Hep C Discussion Forum

Doni · Doni

I finished my triple 12 week therapy with Sovaldi. I have taken my last pills on November 6th and had an RNA PCR test on the 24th of November. Awaiting for results. Doctor said I will take another PCR test 3 months later. I have a feeling that I have relapsed as I started having chills and fever, and some it...

Michaele · Michaele

Has anyone had any smudged WBCs on their CBC with Diff? Commom with blood cancers with high WBCs, But we dont have high WBCs. Its when fragile cells break, but is it common for cirrhotics with low counts, caused by marrow failure. MIchaele Happy ThanksGiving Goggle Gobble, Who is that? A turkey...

Tess1971 · Tess1971

Treatment for me has ended and I am "not detectable" after over four decades. I have NO after side effects, just feel good.the tired feeling I had for years even after a goodnights sleep is completely gone. Only been few days since I stopped meds, but, cheeks are already getting color bac...

mallani · mallani

Hi guys, I recently had my 12 month booster vaccination for Hep A and Hep B. After SVR, you may consider reviewing your antibody status for these two diseases. Previous vaccinations often do not confer lifelong immunity, and boosters may be required. I had Hep B vaccine in 1982, but when I was retested...

skewedButNotBroken · skewedButNotBroken

I just got back my viral load results for EOT + 5 weeks and they are still UND. As many of you know, I had to quit treatment early (at 6 weeks) because of chest pain and heart flutters. I still have minor chest pain and the flutters are still here but not as frequent as they were. I'm hoping and praying that my h...

sandypsych · sandypsych

Hi All I haven't been around for a bit, but we learned today that my husband has cleared the virus and is considered 'cured'!. He had his labs last week 12 weeks after completing treatment and was undetected. It was a long road, but certainly worth it. He says that he feels like he has more energy than h...

Lighthouse · Lighthouse

i have been on treatment 6months savoldi and RIBA geno 1b viral 1.2 million end treatment on 11/18/14 then two weeks later I take a blood test on 12/2/14 like two weeks later .....I thought my doctor said that on this date I would know if I was cured or not.Is this true?

RonH · RonH

This is my first post after treatment. My treatment ended on 11/11/2014 and the 12th was my blood test. It came back UND yesterday! Now the wait for SVR! Life is good today!

Omnamahshivaya · Omnamahshivaya

Today found out as of November 7, 2014 I'm still undetected and thus deemed CURED! I am beyond grateful! There's a cure for us all finally! I've been living with this since I was a little girl and I'm now a happy mother who has a huge weight lifted off my shoulders! I'm so grateful to my doctor who took hi...

Enavigo3891 · Enavigo3891

Hello everyone... It's been a while since I've signed in there's so many new faces. Very glad to see others have found this place. Yesterday was exactly 9 months since I started treatment and last Thursday was exactly 6 months since I ended treatment. So of course I was at the lab that day getting blood d...

skewedButNotBroken · skewedButNotBroken

Okay, for the mathematically inclined members you are right in thinking, "That does not compute!" Why? Because I stopped treatment at 6 weeks mainly because of the heart flutters. Before I started treatment I would have a flutter maybe once every 2 months. After the first 10 days of treat...

ss · ss

Hello I have Stage 4 Cirrhosis. Since It has been over 5 years is it possible it is healing itself?

bassetgirl · bassetgirl

I just got my 12 week after treatment viral load results: SVR!!!!!! I'm cured!!!!! I'm crying as I type this. Gender:female genotype 1a compensated cirrhosis treatment: 12 weeks Sovaldi/Olysio VL at start 2 million Comments: blood platelets have been around 60 since last spring, they are up to...

