Hep C Discussion Forum

sharlot50 · sharlot50

im 7 yrs informed of my hepc it seems to not matter to the drs. they discount my viral load 50million , im sure with the imune system this low. i should be taken seriously, in dec 21 2010 i was addmitted in the hospital with strep pnuemoina . i spent over a year asking for a strep test to 4 different drs. this ho...

espaeddie · espaeddie

Hi all, I am really proud of what you are doing and how well you are coping,however i need to say that 12 days clean off chemicals after a life time of abuse and i think i am going nuts not really sleeping at moment so i suggest you disregard what i say (or have said) in future correspondence because...

Moytie · Moytie

I was led to believe my interferon treatment was going to last every bit 0f 52 weeks. (i'm g1) On max dose per body weight. My wife looked at my blood draw schedule and came to the conclusion that its 48 weeks, which makes 1 more week of this nightmare instead of 5. My doctors office is proving to be over wor...

Greg · Greg

For reasons that I won't go into here, I informed my department head exactly what I will be treated for. Why would I do this?. It became clear to me during our conversations over the past few weeks that she had no idea of the side effects I might be facing while on treatment. My main concern was the mood swi...

Greg · Greg

http://www.healthcanal.com/immune-system/14223-10000-Hepatitis-patients-could-hold-the-key-better-treatment.html

Mano · Mano

need to talk..

Syxx · Syxx

I am in shock. Was just having routine tests and got called back by GP. I can barely remember what she said beyond something about my liver function being "off" So more bloods today except this time the nurse stuck a 'risk of contamination' sticker on the vial after she had taken my blood. Ho...

Hep Me · Hep Me

Hi, I'm a new member about to start treatment. I am wondering if anyone in treatment knows if there is any big difference in these two drugs other than one has the syringe and the other the pen type injector? The hep c book I have says one is basically a different consistency, but as far as the actual treatm...

rio · rio

Well... It just aint been happening for me at the moment folks, which is damn frustrating! If you haven't already picked it up via twitter or facebook, I didn't get to have my biopsy but just a rather expensive and annoyingly frustrating kind of a week. As I said on my vid, I was due to go in on Tuesday - Fant...

parkness · parkness

Hi The Hepatitis C Trust had a meeting with DWP on Monday of this week, here is a brief update on how it went. There have been an increasing number of calls (and discussiosn on forums) from people having trouble accessing benefits when on treatment or highly symptomatic so today The Hepatitis C Trust...

rio · rio

Hi folks, Just thought I'd post this before for I go back in to Jimmys' for a Liver Biopsy after my 1st year with my new Liver! (http://ianquill.blogspot.com/) Ian Quill : My World, A blog for me and people like me, beating HepC My Hepatitis C / Liver Transplant & Biopsy Video Diary http://youtu.be...

Keith Thompson · Keith Thompson

Ive had Hep C symptoms for 3 years,been tested 3 times(neg) and waiting for results of another.Can anyone tell me how accurate the basic blood test for it is?

bethland · bethland

Hi everybody that shot was full of air bubbles i couldnt get out ..oh well tried not to waste any.. one to go .... yep James it is what it is ...hope you are doing ok you sound like a real doer, always positive ... you are almost there, got any plans for the big day ? Jill i hope those sleeping tabs are working f...

Jillie1979 · Jillie1979

Hi all, I'm having my antibodies checked again on Monday morning and I just wanted to ask for some prayers. My RNA test came back negative so they're trying to rule out a possible false positive. I won't get the results until Monday the 17th and I think I might be a nervous wreck until then. Thanks! XO Jill...

hrsetrdr · hrsetrdr

Several days ago I attended the "hep c' class, my HMO conducts. I'm glad I went, I already knew most of what was presented, but I wanted to "go with the program" and not be seen as a 'rebel'. The PA ordered a pile of labs, and said that I'd be scheduled an appointment "soon", t...

AlexNY · AlexNY

hello everyone,My name is Alex, i've had hep c for about 10 years. never really thought of starting tx, but recetly started to consider tx because of increased fatique, weakness, feeling "cloudiness", inability to concentrate. just a year ago my vl was 1 mil, now it jumped to 6 mil. tomoro...

sunny77 · sunny77

I wanted to update you all...I was in the process of getting started on treatment when I had a real bad acute attack, at about 9 weeks post infection. Nausea, vomiting, slight jaundice, yada yada yada. My ALT went to 1900 and my AST went to 1300, yowzers!!! So my doc said to hold off cause this could be a si...

Bobbygrinns524 · Bobbygrinns524

Hello all, Please answer this question as I have been worried and have been told a few different things on different forums. My question is in regards to contracting Hep C from the following exposure. I was at the gas station pumping gas after pumping I used hand sanitizer on my hands (As I always do) and...

