Hep C Discussion Forum

Glenn831 · Glenn831

Hello All, My mother was diagnosed with Hep C and Cirrhosis. I respectfully request your assistance in helping me understand Hep C and Cirrhosis with what I should know and what questions I should be asking the doctors to fully understand my mother's status. My mother is really confused with the doc...

senkum · senkum

hello every one. hope every one is fine at your end. am Be Mech Engg Grad from india. me and mine friend plan to create a new software one is search engine another one is anti virus software. i had a knowledge about c not in c++. can i go with c or it's necessary to learn c++. am comfort with c only. please give s...

LUV2RYDE · LUV2RYDE

Hey everyone I start my treatment this week and was going to run to the store and was wondering if you all could give me some pointers on as what to buy? Food,personal items and what nots. I have heard of butt paste...lol ,Aveeno bath soak and any type of lotion that works really good. Thanks,

slippyslip · slippyslip

Hello everyone, I'm not sure if this is the appropriate forum for this, but I have this question: While i personally do not have hep c, my best friend was very recently diagnosed. I am extremely worried about him. This diagnosis came after months of having several different problems, which are all now...

davesf · davesf

Our friend Otto passed away a few years ago today after a battle with cancer. The Big Man was known for his generosity both amongst his peers and the charity work he did. One quote he was known for was "Give Thanks" (for what you've got). It became a rallying cry amongst his friends during t...

Lon · Lon

Hello, I was hoping that the GS-7977 drug would do better in the third clinical trials. From what I read today, they were saying that they experienced a high relapse rate and as such didn't feel that it would be commercially viable to continue GS-7977 development. Is this what everyone else is hearin...

Cflournoy · Cflournoy

Also stated Hepatitis C Without Mention?

Submitted by: GI Date Obtained: May 14, 2010 Specimen Recieved: May 14, 2010 Liver Biopsy Brief Clinical History: HCV x 30 years Pre operative Diagnosis: HCV Post-Operative Diagnosis: Evaluate Grade/Stage Grading ...

titus321 · titus321

Is there a correlation between my viral load count and cirrohsis? When I first discovered I had hep c my viral load count was 54 million IU/ML's. That was in 1998 now in 2012 my viral load count is 537,000. MY doc seems to think I'm going to need a liver transplant soon. On what basis is he coming to this conc...

lostinhills · lostinhills

I'm new here, Was going to throw this out ... I have the Hep C 2a, IL28B genotypes TT, like 5.9 million VL, stage 1-2 liver fibrosis (by blood testing). 38 yr old male, drug free (past / present), non drinker, no other med issues, ever. Contracted the HCV from "on the job, career". K, enough a...

marktrux · marktrux

I'll be starting incivek triple tx in about 2 weeks, and I just have a silly little question: Is it okay to drink Red Bull enegry drink, I usaully like to have a couple a day. But I also know it's got lots of B12, Niacin, B6, Pantothenic Acid and Taurine and dont know the effects on liver and treatment. Just t...

lostinhills · lostinhills

Hello, I am trying to find some study or doctor's conclusion that HEP C causes headaches. Either directly or in-directly, as for example as a result of the HCV causing " ", to domino effect. Reason I am asking, is cause I have been getting terrible headaches, like if not all headaches are...

elizabeth · elizabeth

http://www.latimes.com/news/local/la-me-boomers-hepatitis-20120502,0,4558891.story

marktrux · marktrux

If we acheive SVR, at any point are we able to get regular health insurance? Meaning; I currently have my health insurance thru the State of Texas High Risk Pool, it's very expensive and pretty crappy but it the only insurance avadible to me due to "pre-existing" condition. If SVR is acheiv...

kannon · kannon

I've done a little bit of research and the results for triple therapy look very promising. I took the peg/inter about 8 years ago. I cleared the virus at 6 months. That was the first time during the treatment that my viral loads were tested. The side effects were not too bad. I didn't have an appetite so I l...

mariano · mariano

hi there. well here i am again....joined in 2009 cos i was just gonna start treatment..... after six months of not very niceness I got the not detectable.... and then the all clear... great you are probably thinking... Well yes I was so made up and still am..... but....... Im living with a lovely man wh...

HaveFaith · HaveFaith

Hello friends, Like some of you I had used drugs and shared needles, was very reckless in the past. I've been clean for 5 years and since then had two beautiful boys. I was told about a month ago that I had antibodies for Hepatitis C, and this scared me to death. I was overcome with guilt, shame, anger for wh...

kbfilly99 · kbfilly99

Today was one of the worst day so far..I got aggravated early at work and could not shake it as the day went on if things could go wrong they did..I almost lost it a couple of times..Even knowing it was the meds doing this I couldn't shake it..Its only 2wks into triple treatment I hope this is not any ind...

