Hep C Discussion Forum

Liamc · Liamc

Hi, I have just finished 24 weeks of riba/Sol 2 weeks ago, over the last few days my eyes have become red again and there is a yellowish tinge (this happened a lot before treatment). While on treatment my eyes were clear. I also have a lot of cramping in my legs and hands and I have pain around my liver area. H...

Doni · Doni

Hello dear friends. It has been a long time since I didn't visit this forum. I was UND post 12 weeks EOT after treating with Peg+Rib+Sovaldi for 12 weeks. However, for the last two weeks I have poor appetite again, slight swelling in hands, and some itches at night. Yesterday I took a walk and I got the fat...

ss · ss

Anybody out there finished Harvoni with Cirrhosis 1. Any Side Effects 2. HOw are your Test Results - 3. Energy Level 4. Did you lose weight Good Luck to All

Gator Man · Gator Man

My doctor called and left a message: UND on VL and all lab values in normal range. He didn't give exact numbers, but did state that ALT/AST were in the twenties and had a normal/good PTT. I've been pretty confident after reaching SVR 12 that I had slayed the dragon permanently; however, it's still nice t...

Ro · Ro

Just took my last pill.....the first 20 weeks were not bad, BUT these last 4 weeks have been a challenge. I have dealt with bronchitis, (still coughing 4 weeks later), sore ribs from coughing, then originally thought I had gout turned out to be pseudogout (Uris acid levels normal), and I am still limp...

Rufus1 · Rufus1

I am now eot 7 weeks and I'm looking for some energy, still a bit foggy and just not what I expected. How long does it take to get these meds to get out of your system. I was on 12 weeks harvoni never been treated with f1-2 vl was 991,000. I just want to get back in order I have a lot to do. Thanks A

JLynch30 · JLynch30

did anyone read the 2015 european liver meeting abstrcts. The numbers of svr ofr cirhotics who failed treatmentlook arounf 88% This is far lower than the original numbers. Is this the real worldnumbers? SVR12 rates were 68% in patients without cirrhosis and 74% in those with cirrhosis.

Milliganus · Milliganus

Sorry for my long absence.....been enjoying all my newfound energy! Results are in for my final blood draw on the Merck 2 drug trial.... EOT week 24 TARGET NOT DETECTED!!!! Finally starting to believe I am cured after 35+ years with this dragon! Thanks to all and God Bless you!

angelseven · angelseven

Yes connie relapsed but don't get all down in the dumps...I did 8 weeks of treatment, virus undetected after 4 weeks, barely detected at 2 weeks... at 4 week post treatment viral load test... viral load 6,000 or so... whatever... my liver got a 2 month rest.... if I had done 12 weeks it would have only inc...

dragonfly · dragonfly

On Wednesday I have my 6th month post Solvadi test. I am hoping for the best but I felt that from the first few days that I started treatment that things changed. I was UND after 2 weeks and have remained so. N xxx

Gracie · Gracie

Well, after researching where in this beautiful large country where I could go to get a Fibroscan done, I got a call today from my new gastro doc's nurse that one is coming to town!!!! Imagine, a portable fibroscan machine. And they booked me for it! It's so weird, on one hand I'd like to be F2 or higher so I...

dharmabum · dharmabum

Another happy Harvoni story. I was on a 12 week course. Hope it sticks... I cried a couple of tears out of relief and happiness before I called my kids. --HCV RNA, QUANTITATIVE REAL TIME PCR <15 NOT DETECTED <15 IU/mL --HCV RNA, QUANTITATIVE REAL TIME PCR <1.18 NOT DETECTED <1.18 Log IU/...

Greg D · Greg D

I'm delighted to report that I am now positively CURED! Total Bilirubin: 9 umol/l - Normal range 8-22. Is this scary low- like what if I was 7 what would that mean? Gamma GT: 15 u/l - Normal range 0-50 ALT: 16 u/l - Normal range 10-55 AST: 18 u/l - Normal range 10-36 TSH: 0.98 mIU/l - Normal range 0.34-5.60 No...

basser · basser

am now in 5th month of virus undetected.was virus undetected at wk 4 8 and 12.3 month test was virus undetected.am still lacking energy and aches and pains.what is a pain is my stomach.after about 3 or 4 days of starting tx.it felt like i had a tight band around stomach.i still have it to varying degrees m...