JPD53 · JPD53

Hi Everyone. I'm new here. I completed my pegintron treatment three years ago. I couldn't continue after 2.5 months of the regimen because my thyroid function was destroyed. I no longer have the Hep C. But I have no thyroid and huge psoriasis plaques have developed. I'm a bit pissed because no one seem...

rio · rio

Wow! Ya know, one of the best things about blogging (for me) is that it's a bit like keeping a diary! As with a diary, when you need a little inspiration, you can look back over some of your old stuff and very often you can sometimes amaze yourself. And that has just happened to me. Like many people, a new yea...

James10500 · James10500

I took old Jackson my 12 year old yellow lab to the Vet today. His liver is inflammed and she told me he has Hep via ultra sound. As we all know dogs don't get HCV. She said it was probably age related. Anyway I'm sure you can relate to the look on my face when she told me.

rio · rio

Hi Folks, For what seems like forever, I have been saying Once Im better, Ill be able to! What? Get back to normal? Carry on like nothing ever happened? Put it all behind me? Well, the first two of those (get back to normal & carry on like nothing ever happened!!!) will never happen. Its not that Ive le...

rio · rio

One year on, A Strange New World... (Hepatitis C / Liver Transplant (Hep C) HCV Blog) Monday, 27 December 2010 On this run up to the New Year and with Christmas just behind us, as with many people, it has prompted me to sit back and take stock of the year and to cast my mind back over the highs' and lows' of 201...

bethland · bethland

Hi Everybody i have been pretty quiet, just getting along the best i can. I spent christmas in Scarborough, house sitting my daughters apartment only minutes from the beach ...yum swimming... Great news ... i went to the hospital pharmacy just before christmas and as it turns out this is my last box as...

James10500 · James10500

Celebrating all Those Who Reach SVR Somehow it came, we dont know quite when, Chances are from a stranger; perhaps from a friend. Often its hard to know who was the giver, Receiver, we know, is always the liver. Do the tests; get reports; slowly you learn Interferon and riba are cause for concern....

Kirstin · Kirstin

Went to clinic today, got to finally see the top guy, hooray!. Finally feel as though I am getting somewhere this afternoon, in a good mood now . I was told that I had genotype 2 but I don't, its 3a so basically the same, still only the 6 month treatment. Biopsy results were in, not too bad just band 1 scar...

espaeddie · espaeddie

Hi all got p***ed off being unable to find reply so un subscribed now calmed down so am resucribing. Finding things hard at moment .never mind move up and move on all the best eddie xx

RainbowDustin · RainbowDustin

I have known I was Hep C Positive for around two years... around the second month I found out I was sent to a specialist who checked my viral levels I guess and they were very low, almost undetectable. So I didn't have treatment, two years later for the past week I have had horrible pains in my liver area, I...

Kirstin · Kirstin

I am so confused/annoyed/po'd right now. The last time I visited the liver clinic & spoke to one of the Dr's there he told me that my next appointment there, scheduled for the 16th Dec, would be my starting date for treatment. Just the biospy, which I had done, then a visit to a shrink (which the clin...

Kirstin · Kirstin

I have wrote before of discrimination and how I was afraid of it happening to me...well.. & I may be wrong but I believe it may be happening at work. I work for one of the top 5 star hotels here in outer Sydney, been there for quite a while now & enjoyed the status of one of the top (preferred/reliabl...

