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Liver Repair After Harvoni
(Preview)
Hello Everyone, I got a call from the doctor today that said I havent relapsed with hep c and the Harvoni worked. I stopped taking Harvoni Septmber 2015. However, I had an MRI liver scan yesterday and the doctor said it shows some scary and possibly cirrhosis. I found that strange since I have alway...
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dtre30319
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8
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2980
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Mount Sinai
(Preview)
Thursday is our big day. Tom finds out if the ablation and radiation worked. I pray it did. He has been four months hep c free so I know the "dragon" is officially removed from him. We did hear from his doctor that many people are still having insurance problems getting the harvoni approv...
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tomyboy
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8
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1285
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Awareness Day Of The Events in Nottingham
(Preview)
It's brilliant getting involved in it all and thrusting yourself into the public eye smile Congratulations to everyone that managed to do something
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hannasmith
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1
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939
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From F0-F1- to F3-F4
(Preview)
Hi everyone! How many years does it take for F1 to grow into F4?
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primadonna
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4
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1126
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Increase in Enzymes
(Preview)
Hello Everyone, I have been off Harvoni since September 2015. I have been monitoring my labs for almost 6 months and notice that my all of my liver enzymes keeps on increasing. I had my last hep c test in January and it was undetectable. Can someone please provide insight on why liver enzymes would k...
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dtre30319
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7
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1758
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Lysol commercial
(Preview)
Lysol spray or cleaner Has anyone seen this new commercial...loks like it's set in a classroom and the teacher has a board with all the things the aerosol will wipe away. Hepatitis C was at the top of the list. Is this responsible advertising? It would appear by this add that the virus is on surfaces or...
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Iris Dragonfly
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13
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2355
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Can Harvoni be cut in half?
(Preview)
I have a huge problem taking pills and even very small ones just love to get stuck in my throat. I suppose if I gulp enough water with it the chances of that happening will be less. I know some medications should not be split because of protective coverings and time release etc. Is this the case with Harvo...
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Shadowfax
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13
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3564
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Seems I should drink more coffee!
(Preview)
Hi all, I have always dismissed the association between caffeine and liver fibrosis, but this new article makes me wonder. While working, I drank ~10 cups of coffee a day, but steadily progressed to cirrhosis. Since retirement, I'm down to 1-2 cups/day amd maybe I should increase this. Every little...
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mallani
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8
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1687
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Haven't been here for a while...
(Preview)
Hey. Some of you may remember me. I took a treatment last summer and recently found out that I still have HCV...back to the drawing board for me. I took ribavarin/interferon/sovaldi. Anyone else fail this treatment? What are the options?
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AngieV123
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29
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2373
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new meds on trial
(Preview)
am wondering if anyone has heard about a new drug on trials in canada.goes under the name of polaris 1.my friend who has failed on interferon/riba and also solvidi/riba.has been offered to go on a med called polaris 1 which is made in canada.any infomation would be appreciated thanks ...
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basser
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5
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1039
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Gilead / VA on the CBS Evening News tonight
(Preview)
According to CBS News, Price of Sovaldi / Harvoni is too high for VA Hospital to afford to treat patients. Dr Raymond F. Schinazi, a 7/8 employee of the department of veterans affairs made $400 + million when he sold his pharmaceutical company (Pharmasset) in 2012 to Gilead for $11.4 billion. In a 201...
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wmlj1960
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11
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2622
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Could Harvoni contain a stimulant?
(Preview)
Below is the chemical structure of harvoni. I am wondering if the red coloured ingredients are in any way related to the methamphetamine stimulant. I am trying to understand if what some refer to as the "Harvoni high"...the increase of energy experienced soon after starting tx...might...
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Jaded
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10
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1811
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In search of Generic Harvoni / Sovaldi from India
(closed)
(Preview)
Hi, This Topic is started for those who want to seek medicines from India. Generic Harvoni / Sovaldi from India.Many patients across the globe are in search of Generic Medicines due to the high prices of Big Pharma Companies. India is one of the cheapest option. Patients can fly down to India have a...
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Nirav
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3
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1145
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An old cirrhotic's tale-part2
(Preview)
Hi all, This is a bit lengthy. I'll start with a brief summary for the newbies. Prologue: Almost certainly infected in Vietnam in 1969. Abnormal LFT's during 1970's led to liver biopsy in 1982= A0,F0. After diagnosis of HepC in 1990, biopsy in April 1990 showed A1,F1. After 2 attempts with Interferon...
