Hep C Discussion Forum

xtra · xtra

I had all the test done which costs my insurance company a bundle. All test must be done within 90 days of submission. I have severe fibrosis, although I don't have the test scores yet. I am very close to cirrhosis, the doctor wants to start Harvoni immediately BUT my insurance will not give me the drugs f...

frannie58 · frannie58

HAS ANYONE ELSE HAD TERRIBLE INTESTINAL ISSUES? I am so sick in my tummy all the time. I am on treatment but these things popped up before treatment. I have gas, bloating, rolling feelings, gnawing feelings. I did have my gal bladder checked. On a scale of expulsion with 30% being normal mine is at 24%. N...

Stormy · Stormy

Curious about exercise and hep c. Although I have been walking on a treadmill for many years I just don't have any stamina. I took a pilates class last year and could not hack it. ten minutes in, I would get nauseous, lightheaded and a weird sweat on my forehead, blood pressure spikes the rest of the day an...

Iris Dragonfly · Iris Dragonfly

I read this in my local newspaper the other day. I fear this may be the new trend of insurance companies, and the fact USC told me last year they were only treating 3rd and 4th stage patient's is now making sense to my medical insurance mind. I have crap insurance so they won't accept me in the treatment pr...

lisalaing · lisalaing

Please share with all of your networks! we need 53 more people! If you want to participate in the survey for 30 mins and an incentive of $35 dollars click on the survey below! Requirements co infected Hep C with renal problems Please share with all of your social networks !!!!! Attention people in...

Iris Dragonfly · Iris Dragonfly

Well, I got a call at work today from my Dr.s nurse. She wanted to tell me I finally have an apt. at the hospitals infectious diseases dept., on the 15th. Wow....I think I have waited for about 2 years for this. Now i'm a little freaked out and incredibly anxious. Iris

Peter M · Peter M

TUESDAY, MARCH 24, 2015 Using Ledipasvir/Sofosbuvir in Cirrhotic, Treatment-Experienced GT1 Patients: 12 Weeks With Ribavirin or 24 Weeks Without? Using Ledipasvir/Sofosbuvir in Cirrhotic, Treatment-Experienced GT1 Patients: 12 Weeks With Ribavirin or 24 Weeks Without? Ira M. Jaco...

Enavigo3891 · Enavigo3891

I would love to get my hands on the underwriting guidelines for the company that provides Life Insurance through my employer. I currently have 2x my salary and last year (in anticipation of purchasing my home) I attempted to raise my life insurance amount. I completed the statement of health and the...

rebeca · rebeca

Hello friends, Long time since I wrote in this forum. Last time, in September, my doctor told me they had got Simeprevir/ribavirina / interferon,to treat some people, but not for me, just to F3, F4. During those months Gilead and the Government have been in conversations, and the Health minister sa...

Zlikster · Zlikster

I just got back from my hepa. She told me that Gilead definetly won't consider any discounts for Bosnia, since they do not consider Bosnia as an 3rd world country. I can't get that mindset. We got 44% unemployment rate. GDP PPP is round 8k$. We just had devastating floods that ruined half of the country a...

Zlikster · Zlikster

Gilead responded to my email about it's clinical trial (http://clinicaltrials.gov/ct2/show/NCT01962441). 3 arms (Sof+Riba 16w, Sof+Riba 24w, Sof+Riba+Peg 12w) are strictly randomised, so i can apply, but if i end up in interferon arm, then it's a no go for me :( I need to be for the full duration...

Harvoninme · Harvoninme

Loved thisCan My Liver Feel Pain?

Michaele · Michaele

I talked to the person handling my request and was told they only received 4 pages of lab results, no clinicals or biopsy reports, ultra sounds or statement to the effect that I am F4. She had talked to Nell who gave her the rush on the phone. She told me, had Nell even said over the phone that I was F4 she c...

