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Update - five plus years UND and going strong.
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Hi everyone, its nice to see the forum still thriving. It certainly was a source of strength for me, and even though a cure for Hep C is now everywhere, I think anyone going through treatment and its aftermath could use the loving support here. I am doing well. I still get a screening every six months,...
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Millercollaborative
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5
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2137
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New Cures, Incredible!!
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I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...
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news
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0
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1796
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My dr released me!
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My most recent labs were again perfect in every aspect. My dr said "you are CURED!" and told me no need to go back. She said no need for most tests for SVR proof and I was good to go on anything. Except tattoos and piecrings. She said don't put yourself at risk for getting it again. From what others say,...
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Karyl
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7
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2119
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Resuming supplements after EOT
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My EOT date was October 18, my 12 week SVR blood draw will be January 2. I would really love to resume taking supplements, especially ALA-ALCAR (acetyl l-carnitine plus alpha lipoic acid acid) for chronic fatigue, and S-adenosyl-L-methionine (SAMe) for joint pain and depression. What did your d...
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Hoodietree
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14
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2297
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Post Epclusa problems
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Hi all, i have been off Epclusa for 6 weeks and am experiencing some not so nice problems. I have developed bursitis in both shoulders, my arthritis is worse, achy muscles, tiredness and lack of energy and now have alergies i never had before. I have never been bothered with allergies before taking tre...
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woodytwoshoes
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10
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3628
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Checking in
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Hi guys. Long time since I posted. Now 5 years post SVR and virus free. LFT's are normal. Still have followup Ultrasounds every 9 months. All good- no HCC, and my cirrhosis is becoming hard to see. Apart from a major heart attack just over a year ago, no complaints. I've recovered well, stopped smoking a...
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mallani
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12
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1814
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Re infection
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Hey guys, I'm freaking myself out right now. I was real careful about changing out my razor and toothbrush a couple times during treatment, but tonight without thinking I used my water pic with the bristle attachment. It's the only attachment I use on it. But i haven't used it for the whole time of Tx. S...
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Iris Dragonfly
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17
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3889
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gallstones
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after 23 years i am living the hep c free life. Just got a clear scan, but I now have gallstones.... any experience anyone?
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JLynch30
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11
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1795
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Finished mavyret 5 weeks ago, having issues
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Hi everyone I have just recently joined up as I needed some support and decided I should speak to people who share my burden.
Im from Scotland and I reckon I have had hep c since I was 21, I am now 32, I am genotype 3.
I finished 8 weeks of treatment with mavyret 5 weeks ago today. My Fiboscan score before t...
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james_mc85
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46
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3469
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Baseline Fibroscan 2 years later.
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Hello all it's been awhile. I never had a fibroscan before I did the Harvoni and now it's been 2 years SVR and my doctor decides he wants to do one I think they just got the machine in their office and need to pay for it. I have had ultra sounds and they have come back with normal results. All else is normal as fa...
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Sieb
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10
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2492
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SVR 128
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Hi Tig and All, I have been terribly busy with life & work, and have not posted much. But I still read, and I am happy , so many people are cured and doing great. well, another 6 month US and bloods, my doc actually did a viral load, unsurprisingly undetected... My 12.3 cm spleen was again tagged as "sli...
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movebo
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8
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2264
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5 years post tx
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Hi all, I met with my gastroenterlogist last Monday. I figured that he would be telling me that after 5 years he would be concluding the traking of my case. Instead, he ordered another round of labs, including the PCR test for the Hep C virus. Results don't look bad: Of course, the bast news of all, i...
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hrsetrdr
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15
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3497
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Cirrhosis and low platelet count
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I have not been on this forum for a while now, but my husband is still Hep C free after completing treatment just over a year ago. His cirrhosis caused portal hypertension and he did have esophageal banding for varices about 2 years ago (just before starting treatment). His platelets are about 50 and re...
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Susie1
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2
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2285
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I was not expecting this.
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Greetings, Carol had her six month follow up to monitor for liver Cancer. This due to the fact that she was considered an F-4 prior to SOT. The Liver Stiffness test came back F<0.  They are saying the contour "suggests" cirrhosis, but that is it. This is insanely good news! I am a bit ....
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JimmyK
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11
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4603
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12 Months Post but not over yet
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Hi all hope you good people are well especially those who helped me nail this dragon . i have had my 12 month obbs and all is good appart from weight gain not over the top but from normal 75 kg to 80 kg and reminded that my liver is still damaged .i have a lot of work to doo it seems i am wondering if anyone had some...
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Lawmatt
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18
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3725
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FOUR YEARS!
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Hello old and new friends - Happy Friday to you all. So this coming Monday 2/11/18 marks the 4 year anniversary of the day I began my Sovaldi/Riba journey. And 84 days later I was tired, weak, and angry (RibaRage)... but I was UND. I posted a few weeks ago that I hadn't had my annual check up at the liver spec...
