Hep C Discussion Forum

JimmyK · JimmyK

,,, and at the same time l kind of feel like slapping any so called clinician who would while, no doubt be overtly infected with dickeydoo disease, but regardless of his disadvantage, there seems to me to be little excuse for such a statement; "The question of whether and when to treat patients with hep...

Scruffy · Scruffy

http://medicalxpress.com/news/2016-11-virus-liver-cancer-cells-hepatitis.html?ref=yfp

Juliet17 · Juliet17

My (attached) post made it onto this Facebook site with over 3,000,000 members! Doing my part to spread Hep C awareness. But PLEASE, let's not talk about politics or election results in this thread. Emotions are too high right now.

brettdc · brettdc

The moderators of the forum have given me permission to post these videos. They have been produced by GP2U, an Australian online medical practice with experience treating Hep C patients. The first video is a 90 second overview of how to access the Hep C medication, what to expect during treatment an...

winkawak · winkawak

I had a blood donation yesterday, the nurse who drew my blood wore gloves but while in the process of collecting blood she went off doing other things like packaging test tube boxes and input stuff on her computer. At the end of the blood draw she folded my gauze pad before withdrew the needle, my worry is...

MaxiePoo3 · MaxiePoo3

ooops on that hijack... Thank you for catching me Tig. Im not to savy with chatting. Matter of fact, this is my first time as well as Cuddys in any Chat type situation. We have alot to learn, lol. Cuddy did speak to an attorney, or might I say the attorney spoke at him. Cuddy said he couldnt get a wo...

Juliet17 · Juliet17

Although it's a bit embarrasing to post these horrific photos of the ulcers on my face, this condition is not an uncommon complication of HCV. Yet there's not much info on the Internet about it. It's more common to see ulcers like this on the legs, but they can occur anywhere. If you see any "moon craters...

Iris Dragonfly · Iris Dragonfly

Hi guys I just got back from the fibro scan. The girl said she couldn't read the results but I saw a number coming up on the screen, near the bottom of the machine that changed slightly from 1.25 to about 1.67 ...I presume that was the score, and if so looks to be near similar to the blood test. Which was betwe...

Juliet17 · Juliet17

I hope I spelled it right! The first of the good news is that I had my fibroscan, and I am at stage 0. Yay! Next good news: I was approved for treatment and got my first month of Sovaldi/Daklinza. Because of my CIGNA coverage and the copay coupon my pharmacy arranged, here is the grand total of my out-of-poc...

JimmyK · JimmyK

Greetings my sister to The North. I want to take a moment to say you are my true idea of someone who cares. Cares for the folks that are setting out on the path we have traveled side by side. To be UND and here to help speaks volumes of the fantastic woman you are. There may here be no such thing, but if there wer...

Canuck · Canuck

It takes some Australians (who are now wisely spending a billion dollars for good accessible HCV treatment for their population), to point out, that Canadians "aren't doing it right" - and, those nice wise Australians were being VERY polite about it too, imho, in their assessments and suggestio...

JimmyK · JimmyK

A rough night is at your door. Please keep us updated and know you are in our thoughts and prayers. JimmyK -- Edited by JimmyK on Wednesday 5th of October 2016 09:09:55 PM

dtre30319 · dtre30319

Hello Everyone, I ended Harvoni on September 28, 2015 and complete treatment successfully. I have had 3,6, and 9-month blood test and all have come back hepc negative. However, from reading the forms, my liver enzymes should have come down during treatment and remained. When I asked my doctor h...

Tiger · Tiger

Hello all at the start of tx my afp was 40,they scanned for HCC nothing showing. they have told me its not a reliable blood test and are no longer checking it.Only 12 days to go. abbvie 3d no virus since week four so looking good -- Edited by Tiger on Monday 3rd of October 2016 06:57:16 PM -- Edited by Tiger on...

Roy · Roy

Hi ! Am new to this forum. Am female and Have HCV, was wondering if it is OK to implant the embryos from my IVF cycle in a surrogate ? I make excellent embryos, but implantation is not working for me, can I use surrogate, in this case is there any risk to the surrogate PLEASE HELP !! Thanks a lot

Tig · Tig

Found a short article with a poll on HCV symptoms. Might help you realize you're not alone! Click the link below. Symptoms Poll

Greg · Greg

Hi Everyone, It's been a number of years since I last posted, and a lot of great and wonderful things have happened to me since then. Now it's time for a re-match with my particular Dragon I am a non-responder finished TX back in 2011. I have a new Doctor the last one retired, (no great loss....a long story...

