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Trial Offered
(Preview)
Hi Peeps, I have been asked to take part in a clinical trial of a "New" Drug GS7977 with Riba. It will be over 24 weeks and is aimed at Type 3 non responders, like yours truly. The trouble is it is blind, You will be split into 4 groups, 3 will have the drugs, one will have Placebo's. I am unsure abou...
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Steve-o
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14
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1451
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i am so much worse after incivek i wish I was dead. i am not a troll.
(Preview)
previously i was a double null. peg-intron. 2000 & 2003. second treatment almost died. i developed septicemia with excrutiating pain in my perineum. 106 peak fever and sustained 101.0 -103.0 temp. was in dallas med. city 9 days. i was treated for hep c 1b one year ago. six months since i stopped. i...
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Achmed
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3
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1281
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No Meds Monday!!
(Preview)
I just finished up my 12 week clinical trial Friday. My last shot was the week before, and my last 7977 and riba were Friday morning. I have no idea yet how my results are, and will probably not find out for a month or so, when all participants finish, but I have to say that this morning I fell the best I hav...
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Rockyfeller
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9
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1028
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Liver after failed triple therapy
(Preview)
Does your liver get worse if you can't accomplish SVR after triple treatment?
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52baddog
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4
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1879
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I have achieved SVR
(Preview)
Hey all, Just got a call from my nurse practitioner, my viral load is all zeros six months out from TX, I have achieved SVR. I made it. She told me that I am the first in her office to achieve it with Incivek. Oddly, I feel a bit of guilt because of those I have met on the forum that had to quit tx or had not been a...
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Shaun
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25
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1483
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more great news to add to Judy & Tim!!
(Preview)
Welll, it is a great day on this forum! I just got the results from my blood test last week which was 5 weeks post treatment. I tested negative for Hep C and for the first time since I can remember in 1998 my liver enzymes were within normal limits!! :) My hemoglobin is at 12 and my doctor said "no won...
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LanaiSurferGirl
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12
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1259
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surrogacy and Hep C
(Preview)
Now that I have one medical treatment under my belt, my husband and I are looking into surrogacy because I am unable to have children. However, with the hep C antibody in place still in our blood does anyone know if this is possible? I am waiting to hear back from the agency. Basically, I would take fe...
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LanaiSurferGirl
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2
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800
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Post TX aches & pains
(Preview)
Hi all, life is getting better(but slowly) since halting treatment a month ago, energy level is a bit more elevated, flu-like symptoms still wash over my body from time to time. Rash is about 99.999% gone....but not forgotten! Sometimes a hot shower will cause the psoriasis-like lesions to pop o...
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hrsetrdr
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9
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1549
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Another Battle Coming my way
(Preview)
The other night i ended up in the ER, Bp through the roof, pulse 130 and some unexplained bleeding.I would rather not go into details as of now until i see the GI dr again, however a CT scan was done and everything looked normal.Also the dr said my CBC looked great so i will follow up w/ GI dr about the other is...
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jrc
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8
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1098
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Donate unused meds?
(Preview)
On Monday Aug. 6 I received my 30 day supply of Pegasys,Riba and Victrelis; two days later my treatment was halted. The pharmacy clerk told me that it's against Federal law for them to take back meds, once they have left the pharmacy. I'd be happy to donate these meds, in perfect condition, packag...
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hrsetrdr
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16
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1518
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I win!!!!
(Preview)
Six month Heptimax came back... SVR!!! To all of you, I want to say thanks, especially the moderators. I expect I will always be checking in to this forum. It was my life-line for many months...an experience I could never forget. Good luck to all... Brad
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krowdog
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26
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1348
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Will we still test Positive after SVR?
(Preview)
After attaining SVR, I imagine we will still test Positive for Hep C due to the antibodies that stay in our system. Is that correct? So when looking for a new job (I'm in the health-care industry) I suppose I should mention that I went through tx, yes? I'm so far UND post-tx but won't know if I've attain...
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Judy S
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29
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2668
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Rheumatoid Factor test
(Preview)
I wanted to mention this because many of us are complaining of new pains post-tx. I'm nearly 6 wks post-tx and have some issues with my neck, arm, and back. Went to dr last week and he gave me another Rheumatoid Factor test. RF tests for rheumatoid arthritis. However, it can show positive if a patient...
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Judy S
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1811
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4 WEEKS STILL DETECTABLE
(Preview)
HI MY HUSBAND IS DETACABLE AT 4 WEEKS BUT VL AT 24 DOES THIS MEAN SOMETING DR WANTS TO SEE WHAT HAPPENS AT 12 WEEKS ANYBODY GETTING THE SAME ON FOURTH WEEK THANK YOU ALL
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ss
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15
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4761
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All's going well.