Gracie · Gracie

So I got my latest Bloodwork tests back, and I'm unsure of what to think. Platelets seem low at 82 and AFP is high at 11. The rest looks ok. Any ideas of what might be going on? Isn't AFP a tumour marker And why is my liver profile normal? Isn't 82 quite low for platelets While off treatment for so long. Also h...

RonH · RonH

We all need a good laugh once in a while! I was reading my labs late one night When my eyes beheld an eerie sight For red dots from my skin began to rise And then suddenly to my surprise I had the rash I had the riba rash The riba rash It makes me want to smoke hash I had the riba rash It covered me in a flash I had the r...

Bombeni · Bombeni

For more than a year, I have a deep pain in my right armpit that comes on for several days at a time then goes away for awhile. Does anyone else have this symptom?

Trainhopper · Trainhopper

Hey good people, It's been a few days since I was last on. Things have changed a little as far as pinning down what is giving me H.E. like symptoms. I had a Lumbar Puncture (spinal tap) E.E.G., and C.T. scan 2 weeks ago and just got the results this morning. So its a reiteration of whats been suspected. The r...

rebeca · rebeca

Hi friends, Im glad that using Sovaldi is already common in USA , (Although,I know that many people can not access it,without health insurance). Here in Spain, in July, the government said that he had an agreement to buy simeprevirtreatment of 3months, for 25000 Euros, (Peg /Ribseparately)...

Anon4This · Anon4This

I have a general question about what and who to disclose one's HCV status to. I have had genotype 1 Hep C since 1980. I got it in a blood transfusion back in the days when it was called "Non-A Non-B". I've been really good about following medically for it, and currently see a fantastic docto...

Dzdayscomin · Dzdayscomin

Do You still Tell them you have HVC..? Or do you no longer have to report it?? i mean do we still report to the nurse and Dr. That you've had it but successfully complete tx and are cured? This would more apply to a dentist or podiatrist if you now what I mean....what about insurance and filing for it e...

Doni · Doni

I have been having fatigue on and off, but lately I started having this itching, which is not very intense but disturbing. Does it mean that my liver disease is progressing? -- Edited by Doni on Wednesday 23rd of July 2014 08:04:19 AM

Zlikster · Zlikster

Got my PCR today, 132k IU/ml. Knew something was wrong when i saw high ALT numbers. So i am now off to diet and ultrahealthy life until new DAAs that work on GT3 arrive. all the best to all folks still fighting, waiting or SVR relaxing :)

ezsrivers · ezsrivers

We're waiting for an appointment with a GI dr. for our 2 year old foster daughter. We just had her tested and she's positive, either contracted at birth or through a needle stick before she was brought into care. I'm heartbroken. I know this is not a death sentence, but she did nothing to make this happen...

sandypsych · sandypsych

Hi All My husband recently was diagnosed with this, and told that it is not uncommon for someone with Hep C virus. It is worse when on medications, but becoming such a pain (literally). Very painful to eat any crunchy or spicy (two favorite foods). Anyone else have this? Anyone found anything to he...

hope87 · hope87

I know I haven't been on in quite a while. But I finally found a doctor to take me seriously. My rx has been sent to insurance and is waiting approval. I should get a call this coming week. I will be starting the triple therapy finally! The light at the end of my long tunnel is finally shining through. Keep me...

Tig · Tig

Hello, I just saw a TV advertisement for this new HCV informational website (from Gilead). I thought you'd like to investigate it yourselves. http://hepchope.com/ Good luck, Tig

rebeca · rebeca

hi all, I read every day the news in this forum to keep me informed, and I want to express my empathy with all who are on treatment, fighting. You are doing really good, step by step. Today I want to share with you my mood. I feel that I would like to treat me as soon as possible. As you know, I must wait until...

Wildrose · Wildrose

I would love some words of advice regarding dating with Hep C. Because of divorce, I find myself dating again at 65. This is bad enough without throwing Hep C into the mix. I am rejected on a regular basis and I often feel lonely and hurt. Some days, I feel so badly that I can barely get out of bed. How do you ha...