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mallani
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22
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2833
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Core Concepts of HCV Treatment
(Preview)
List of Core Concepts of HCV Treatment
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Linuxter
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0
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1235
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Medications to Treat HCV
(Preview)
List of current medications to treat HCV
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Linuxter
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0
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764
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An older but interesting article on reversal of Liver Fibrosis
(Preview)
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2702953/
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Shadowfax
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2
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965
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Supplements to help fight hep c- ALA, Milkthistle ect.
(Preview)
Hi everyone. Just curious to find out who uses supplements. I have been using milkthistle and a quality multi vitamin since being diagnosed in 2002. I had a biopsy done about 8 years ago which showed only stage 1 at the time. I contracted the disease back in the 70s so it has been progressing very slo...
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mikenan
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14
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1286
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Bitter to taste Harvoni.
(Preview)
I take all meds with yogurt otherwise I can't swallow pills. I was wondering as pill is supposedly very bitter has anyone taken or drank Cranberry/Raspberry juice after taking pill and if so have you noticed a reaction? Upset stomache. Acid indigestion anything?
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Stormybc
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1
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799
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Frustrated! Employment affected by this virus
(Preview)
Hello. I recently relocated to Los Angeles from out of state. I am a special education teacher. After spending months working on credentialing and application processes, I was finally approved for hire with LAUSD. The last step needed was the physical exam. Well, the dr refused to pass me because I...
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Sherri
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1
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766
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Let's find out what's really happening!
(Preview)
Hi all, My Hepatologist starts long-service leave on 15th February, so I have convinced him to do my liver biopsy next week. I'll be EOT+4 years. He's also agreed to a repeat FibroScan the day before. Hopefully this will will shed some light on this mystical subject. I'm hoping for F3-4 with A0-1. Chee...
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mallani
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19
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1486
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Mt Sinai Update
(Preview)
Hi all,
Just wanted to let you know how well both tom and I are doing. I went back to get another swallow study one month after surgery and doctors were thrilled my swallowing improved. I'm now at least on a soft diet like scrambled eggs, French toast, mashed potatoes, etc. still no loose fluids as I am as...
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tomyboy
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3
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1076
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THANK YOU THANK YOU
(Preview)
TIG One phone call and my Harvoni was approved! The Dr is waiting for the prescription to be in the pharmacy! Thank you thank you Thank You, I made the call to the insurance and was approved immediately because of the active status without any cause except Hep C. You said to call! I did, I was polite, I had t...
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xtra
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12
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1430
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Great news for Australia?
(Preview)
http://www.hepatitisaustralia.com/newsarticles/christmas-comes-early-for-australians-living-with-hepatitis-c/19/12/2015
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freesoul
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10
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1286
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Viral Load and how long someone's had HCV
(Preview)
Hi All, Looks like pre-treatment Viral Load varies a lot between people and doesn't appear to be a determining factor of SVR. My Doc did say that since I have a Viral Load of ~10 Million it qualifies me for 12 weeks treatment vs 8 weeks if lower. Does anyone know the reasoning behind the longer treatment f...
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Linuxter
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3
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1248
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Egyptian DAA Drugs
(Preview)
hello, This is my very 1st post here. am from Egypt where Genotype 4 is dominant. Just about every family in Egypt is touched by hepatitis C. Egypts hepatitis C epidemic dates back decades when glass syringes used during a mass vaccination campaign were not properly sterilized between use. prevalen...
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Ultraviolet1
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2
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1809
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India drugs Other good articles
(Preview)
Just got the latest edition of hepcbc.ca . It has several very good articles in it. The article on drugs from India was excellent. So were a couple of others, but I can't remember what they were. It is a newsletter from Canada that generally has excellent info (not just about Canada). Check it out....
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suziq
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2
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999
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10 Drugs That May Cause Memory Loss
(Preview)
I received this bit of information in an email today and thought those of us that are experiencing memory issues and or brain fog, may like to review it. Even though this is an OpEd by Dr. Neel Jr., it may provide you with some food for thought. I find that I am either on some of these medications now or have b...
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Tig
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2
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1128
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Beginning New Insurance 2016 and a question
(Preview)
Greetings Y'all! For all of 2015, the Company I work for offered Express Scripts / Accredo. That is going away and being replaced by CVS / Caremark. So I get a letter today informing me that Viekira Pak, which I have taken "within the last few months" will not be covered and to see the "en...
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JimmyK
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4
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1093
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Mt Sinai Update
(Preview)
Hi all, three weeks today since I had my chiari malformation surgery. It went well, still healing and sore but getting at home care. Tom completed his radiation treatments while i was hospitalized and it worked out great. They gave him a certificate of completion the day of his last treatment. T...
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tomyboy
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13
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1596
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