JIme · JIme

I had a biopsy yesterday in hopes of being Stage 3 or less so I can go on a trial for 7977 and the BMS drug ( forgot # ) and maybe riba. Several people are starting it or have started this week. If I am above stage 3 I am not elligible for this trial. I will look for something else then. I was on Triple Tx w/telap...

Sami · Sami

Hi, I work for (deleted) a marketing research company, and we are conducting a paid opinion research study with Hepatitis C patients and caregivers. This study will take place in New York City in August of 2011 and we are offering a generous honorarium for participation. If you are interested, ple...

Suzanneaz · Suzanneaz

I was reading here about the problems with ins etc on the topic today. I have no ins so it all comes from the manufacturer. When offered I selected my home for my first deliveries, and now tried to change that. Both the manufacturer of peg/copeg and vic told me, Im crazy that they do not ship to walgreens. I...

Kay · Kay

*Caution Disclaimer* If you are anxious or easily influenced by bad reports or afraid of biopsy you may wanna skip this one. I went in everything seemed to go well during the procedure the Dr took 3 samples as is standard and then I went to a room to recover and wait a couple hours...all was well. UNTIL...

Minerva · Minerva

...'In advance of NICEs final appraisal of the 2 new drugs Telaprevir and Boceprevir, The Hepatitis C Trust is looking for people in the UK to talk to the press or policy makers about their experiences with hepatitis C treatment, especially any of the new treatments. Have you been, or are currently, o...

hrsetrdr · hrsetrdr

For some time now it has been my understanding that have I had cirrohsis, however, just today my case manager advised that my liver is inflammed but no cirrohsis is evident... My labs are within "normal' range", and I've had a couple of ultrasound scans, but Ithe doctor has said that the...

Iris Dragonfly · Iris Dragonfly

I don't know about you all, But for all the years this miserable virus has been with me, I have yet to find a Dr. that thought treatment was a good idea. For SOOOOOOOOOOOOOOOOO long the standard answer was ...well there's nothing we can do. Then I heard about the interferon, and the Dr.s I was seeing at the...

matt0801 · matt0801

New here just wanted to say hello to everyone out there hope all is well!!!! Matthew

Caryn · Caryn

I was just posting in another topic and thought I would ask if anyone else has had a blood test instead of a liver biopsy that told them they had liver scarring? I have never had a biopsy, but my doctor did some blood test to show if there was scarring on my liver. She explained that I would be between stage 2...

Kay · Kay

Hello, I am writing in my wife's place to let you know something that just happened to her she is still in hospital in ICU. You may have read a few post from my wife in the last few weeks. We went in Monday to get the simple procedure done and everything went just fine until we had 20 minutes remaining before...

andrzej · andrzej

Black Friday was last day for Incivik, last Friday was last day for Interferon, today I will be taking my last riba. I started on 9/3, virus now undetectable, hope follow ups show the same results. I'll be stopping by, but wish you all the best! -- Edited by andrzej on Thursday 16th of February 2012 07...

Sandi · Sandi

Hi everyone!! I just had a couple of questions and was wondering if this has happen to anyone else? Last week I blacked out and had a seizure I am on treatment Ribavirin and Interferon. I have had two other sezures before taking this medicine so I don't think this is causing it. I did go to the emergency roo...

Kay · Kay

Anyone been a part of one using new drugs? I am considering checking into joining a study. Im afraid of the triple therapy and so would like to perhaps try something else? Thoughts?

