Hep C Discussion Forum

dragonfly · dragonfly

Hi, just a quick update - I noticed that some have had problems with neuropathy after the new drugs and kidney problems which I have sometimes. It does get better but can be embarrassing when you fall over in front of your neighbours! Life continues to be good and I even had the strength to take my niece...

Lawmatt · Lawmatt

well it will be 4 weeks next friday since that dreaded injection and 3 weeks since the last ugly pill. This week is the best i have felt in a year even though i have never been to jail it feels like i was in solatry for 48 weeks . i find myself want to be out of the house hangin in the shops and wanting to socialisi...

BobK · BobK

Hi all, I just got off the phone with my step mom and was told my step brother's Hep C came back after 1 1/2 years! Is that even possible? He was cleared at 24 weeks and did not show any signs of Hep C. He was in a trial a while back and did some wicked regiment that did include interferon. Has anyone else heard o...

Liamc · Liamc

Got the call today from the hospital, I think i am still in shock. Words cannot describe the gratitude I have for the people on this board. Thankyou all. cheers Liam

Dzdayscomin · Dzdayscomin

So I had my 3 month transplant labs and MRI this morning, and I just got the call I have HCC 1.7 cm in the right lobe....if I could swear here I would, but I guess that's life, no good news is free......so I thought I was gonna beat this bastard of an illness, but it's got bound and determined to get me, I guess...

Scruffy · Scruffy

OH BOY (insert happy dance here) HVC NOT DETECTED!!!!!!! AST 14 ALT 11 My sodium came back 1 pt low 134 and MVP was marked low at 7.4 one tenth of a pt low Platelet 209, sugar a little high 113. I'm a happy camper :) :)

Gracie · Gracie

Got my Gastroscopy done this morning and the gastro doc said no damage, everything is normal and I'd see him for a repeat in 3 years. This sounds pretty positive, but wondering how others have made out with their gastroscopy's? What exactly are they looking for? Bleeding veins? In the stomach? In the...

Brian1412 · Brian1412

Should i continue to do them at same lab?

Gracie · Gracie

I've read a couple of posts on fibroscan scoring and am very pleased to hear that it can improve past treatment. I had one today and I tried to sneak a look and thought it said 15.5 kPa Which I think is quite high and now I'm worried. I have read conflicting scores that indicate cirrhosis. 12.5, 14.7 and 17....

balagan51 · balagan51

Just checking in to share what's up with me. I certainly hope many here reading this have cleared and those that have just cleared or are on Treatment get something positive from this post. I am cirrhotic , hence my being I the turquoise trial to begin with . I went thru 24 weeks . My hepatolgist has taken m...

Rufus1 · Rufus1

Finally after waiting 2+ weeks got my post 12 week results my Dr. emailed me back NO VIRUS. I haven't got it in writing but I emailed her back to get it. I want to say again thank you Its been me, my wife and you guys getting me thru, this was a godsend. I know I haven't added a lot but ill still be in the wings s...

Femapples · Femapples

Hi all, I am now post treatment with an undetected viral load. However, I still have kidney involvement which is listed below in my signature. I will be seeing my nephrologist at the end of the month. My GI doctor said the Hep C treatment would halt the progress of the kidney disease and eradication...

skewedButNotBroken · skewedButNotBroken

I had CMP done this past Wednesday and the nurse called today and said everything came back normal. I asked her what my ALT/AST numbers were and she said: ALT: 20 AST: 22

dragonfly · dragonfly

Hi everyone, Just wanted to check in. I felt so well that I was able to go on tour with my friends in Girlschool in the US. I was tired but that was due to lack of sleep. I was so happy to have the opportunity to visit places that I have never been. The drive from San Fran to Portland (stopping off along the...

basser · basser

hi am wondering if any one has had same tx for hep c.was on solidi daclatisvir and riba.a 12 wk course.am now svr.am still dealing with post tx effects of tx.would be good to hear of any one who has had same meds

Rufus1 · Rufus1

I can't believe what a wreck I am after taking my 12 week eot blood draw on Saturday. This is way worse than my 4 week eot which I was undetectable. Reading this forum helps a lot but WOW. I had a message from the clinic in my mail and I shook looking at an appt. reminder. I haven't been dealing with this very lo...

WarriorWolf · WarriorWolf

Well, I fished my 8 weeks. My last lab was totally undetected VL. I was feeling ok. Today, I feel like I got beat in the head with a shovel. I didn't have any severe side effects my entire treatment, but they did appear mildly. I'm not a coffee drinker, but that's what got me through the fatigue. I'm so happy...

canythingbutaverage · canythingbutaverage

I recently failed the 24 week Harvoni Treatment. I'm also Cirrhotic, decomp and a previous non-responder. My docs informed me of one other incident of this happening in my area, so i'm curious to see how common it is. for reference i failed Sovaldi Olysio last year as well, i zero'd out on both treatmen...

