure for Hepatitis C NOW!" Inbox x Change.org mail@change.org5:18 AM (13 hours ago) to me Images are not displayed. Display images below - Always display images from mail@change.org Dear Supporter...	Mary Jane	0	818	Sep 1, 2012 by Mary Jane
	Welcome all the new (current and old) folk (Preview) Welcome to HEPPER Cruises the fun carnival party ship's HMS Victrelis and USS Incivek . This extended cruise promises to fulfill youre every expectation of leisure and relaxation - with an exciting cuisine to boot! Your journey begins with a buffet dinner provided by Vertex Pharmaceuticals and f...	12Step Guy	21	1294	Sep 1, 2012 by Daook
	Enzeme Levels, (Preview) My med'l records are posted on line (VA) & I'm trying to read my enzeme levels; what would it be under? There is no 'enzeme' heading. That would be way to easy for the VA. I think they like to play ';hide the ball'. Thanx.	alexm1122	4	898	Sep 1, 2012 by alexm1122
	Anemia Drug Made Billions but at What Cost? (Preview) Three anemia drugs -- Epogen, Procrit and Aranesp -- have been among the best-selling prescription drugs in the United States for years, generating more than $8 billion a year for their makers, Amgen and Johnson & JohnsonAfter millions of people have taken these drugs, an investigation by the...	innerview	6	1122	Aug 31, 2012 by iggle
	Sensitivity of VL tests (Preview) I have been concerned because we do not have access to the more sensitive VL tests in Australia. In the US, many people use Heptimax and other TMA tests, that can quantify down to 5 copies. A recent Pathology Meeting here has reassured me. The test most used here is the COBAS Ampliprep/Cobas Taqman HCV a...	mallani	0	613	Aug 31, 2012 by mallani
	Liver Fibrosis (Preview) Increasingly, the decision of when to treat, how to treat and how long to treat, is being based on the degree of liver damage(fibrosis). The hepC virus does not directly cause liver damage. It is our bodies reactive response that causes our problems. Many patients with chronic HCV never develop sign...	mallani	4	832	Aug 29, 2012 by mallani
	Not a Problem - But How Is Membership Level Determined (Preview) I recently noticed that my status on the forum had been elevated to Guru. While I am flattered and pleased, I wonder if I actually qualify. How is this designation made?	news	14	1773	Aug 26, 2012 by Cinnamon Girl
	INX-189 Trial Participant (Preview) I'm one of the 30 people that was in the this trial and have just been released from a five day hospital stay that has ended up with my having a diagnosis of cardiomyopathy due to drug toxicity. I am scared and don't know how much damage I will be facing for the rest of my life. I was told there were 70 people th...	Janiam	13	2069	Aug 26, 2012 by greenqueen
	AIDs activists take on big Pharma pricing for Peg interferon (Preview) http://www.soros.org/voices/pharma-greed-kills-aids-activists-take-hepatitis-c	wnose	2	658	Aug 25, 2012 by Cinnamon Girl
	Chances of SVR (Preview) It is an unfortunate fact that not all of us undergoing Rx will achieve SVR. To understand why, it is necessary to understand some features of our virus, and the effects of Rx. HCV first appeared in the early 1900's, and all genotypes and their subgroups are thought to have evolved from the original 1b g...	mallani	13	1622	Aug 22, 2012 by Zlikster
	Awaiting test results, experiencing symptoms. Symptoms in the first year?/Little known routes of transmission (Preview) November of last year I finally crossed the line into IV drug use after 9 years of opioid depencence. I didn't share needles until February, with my then-boyfriend. That's also when I began injecting pills I bought from a dealer as opposed to pills I was prescribed, fresh from the pharmacy. By late Mar...	whirlwind	9	980	Aug 22, 2012 by jrc
	HCV transmission for those who suffer bleeding gum ! (Preview) I suffer from bleeding gum , and i regularly eat in restaurants , I live in Egypt which suffers the highest rate of infection , i was wondering is it possible to get infected if ur gum was bleeding while eating in restaurant ? -- Edited by Mahmoud on Tuesday 21st of August 2012 03:35:33 AM	Mahmoud	5	963	Aug 21, 2012 by Cinnamon Girl
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