Hep C Discussion Forum

robertsamx · robertsamx

Hi All-- Lets say you have a liver in pretty bad shape, and you have been on two treatments that failed you.Now let's say a new combo drug was just approved yesterday (sof-Vel) but you felt like you needed to hit the virus in three spots instead of just two, and the third drug was in trials and was proven in...

malekula man · malekula man

Hello everyone, I'm in Canada, I don't know how it works in US, so here's the story. I need an advice. I have a friend in Maryland near DC. He was undergoing Harvony therapy (likely EOT and +16wks still UND ) when he got TIPS, since he already had a decompensated cirrhosis, a strong ascites and started...

Ratheesh · Ratheesh

BannedForum Guidelines - Required reading for all members -- Edited by wmlj1960 on Thursday 23rd of June 2016 08:13:20 AM

Bob Sage · Bob Sage

Hello all, we're all aware of the high prices of Hep C drugs. I've just watched a movie 'Dallas Buyers Club' where they had the same problem with HIV drugs in 70s and they created a so called buyers club where you could get all HIV drugs. Is there some similar thing for Hepatitis C? I don't really have $100...

cayohueso1 · cayohueso1

Hi All! This is Cayohueso 1 and I have been hanging in there for the last several years with my failed 6 month attempt with Peg/Victrellis ****tail. Heavy side effects including relapse after 8 years of being clean and sober. I stayed out there for 2 years and happy to say that Im 2 and a half years clean...

singsong · singsong

Many studies have been done showing coffee is beneficial to the liver. Helps the ant-viral response, lowers risk of HCC and more. Reading through below link ( and my eyes spinning in my head from the medical terminology), it appears 3 or more cups per day (8 oz being 1 cup) can only be good. Tea and caf...

Logan21 · Logan21

So heres my story.. I tested positive for the antibody a couple weeks ago and i kno you say i may not have it but now i finally have my anwser to why im so tired(i know when and where i got it)... It was about a year ago and now i finaly have the anwser to to why im so tired... From the time i wake up untill about 3-4 p...

Sherri · Sherri

I have had vitiligo for about 25 years and tinnitus for a long time, too. I would like to know if anyone with either condition who had successful treatment experienced any change in said conditions after SVR. There are documented correlations but no definite cause/effect (yet) evidence with the vi...

JimmyK · JimmyK

OK I admit it, I am kind of bored. Some folks here swear by the little plastic pill counters and they are great for people who have a hard time remembering. Myself, I use the ever annoying 5:55a Alarm from which there is no escape. Some folks, like myself, like to track where they are at and where they have b...

Sherri · Sherri

I am scheduled to see a hepatologist at the VA later this month, so would like to be well informed before the appointment. I have read many, many reports of the neural side effects of Harvoni (on other sites besides this one). I have decided against going that route, especially after learning that it w...

Mike · Mike

Hi all my Hep C Discussion Forum brothers and sisters. The Misses and I are getting on a big ol' jet aero liner tomorrow, destination Philippine Islands to do business, and visit some family, and pleasure. I still will be able to keep up with ya'all because this trip I am bringing my laptop for sure. So,...

CandaceV · CandaceV

Hi, I was able to get phone results of my husband's test. First of all, he was tested last summer for Hep C reactive, and it was positive. It took a long time to get him to agree to go back for more testing. The results of this test was "Undetected with a Quantitative number of 4770000". Can an...

JimmyK · JimmyK

Greetings, This may be one of the all time stupid questions ever but in that I do not know the answer I am going to ask anyway. If one fails treatment, and it is determined they have RAV's, then they go on to re-treat and are found to be UND say during the second treatment, are the RAV's gone or assumed to be?

Enavigo3891 · Enavigo3891

http://www.cbsnews.com/news/hepatitis-c-the-most-deadly-infectious-disease-in...

primadonna · primadonna

Hello,friends! How are you? Please,advice.The first vaccination from hep b was in january,the second in february.When will be the third?

CandaceV · CandaceV

Hello, my husband has it and went for treatment, however a kidney lesion was also found. His Gastro told him to treat the kidney lesion first, then he would get treatment. The urologist said he should have the kidney lesion removed because my husband's brother had kidney cancer. Full disclosure ab...

Matt Chris · Matt Chris

Hey all Check out this hyperlink about a study new study by researchers at Baylor College of Medicine found that treatment and cure of chronic hepatitis C reduce the risk of hepatocellular carcinoma (HCC), especially if given early, before cirrhosis develops, and while patients are still young...

VetwithC · VetwithC

It just occured to my foggy mind that a lot of my symptoms [pre-TX, during-TX, and early post-TX] are very similar to alz/dementia. Having care given my father for 5 years before his death at 92, I witnessed dementia advance in his aging [but once sharp] mind and it's not a pretty sight. Just wonderin...