Lowrider · Lowrider

Got the blood test results after 24 weeks of Harvoni at 4 weeks EOT today. Everything looks right. Feeling much better, joint and muscle pains are gone, don't feel like I am dragging around in dead body anymore, energy is slowly coming back. Only thing is a painful knee joint arthritis flare up that is...

Brian1412 · Brian1412

I am hitting the Blues gems over the next few days as we wait for the circus to get here. Any friends of this forum give me a shout . I will post where we are going starting tomorrow. This continued the next4-5days.we hear many of the legendary. Players are in town.

mallani · mallani

Hi all, EOT was Feb 2013, so just had another 6 monthly labs and Ultrasound followup. Bloods all normal (ALT-31, Platelets 290k). Very happy to see my liver is smaller, no HCC, and spleen is also smaller. The echopattern is completely normal, so I'm taking that as continued resolution of fibrosis. Th...

Brian1412 · Brian1412

I am hitting the Blues gems over the next few days as we wait for the circus to get here. Any friends of this forum give me a shout . I will post where we are going starting tomorrow. This continued the next4-5days.we hear many of the legendary. Players are in town.

Terry · Terry

I have not posted on here for some time although I come on to hear all the great results you are all having. It seems a long time since I started on my Abbvie Turquois clinical trial and there were some interesting times with that Ribavirin but that is all in the past now and things are looking up. I ran into s...

RonH · RonH

Well here it is 6 months after treatment and still not detected! I want to say thank you to Gilead for the drugs to take care of this and the people here for all their support, I never thought this day would come! A new life HEP C FREE!!! YAHOOOOOO!!!!!!

ithacox · ithacox

I'm wondering if Harvoni leaves the immune system in some disarray, allowing viruses such as those for sties and canker sores to take hold. I haven't had these kinds of issues in many decades (or during treatment) and now I seem susceptible. I'm eating and sleeping well, not under stress, so I just...

MzmiffY · MzmiffY

Hello all, I'm so excited to be able to say my 48 weeks is over! If I could muster a cartwheel without injury I would! My EOT results are nothing less than fabulous... UNDETECTED. ALT 15, HB 73, platelets 62, albumin 35 Even with the possibility of relapse, I feel so lucky that I was given this opportunity...

justme50 · justme50

I'm still not detected after 4 wks EOT!! This is one of the milestones so I was very apprehensive and now relieved. Having problems with very painful swelling in left foot and ankle; going to doctor later today. Also having tingling and numbness in both hands. Recently discovered cluster of nodul...

Liamc · Liamc

I just had my 8 week EOT bloods done excluding viral load test. All are normal except my platelets which are 139( at 4 weeks EOT they were 151) the range is 140-440 and my GGT is at 12 range 15-30. Would this be the cause of my tiredness that seems to hit me every afternoon or am I just still detoxing from 24 wee...

suziq · suziq

I got results from my one year SVR tests this afternoon. My enzymes were 18 and 24. My Fibrotest was .62 which is between Stage 2 and Stage 3. I started my trial with cirrhosis--I think around .75. Soooo my liver IS healing. It has been 21 months since my first UND, so I have almost two years since Hep...

ss · ss

HAS ANYBODY EXPERIENCED ANY SIDE EFFECTS ONCE THEY FINISHED HARVONI - I JUST FINISHED 2 WEEKS AGO A 24 WEEK TREATMENT. FEELING SOME TIREDNESS AND JOINT PAIN