JimmyK · JimmyK

Post Hog of the year! 6000 while under water! LOL

Juliet17 · Juliet17

Although I've had the virus for only a year or so, I am already noticing that I float through my days and get nothing done. I know about brain fog with HCV, but it seems it is generally only with long-term infection or during tx. And many people never have it at all. I have a long-term prescription for a low d...

JimmyK · JimmyK

Greetings, I am absolutely known for saying what is on my mind. I believe the folks here understand that is simply who I am and from time to time as a result, I may have stepped on a toe or ten. As we watch collectively the success of so many here we have traveled with, be it our sisters to the North, our brothe...

medivac · medivac

My name is Naresh Gupta, CEO of Medivac InternationalIndia located in the capital of the countryNew Delhi. We are a specialized government authorised world wide wholesaler, distributor, supplier, trader & exporter of Hepatitis C medicine in. I would like to explain my gratitude and regard...

Canuck · Canuck

Gilead's exploration is ongoing re: RAVS and development of using of other possible alternate NS5B drugs like SOF and GS-9190 in combo therapies.Early trials on GS-9190, comparing classes of a "non-nucleoside inhibitor" (NNI) and "nucleoside inhibitors" (NI's) in newer DAA double and triple...

mallani · mallani

Hi all, When the Molecular Pathologist rang me with my VL results last week, we had a chat about the VL testing. In March 2016, Australia gave access to Sovaldi, Harvoni and Daclatasvir to all HepC patients for a few dollars a course. My Lab is a private one, but does half of the VL testing for Queensland....

Ivery · Ivery

Man I'm in a fog today. I forgot my ribavarin and sovaldi at 7 am. I take my second dose of ribv at 7pm. Since I forgot this mourning do I need to take both now? -- Edited by Ivery on Tuesday 9th of August 2016 08:00:14 PM

Ivery · Ivery

Will riba / sov tx cause weight gain or loss?

basser · basser

hi all .havant been on line for awhile.i got rid or the virus 18months ago.my liver was to badly damaged and i went on transplant list 2 months ago.amazingly i got the phone call two and a half wks ago that they had a liver for me.im now bk home recovering from op.at last after 9yrs of tx i am finally free to ho...

Susie1 · Susie1

Ok friends, I just returned from the hospital with my husband after his 3rd round of esophageal banding, which did not go well. The doctor says things look worse although 4 weeks ago she said things look better. She now wants us to consider a TIPS shunt. So again, no Harvoni for the next 2 weeks while on th...

keesotom · keesotom

I got a link showing a study extolling the benefit of the correct(liver focused) acupuncture combined with Curcumin. I have started both. Loved the acupuncture; as for the Curcumin- I am feeling rapid relief for my chronic pain. I am using Doctor's Best (brand) Best Curcumin C3 Complex. Just becaus...

marjim48 · marjim48

Had bloodwork done before going on Harvoni- 6/2016 Alpha-FE 9.3 NecroInflammat ACT Score 0.18 HCV RNA 5.37 Fibrosis Score 0.48 HCV RNA 23400...