Canuck · Canuck

Re: HCV being anywhere in a person's body?I was interested in what Mallani said, about HCV having an affinity "in lymphocytes", so, I started googling up (fairly old) studies done about the relationships between lymphocytes and HCV, trying to find out more about HCV "in" lymphocytes, and about...

basser · basser

have been posting about liver transplant.am fortunate to have cleared virus.am SVR.but due the ravages of the virus my liver has not fared well.i have a 5 day medical coming up on the 4th of april.if found fit enough to go through op will be put on transplant list.so yet more waiting.would be great to he...

jaspar · jaspar

Just got the diagnosis last month that I have Hep C. Completed all initial test including Fibrosure with results of Hep C 1a or b, 300k blood virus level, and Fibrosure results of F2 / A2. I have not yet had my first appointment with my now new Hematologist so I don't know if I am good, bad, or ugly..... I hav...

Shadowfax · Shadowfax

I realize this is open and many factors would change but in general I would like to know what you have been told regarding prognosis of your cirrhosis or in general. I am compensated but was told I have ESLD (End stage liver disease) so I am wondering if some Doctors consider any cirrhosis to be that. This...

Sbel1seeker · Sbel1seeker

I have tracked down the thesis on SBEL1, but have not been able to read it yet. I do believe it is accessible to read, but I cannot figure out how to do so as of yet. It may still not reveal the Chinese herbs which make up SBEL1, however. See below for link to thesis. If someone can figure out how to read it, plea...

xtra · xtra

I have been supported, informed, encouraged and welcomed on this forum. This is a silent disease. It is a lonely disease that has a stigma that makes it a quiet fight will little information available generally. The point I want to make is that I don't post. I don't know much about the newest medicines o...

basser · basser

been 15months since eot.am svr.liver though hasn;st got bettet.stayed stable for a fair while due to getting rid of virusbut last few months has been going down hill.so everything going good when i go for 5 days to hospital for complete medical will be put on transplant list.i was f4 cirrhotic when i w...

bubble · bubble

We have #3 in the Hep C market today. Merck has been FDA approved for Geno 1 and 4. And it is cheaper than Harvoni and Abb-Vie. Only $53,000. Gilead's stock has dropped at this hour by 3%.

mallani · mallani

Hi all, This may seem a bit off-topic but I think there is a link between HCV and fat metabolism. Firstly, a bit about cholesterol. It's a complex waxy substance, essential for many body functions including hormone production and cell wall health. Most is produced in the liver, but we get some from foo...

dtre30319 · dtre30319

Hello, Can anyone help me interpret the attached liver scan results. This is where my doctor said its possible cirrhosis when I had mild fibrosis two year ago.

Hepwell Soon · Hepwell Soon

Hello Everyone, I am 49 and was diagnosed with Hep C Genotype 3a on 19th August 2015 Viral Load 1005000. Not sure how I got this last Tattoo 15 years ago. My Dr is now looking at treatment options available in Malaysia where I live. In the meantime I have switched to a high fruit mainly raw diet and I am takin...

JimmyK · JimmyK

Greetings Y'all, As I contemplate options and in preparation for discussing the same with my Doctor on 03/08, I know one of the options on the table is Harvoni x 24 weeks. I know that my Doctor if he agrees will want to add RBV. That due to the fact I take Omeprozol. What I am not sure of because I have never se...