Topic		Started By	Replies	Views	Last Post
	refused dr. services (Preview) im 7 yrs informed of my hepc it seems to not matter to the drs. they discount my viral load 50million , im sure with the imune system this low. i should be taken seriously, in dec 21 2010 i was addmitted in the hospital with strep pnuemoina . i spent over a year asking for a strep test to 4 different drs. this ho...	sharlot50	6	1550	Feb 12, 2011 by Fnzol
	To whom it may concern thats everyone ive posted to (please read) (Preview) Hi all, I am really proud of what you are doing and how well you are coping,however i need to say that 12 days clean off chemicals after a life time of abuse and i think i am going nuts not really sleeping at moment so i suggest you disregard what i say (or have said) in future correspondence because...	espaeddie	12	2185	Feb 7, 2011 by Steve-o
	Is there a standard length of treatment? (Preview) I was led to believe my interferon treatment was going to last every bit 0f 52 weeks. (i'm g1) On max dose per body weight. My wife looked at my blood draw schedule and came to the conclusion that its 48 weeks, which makes 1 more week of this nightmare instead of 5. My doctors office is proving to be over wor...	Moytie	3	1306	Feb 7, 2011 by zibit56
	Disclosure (Preview) For reasons that I won't go into here, I informed my department head exactly what I will be treated for. Why would I do this?. It became clear to me during our conversations over the past few weeks that she had no idea of the side effects I might be facing while on treatment. My main concern was the mood swi...	Greg	5	1835	Feb 6, 2011 by Greg
	In the news for UK residents (Preview) http://www.healthcanal.com/immune-system/14223-10000-Hepatitis-patients-could-hold-the-key-better-treatment.html	Greg	2	1261	Feb 5, 2011 by Hexen Hour
	anyone around? (Preview) need to talk..	Mano	22	1691	Feb 3, 2011 by Mano
	Terrified (Preview) I am in shock. Was just having routine tests and got called back by GP. I can barely remember what she said beyond something about my liver function being "off" So more bloods today except this time the nurse stuck a 'risk of contamination' sticker on the vial after she had taken my blood. Ho...	Syxx	24	2369	Feb 2, 2011 by greenqueen
	Pegasys vs. Pegintron (Preview) Hi, I'm a new member about to start treatment. I am wondering if anyone in treatment knows if there is any big difference in these two drugs other than one has the syringe and the other the pen type injector? The hep c book I have says one is basically a different consistency, but as far as the actual treatm...	Hep Me	13	4003	Feb 1, 2011 by Samby
	Time goes by so slowly... (Preview) Well... It just aint been happening for me at the moment folks, which is damn frustrating! If you haven't already picked it up via twitter or facebook, I didn't get to have my biopsy but just a rather expensive and annoyingly frustrating kind of a week. As I said on my vid, I was due to go in on Tuesday - Fant...	rio	2	1386	Jan 30, 2011 by Killer Bee
	DWP and Benefits (Preview) Hi The Hepatitis C Trust had a meeting with DWP on Monday of this week, here is a brief update on how it went. There have been an increasing number of calls (and discussiosn on forums) from people having trouble accessing benefits when on treatment or highly symptomatic so today The Hepatitis C Trust...	parkness	8	2182	Jan 26, 2011 by greenqueen
	My Hepatitis C / Liver Transplant & Biopsy Video Diary (Preview) Hi folks, Just thought I'd post this before for I go back in to Jimmys' for a Liver Biopsy after my 1st year with my new Liver! (http://ianquill.blogspot.com/) Ian Quill : My World, A blog for me and people like me, beating HepC My Hepatitis C / Liver Transplant & Biopsy Video Diary http://youtu.be...	rio	1	1146	Jan 26, 2011 by Minerva
	How accurate are the blood tests?? (Preview) Ive had Hep C symptoms for 3 years,been tested 3 times(neg) and waiting for results of another.Can anyone tell me how accurate the basic blood test for it is?	Keith Thompson	11	1881	Jan 21, 2011 by Minerva
	week 47 (Preview) Hi everybody that shot was full of air bubbles i couldnt get out ..oh well tried not to waste any.. one to go .... yep James it is what it is ...hope you are doing ok you sound like a real doer, always positive ... you are almost there, got any plans for the big day ? Jill i hope those sleeping tabs are working f...	bethland	9	1486	Jan 14, 2011 by DGiga
	Nervous (Preview) Hi all, I'm having my antibodies checked again on Monday morning and I just wanted to ask for some prayers. My RNA test came back negative so they're trying to rule out a possible false positive. I won't get the results until Monday the 17th and I think I might be a nervous wreck until then. Thanks! XO Jill...	Jillie1979	19	1770	Jan 14, 2011 by Jillie1979
	Someday soon (Preview) Several days ago I attended the "hep c' class, my HMO conducts. I'm glad I went, I already knew most of what was presented, but I wanted to "go with the program" and not be seen as a 'rebel'. The PA ordered a pile of labs, and said that I'd be scheduled an appointment "soon", t...	hrsetrdr	15	1962	Jan 13, 2011 by greenqueen
	College, work, pre-tx (Preview) hello everyone,My name is Alex, i've had hep c for about 10 years. never really thought of starting tx, but recetly started to consider tx because of increased fatique, weakness, feeling "cloudiness", inability to concentrate. just a year ago my vl was 1 mil, now it jumped to 6 mil. tomoro...	AlexNY	2	1049	Jan 13, 2011 by ty