Gracie · Gracie

I am finally going to get to see a doctor regarding my treatment options. My old gastro stopped treating people as his hep nurse went on maternity leave. Here in Canada that is one year. I'm going to see a new one and want to press for harvoni. Are there any Canadians out there on Harvoni? Is it hard to get i...

skewedButNotBroken · skewedButNotBroken

Well, I did not have a viral load test but my ALT was 8 and my AST was 15 and nothing came back abnormal. I still have an occasional heart flutter, but nothing like when I was on treatment. I've started lifting dumbbells and gained 25 lbs and I'm not having any joint issues. My brain is sharp and my energy lev...

2willy · 2willy

I have ran into a few people who were also on triple therapy, not my problem but asked me to find out if anyone else having problems with post symtoms of breathing, they say it feels like a 600 lb gorilla sitting on their chest, all are past a year. any thoughts, doctors told them that lungs were OK

js · js

Hello all, it's been some time since I have posted and even though I was going to wait until my one year anniversary of having completed the S/O therapy (July 4, 2014) I just had to share all the good news. Very quickly, HCV infection 1970, Liver Cancer and a liver transplant July 1999. Cirrohisis stag...

dragonfly · dragonfly

Hi everyone, I got back from Italy this week and there is now not a scrap of food left in the whole region! I ate so well and saw some wonderful things using all local transport (even climbing Vesuvius - not a serious climb but a milestone for me) saving myself more money for FOOD! One thing that I did not...

bassetgirl · bassetgirl

Last year at this time a CT scan and MRI followup discovered a lesion in my cirrhotic liver that was showing a probability of 80% likelihood of cancer. Went from thinking I was perfectly healthy to: "You've had Hep C for about 40 years, your liver is cirrhotic, and oh, by the way, we think you have...

Enavigo3891 · Enavigo3891

I am 5 weeks and 3 days from my EOT + 1 year lab work. The anxiety has begun already. It also got me thinking that this time last year I was entering week 7 of treatment and it was about this time that the Riba really had a hold on me. I remember marking days off one by one from the calendar (I had printed my own ca...

libgirl07 · libgirl07

Hey guys.. I'm just going to write this with hopes it helps someone else along their journey and also have some closure with my own. Here's my story. I was 18 years old when I found out I had hep c. I went for some routine lab work and found my liver enzymes were high and they tested me for hep c. It was...

david a · david a

Hi all , This post has been incubating in me for a while now , as I've browsed and then indulged in reading all the other posts that run through like a river of thoughts , bound by a common thread of challenge and fear and resilience , forward looking and then pulling from the shared past , always helping ea...

fourlocos · fourlocos

I was shaking when that email came in that my results were posted on my chart. Hoped for this but then was prepared for the worst. I was on the 8 week Harvoni plan and wasn't sure it was long enough. I will test again in another 4 weeks. For now I can breathe a sigh of relief. I feel blessed. This might br...

Rubye · Rubye

All I can say is I am the luckiest girl, okay woman, in the whole wide world!!! Given my history I should be dead a few times over but here I am at 67 years with fairly good health and NO Hepatitis C. I'm really having a hard time believing it. It has been with me since I was around 22 years old. Unbelievable! N...

steelfire453 · steelfire453

I finished Harvoni 6 weeks ago Decided to do a 6 week blood . I cleared and failed Triple therapy a few years back so I am a bit on edge. Should get results tomorrow . If it only puts my mind at ease I suppose there is no harm in doing it now and again 6 weeks from now . Good luck to all of us

libgirl07 · libgirl07

Next month I go for my 24 weeks post eot labs to determine if I'm svr or not. Now I have that familiar ache in my liver. Not as bad as it used to be. Maybe im.just eating poorly. Anyway. Now I'm anxious. Wondering why she wouldn't consider me svr @ 12 weeks and if it's a sign it's back that my liver aches.