Topic		Started By	Replies	Views	Last Post
	Just checking in (Preview) Hi, just a quick update - I noticed that some have had problems with neuropathy after the new drugs and kidney problems which I have sometimes. It does get better but can be embarrassing when you fall over in front of your neighbours! Life continues to be good and I even had the strength to take my niece...	dragonfly	2	791	Jul 30, 2015 by Tig
	4 weeks post treatment (Preview) well it will be 4 weeks next friday since that dreaded injection and 3 weeks since the last ugly pill. This week is the best i have felt in a year even though i have never been to jail it feels like i was in solatry for 48 weeks . i find myself want to be out of the house hangin in the shops and wanting to socialisi...	Lawmatt	14	1279	Jul 29, 2015 by Groupergetter
	Relapse after 1 year?? (Preview) Hi all, I just got off the phone with my step mom and was told my step brother's Hep C came back after 1 1/2 years! Is that even possible? He was cleared at 24 weeks and did not show any signs of Hep C. He was in a trial a while back and did some wicked regiment that did include interferon. Has anyone else heard o...	BobK	2	891	Jul 24, 2015 by BobK
	12 week EOT.....virus free.!!! (Preview) Got the call today from the hospital, I think i am still in shock. Words cannot describe the gratitude I have for the people on this board. Thankyou all. cheers Liam	Liamc	17	1413	Jul 24, 2015 by Penelope PePod
	I guess it was to good to be true. ( 1 2 3 4 5 ) (Preview) So I had my 3 month transplant labs and MRI this morning, and I just got the call I have HCC 1.7 cm in the right lobe....if I could swear here I would, but I guess that's life, no good news is free......so I thought I was gonna beat this bastard of an illness, but it's got bound and determined to get me, I guess...	Dzdayscomin	244	14565	Jul 22, 2015 by Fireman Rob
	EOT+ 1 year (Preview) OH BOY (insert happy dance here) HVC NOT DETECTED!!!!!!! AST 14 ALT 11 My sodium came back 1 pt low 134 and MVP was marked low at 7.4 one tenth of a pt low Platelet 209, sugar a little high 113. I'm a happy camper :) :)	Scruffy	9	1232	Jul 22, 2015 by Cinnamon Girl
	Gastroscopy Reviews (Preview) Got my Gastroscopy done this morning and the gastro doc said no damage, everything is normal and I'd see him for a repeat in 3 years. This sounds pretty positive, but wondering how others have made out with their gastroscopy's? What exactly are they looking for? Bleeding veins? In the stomach? In the...	Gracie	3	856	Jul 17, 2015 by Gracie
	Svr labs. Is it better to have them done at same facility. As other ones were ? (Preview) Should i continue to do them at same lab?	Brian1412	1	657	Jul 17, 2015 by Brian1412
	Fibroscan Scoring (Preview) I've read a couple of posts on fibroscan scoring and am very pleased to hear that it can improve past treatment. I had one today and I tried to sneak a look and thought it said 15.5 kPa Which I think is quite high and now I'm worried. I have read conflicting scores that indicate cirrhosis. 12.5, 14.7 and 17....	Gracie	8	2055	Jul 17, 2015 by Gracie
	2+ years post treatment ABBVIE TURQUOISE Clinical Trial (Preview) Just checking in to share what's up with me. I certainly hope many here reading this have cleared and those that have just cleared or are on Treatment get something positive from this post. I am cirrhotic , hence my being I the turquoise trial to begin with . I went thru 24 weeks . My hepatolgist has taken m...	balagan51	3	1005	Jul 12, 2015 by mallani
	SVR 12 (Preview) Finally after waiting 2+ weeks got my post 12 week results my Dr. emailed me back NO VIRUS. I haven't got it in writing but I emailed her back to get it. I want to say again thank you Its been me, my wife and you guys getting me thru, this was a godsend. I know I haven't added a lot but ill still be in the wings s...	Rufus1	11	1417	Jul 3, 2015 by DianaP
	Kidney Problems (Preview) Hi all, I am now post treatment with an undetected viral load. However, I still have kidney involvement which is listed below in my signature. I will be seeing my nephrologist at the end of the month. My GI doctor said the Hep C treatment would halt the progress of the kidney disease and eradication...	Femapples	1	750	Jul 2, 2015 by Tig
	ALT/AST (EOT + 8.25 months) (Preview) I had CMP done this past Wednesday and the nurse called today and said everything came back normal. I asked her what my ALT/AST numbers were and she said: ALT: 20 AST: 22	skewedButNotBroken	4	1163	Jun 29, 2015 by skewedButNotBroken
	feeling better (Preview) Hi everyone, Just wanted to check in. I felt so well that I was able to go on tour with my friends in Girlschool in the US. I was tired but that was due to lack of sleep. I was so happy to have the opportunity to visit places that I have never been. The drive from San Fran to Portland (stopping off along the...	dragonfly	2	865	Jun 27, 2015 by Tig
	tx (Preview) hi am wondering if any one has had same tx for hep c.was on solidi daclatisvir and riba.a 12 wk course.am now svr.am still dealing with post tx effects of tx.would be good to hear of any one who has had same meds	basser	1	823	Jun 27, 2015 by dragonfly
	Nervous wait (Preview) I can't believe what a wreck I am after taking my 12 week eot blood draw on Saturday. This is way worse than my 4 week eot which I was undetectable. Reading this forum helps a lot but WOW. I had a message from the clinic in my mail and I shook looking at an appt. reminder. I haven't been dealing with this very lo...	Rufus1	11	1209	Jun 27, 2015 by Rufus1