2willy · 2willy

Well hello all, long time since I posted a friend K reminded me so sorry not to have kept in touch, They said it would take a year and they were right everything back to normal, kidneys recovered and put a little weight back on. feeling fairly well. Almost finished with divorce she had walked out with 8 wee...

lozeaujo · lozeaujo

Hi everyone.. I just got my test results in from 6 month hep c test and its HEP C PCR, QUANTUndetected, Undetected - See Below IU/mLUndetected I have cirrhosis, compensated so hopefully i will get better. Heres blood test results from 4 months post treatment which are better then my previous test res...

kristi6 · kristi6

Hi everyone! Well,Good News! I'm 4 months post treatment now and undetected! Hep C Free!!! 48 wks was pretty rough. But, I knew it was only temporary, so that got me through. I didn't need any adjustments to my med's. My hemoglobin got to a low of 90, but I persevered, knowing it was almost over and that it...

TazKat · TazKat

got results from post 12 week test.. virus undetectable.. medl score 7. is that an ok number for cirrhosis? i'll keep doing a 6 month scan. so I don't go back til January.. God. Now to get the attorney general to look at my dad's case of my sis swhwindling him out of a million or more bucks.. so pray for that t...

Milliganus · Milliganus

I'm ecstatic to report that at EOT + 4 weeks I'm Undetected!! My energy is still really good. I'm again, cautiously optimistic that in the months to follow I'll remain undetected. Thanks to all of you for your support. You are a great group of people and it has been an honor to trudge the road with yo...

pizzacake · pizzacake

Last blood tests show Hep C virus as undetectable!! I am NOT complaining I just want to know if these are normal: -- It's been a week and a half and I'm more exhausted than when I was on treatment. -- The itching has reduced. -- I've noticed increased confusion and spaciness. -- I am not hungry (unusu...

mindovermatter · mindovermatter

Dear All, How are you all doing? Hope you are all fine. I took my LFT today. My Peginterferon/ Ribavarin treatment for GT 3 was over on 17th June 014. My bilrubin is high, AST and ALT are normal. What does this imply? I had taken Hepatitis B vaccine exactly a month back. Can that be the cause of the increase...

Pep · Pep

Finished three months of treatment 10/06/14 and hep c viral load is undetected. That is the good news. I was so looking forward to feeling better but I do not. My energy level sucks, I still hurt everywhere. Would like to hear from others post s /o treatment. How are others doing?

bassetgirl · bassetgirl

I thought it might be helpful to have a treatment outcome record on one thread. Tig suggested I start it in the post treatment section, so here it is. It would be easier to read results if each person uses pretty much the same format: what drugs they used for treatment, duration of treatment, liver stat...

lacey · lacey

Now I went through Hep C treatment in 2011/12 successfully. Before treatment I was experiencing all over to the bone aches and tendon / muscle sore spots that I associated with the Hep C. The pain and stiffness escalated after treatment and just this week I was diagnosed with fibromyalgia. I was so o...

thepoet · thepoet

I am quite concerned. I had my eot labs done yesterday and while I remain undetected, my ALT is 46 and my AST 172. What does all of this mean? Any wisdom?

thepoet · thepoet

Yesterday was to be a day of celebration. After 24 weeks on Sovaldi and Ribavirin, I took my last dose at 9am in the Charleston Int Airport on my way to NYC. What joy I felt to have completed the treatment and that now I would not have to be on that 9am regimine anymore. However, as the plane took off, my stoma...

Dzdayscomin · Dzdayscomin

So I have been kicking around the idea of retiring early......being I have primary liver cancer I believe I qualify for the Compassionate Allowance with the SSDI I have a substantial 401k balance and wondering if anyone knows what obstacles I would run into? I believe I may be able to take distributio...

newmex · newmex

Finally finished up 48 week with teleprevir, riba and interferon. Ahh am so happy to be over that. Looks good though, one week eot, and test shows undetected, all blood work back in normal ranges except for platelets. Been undetected for 9 months so,...... hopefully that's a good sign for svr. Good l...

