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Our "Death Sentance".
(Preview)
http://www.hepatitis-central.com/mt/archives/2011/08/surprising_data.ht...
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sparky
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3
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841
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Check this site out
(Preview)
http://www.medicalassistedtreatment.org/424627/index.html#to
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DGiga
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3
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855
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New member with some questions on supplements and their effects on Hep C
(Preview)
This is my first post and the reason I am posting is I'm concerned with some supplements I take or plan on taking and if they'll effect me negatively. First some backgound might be in order. I have had HepC for at least 10 years and I've only had my levels checked twice, the last being about 2 years ago. Bot...
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Spanky
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5
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959
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Finally got to see a new doc.
(Preview)
Today was my first appointment at the University Medical Center. I am SO thankful. As I mentioned before (I know I haven't posted in a while) the doctor I had didn't want to do anything for me just because I was "too young". So I saw my new doctor today and had about 10 vials of blood taken so he co...
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hope87
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23
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2556
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Mistletoe extract, anyone???
(Preview)
Hi. I am trying to fine anyone or any information about this treatment... mistletoe extract (Viscum album) Mistletoes are parasitic plants with a root-like system imbedded in their host to extract food and water. The extracts used were mistletoe extract (Viscum album), and oral extracts of green...
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innerview
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0
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648
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SVR with Danoprevir?
(Preview)
I learnt about a Danoprevir trial being conducted in my city and have emailed them about possible participation....however, does anyone know about SVR rates? Is it as high as telaprevir?
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wnose
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0
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677
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Hello!
(Preview)
Hi guys, just wanted to pop in a share some good news... Don't know who remembers me but I was infected with Hep C 1A after an unruly patient threw a bloody IV insertion needle into my thigh. I was just about to start treatment but then got very acutely ill and my doctor said to hold off becaue it was consista...
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sunny77
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9
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859
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Welcome mmadwife
(Preview)
Welcome to the forum! Not sure what hemachromatosis is.. But I'm mad too that you're facing the struggle again. With the new tx offered, I hope ur Dr will have a good plan to get you cleared once and for ever! Was ur iron high during ur tx, or did that develop later? What genotype are you? Look forward to wal...
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britlitkaren
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1
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689
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New inhibbies to come to Oz
(Preview)
Spoke to the Dr today at the clinic that I attend. Asked about when we could expect Televipar/Incivek to arrive in Australia. He wasn't that certain but he said by the end of the year at the very latest. So thats great news but I am confused? .. When I asked him about it he was adamant that I didnt need to...
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Kirstin
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16
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914
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Starting Tx this week
(Preview)
As some of you all know i am a Geno 1a 30 years old With normal Utrasounds and 1.6 AFP >Normal VL 21Million No biopsy was ordered Per dr instructions starting triple therapy this week (Tuesday i think) with Victrelis. Finally got all meds in and the victrelis will arive tuesday. I am a little scared...
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jrc209
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4
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706
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Scared i have Hep C (not a baseless worry, had inconclusive tests)
(Preview)
Hello Everyone, I didn't post in the introduction thread not because i am rude but because i'm at a stage where i don't know yet if i have Hep C but i am really scared. Here's my story. I am 32 and i (used to) do a lot of medical trials to help support myself. That means that everytime i went for one i am tested...
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Milk
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8
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3828
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Today, July 28th, is World Hepatitis Day
(Preview)
Glad we have a day to raise awareness. We can beat this, we will beat this !
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James10500
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8
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937
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Oh well... It's time
(Preview)
This was meant for the 'Disagreements on the Forum' thread, but it is now closed. So I shall post what I wanted to say here.. Disagreements are one thing, some comments that have been made go far beyond that. For me, I have just let most of the smartass comments slide. I just prefer that some people don'...
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Kirstin
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16
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1141
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My Dr is worthless
(Preview)
I got approved for pegasys and co peg and the meds will be here tommorow. The dr was asked to attach a script to the victrelis app so they can approve that one aswell this was on friday and all he had to do was send a measly fax. The last few days ive been in contact back and forth with victrelis and they have re...
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jrc209
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1
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825
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Presentation of findings 28th July 2011
(Preview)
Hi Everyone, I just wanted to let people on the forum know that I will be doing a presentation of some of my findings from the interviews with people with Hep C, as part of an event for WHD held by Renaissance at The Cornerhouse in Blackpool (102 Dickson Rd, Blackpool t: 01253 311 431) on Thurs 28th Jul...