skewedButNotBroken · skewedButNotBroken

http://onlinelibrary.wiley.com/doi/10.1002/hep.20518/pdf

Topic		Started By	Replies	Views	Last Post
	I find this facinating... (Preview) ,,, and at the same time l kind of feel like slapping any so called clinician who would while, no doubt be overtly infected with dickeydoo disease, but regardless of his disadvantage, there seems to me to be little excuse for such a statement; "The question of whether and when to treat patients with hep...	JimmyK	9	1632	Nov 24, 2016 by JimmyK
	Interesting (Preview) http://medicalxpress.com/news/2016-11-virus-liver-cancer-cells-hepatitis.html?ref=yfp	Scruffy	6	1170	Nov 16, 2016 by dharmabum
	Spreading the word....WOOHOOO (Preview) My (attached) post made it onto this Facebook site with over 3,000,000 members! Doing my part to spread Hep C awareness. But PLEASE, let's not talk about politics or election results in this thread. Emotions are too high right now.	Juliet17	6	1153	Nov 10, 2016 by Ruby Red
	Hep C medication videos for new patients (closed) (Preview) The moderators of the forum have given me permission to post these videos. They have been produced by GP2U, an Australian online medical practice with experience treating Hep C patients. The first video is a 90 second overview of how to access the Hep C medication, what to expect during treatment an...	brettdc	2	2018	Nov 8, 2016 by Tig
	Bad Blood Donation Practice Worries (Preview) I had a blood donation yesterday, the nurse who drew my blood wore gloves but while in the process of collecting blood she went off doing other things like packaging test tube boxes and input stuff on her computer. At the end of the blood draw she folded my gauze pad before withdrew the needle, my worry is...	winkawak	5	1283	Nov 6, 2016 by Tig
	thread hijack (Preview) ooops on that hijack... Thank you for catching me Tig. Im not to savy with chatting. Matter of fact, this is my first time as well as Cuddys in any Chat type situation. We have alot to learn, lol. Cuddy did speak to an attorney, or might I say the attorney spoke at him. Cuddy said he couldnt get a wo...	MaxiePoo3	1	996	Nov 2, 2016 by Tig
	Cutaneous vasculitis/cryoglobulinemia (Warning: graphic) (Preview) Although it's a bit embarrasing to post these horrific photos of the ulcers on my face, this condition is not an uncommon complication of HCV. Yet there's not much info on the Internet about it. It's more common to see ulcers like this on the legs, but they can occur anywhere. If you see any "moon craters...	Juliet17	3	1293	Oct 31, 2016 by Phoenix17
	Fibroscan today (Preview) Hi guys I just got back from the fibro scan. The girl said she couldn't read the results but I saw a number coming up on the screen, near the bottom of the machine that changed slightly from 1.25 to about 1.67 ...I presume that was the score, and if so looks to be near similar to the blood test. Which was betwe...	Iris Dragonfly	10	1331	Oct 31, 2016 by Juliet17
	Got my meds (yay!) but hit a snag, possible cryoglobulinemia (Preview) I hope I spelled it right! The first of the good news is that I had my fibroscan, and I am at stage 0. Yay! Next good news: I was approved for treatment and got my first month of Sovaldi/Daklinza. Because of my CIGNA coverage and the copay coupon my pharmacy arranged, here is the grand total of my out-of-poc...	Juliet17	11	1312	Oct 31, 2016 by Juliet17
	Canuck (Preview) Greetings my sister to The North. I want to take a moment to say you are my true idea of someone who cares. Cares for the folks that are setting out on the path we have traveled side by side. To be UND and here to help speaks volumes of the fantastic woman you are. There may here be no such thing, but if there wer...	JimmyK	11	1080	Oct 25, 2016 by Sydhanrahan
	Canadians having trouble getting DAA's (Preview) It takes some Australians (who are now wisely spending a billion dollars for good accessible HCV treatment for their population), to point out, that Canadians "aren't doing it right" - and, those nice wise Australians were being VERY polite about it too, imho, in their assessments and suggestio...	Canuck	0	882	Oct 24, 2016 by Canuck
	For the Florida Friends (Preview) A rough night is at your door. Please keep us updated and know you are in our thoughts and prayers. JimmyK -- Edited by JimmyK on Wednesday 5th of October 2016 09:09:55 PM	JimmyK	34	1420	Oct 19, 2016 by Cheddy
	Undetectable for over a year, but Liver Enzymes remain elevated (Preview) Hello Everyone, I ended Harvoni on September 28, 2015 and complete treatment successfully. I have had 3,6, and 9-month blood test and all have come back hepc negative. However, from reading the forms, my liver enzymes should have come down during treatment and remained. When I asked my doctor h...	dtre30319	7	1225	Oct 7, 2016 by Cinnamon Girl
	AFP keeps playing on my mind (Preview) Hello all at the start of tx my afp was 40,they scanned for HCC nothing showing. they have told me its not a reliable blood test and are no longer checking it.Only 12 days to go. abbvie 3d no virus since week four so looking good -- Edited by Tiger on Monday 3rd of October 2016 06:57:16 PM -- Edited by Tiger on...	Tiger	8	1064	Oct 4, 2016 by Tiger