Topic		Started By	Replies	Views	Last Post
	ACCESS TO TRIAL DRUGS IN A COMPASSIONATE PROGRAM (Preview) Hi All-- Lets say you have a liver in pretty bad shape, and you have been on two treatments that failed you.Now let's say a new combo drug was just approved yesterday (sof-Vel) but you felt like you needed to hit the virus in three spots instead of just two, and the third drug was in trials and was proven in...	robertsamx	8	985	Jun 30, 2016 by robertsamx
	Need your advice ( 1 2 ) (Preview) Hello everyone, I'm in Canada, I don't know how it works in US, so here's the story. I need an advice. I have a friend in Maryland near DC. He was undergoing Harvony therapy (likely EOT and +16wks still UND ) when he got TIPS, since he already had a decompensated cirrhosis, a strong ascites and started...	malekula man	81	5205	Jun 28, 2016 by malekula man
	Media Software Window Enables Easy viewing and Timing Adjust (Preview) BannedForum Guidelines - Required reading for all members -- Edited by wmlj1960 on Thursday 23rd of June 2016 08:13:20 AM	Ratheesh	0	755	Jun 23, 2016 by Ratheesh
	Buyers Club for New Hepatitis C drugs? (Preview) Hello all, we're all aware of the high prices of Hep C drugs. I've just watched a movie 'Dallas Buyers Club' where they had the same problem with HIV drugs in 70s and they created a so called buyers club where you could get all HIV drugs. Is there some similar thing for Hepatitis C? I don't really have $100...	Bob Sage	3	1077	Jun 6, 2016 by Michael1037
	Harvoni (Preview) Hi All! This is Cayohueso 1 and I have been hanging in there for the last several years with my failed 6 month attempt with Peg/Victrellis ****tail. Heavy side effects including relapse after 8 years of being clean and sober. I stayed out there for 2 years and happy to say that Im 2 and a half years clean...	cayohueso1	16	1896	May 29, 2016 by Tig
	Drink your coffee (Preview) Many studies have been done showing coffee is beneficial to the liver. Helps the ant-viral response, lowers risk of HCC and more. Reading through below link ( and my eyes spinning in my head from the medical terminology), it appears 3 or more cups per day (8 oz being 1 cup) can only be good. Tea and caf...	singsong	11	1359	May 28, 2016 by Loopy Lisa
	Help with being so tired (Preview) So heres my story.. I tested positive for the antibody a couple weeks ago and i kno you say i may not have it but now i finally have my anwser to why im so tired(i know when and where i got it)... It was about a year ago and now i finaly have the anwser to to why im so tired... From the time i wake up untill about 3-4 p...	Logan21	16	1236	May 24, 2016 by JimmyK
	Regarding two possible symptoms: Vitiligo and tinnitus (Preview) I have had vitiligo for about 25 years and tinnitus for a long time, too. I would like to know if anyone with either condition who had successful treatment experienced any change in said conditions after SVR. There are documented correlations but no definite cause/effect (yet) evidence with the vi...	Sherri	3	1137	May 20, 2016 by Tig
	Jimmy's Pill Counter (Preview) OK I admit it, I am kind of bored. Some folks here swear by the little plastic pill counters and they are great for people who have a hard time remembering. Myself, I use the ever annoying 5:55a Alarm from which there is no escape. Some folks, like myself, like to track where they are at and where they have b...	JimmyK	8	1037	May 20, 2016 by Tig
	Would like to hear feedback on drugs other than Harvoni (Preview) I am scheduled to see a hepatologist at the VA later this month, so would like to be well informed before the appointment. I have read many, many reports of the neural side effects of Harvoni (on other sites besides this one). I have decided against going that route, especially after learning that it w...	Sherri	18	1847	May 18, 2016 by Tig
	General Discussion (Preview) Hi all my Hep C Discussion Forum brothers and sisters. The Misses and I are getting on a big ol' jet aero liner tomorrow, destination Philippine Islands to do business, and visit some family, and pleasure. I still will be able to keep up with ya'all because this trip I am bringing my laptop for sure. So,...	Mike	4	780	May 17, 2016 by wendyo
	Test Results (Preview) Hi, I was able to get phone results of my husband's test. First of all, he was tested last summer for Hep C reactive, and it was positive. It took a long time to get him to agree to go back for more testing. The results of this test was "Undetected with a Quantitative number of 4770000". Can an...	CandaceV	44	3608	May 16, 2016 by JimmyK
	VL and RAV's (Preview) Greetings, This may be one of the all time stupid questions ever but in that I do not know the answer I am going to ask anyway. If one fails treatment, and it is determined they have RAV's, then they go on to re-treat and are found to be UND say during the second treatment, are the RAV's gone or assumed to be?	JimmyK	5	1196	May 14, 2016 by Tig
	Hepatitis C now kills more people in the United States than every other infectious disease combined... (Preview) http://www.cbsnews.com/news/hepatitis-c-the-most-deadly-infectious-disease-in...	Enavigo3891	0	800	May 6, 2016 by Enavigo3891
	Vaccination (Preview) Hello,friends! How are you? Please,advice.The first vaccination from hep b was in january,the second in february.When will be the third?	primadonna	5	967	May 3, 2016 by Shadowfax