(Preview)
OK so I'm 1 month and 5 days post tx and I'm feeling really good. If you're in the middle of it, at the beginning of it, struggling at the end of it, take heart, it gets better. I'm psyched to have a life again and not really stressed over my future bllod work. I'm doing good today and that keeps me going for t...
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Scout
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6
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951
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24 Weeks and cruising
(Preview)
The camping trip was excellent, went climbing this morning, and my 24 week blood work reveal UND, AST 25, ALT 40, Platlets low @85 but I can deal with that. So next test 3 months from now and on to SVR. Onward and upward. -- Edited by Scout on Tuesday 21st of August 2012 09:32:56 PM
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Scout
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13
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1256
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Cycling In the Rain
(Preview)
Just got back home from a 28.5 mile bicycle ride with two friends. We did the ride in a little over two hours of riding time, three hours including stops. The last seven miles were in rain. The last three miles were in a frog strangler, gully washer thunderstorm, which soaked everything. Nobody hurt, an...
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news
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1110
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4 weeks post tx
(Preview)
Just got the Quantitative part of the 4-week post-tx labs back. Still UND!!!! Everything else is now within normal range except WBCs still low and RBCs just a tad low. My 2 liver enzymes (ALT and AST) have been down in the teens. I am So happy and hopeful! If I keep seeing UND on my labs until Feb 2013, I...
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Judy S
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12
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1212
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Last Box
(Preview)
Just ordered my last box of inciveik.Wahoooooooooooooo. Ken
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packerfan24
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5
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869
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First post-tx doc visit
(Preview)
Hey All--went to see the doctor today and had a really great visit. He opened up to me about how thrilled he is to finally see consistent success in his Hep C patients. He has been doing this since the first tx --he said it made him happy that he choose medicine. It was a great moment--then we had to talk abou...
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Shep
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14
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1631
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Some UND news
(Preview)
I halted tx after shot 16, and am 5 weeks post treatment; got some encouraging news this morning: I know that the chances of staying UND until the next VL labs are slim, but today I shall take this as one small victory and rejoice! -Tim
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hrsetrdr
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18
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Hey Guys been awhile got a questins avout itching after treatment
(Preview)
i have been itching like crazy. seems everywhere. i am also on NO hormones. i went to skin doc because i started itching til i got little sores. he gave me steroid cream, then went to a reg doc & he gace me a cream & antibiotics that seem to clear SOME of it up. my head itches, feet, legs stomach.. fre...
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TazKat
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11
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2418
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Are we cured?
(Preview)
If svr is achieved are we cured? When filling out info for, say dentest or other med info do we check hep? sorry if this has been asked brian
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bstanga
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18
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1691
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I'm off treatment
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1 2
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(Preview)
I made a HUGE decision this morning at 8:00. I'm stopping treatment. I did take my 7:00 am meds, but I will not take anymore. I've done 23 weeks of treatment; my body cannot take anymore; I feel I am dying. Yesterday morning I got my first break from the physical and mental torture; I woke up feeling go...
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Judy S
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71
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24 weeks after tx update - post experiences here
(Preview)
Just counted my weeks and...yep, passed 24 weeks last Friday. I'll have to check in with my nurse since my blood test was scheduled for October.This is life for me after Hep C:1) I don't wake up tired anymore. I don't drag my feet out of the house and simply put...I feel ready for the day and its challenges...
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wnose
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6
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1028
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Normal Liver Function with A Overactive Immune System 4 Months Post Treatment
(Preview)
I took some new blood test about 4 months post treatment. They didn't test for viral load as they believe at Cedars-Sainai that SVR is achieved at 6 months post treatment. My results showed that my liver function is finally normal BUT my immune system is freaking out (overly-active). All of my doctors...
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Derekrex
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4
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1122
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Peripheral Neuropathy
(Preview)
Anyone have experience of whether it typically goes away post treatment?
Thanks! Dave
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davesf
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3
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1063
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Thyroid problems after treatment: Graves Disease
(Preview)
Hi Everyone, Thought I'd pop my head in and say G'Day. It's been over a year now after my treatment and during the last 6 months or so I've been feeling a bit odd, (I'm normally quite odd anyway). I have been loosing weight, hot flushes hyperactive, really stressed out, hands shaking to name a few. Anyway...
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Greg
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12
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2370
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Out and about!
(Preview)
Well finally got out the old bike and took a short ride. It was a beautiful morning--it was a little tough but and the last hot winds of Issac were trying to blow me off course--but I did it. It felt so good! Really did my body, mind and heart good--the heart has taken a beating this year. Didn't realize how m...
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Shep
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1
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754
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Who is 1B with Cirrhosis
(Preview)
Sept 7 is my last day of interferon and Sept 13 is my last day of Ribo ( can;t wait) Anybody out there with 1b with Cirrhosis? On Treatment and or POst Treatment. WHen getting off this crap how does everybody feel? ANy new side effects will i be back to normal when I am off this stuff ? If anybody can give me adv...
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ss
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