Rubye · Rubye

I finished treatment with Sovaldi and Olysio two weeks ago and feel like I did around my 8th week of treatment when I thought about quitting. My arthritis is worse than ever and I'm having a really hard time moving, but what's worse is the nausea and fatigue. I feel worse than I ever have and don't know if i...

dragonfly · dragonfly

I have a procedure involving an endoscopy and a colonoscopy on Thursday and was feeling down because of things at work and the effects of the treatment which seem to have hit me hard. But today we have booked to go to Sorrento next Monday for a week and will see Vesuvius and maybe Pompeii. It seems like i...

Tess1971 · Tess1971

Does anyone know at what point the relapse window closes? 3 months, 6 months, 12 months. I have a doctors appt tomorrow and will find out the results of my 3month blood work. I am being positive, but, still have some fears lurking in the back of my mind. Since I am geno 2 I have no other options availabl...

Topic		Started By	Replies	Views	Last Post
	2 weeks post treatment (Preview) Hi, I have just finished 24 weeks of riba/Sol 2 weeks ago, over the last few days my eyes have become red again and there is a yellowish tinge (this happened a lot before treatment). While on treatment my eyes were clear. I also have a lot of cramping in my legs and hands and I have pain around my liver area. H...	Liamc	6	916	May 1, 2015 by Gator Man
	Very worried again (Preview) Hello dear friends. It has been a long time since I didn't visit this forum. I was UND post 12 weeks EOT after treating with Peg+Rib+Sovaldi for 12 weeks. However, for the last two weeks I have poor appetite again, slight swelling in hands, and some itches at night. Yesterday I took a walk and I got the fat...	Doni	18	1586	Apr 28, 2015 by Rubye
	Anybody out there finished Harvoni (Preview) Anybody out there finished Harvoni with Cirrhosis 1. Any Side Effects 2. HOw are your Test Results - 3. Energy Level 4. Did you lose weight Good Luck to All	ss	27	2649	Apr 28, 2015 by Beacon
	One year EOT milestone (Preview) My doctor called and left a message: UND on VL and all lab values in normal range. He didn't give exact numbers, but did state that ALT/AST were in the twenties and had a normal/good PTT. I've been pretty confident after reaching SVR 12 that I had slayed the dragon permanently; however, it's still nice t...	Gator Man	20	1508	Apr 28, 2015 by Greg D
	24 weeks completed! (Preview) Just took my last pill.....the first 20 weeks were not bad, BUT these last 4 weeks have been a challenge. I have dealt with bronchitis, (still coughing 4 weeks later), sore ribs from coughing, then originally thought I had gout turned out to be pseudogout (Uris acid levels normal), and I am still limp...	Ro	22	1406	Apr 27, 2015 by hepCFREEwanab
	Not feeling good (Preview) I am now eot 7 weeks and I'm looking for some energy, still a bit foggy and just not what I expected. How long does it take to get these meds to get out of your system. I was on 12 weeks harvoni never been treated with f1-2 vl was 991,000. I just want to get back in order I have a lot to do. Thanks A	Rufus1	8	1223	Apr 27, 2015 by Tig
	svr rates around 74% 88% now? (Preview) did anyone read the 2015 european liver meeting abstrcts. The numbers of svr ofr cirhotics who failed treatmentlook arounf 88% This is far lower than the original numbers. Is this the real worldnumbers? SVR12 rates were 68% in patients without cirrhosis and 74% in those with cirrhosis.	JLynch30	1	739	Apr 25, 2015 by Marktq1
	Final Results EOT 24 (Preview) Sorry for my long absence.....been enjoying all my newfound energy! Results are in for my final blood draw on the Merck 2 drug trial.... EOT week 24 TARGET NOT DETECTED!!!! Finally starting to believe I am cured after 35+ years with this dragon! Thanks to all and God Bless you!	Milliganus	14	1499	Apr 23, 2015 by Matt Chris
	relapsed following harvoni, first treatment attempt... oh well (Preview) Yes connie relapsed but don't get all down in the dumps...I did 8 weeks of treatment, virus undetected after 4 weeks, barely detected at 2 weeks... at 4 week post treatment viral load test... viral load 6,000 or so... whatever... my liver got a 2 month rest.... if I had done 12 weeks it would have only inc...	angelseven	27	5223	Apr 21, 2015 by angelseven