Iris Dragonfly · Iris Dragonfly

Ola' folks...the Dr. just prescribed me some flexeril ...it's supposed to help with the fibromyalgia. Does anyone know if this a hard one for the liver to metabolize? The side effect that worries me is agitation...I'm plenty agitated anyway. Thanks and blessings, Iris

Steve-o · Steve-o

Hi Everybody..... It has been a while since my last confession................... Anyway, Been left fallow now for over 12 months after TX failure (12 months Inter/Riba Type 3c) No further TX allowed in this area. I seem to have developed rapid Arthritis Symptoms, pain, restricted movement in elb...

Topic		Started By	Replies	Views	Last Post
	Insurance Companies! (Preview) I had all the test done which costs my insurance company a bundle. All test must be done within 90 days of submission. I have severe fibrosis, although I don't have the test scores yet. I am very close to cirrhosis, the doctor wants to start Harvoni immediately BUT my insurance will not give me the drugs f...	xtra	18	6900	Jan 22, 2016 by Linuxter
	INTESTINAL ISSUES WITH HEP C ? (Preview) HAS ANYONE ELSE HAD TERRIBLE INTESTINAL ISSUES? I am so sick in my tummy all the time. I am on treatment but these things popped up before treatment. I have gas, bloating, rolling feelings, gnawing feelings. I did have my gal bladder checked. On a scale of expulsion with 30% being normal mine is at 24%. N...	frannie58	20	7947	Oct 16, 2015 by wmlj1960
	Exercise (Preview) Curious about exercise and hep c. Although I have been walking on a treadmill for many years I just don't have any stamina. I took a pilates class last year and could not hack it. ten minutes in, I would get nauseous, lightheaded and a weird sweat on my forehead, blood pressure spikes the rest of the day an...	Stormy	7	2966	Aug 1, 2015 by sandypsych
	Woman denied treatment? (Preview) I read this in my local newspaper the other day. I fear this may be the new trend of insurance companies, and the fact USC told me last year they were only treating 3rd and 4th stage patient's is now making sense to my medical insurance mind. I have crap insurance so they won't accept me in the treatment pr...	Iris Dragonfly	4	2431	Jun 19, 2015 by Brian1412
	Volunteers Needed! (closed) (Preview) Please share with all of your networks! we need 53 more people! If you want to participate in the survey for 30 mins and an incentive of $35 dollars click on the survey below! Requirements co infected Hep C with renal problems Please share with all of your social networks !!!!! Attention people in...	lisalaing	1	1758	Jun 12, 2015 by Cinnamon Girl
	anxious (Preview) Well, I got a call at work today from my Dr.s nurse. She wanted to tell me I finally have an apt. at the hospitals infectious diseases dept., on the 15th. Wow....I think I have waited for about 2 years for this. Now i'm a little freaked out and incredibly anxious. Iris	Iris Dragonfly	29	6560	Apr 7, 2015 by Cinnamon Girl
	Ira Jacobson MD discussion on treatment options (Preview) TUESDAY, MARCH 24, 2015 Using Ledipasvir/Sofosbuvir in Cirrhotic, Treatment-Experienced GT1 Patients: 12 Weeks With Ribavirin or 24 Weeks Without? Using Ledipasvir/Sofosbuvir in Cirrhotic, Treatment-Experienced GT1 Patients: 12 Weeks With Ribavirin or 24 Weeks Without? Ira M. Jaco...	Peter M	3	3243	Mar 24, 2015 by Matt Chris
	Life insurance increase denied - "history of Hepatitis C" (Preview) I would love to get my hands on the underwriting guidelines for the company that provides Life Insurance through my employer. I currently have 2x my salary and last year (in anticipation of purchasing my home) I attempted to raise my life insurance amount. I completed the statement of health and the...	Enavigo3891	16	6989	Feb 26, 2015 by masbirdies