	Discrimination in the medical community against Hepatitis C patients (Preview) Hello, my husband has it and went for treatment, however a kidney lesion was also found. His Gastro told him to treat the kidney lesion first, then he would get treatment. The urologist said he should have the kidney lesion removed because my husband's brother had kidney cancer. Full disclosure ab...	CandaceV	13	1336	Apr 26, 2016 by Cinnamon Girl
	Successful Antiviral treatment for hepatitis C reduces risk of HCC, cirrhosis & overall mortality regardless of age (Preview) Hey all Check out this hyperlink about a study new study by researchers at Baylor College of Medicine found that treatment and cure of chronic hepatitis C reduce the risk of hepatocellular carcinoma (HCC), especially if given early, before cirrhosis develops, and while patients are still young...	Matt Chris	2	817	Apr 24, 2016 by Cinnamon Girl
	alz/dementia like symptoms? (Preview) It just occured to my foggy mind that a lot of my symptoms [pre-TX, during-TX, and early post-TX] are very similar to alz/dementia. Having care given my father for 5 years before his death at 92, I witnessed dementia advance in his aging [but once sharp] mind and it's not a pretty sight. Just wonderin...	VetwithC	7	2510	Apr 24, 2016 by Linuxter
	Lymphocytes? (like Mallani said)!? (Preview) Re: HCV being anywhere in a person's body?I was interested in what Mallani said, about HCV having an affinity "in lymphocytes", so, I started googling up (fairly old) studies done about the relationships between lymphocytes and HCV, trying to find out more about HCV "in" lymphocytes, and about...	Canuck	6	1554	Apr 2, 2016 by Canuck
	liver transplants. (Preview) have been posting about liver transplant.am fortunate to have cleared virus.am SVR.but due the ravages of the virus my liver has not fared well.i have a 5 day medical coming up on the 4th of april.if found fit enough to go through op will be put on transplant list.so yet more waiting.would be great to he...	basser	6	1241	Mar 27, 2016 by basser
	New, looking for information (Preview) Just got the diagnosis last month that I have Hep C. Completed all initial test including Fibrosure with results of Hep C 1a or b, 300k blood virus level, and Fibrosure results of F2 / A2. I have not yet had my first appointment with my now new Hematologist so I don't know if I am good, bad, or ugly..... I hav...	jaspar	15	1419	Mar 25, 2016 by jaspar
	Cirrhosis - What prognosis have you been given by your Doctor (Preview) I realize this is open and many factors would change but in general I would like to know what you have been told regarding prognosis of your cirrhosis or in general. I am compensated but was told I have ESLD (End stage liver disease) so I am wondering if some Doctors consider any cirrhosis to be that. This...	Shadowfax	10	2147	Mar 21, 2016 by Sydhanrahan
	SBEL1 thesis found (Preview) I have tracked down the thesis on SBEL1, but have not been able to read it yet. I do believe it is accessible to read, but I cannot figure out how to do so as of yet. It may still not reveal the Chinese herbs which make up SBEL1, however. See below for link to thesis. If someone can figure out how to read it, plea...	Sbel1seeker	0	911	Mar 20, 2016 by Sbel1seeker
	THANK YOU (Preview) I have been supported, informed, encouraged and welcomed on this forum. This is a silent disease. It is a lonely disease that has a stigma that makes it a quiet fight will little information available generally. The point I want to make is that I don't post. I don't know much about the newest medicines o...	xtra	8	1363	Mar 14, 2016 by xtra
	liver (Preview) been 15months since eot.am svr.liver though hasn;st got bettet.stayed stable for a fair while due to getting rid of virusbut last few months has been going down hill.so everything going good when i go for 5 days to hospital for complete medical will be put on transplant list.i was f4 cirrhotic when i w...	basser	16	1442	Mar 7, 2016 by Cinnamon Girl
	Merck is in town. (Preview) We have #3 in the Hep C market today. Merck has been FDA approved for Geno 1 and 4. And it is cheaper than Harvoni and Abb-Vie. Only $53,000. Gilead's stock has dropped at this hour by 3%.	bubble	15	2641	Mar 6, 2016 by robertsamx
	Cholesterol (Preview) Hi all, This may seem a bit off-topic but I think there is a link between HCV and fat metabolism. Firstly, a bit about cholesterol. It's a complex waxy substance, essential for many body functions including hormone production and cell wall health. Most is produced in the liver, but we get some from foo...	mallani	6	1591	Mar 5, 2016 by Shadowfax
	Liver Scan (Preview) Hello, Can anyone help me interpret the attached liver scan results. This is where my doctor said its possible cirrhosis when I had mild fibrosis two year ago.	dtre30319	5	1347	Mar 3, 2016 by mallani
	Has anyone been cured naturally? Herbal or fasting? (Preview) Hello Everyone, I am 49 and was diagnosed with Hep C Genotype 3a on 19th August 2015 Viral Load 1005000. Not sure how I got this last Tattoo 15 years ago. My Dr is now looking at treatment options available in Malaysia where I live. In the meantime I have switched to a high fruit mainly raw diet and I am takin...	Hepwell Soon	11	2434	Feb 29, 2016 by bubble
	Question Regarding Breakthrough (Preview) Greetings Y'all, As I contemplate options and in preparation for discussing the same with my Doctor on 03/08, I know one of the options on the table is Harvoni x 24 weeks. I know that my Doctor if he agrees will want to add RBV. That due to the fact I take Omeprozol. What I am not sure of because I have never se...	JimmyK	23	1728	Feb 29, 2016 by JimmyK
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