	Last test (Preview) On Wednesday I have my 6th month post Solvadi test. I am hoping for the best but I felt that from the first few days that I started treatment that things changed. I was UND after 2 weeks and have remained so. N xxx	dragonfly	4	870	Apr 21, 2015 by Tig
	Fibroscan Fairy is coming to town! (Preview) Well, after researching where in this beautiful large country where I could go to get a Fibroscan done, I got a call today from my new gastro doc's nurse that one is coming to town!!!! Imagine, a portable fibroscan machine. And they booked me for it! It's so weird, on one hand I'd like to be F2 or higher so I...	Gracie	3	729	Apr 21, 2015 by Cinnamon Girl
	Take Harvoni...EOT labs are in - I'm ordering pizza! (Preview) Another happy Harvoni story. I was on a 12 week course. Hope it sticks... I cried a couple of tears out of relief and happiness before I called my kids. --HCV RNA, QUANTITATIVE REAL TIME PCR <15 NOT DETECTED <15 IU/mL --HCV RNA, QUANTITATIVE REAL TIME PCR <1.18 NOT DETECTED <1.18 Log IU/...	dharmabum	11	1359	Apr 20, 2015 by Matt Chris
	More great news- one year EOT results (Preview) I'm delighted to report that I am now positively CURED! Total Bilirubin: 9 umol/l - Normal range 8-22. Is this scary low- like what if I was 7 what would that mean? Gamma GT: 15 u/l - Normal range 0-50 ALT: 16 u/l - Normal range 10-55 AST: 18 u/l - Normal range 10-36 TSH: 0.98 mIU/l - Normal range 0.34-5.60 No...	Greg D	11	1162	Apr 20, 2015 by Cinnamon Girl
	stomache problems (Preview) am now in 5th month of virus undetected.was virus undetected at wk 4 8 and 12.3 month test was virus undetected.am still lacking energy and aches and pains.what is a pain is my stomach.after about 3 or 4 days of starting tx.it felt like i had a tight band around stomach.i still have it to varying degrees m...	basser	3	977	Apr 19, 2015 by Cinnamon Girl
	Harvoni and Canada (Preview) I am finally going to get to see a doctor regarding my treatment options. My old gastro stopped treating people as his hep nurse went on maternity leave. Here in Canada that is one year. I'm going to see a new one and want to press for harvoni. Are there any Canadians out there on Harvoni? Is it hard to get i...	Gracie	5	1223	Apr 18, 2015 by Tig
	EOT + 24 weeks (Preview) Well, I did not have a viral load test but my ALT was 8 and my AST was 15 and nothing came back abnormal. I still have an occasional heart flutter, but nothing like when I was on treatment. I've started lifting dumbbells and gained 25 lbs and I'm not having any joint issues. My brain is sharp and my energy lev...	skewedButNotBroken	5	1015	Apr 18, 2015 by Cinnamon Girl
	breathing problem (Preview) I have ran into a few people who were also on triple therapy, not my problem but asked me to find out if anyone else having problems with post symtoms of breathing, they say it feels like a 600 lb gorilla sitting on their chest, all are past a year. any thoughts, doctors told them that lungs were OK	2willy	2	794	Apr 18, 2015 by mallani
	Just have to celebrate a bit (Preview) Hello all, it's been some time since I have posted and even though I was going to wait until my one year anniversary of having completed the S/O therapy (July 4, 2014) I just had to share all the good news. Very quickly, HCV infection 1970, Liver Cancer and a liver transplant July 1999. Cirrohisis stag...	js	6	1179	Apr 17, 2015 by mallani
	strange sx (Preview) Hi everyone, I got back from Italy this week and there is now not a scrap of food left in the whole region! I ate so well and saw some wonderful things using all local transport (even climbing Vesuvius - not a serious climb but a milestone for me) saving myself more money for FOOD! One thing that I did not...	dragonfly	3	915	Apr 14, 2015 by mallani
	"Oh, by the way.."MRI One Year Later (Preview) Last year at this time a CT scan and MRI followup discovered a lesion in my cirrhotic liver that was showing a probability of 80% likelihood of cancer. Went from thinking I was perfectly healthy to: "You've had Hep C for about 40 years, your liver is cirrhotic, and oh, by the way, we think you have...	bassetgirl	10	1532	Apr 14, 2015 by Ro