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Enavigo3891
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3
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2610
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The waiting, is the hardest part
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...after my final EOT labs, which were collected yesterday. Everything, excepting my weary kidneys look good. My GFR dropped to 45, Creatinine 1.57, so that needs some work. Ive had crummy GFR numbers before and improved them to over 60 again, by being more vigilant about Drinking Water, which I adm...
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LamontCranston
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16
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3090
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Done, done, done, done
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Hopefully I am done with HepC2b for good. Last Epclusa was Monday the 16th. My labs have shown No Virus Detected since 4 weeks. Wow. Sure is nice to be posting in the Post-Treatment section...:) I have 2 more labs scheduled, Nov 20 and Jan 18 in the new year. Fingers crossed that I will be Free Of C.
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LamontCranston
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13
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4084
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EOT Undetected UP YOURS DRAGON!!
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well....I'm here in post treatment....is that right? EOT Undetected again... https://goo.gl/images/1XS8Qt my results today show Alt levels went from 190 (0-50 range) in October 2016 and are now at 17 they said my bloods were all good so now have to wait until October for next draw. I have no liv...
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Jaggles
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42
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5795
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Hey Strangers
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Hey there old friends! I think of you often and figured I would just drop in and tell you all that! It's hard to believe it's been almost 4 years since I treated - crazy how fast time goes. Interestingly my doctor didn't test me this past May like he had the 2 years prior. I was tempted to ask for the test any...
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Enavigo3891
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3
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2211
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5 point drop in Fibroscan following 2 years SVR
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Just thought I'd share my encouraging news that 2 years on from successful treatment I had a fibroscan today... And I am now 9.2 down from 14.2 4 years ago. Not sure what to read into this but its much better than the news of old when every trip to the hospital would end in bad news! -- Edited by Midnight on Mo...
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Midnight
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4
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2506
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Completed treatment of Epclusa and Ribavirin and have SVR at 12 weeks
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Hi everyone, Tig you had asked me awhile back what meds I was on in the clinical trial I was in last year. And I didn't know. Well I found my card that they gave me with the information on it!! The product numbers are MK3682 and MK8408. It also says protocol number MK3682-035. If that means anything. Do you...
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Mary
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4
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2166
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My yearly
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I went for my yearly bloods and ultrasound. The ultra sound came back with a dilated common bile duct. ( think I remember it always being like that) My hepc Doctor wanted a mri. All came back normal. I had all the blood work but before I went back he added another viral load test even though the one I had cam...
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Scruffy
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9
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3426
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just had liver tumor ablated by RF
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I hope that I'm posting this in the proper place and if not, then maybe the mods could move it. Hi all!! Been away for a while dealing with a tumor that they found on my liver. I was seeing another GI doc about a colostomy and other issues and on one of the ultrasounds [that I requested] the radiologist sug...
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VetwithC
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19
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5520
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Alcohol after successful treatment.
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http://www.hepatitiscentral.com/news/having-a-beer-after-svr/
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Paul B
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40
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7862
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Joint Problems After Treatment
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Hello all, It's been a while since I've posted. I'm 2 years 11 months post treatment and I'm starting to develop joint problems--back, thumb, wrist, and knee, etc. I'm starting to wonder if these problems are related to treatment? I know many will say, well you're getting on up in age, but my dad who is 8...
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skewedButNotBroken
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9
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3618
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Checking in
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Just stopping by to say hello. 18 months zero hep. Just want to tell all to keep up the good fight! G out!
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G Man
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5
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2666
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Just wanted to say Thank you.. ^_^
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Hello everyone, I just wanted to say Thank you to all of you, from the bottom of my heart. It has been 3 days since my last dose of Epclusa, and I have a doctor's appointment to get my results on October 13th. Three months ago, when I first started treatment, I was so scared, and I didn't know what to do or wher...
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legionscube
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5
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2302
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hay y'all. Doc said I'm cured. I didn't want to argue about it...but does SVR = cured?
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Greetings my C friends. I've been out of touch for a while, hope you are all doing well. I'm doing very well. From an email I received from my C specialist: "On June 29, 2017 there was no Hepatitis C virus detected. This is a cure." Wow. Thank you all for the help, information, and guidance given. I know, it...
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JamesP
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4
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2684
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EPCLUSA/RIBA FOR THE WIN!
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So...I just got the call from the liver clinic saying my 12 week post-treatment labs showed HCV RNA "Not Detected" - hallelujah! I still feel (and worse, look) like a human water balloon, and am feeling a bit of disbelief that the virus is really gone (and fearful that it won't stay that way). Now to de...
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BetterLate
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6
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3016
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