Peter M · Peter M

I am totally thrilled and psyched. I have been set up for another VL in 12 weeks and then an annual VL after that. The treatment was a walk in the park. I started to feel better within weeks and had my energy back after about a month. The difference was night and day! I still get fatigued now and again (I have...

js · js

Labs came in today, EOT +12 VL...UND! I must be living right having gotten this far. I was rather concerned about being hard to treat, liver Xplant '99, compensated cirrhosis F4 fibrosis, and grouchy. The only fly in the ointment is the level of immune suppresant is rather low and I may have a little...

patiently_waiting · patiently_waiting

Just got my PCR results back today for 5 weeks post treatment. Still UND! I know the 12 week mark is the official SVR mark, but I already know I have this thing beaten.

Topic		Started By	Replies	Views	Last Post
	I think I have relapsed (Preview) I finished my triple 12 week therapy with Sovaldi. I have taken my last pills on November 6th and had an RNA PCR test on the 24th of November. Awaiting for results. Doctor said I will take another PCR test 3 months later. I have a feeling that I have relapsed as I started having chills and fever, and some it...	Doni	15	1852	Nov 28, 2014 by RonH
	smudged cells on CBC with Diff (Preview) Has anyone had any smudged WBCs on their CBC with Diff? Commom with blood cancers with high WBCs, But we dont have high WBCs. Its when fragile cells break, but is it common for cirrhotics with low counts, caused by marrow failure. MIchaele Happy ThanksGiving Goggle Gobble, Who is that? A turkey...	Michaele	7	2517	Nov 27, 2014 by LC
	Treatment Over (Preview) Treatment for me has ended and I am "not detectable" after over four decades. I have NO after side effects, just feel good.the tired feeling I had for years even after a goodnights sleep is completely gone. Only been few days since I stopped meds, but, cheeks are already getting color bac...	Tess1971	14	1511	Nov 27, 2014 by Milliganus
	Don't forget Hepatitis A and B (Preview) Hi guys, I recently had my 12 month booster vaccination for Hep A and Hep B. After SVR, you may consider reviewing your antibody status for these two diseases. Previous vaccinations often do not confer lifelong immunity, and boosters may be required. I had Hep B vaccine in 1982, but when I was retested...	mallani	21	2968	Nov 27, 2014 by 2willy
	EOT + 5 weeks UND (Preview) I just got back my viral load results for EOT + 5 weeks and they are still UND. As many of you know, I had to quit treatment early (at 6 weeks) because of chest pain and heart flutters. I still have minor chest pain and the flutters are still here but not as frequent as they were. I'm hoping and praying that my h...	skewedButNotBroken	6	1006	Nov 25, 2014 by Milliganus
	Update and happy news! (Preview) Hi All I haven't been around for a bit, but we learned today that my husband has cleared the virus and is considered 'cured'!. He had his labs last week 12 weeks after completing treatment and was undetected. It was a long road, but certainly worth it. He says that he feels like he has more energy than h...	sandypsych	7	1131	Nov 24, 2014 by Harvoninme
	When do you know? (Preview) i have been on treatment 6months savoldi and RIBA geno 1b viral 1.2 million end treatment on 11/18/14 then two weeks later I take a blood test on 12/2/14 like two weeks later .....I thought my doctor said that on this date I would know if I was cured or not.Is this true?	Lighthouse	6	1364	Nov 24, 2014 by Tess1971
	After treatment (Preview) This is my first post after treatment. My treatment ended on 11/11/2014 and the 12th was my blood test. It came back UND yesterday! Now the wait for SVR! Life is good today!	RonH	7	1205	Nov 24, 2014 by 2willy