	Finished 8 weeks UND (Preview) Well, I fished my 8 weeks. My last lab was totally undetected VL. I was feeling ok. Today, I feel like I got beat in the head with a shovel. I didn't have any severe side effects my entire treatment, but they did appear mildly. I'm not a coffee drinker, but that's what got me through the fatigue. I'm so happy...	WarriorWolf	6	1056	Jun 26, 2015 by Brian1412
	Failed Harvoni, anyone else? (Preview) I recently failed the 24 week Harvoni Treatment. I'm also Cirrhotic, decomp and a previous non-responder. My docs informed me of one other incident of this happening in my area, so i'm curious to see how common it is. for reference i failed Sovaldi Olysio last year as well, i zero'd out on both treatmen...	canythingbutaverage	13	2714	Jun 26, 2015 by angelseven
	4 Weeks EOT results all good. (Preview) Got the blood test results after 24 weeks of Harvoni at 4 weeks EOT today. Everything looks right. Feeling much better, joint and muscle pains are gone, don't feel like I am dragging around in dead body anymore, energy is slowly coming back. Only thing is a painful knee joint arthritis flare up that is...	Lowrider	9	1701	Jun 25, 2015 by Tig
	Few nights of..gee stuck in chicago (Preview) I am hitting the Blues gems over the next few days as we wait for the circus to get here. Any friends of this forum give me a shout . I will post where we are going starting tomorrow. This continued the next4-5days.we hear many of the legendary. Players are in town.	Brian1412	2	732	Jun 20, 2015 by Brian1412
	EOT + 2.4 year followup (Preview) Hi all, EOT was Feb 2013, so just had another 6 monthly labs and Ultrasound followup. Bloods all normal (ALT-31, Platelets 290k). Very happy to see my liver is smaller, no HCC, and spleen is also smaller. The echopattern is completely normal, so I'm taking that as continued resolution of fibrosis. Th...	mallani	19	1362	Jun 19, 2015 by Brian1412
	Few nights of..gee stuck in chicago (Preview) I am hitting the Blues gems over the next few days as we wait for the circus to get here. Any friends of this forum give me a shout . I will post where we are going starting tomorrow. This continued the next4-5days.we hear many of the legendary. Players are in town.	Brian1412	0	696	Jun 19, 2015 by Brian1412
	Happy Days (Preview) I have not posted on here for some time although I come on to hear all the great results you are all having. It seems a long time since I started on my Abbvie Turquois clinical trial and there were some interesting times with that Ribavirin but that is all in the past now and things are looking up. I ran into s...	Terry	2	840	Jun 19, 2015 by mallani
	6 months after Sovoldi (Preview) Well here it is 6 months after treatment and still not detected! I want to say thank you to Gilead for the drugs to take care of this and the people here for all their support, I never thought this day would come! A new life HEP C FREE!!! YAHOOOOOO!!!!!!	RonH	2	803	Jun 17, 2015 by Tig
	Post-Harvoni sties, canker sores etc. (Preview) I'm wondering if Harvoni leaves the immune system in some disarray, allowing viruses such as those for sties and canker sores to take hold. I haven't had these kinds of issues in many decades (or during treatment) and now I seem susceptible. I'm eating and sleeping well, not under stress, so I just...	ithacox	3	1272	Jun 17, 2015 by Cinnamon Girl
	EOT (Preview) Hello all, I'm so excited to be able to say my 48 weeks is over! If I could muster a cartwheel without injury I would! My EOT results are nothing less than fabulous... UNDETECTED. ALT 15, HB 73, platelets 62, albumin 35 Even with the possibility of relapse, I feel so lucky that I was given this opportunity...	MzmiffY	18	2927	Jun 17, 2015 by mallani
	4 wk EOT labs (closed) (Preview) I'm still not detected after 4 wks EOT!! This is one of the milestones so I was very apprehensive and now relieved. Having problems with very painful swelling in left foot and ankle; going to doctor later today. Also having tingling and numbness in both hands. Recently discovered cluster of nodul...	justme50	9	1802	Jun 16, 2015 by justme50
	8 week EOT question's (Preview) I just had my 8 week EOT bloods done excluding viral load test. All are normal except my platelets which are 139( at 4 weeks EOT they were 151) the range is 140-440 and my GGT is at 12 range 15-30. Would this be the cause of my tiredness that seems to hit me every afternoon or am I just still detoxing from 24 wee...	Liamc	8	1019	Jun 15, 2015 by Cinnamon Girl
	One Year SVR (Preview) I got results from my one year SVR tests this afternoon. My enzymes were 18 and 24. My Fibrotest was .62 which is between Stage 2 and Stage 3. I started my trial with cirrhosis--I think around .75. Soooo my liver IS healing. It has been 21 months since my first UND, so I have almost two years since Hep...	suziq	6	1091	Jun 15, 2015 by Cinnamon Girl
	HORVANI POST TREATMENT SIDE EFFECTS (Preview) HAS ANYBODY EXPERIENCED ANY SIDE EFFECTS ONCE THEY FINISHED HARVONI - I JUST FINISHED 2 WEEKS AGO A 24 WEEK TREATMENT. FEELING SOME TIREDNESS AND JOINT PAIN	ss	18	4039	Jun 14, 2015 by shadow10cats
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