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Heather_Mack
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1
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681
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Please someone answer my questions
(Preview)
My Dr told me i will be on victrelis and soc for up to24- 48ks! Anyone have exp w/ victrelis? Why did he chose this over incivek? 30 yrs old type 1a tumor marker 1.6 (normal) Vl 20 million ultrasound norm no symptoms I asked him and all he said was "You will be using victrelis" However i rea...
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jrc209
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3
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1011
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Hi - I'm new
(Preview)
I probably have had HepC since the early seventies. I did Tx in 2004 and relapsed will start Incivek w/ PR next week.
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CaptBixley
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14
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1026
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Good And Bad News Today
(Preview)
Got a call from pegasys on approval for patient assistance which was good! Got back my Vl 20.2 mil : So as it breaks down Vl 20.2 mil geno 1a Afp Tumor marker 1.6 ultrasound normal 30 years old maybe had for ten years??? No symptoms Pegasys will be here wed still waiting on victrelis
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jrc209
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2
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721
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Tx to begin soon
(Preview)
Geno 1a ultrasound normal and afp 1.6 (normal) Dr says Soc +victrelis is what im gonna do ! Still no Vl Yet
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jrc209
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1
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686
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My Blessing For The Day
(Preview)
Results of ultrasound 100% normal on all organs. Afp Was 1.6 No signs of scaring or inflamation . I am still waiting on geno
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jrc209
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6
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1015
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Approved for tx by insurance
(Preview)
I heard from the pharmacy today and the insurance finally approved my rx for the triple tx, after my doctor sending in the paperwork to appeal the denial. My doctor appointment is on the 29th of July, and I am NOT supposed to start tx until I see him. My 10 day vacation is alrealy scheduled, so I will probab...
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BeccaJune
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7
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1022
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Anyone ever missed a med?
(Preview)
I have my iPhone alarm all set w what to take... And this morning I knew by the packaging I'd messed up on Telaprevir. I called the pharmaceutical RN n she said not to worry n gave me a tip. Here's my regime:
6 am - 2 Telaprevir n 3 Ribavirin
2 pm - 2 Telaprevir
6 pm - 2 Ribavirin
10 pm - 2 Ribavirin n interfero...
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britlitkaren
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6
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927
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Pre existing Health Insurance?
(Preview)
has anyone ever used/applied for this? https://www.pcip.gov/Default.html
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jrc209
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2
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719
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HCV Vaccine talk
(Preview)
http://www.hepatitis-central.com/mt/archives/2011/07/nanogel_could_l.html?eml=hepcen138
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James10500
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0
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586
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Thinking about treatment
(Preview)
Hey guys, i need help and advice on wheather or not i should start treatment with the interferon etc. I have heard nothing but horror stories about the side effects and the long term side effects. My fear is that i will be worse off with the treatment than if i dont do treatment at all. please help!
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Nimbus
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15
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1005
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No section for those not on treatment
(Preview)
Hi all, I was wondering where to post, since i'm not on treatment. Would like to exchange the aches and pains of this virus as well as information about remedies and other alternative health care while in limbo land. Any ideas? Thanks, Iris
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Iris Dragonfly
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7
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1121
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Has anyone heard from Kirstin?
(Preview)
She's usually pretty active around here and I haven't seen her in a couple of days....worried.
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PJ
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28
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1381
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Biopsy Results
(Preview)
Hello there. I hope this note finds you all in good spirits and feeling well. Had some new input on my situation and just wanted to bounce it off of ya'll and see what real people had to say about it. Have gone over it all with the good doctor and then did some research myself online, now just wanting real...
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beautiful_wrath
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17
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1287
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Disagreements on the Forum - Not Closed
(closed)
(Preview)
Gail has been banned because some people have been receiving some very disturbing pm's from her, which we have been made aware of. If people are being intimidated in this way, then we have to put a stop to it. Hi all, don't drop by here that much anymore, life, work, an incredible wife and children, dema...
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LaurieBluesGuy
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20
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1340
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When?
(Preview)
...a question that probably has no answer for most, but I've been asked several times: "when did you get Hep C?" Is there a way to know? Perhaps some folks can connect the dots, and point to a specific incident, such as a needle prick in the medical lab, but otherwise- who would know "...
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hrsetrdr
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5
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1315
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