Topic		Started By	Replies	Views	Last Post
	Help Understanding Hep C and Cirrhosis Advice (Preview) Hello All, My mother was diagnosed with Hep C and Cirrhosis. I respectfully request your assistance in helping me understand Hep C and Cirrhosis with what I should know and what questions I should be asking the doctors to fully understand my mother's status. My mother is really confused with the doc...	Glenn831	7	1296	Jun 8, 2012 by Glenn831
	c project c project (Preview) hello every one. hope every one is fine at your end. am Be Mech Engg Grad from india. me and mine friend plan to create a new software one is search engine another one is anti virus software. i had a knowledge about c not in c++. can i go with c or it's necessary to learn c++. am comfort with c only. please give s...	senkum	15	1107	Jun 7, 2012 by Shep
	Things I should have on hand???? (Preview) Hey everyone I start my treatment this week and was going to run to the store and was wondering if you all could give me some pointers on as what to buy? Food,personal items and what nots. I have heard of butt paste...lol ,Aveeno bath soak and any type of lotion that works really good. Thanks,	LUV2RYDE	4	839	Jun 5, 2012 by wnose
	Insurence? (Preview) Hello everyone, I'm not sure if this is the appropriate forum for this, but I have this question: While i personally do not have hep c, my best friend was very recently diagnosed. I am extremely worried about him. This diagnosis came after months of having several different problems, which are all now...	slippyslip	4	814	Jun 2, 2012 by slippyslip
	Give Thanks! (Preview) Our friend Otto passed away a few years ago today after a battle with cancer. The Big Man was known for his generosity both amongst his peers and the charity work he did. One quote he was known for was "Give Thanks" (for what you've got). It became a rallying cry amongst his friends during t...	davesf	2	803	Jun 1, 2012 by Cinnamon Girl
	GS-7977, Liver Biopsy and Interferon (Preview) Hello, I was hoping that the GS-7977 drug would do better in the third clinical trials. From what I read today, they were saying that they experienced a high relapse rate and as such didn't feel that it would be commercially viable to continue GS-7977 development. Is this what everyone else is hearin...	Lon	6	1309	Jun 1, 2012 by Lon
	Here Are My Results (Preview) Also stated Hepatitis C Without Mention? Submitted by: GI Date Obtained: May 14, 2010 Specimen Recieved: May 14, 2010 Liver Biopsy Brief Clinical History: HCV x 30 years Pre operative Diagnosis: HCV Post-Operative Diagnosis: Evaluate Grade/Stage Grading ...	Cflournoy	3	825	May 29, 2012 by Cinnamon Girl
	viral load count and cirrohsis (Preview) Is there a correlation between my viral load count and cirrohsis? When I first discovered I had hep c my viral load count was 54 million IU/ML's. That was in 1998 now in 2012 my viral load count is 537,000. MY doc seems to think I'm going to need a liver transplant soon. On what basis is he coming to this conc...	titus321	11	2268	May 27, 2012 by nohcvforme
	Hep C symptoms, like a branching tree (Preview) I'm new here, Was going to throw this out ... I have the Hep C 2a, IL28B genotypes TT, like 5.9 million VL, stage 1-2 liver fibrosis (by blood testing). 38 yr old male, drug free (past / present), non drinker, no other med issues, ever. Contracted the HCV from "on the job, career". K, enough a...	lostinhills	1	905	May 23, 2012 by LUV2RYDE
	silly question (Preview) I'll be starting incivek triple tx in about 2 weeks, and I just have a silly little question: Is it okay to drink Red Bull enegry drink, I usaully like to have a couple a day. But I also know it's got lots of B12, Niacin, B6, Pantothenic Acid and Taurine and dont know the effects on liver and treatment. Just t...	marktrux	2	936	May 21, 2012 by krowdog
	Does HEP C cause headaches / migraines? (Preview) Hello, I am trying to find some study or doctor's conclusion that HEP C causes headaches. Either directly or in-directly, as for example as a result of the HCV causing " ", to domino effect. Reason I am asking, is cause I have been getting terrible headaches, like if not all headaches are...	lostinhills	6	3701	May 14, 2012 by lostinhills
	Hepatitis C a latent legacy of baby boomers' youth (Preview) http://www.latimes.com/news/local/la-me-boomers-hepatitis-20120502,0,4558891.story	elizabeth	5	917	May 6, 2012 by Shep
	SVR and insurance (Preview) If we acheive SVR, at any point are we able to get regular health insurance? Meaning; I currently have my health insurance thru the State of Texas High Risk Pool, it's very expensive and pretty crappy but it the only insurance avadible to me due to "pre-existing" condition. If SVR is acheiv...	marktrux	4	819	Apr 29, 2012 by wnose
	trying to decide if I should take the new triple therapy with Incivek (Preview) I've done a little bit of research and the results for triple therapy look very promising. I took the peg/inter about 8 years ago. I cleared the virus at 6 months. That was the first time during the treatment that my viral loads were tested. The side effects were not too bad. I didn't have an appetite so I l...	kannon	24	1750	Apr 29, 2012 by marktrux
	can someone advise me (Preview) hi there. well here i am again....joined in 2009 cos i was just gonna start treatment..... after six months of not very niceness I got the not detectable.... and then the all clear... great you are probably thinking... Well yes I was so made up and still am..... but....... Im living with a lovely man wh...	mariano	9	1585	Apr 23, 2012 by greenqueen