	CURED! THANK GOD, MY DOCTOR, GILEAD, and this FORUM FRIENDS (Preview) Today found out as of November 7, 2014 I'm still undetected and thus deemed CURED! I am beyond grateful! There's a cure for us all finally! I've been living with this since I was a little girl and I'm now a happy mother who has a huge weight lifted off my shoulders! I'm so grateful to my doctor who took hi...	Omnamahshivaya	19	1838	Nov 15, 2014 by Omnamahshivaya
	6 month post labs are in.... (Preview) Hello everyone... It's been a while since I've signed in there's so many new faces. Very glad to see others have found this place. Yesterday was exactly 9 months since I started treatment and last Thursday was exactly 6 months since I ended treatment. So of course I was at the lab that day getting blood d...	Enavigo3891	6	1206	Nov 13, 2014 by bassetgirl
	EOT + 22 days UND (Preview) Okay, for the mathematically inclined members you are right in thinking, "That does not compute!" Why? Because I stopped treatment at 6 weeks mainly because of the heart flutters. Before I started treatment I would have a flutter maybe once every 2 months. After the first 10 days of treat...	skewedButNotBroken	6	1184	Nov 12, 2014 by Tig
	Stage 4 Cirrohsis (Preview) Hello I have Stage 4 Cirrhosis. Since It has been over 5 years is it possible it is healing itself?	ss	9	2148	Nov 10, 2014 by 2willy
	I'm cured. (Preview) I just got my 12 week after treatment viral load results: SVR!!!!!! I'm cured!!!!! I'm crying as I type this. Gender:female genotype 1a compensated cirrhosis treatment: 12 weeks Sovaldi/Olysio VL at start 2 million Comments: blood platelets have been around 60 since last spring, they are up to...	bassetgirl	23	2002	Nov 9, 2014 by 2willy
	One year post treatment (Preview) Well hello all, long time since I posted a friend K reminded me so sorry not to have kept in touch, They said it would take a year and they were right everything back to normal, kidneys recovered and put a little weight back on. feeling fairly well. Almost finished with divorce she had walked out with 8 wee...	2willy	10	1796	Nov 9, 2014 by 2willy
	Im cured!! 6 month hep c test in.. (Preview) Hi everyone.. I just got my test results in from 6 month hep c test and its HEP C PCR, QUANTUndetected, Undetected - See Below IU/mLUndetected I have cirrhosis, compensated so hopefully i will get better. Heres blood test results from 4 months post treatment which are better then my previous test res...	lozeaujo	12	1611	Nov 6, 2014 by Sierrajen
	Slayed another Dragon!!! (Preview) Hi everyone! Well,Good News! I'm 4 months post treatment now and undetected! Hep C Free!!! 48 wks was pretty rough. But, I knew it was only temporary, so that got me through. I didn't need any adjustments to my med's. My hemoglobin got to a low of 90, but I persevered, knowing it was almost over and that it...	kristi6	17	1728	Nov 5, 2014 by 2willy
	OMG OMG Doing happy dance (Preview) got results from post 12 week test.. virus undetectable.. medl score 7. is that an ok number for cirrhosis? i'll keep doing a 6 month scan. so I don't go back til January.. God. Now to get the attorney general to look at my dad's case of my sis swhwindling him out of a million or more bucks.. so pray for that t...	TazKat	30	2011	Nov 4, 2014 by Sierrajen
	EOT +4 results in..... (Preview) I'm ecstatic to report that at EOT + 4 weeks I'm Undetected!! My energy is still really good. I'm again, cautiously optimistic that in the months to follow I'll remain undetected. Thanks to all of you for your support. You are a great group of people and it has been an honor to trudge the road with yo...	Milliganus	10	1010	Nov 1, 2014 by RudiRoo
	Did you experience these side effects post treatment? (Preview) Last blood tests show Hep C virus as undetectable!! I am NOT complaining I just want to know if these are normal: -- It's been a week and a half and I'm more exhausted than when I was on treatment. -- The itching has reduced. -- I've noticed increased confusion and spaciness. -- I am not hungry (unusu...	pizzacake	35	2622	Oct 31, 2014 by Dzdayscomin