	Spontaneous clearance! (Preview) I wanted to update you all...I was in the process of getting started on treatment when I had a real bad acute attack, at about 9 weeks post infection. Nausea, vomiting, slight jaundice, yada yada yada. My ALT went to 1900 and my AST went to 1300, yowzers!!! So my doc said to hold off cause this could be a si...	sunny77	15	2010	Jan 8, 2011 by Jillie1979
	Is this a risk for HEP C (Preview) Hello all, Please answer this question as I have been worried and have been told a few different things on different forums. My question is in regards to contracting Hep C from the following exposure. I was at the gas station pumping gas after pumping I used hand sanitizer on my hands (As I always do) and...	Bobbygrinns524	1	2059	Jan 6, 2011 by greenqueen
	Pegintron Side Effects (Preview) Hi Everyone. I'm new here. I completed my pegintron treatment three years ago. I couldn't continue after 2.5 months of the regimen because my thyroid function was destroyed. I no longer have the Hep C. But I have no thyroid and huge psoriasis plaques have developed. I'm a bit pissed because no one seem...	JPD53	8	1847	Jan 3, 2011 by JPD53
	This Year, Resolutions AND Revelations (Hepatitis C / Liver Transplant (Hep C) HCV Blog) (Preview) Wow! Ya know, one of the best things about blogging (for me) is that it's a bit like keeping a diary! As with a diary, when you need a little inspiration, you can look back over some of your old stuff and very often you can sometimes amaze yourself. And that has just happened to me. Like many people, a new yea...	rio	0	1319	Jan 3, 2011 by rio
	My Dog Has Hepatitis (Preview) I took old Jackson my 12 year old yellow lab to the Vet today. His liver is inflammed and she told me he has Hep via ultra sound. As we all know dogs don't get HCV. She said it was probably age related. Anyway I'm sure you can relate to the look on my face when she told me.	James10500	4	1766	Dec 31, 2010 by Jillie1979
	Get A Job – Get A Life! (Hepatitis C / Liver Transplant (Hep C) HCV Blog) (Preview) Hi Folks, For what seems like forever, I have been saying Once Im better, Ill be able to! What? Get back to normal? Carry on like nothing ever happened? Put it all behind me? Well, the first two of those (get back to normal & carry on like nothing ever happened!!!) will never happen. Its not that Ive le...	rio	0	1988	Dec 30, 2010 by rio
	One year on, A Strange New World... (Preview) One year on, A Strange New World... (Hepatitis C / Liver Transplant (Hep C) HCV Blog) Monday, 27 December 2010 On this run up to the New Year and with Christmas just behind us, as with many people, it has prompted me to sit back and take stock of the year and to cast my mind back over the highs' and lows' of 201...	rio	3	3215	Dec 29, 2010 by James10500
	week 45 (Preview) Hi Everybody i have been pretty quiet, just getting along the best i can. I spent christmas in Scarborough, house sitting my daughters apartment only minutes from the beach ...yum swimming... Great news ... i went to the hospital pharmacy just before christmas and as it turns out this is my last box as...	bethland	3	1332	Dec 28, 2010 by ty
	Murariji's Poem (Preview) Celebrating all Those Who Reach SVR Somehow it came, we dont know quite when, Chances are from a stranger; perhaps from a friend. Often its hard to know who was the giver, Receiver, we know, is always the liver. Do the tests; get reports; slowly you learn Interferon and riba are cause for concern....	James10500	3	1333	Dec 27, 2010 by James10500
	Good News :-) (Preview) Went to clinic today, got to finally see the top guy, hooray!. Finally feel as though I am getting somewhere this afternoon, in a good mood now . I was told that I had genotype 2 but I don't, its 3a so basically the same, still only the 6 month treatment. Biopsy results were in, not too bad just band 1 scar...	Kirstin	11	2075	Dec 21, 2010 by Minerva
	need some one to talk to (Preview) Hi all got p***ed off being unable to find reply so un subscribed now calmed down so am resucribing. Finding things hard at moment .never mind move up and move on all the best eddie xx	espaeddie	7	2072	Dec 17, 2010 by Cinnamon Girl
	Pain in Liver Area... (Preview) I have known I was Hep C Positive for around two years... around the second month I found out I was sent to a specialist who checked my viral levels I guess and they were very low, almost undetectable. So I didn't have treatment, two years later for the past week I have had horrible pains in my liver area, I...	RainbowDustin	1	1340	Dec 14, 2010 by James10500
	Really Annoyed (Preview) I am so confused/annoyed/po'd right now. The last time I visited the liver clinic & spoke to one of the Dr's there he told me that my next appointment there, scheduled for the 16th Dec, would be my starting date for treatment. Just the biospy, which I had done, then a visit to a shrink (which the clin...	Kirstin	6	1530	Dec 14, 2010 by ty
	Work & possible discrimination (Preview) I have wrote before of discrimination and how I was afraid of it happening to me...well.. & I may be wrong but I believe it may be happening at work. I work for one of the top 5 star hotels here in outer Sydney, been there for quite a while now & enjoyed the status of one of the top (preferred/reliabl...	Kirstin	4	1616	Dec 13, 2010 by hrsetrdr
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