	SPAIN.PROTESTS.CORRUPTION (Preview) Hello friends, Long time since I wrote in this forum. Last time, in September, my doctor told me they had got Simeprevir/ribavirina / interferon,to treat some people, but not for me, just to F3, F4. During those months Gilead and the Government have been in conversations, and the Health minister sa...	rebeca	6	2790	Feb 19, 2015 by Tig
	"Cairo buyers club" (Preview) I just got back from my hepa. She told me that Gilead definetly won't consider any discounts for Bosnia, since they do not consider Bosnia as an 3rd world country. I can't get that mindset. We got 44% unemployment rate. GDP PPP is round 8k$. We just had devastating floods that ruined half of the country a...	Zlikster	37	7825	Dec 17, 2014 by seaciaty
	disappointment (rant) (Preview) Gilead responded to my email about it's clinical trial (http://clinicaltrials.gov/ct2/show/NCT01962441). 3 arms (Sof+Riba 16w, Sof+Riba 24w, Sof+Riba+Peg 12w) are strictly randomised, so i can apply, but if i end up in interferon arm, then it's a no go for me :( I need to be for the full duration...	Zlikster	9	3843	Dec 9, 2014 by TazKat
	Pain in the Liver? (Preview) Loved thisCan My Liver Feel Pain?	Harvoninme	3	2594	Dec 1, 2014 by Gator Man
	U wont believe this clinicals and proof of F4 not received (Preview) I talked to the person handling my request and was told they only received 4 pages of lab results, no clinicals or biopsy reports, ultra sounds or statement to the effect that I am F4. She had talked to Nell who gave her the rush on the phone. She told me, had Nell even said over the phone that I was F4 she c...	Michaele	17	3477	Nov 13, 2014 by Michaele
	Bloodwork 8 months after unsuccessful treatment with Incevik (Preview) So I got my latest Bloodwork tests back, and I'm unsure of what to think. Platelets seem low at 82 and AFP is high at 11. The rest looks ok. Any ideas of what might be going on? Isn't AFP a tumour marker And why is my liver profile normal? Isn't 82 quite low for platelets While off treatment for so long. Also h...	Gracie	7	2294	Nov 11, 2014 by Gracie
	Read this to the tune of Monster mash! (Preview) We all need a good laugh once in a while! I was reading my labs late one night When my eyes beheld an eerie sight For red dots from my skin began to rise And then suddenly to my surprise I had the rash I had the riba rash The riba rash It makes me want to smoke hash I had the riba rash It covered me in a flash I had the r...	RonH	3	1975	Oct 19, 2014 by RonH
	Pain in armpit (Preview) For more than a year, I have a deep pain in my right armpit that comes on for several days at a time then goes away for awhile. Does anyone else have this symptom?	Bombeni	9	3409	Oct 15, 2014 by Huey
	Been a couple of days.... (Preview) Hey good people, It's been a few days since I was last on. Things have changed a little as far as pinning down what is giving me H.E. like symptoms. I had a Lumbar Puncture (spinal tap) E.E.G., and C.T. scan 2 weeks ago and just got the results this morning. So its a reiteration of whats been suspected. The r...	Trainhopper	12	3111	Oct 7, 2014 by lizabear
	Spain and Simeprevir (Preview) Hi friends, Im glad that using Sovaldi is already common in USA , (Although,I know that many people can not access it,without health insurance). Here in Spain, in July, the government said that he had an agreement to buy simeprevirtreatment of 3months, for 25000 Euros, (Peg /Ribseparately)...	rebeca	7	2835	Sep 6, 2014 by mallani
	Question About Disclosing HCV Status to Others (Preview) I have a general question about what and who to disclose one's HCV status to. I have had genotype 1 Hep C since 1980. I got it in a blood transfusion back in the days when it was called "Non-A Non-B". I've been really good about following medically for it, and currently see a fantastic docto...	Anon4This	34	3641	Aug 27, 2014 by jimbob