	For all those at 1 year or coming up to it! (Preview) I am 5 weeks and 3 days from my EOT + 1 year lab work. The anxiety has begun already. It also got me thinking that this time last year I was entering week 7 of treatment and it was about this time that the Riba really had a hold on me. I remember marking days off one by one from the calendar (I had printed my own ca...	Enavigo3891	10	2094	Apr 9, 2015 by robertsamx
	My Hep C Journey (Preview) Hey guys.. I'm just going to write this with hopes it helps someone else along their journey and also have some closure with my own. Here's my story. I was 18 years old when I found out I had hep c. I went for some routine lab work and found my liver enzymes were high and they tested me for hep c. It was...	libgirl07	16	1923	Apr 9, 2015 by dragonfly
	all you warriors (Preview) Hi all , This post has been incubating in me for a while now , as I've browsed and then indulged in reading all the other posts that run through like a river of thoughts , bound by a common thread of challenge and fear and resilience , forward looking and then pulling from the shared past , always helping ea...	david a	7	1148	Apr 8, 2015 by 2willy
	8 weeks after EOT- UNDETECTED! (Preview) I was shaking when that email came in that my results were posted on my chart. Hoped for this but then was prepared for the worst. I was on the 8 week Harvoni plan and wasn't sure it was long enough. I will test again in another 4 weeks. For now I can breathe a sigh of relief. I feel blessed. This might br...	fourlocos	17	2690	Apr 1, 2015 by pl1952
	Undetected - SVR12 - Sovaldi and Olysio (Preview) All I can say is I am the luckiest girl, okay woman, in the whole wide world!!! Given my history I should be dead a few times over but here I am at 67 years with fairly good health and NO Hepatitis C. I'm really having a hard time believing it. It has been with me since I was around 22 years old. Unbelievable! N...	Rubye	21	1550	Mar 30, 2015 by sunrise
	Harvoni post test (Preview) I finished Harvoni 6 weeks ago Decided to do a 6 week blood . I cleared and failed Triple therapy a few years back so I am a bit on edge. Should get results tomorrow . If it only puts my mind at ease I suppose there is no harm in doing it now and again 6 weeks from now . Good luck to all of us	steelfire453	10	1289	Mar 27, 2015 by steelfire453
	I was und 14 weeks post eot... (Preview) Next month I go for my 24 weeks post eot labs to determine if I'm svr or not. Now I have that familiar ache in my liver. Not as bad as it used to be. Maybe im.just eating poorly. Anyway. Now I'm anxious. Wondering why she wouldn't consider me svr @ 12 weeks and if it's a sign it's back that my liver aches.	libgirl07	12	1757	Mar 26, 2015 by Bills
	Two weeks after treatment and not doing well ( 1 2 ) (Preview) I finished treatment with Sovaldi and Olysio two weeks ago and feel like I did around my 8th week of treatment when I thought about quitting. My arthritis is worse than ever and I'm having a really hard time moving, but what's worse is the nausea and fatigue. I feel worse than I ever have and don't know if i...	Rubye	50	6345	Mar 25, 2015 by sunrise
	At last, a holiday! (Preview) I have a procedure involving an endoscopy and a colonoscopy on Thursday and was feeling down because of things at work and the effects of the treatment which seem to have hit me hard. But today we have booked to go to Sorrento next Monday for a week and will see Vesuvius and maybe Pompeii. It seems like i...	dragonfly	2	758	Mar 24, 2015 by mallani
	How long for relapse window to close? (Preview) Does anyone know at what point the relapse window closes? 3 months, 6 months, 12 months. I have a doctors appt tomorrow and will find out the results of my 3month blood work. I am being positive, but, still have some fears lurking in the back of my mind. Since I am geno 2 I have no other options availabl...	Tess1971	14	1670	Mar 22, 2015 by RudiRoo
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