	HCV and Surrogacy Please help !! (Preview) Hi ! Am new to this forum. Am female and Have HCV, was wondering if it is OK to implant the embryos from my IVF cycle in a surrogate ? I make excellent embryos, but implantation is not working for me, can I use surrogate, in this case is there any risk to the surrogate PLEASE HELP !! Thanks a lot	Roy	5	1105	Oct 4, 2016 by Pablito
	Common and Less Common Symptoms (Preview) Found a short article with a poll on HCV symptoms. Might help you realize you're not alone! Click the link below. Symptoms Poll	Tig	6	2254	Sep 7, 2016 by Tig
	Getting Ready for a Re-Match (Preview) Hi Everyone, It's been a number of years since I last posted, and a lot of great and wonderful things have happened to me since then. Now it's time for a re-match with my particular Dragon I am a non-responder finished TX back in 2011. I have a new Doctor the last one retired, (no great loss....a long story...	Greg	26	1365	Sep 7, 2016 by Greg
	Congrats Tig ! (Preview) Post Hog of the year! 6000 while under water! LOL	JimmyK	2	860	Sep 3, 2016 by wendyo
	Fatigue and fog already (Preview) Although I've had the virus for only a year or so, I am already noticing that I float through my days and get nothing done. I know about brain fog with HCV, but it seems it is generally only with long-term infection or during tx. And many people never have it at all. I have a long-term prescription for a low d...	Juliet17	7	1182	Sep 2, 2016 by Tig
	A challange for all here (Preview) Greetings, I am absolutely known for saying what is on my mind. I believe the folks here understand that is simply who I am and from time to time as a result, I may have stepped on a toe or ten. As we watch collectively the success of so many here we have traveled with, be it our sisters to the North, our brothe...	JimmyK	15	1317	Sep 1, 2016 by Phoenix17
	Hepatitis C medicine suppliers exporters from Delhi India (Preview) My name is Naresh Gupta, CEO of Medivac InternationalIndia located in the capital of the countryNew Delhi. We are a specialized government authorised world wide wholesaler, distributor, supplier, trader & exporter of Hepatitis C medicine in. I would like to explain my gratitude and regard...	medivac	1	1003	Aug 17, 2016 by Cinnamon Girl
	Ongoing RAV research with GS-9190 (Preview) Gilead's exploration is ongoing re: RAVS and development of using of other possible alternate NS5B drugs like SOF and GS-9190 in combo therapies.Early trials on GS-9190, comparing classes of a "non-nucleoside inhibitor" (NNI) and "nucleoside inhibitors" (NI's) in newer DAA double and triple...	Canuck	0	802	Aug 13, 2016 by Canuck
	HepC in Australia (Preview) Hi all, When the Molecular Pathologist rang me with my VL results last week, we had a chat about the VL testing. In March 2016, Australia gave access to Sovaldi, Harvoni and Daclatasvir to all HepC patients for a few dollars a course. My Lab is a private one, but does half of the VL testing for Queensland....	mallani	2	939	Aug 11, 2016 by Pablito
	I forgot my meds this mourning (Preview) Man I'm in a fog today. I forgot my ribavarin and sovaldi at 7 am. I take my second dose of ribv at 7pm. Since I forgot this mourning do I need to take both now? -- Edited by Ivery on Tuesday 9th of August 2016 08:00:14 PM	Ivery	5	954	Aug 10, 2016 by wendyo
	Lose or gain weight ? (Preview) Will riba / sov tx cause weight gain or loss?	Ivery	21	2100	Aug 9, 2016 by Canuck
	LIVER TRANSPLANT (Preview) hi all .havant been on line for awhile.i got rid or the virus 18months ago.my liver was to badly damaged and i went on transplant list 2 months ago.amazingly i got the phone call two and a half wks ago that they had a liver for me.im now bk home recovering from op.at last after 9yrs of tx i am finally free to ho...	basser	18	1244	Aug 9, 2016 by Sydhanrahan
	Portal Hypertension, TIPS Shunt - what next? (Preview) Ok friends, I just returned from the hospital with my husband after his 3rd round of esophageal banding, which did not go well. The doctor says things look worse although 4 weeks ago she said things look better. She now wants us to consider a TIPS shunt. So again, no Harvoni for the next 2 weeks while on th...	Susie1	9	1198	Jul 18, 2016 by Loopy Lisa
	Curcumin plus acupuncture ? (Preview) I got a link showing a study extolling the benefit of the correct(liver focused) acupuncture combined with Curcumin. I have started both. Loved the acupuncture; as for the Curcumin- I am feeling rapid relief for my chronic pain. I am using Doctor's Best (brand) Best Curcumin C3 Complex. Just becaus...	keesotom	42	4506	Jul 18, 2016 by Christine456
	Need Help Deciphering Lab Test Numbers (Preview) Had bloodwork done before going on Harvoni- 6/2016 Alpha-FE 9.3 NecroInflammat ACT Score 0.18 HCV RNA 5.37 Fibrosis Score 0.48 HCV RNA 23400...	marjim48	1	1108	Jul 7, 2016 by Tig
	Can hep c live in the liver, macrophages or lymphocytes after SVR? (Preview) http://onlinelibrary.wiley.com/doi/10.1002/hep.20518/pdf	skewedButNotBroken	17	1281	Jul 4, 2016 by Canuck
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