	Greatest Healer of All (Preview) Hello friends, Like some of you I had used drugs and shared needles, was very reckless in the past. I've been clean for 5 years and since then had two beautiful boys. I was told about a month ago that I had antibodies for Hepatitis C, and this scared me to death. I was overcome with guilt, shame, anger for wh...	HaveFaith	1	738	Apr 20, 2012 by Barbara Lee
	Stressful day (Preview) Today was one of the worst day so far..I got aggravated early at work and could not shake it as the day went on if things could go wrong they did..I almost lost it a couple of times..Even knowing it was the meds doing this I couldn't shake it..Its only 2wks into triple treatment I hope this is not any ind...	kbfilly99	6	1083	Apr 9, 2012 by 1wilson1
	Biopsy yesterday for 7977. 7977 BMS (Preview) I had a biopsy yesterday in hopes of being Stage 3 or less so I can go on a trial for 7977 and the BMS drug ( forgot # ) and maybe riba. Several people are starting it or have started this week. If I am above stage 3 I am not elligible for this trial. I will look for something else then. I was on Triple Tx w/telap...	JIme	25	1534	Mar 22, 2012 by news
	NYC Paid Opinion Research Study (Preview) Hi, I work for (deleted) a marketing research company, and we are conducting a paid opinion research study with Hepatitis C patients and caregivers. This study will take place in New York City in August of 2011 and we are offering a generous honorarium for participation. If you are interested, ple...	Sami	5	1557	Mar 13, 2012 by alohaKim
	Speciality pharmacies (Preview) I was reading here about the problems with ins etc on the topic today. I have no ins so it all comes from the manufacturer. When offered I selected my home for my first deliveries, and now tried to change that. Both the manufacturer of peg/copeg and vic told me, Im crazy that they do not ship to walgreens. I...	Suzanneaz	2	727	Mar 13, 2012 by Isiscat2011
	Biopsy Cut An Artery (Preview) Caution Disclaimer If you are anxious or easily influenced by bad reports or afraid of biopsy you may wanna skip this one. I went in everything seemed to go well during the procedure the Dr took 3 samples as is standard and then I went to a room to recover and wait a couple hours...all was well. UNTIL...	Kay	24	1416	Mar 9, 2012 by Iris Dragonfly
	The Hepatitis C Trust is looking for people in the UK... (Preview) ...'In advance of NICEs final appraisal of the 2 new drugs Telaprevir and Boceprevir, The Hepatitis C Trust is looking for people in the UK to talk to the press or policy makers about their experiences with hepatitis C treatment, especially any of the new treatments. Have you been, or are currently, o...	Minerva	0	618	Mar 7, 2012 by Minerva
	Cirrohsis...or not? (Preview) For some time now it has been my understanding that have I had cirrohsis, however, just today my case manager advised that my liver is inflammed but no cirrohsis is evident... My labs are within "normal' range", and I've had a couple of ultrasound scans, but Ithe doctor has said that the...	hrsetrdr	5	918	Mar 3, 2012 by Cinnamon Girl
	Do you really want to do that? (Preview) I don't know about you all, But for all the years this miserable virus has been with me, I have yet to find a Dr. that thought treatment was a good idea. For SOOOOOOOOOOOOOOOOO long the standard answer was ...well there's nothing we can do. Then I heard about the interferon, and the Dr.s I was seeing at the...	Iris Dragonfly	14	1168	Mar 2, 2012 by Iris Dragonfly
	Hi Everyone (Preview) New here just wanted to say hello to everyone out there hope all is well!!!! Matthew	matt0801	2	635	Feb 28, 2012 by LadyAlaise
	Has anyone had a blood test that gives you liver scarring results? (Preview) I was just posting in another topic and thought I would ask if anyone else has had a blood test instead of a liver biopsy that told them they had liver scarring? I have never had a biopsy, but my doctor did some blood test to show if there was scarring on my liver. She explained that I would be between stage 2...	Caryn	0	726	Feb 25, 2012 by Caryn
	Liver Biopsy Disaster (Preview) Hello, I am writing in my wife's place to let you know something that just happened to her she is still in hospital in ICU. You may have read a few post from my wife in the last few weeks. We went in Monday to get the simple procedure done and everything went just fine until we had 20 minutes remaining before...	Kay	9	966	Feb 20, 2012 by Suzanneaz
	My Last Day of Treatment :) (Preview) Black Friday was last day for Incivik, last Friday was last day for Interferon, today I will be taking my last riba. I started on 9/3, virus now undetectable, hope follow ups show the same results. I'll be stopping by, but wish you all the best! -- Edited by andrzej on Thursday 16th of February 2012 07...	andrzej	3	853	Feb 18, 2012 by Cinnamon Girl
	Questions about Seizures has there happen to anyone? (Preview) Hi everyone!! I just had a couple of questions and was wondering if this has happen to anyone else? Last week I blacked out and had a seizure I am on treatment Ribavirin and Interferon. I have had two other sezures before taking this medicine so I don't think this is causing it. I did go to the emergency roo...	Sandi	2	764	Feb 18, 2012 by Sandi
	Clinical Trial Studies (Preview) Anyone been a part of one using new drugs? I am considering checking into joining a study. Im afraid of the triple therapy and so would like to perhaps try something else? Thoughts?	Kay	1	698	Feb 16, 2012 by Iris Dragonfly
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