	Normal AST , ALT, high bilrubin, hep B vaccine (Preview) Dear All, How are you all doing? Hope you are all fine. I took my LFT today. My Peginterferon/ Ribavarin treatment for GT 3 was over on 17th June 014. My bilrubin is high, AST and ALT are normal. What does this imply? I had taken Hepatitis B vaccine exactly a month back. Can that be the cause of the increase...	mindovermatter	7	1507	Oct 29, 2014 by Cinnamon Girl
	Post Solvolti Olysio treatment (Preview) Finished three months of treatment 10/06/14 and hep c viral load is undetected. That is the good news. I was so looking forward to feeling better but I do not. My energy level sucks, I still hurt everywhere. Would like to hear from others post s /o treatment. How are others doing?	Pep	3	1039	Oct 26, 2014 by Fireman Rob
	Treatment Outcome Thread: SVR or Relapse (Preview) I thought it might be helpful to have a treatment outcome record on one thread. Tig suggested I start it in the post treatment section, so here it is. It would be easier to read results if each person uses pretty much the same format: what drugs they used for treatment, duration of treatment, liver stat...	bassetgirl	26	3854	Oct 25, 2014 by Huey
	Hep C and Fibromyalgia (Preview) Now I went through Hep C treatment in 2011/12 successfully. Before treatment I was experiencing all over to the bone aches and tendon / muscle sore spots that I associated with the Hep C. The pain and stiffness escalated after treatment and just this week I was diagnosed with fibromyalgia. I was so o...	lacey	2	1065	Oct 23, 2014 by lacey
	Lopsided (Preview) I am quite concerned. I had my eot labs done yesterday and while I remain undetected, my ALT is 46 and my AST 172. What does all of this mean? Any wisdom?	thepoet	3	1555	Oct 23, 2014 by thepoet
	Last Day of Treatment and.....UGH (Preview) Yesterday was to be a day of celebration. After 24 weeks on Sovaldi and Ribavirin, I took my last dose at 9am in the Charleston Int Airport on my way to NYC. What joy I felt to have completed the treatment and that now I would not have to be on that 9am regimine anymore. However, as the plane took off, my stoma...	thepoet	10	2069	Oct 20, 2014 by thepoet
	Thinking about retiring early and questions. (Preview) So I have been kicking around the idea of retiring early......being I have primary liver cancer I believe I qualify for the Compassionate Allowance with the SSDI I have a substantial 401k balance and wondering if anyone knows what obstacles I would run into? I believe I may be able to take distributio...	Dzdayscomin	9	1202	Oct 19, 2014 by Huey
	so far so good (Preview) Finally finished up 48 week with teleprevir, riba and interferon. Ahh am so happy to be over that. Looks good though, one week eot, and test shows undetected, all blood work back in normal ranges except for platelets. Been undetected for 9 months so,...... hopefully that's a good sign for svr. Good l...	newmex	5	961	Oct 19, 2014 by Huey
	Another S/O SVR!!!! (Preview) I am totally thrilled and psyched. I have been set up for another VL in 12 weeks and then an annual VL after that. The treatment was a walk in the park. I started to feel better within weeks and had my energy back after about a month. The difference was night and day! I still get fatigued now and again (I have...	Peter M	22	2048	Oct 15, 2014 by maddie
	SVR +12 !!! (Preview) Labs came in today, EOT +12 VL...UND! I must be living right having gotten this far. I was rather concerned about being hard to treat, liver Xplant '99, compensated cirrhosis F4 fibrosis, and grouchy. The only fly in the ointment is the level of immune suppresant is rather low and I may have a little...	js	11	1603	Oct 11, 2014 by Huey
	5 weeks post treatment with Sol/Oly, UND (Preview) Just got my PCR results back today for 5 weeks post treatment. Still UND! I know the 12 week mark is the official SVR mark, but I already know I have this thing beaten.	patiently_waiting	11	1135	Oct 10, 2014 by Gator Man
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