	so what do you tell clinical staff after SVR ? (Preview) Do You still Tell them you have HVC..? Or do you no longer have to report it?? i mean do we still report to the nurse and Dr. That you've had it but successfully complete tx and are cured? This would more apply to a dentist or podiatrist if you now what I mean....what about insurance and filing for it e...	Dzdayscomin	23	2524	Aug 26, 2014 by Dzdayscomin
	Disturbing itching!!! (Preview) I have been having fatigue on and off, but lately I started having this itching, which is not very intense but disturbing. Does it mean that my liver disease is progressing? -- Edited by Doni on Wednesday 23rd of July 2014 08:04:19 AM	Doni	6	2131	Aug 17, 2014 by skewedButNotBroken
	GT3 relapser (Preview) Got my PCR today, 132k IU/ml. Knew something was wrong when i saw high ALT numbers. So i am now off to diet and ultrahealthy life until new DAAs that work on GT3 arrive. all the best to all folks still fighting, waiting or SVR relaxing :)	Zlikster	27	5898	Aug 6, 2014 by Huey
	Very young children with Hep C (Preview) We're waiting for an appointment with a GI dr. for our 2 year old foster daughter. We just had her tested and she's positive, either contracted at birth or through a needle stick before she was brought into care. I'm heartbroken. I know this is not a death sentence, but she did nothing to make this happen...	ezsrivers	10	2930	Jun 15, 2014 by TazKat
	oral-lichen-planus (Preview) Hi All My husband recently was diagnosed with this, and told that it is not uncommon for someone with Hep C virus. It is worse when on medications, but becoming such a pain (literally). Very painful to eat any crunchy or spicy (two favorite foods). Anyone else have this? Anyone found anything to he...	sandypsych	3	2352	May 20, 2014 by sandypsych
	Finally getting somewhere... (Preview) I know I haven't been on in quite a while. But I finally found a doctor to take me seriously. My rx has been sent to insurance and is waiting approval. I should get a call this coming week. I will be starting the triple therapy finally! The light at the end of my long tunnel is finally shining through. Keep me...	hope87	7	2004	Mar 14, 2014 by Cinnamon Girl
	Recently released HCV website (closed) (Preview) Hello, I just saw a TV advertisement for this new HCV informational website (from Gilead). I thought you'd like to investigate it yourselves. http://hepchope.com/ Good luck, Tig	Tig	0	2249	Feb 25, 2014 by Tig
	Looking for moral support: the desperate waiting! (Preview) hi all, I read every day the news in this forum to keep me informed, and I want to express my empathy with all who are on treatment, fighting. You are doing really good, step by step. Today I want to share with you my mood. I feel that I would like to treat me as soon as possible. As you know, I must wait until...	rebeca	11	2961	Feb 5, 2014 by mallani
	Love and Hep C (Preview) I would love some words of advice regarding dating with Hep C. Because of divorce, I find myself dating again at 65. This is bad enough without throwing Hep C into the mix. I am rejected on a regular basis and I often feel lonely and hurt. Some days, I feel so badly that I can barely get out of bed. How do you ha...	Wildrose	3	2179	Jan 30, 2014 by Enavigo3891
	flexeril safety (Preview) Ola' folks...the Dr. just prescribed me some flexeril ...it's supposed to help with the fibromyalgia. Does anyone know if this a hard one for the liver to metabolize? The side effect that worries me is agitation...I'm plenty agitated anyway. Thanks and blessings, Iris	Iris Dragonfly	6	3290	Jan 26, 2014 by Tig
	Joint & Muscular Pain? (Preview) Hi Everybody..... It has been a while since my last confession................... Anyway, Been left fallow now for over 12 months after TX failure (12 months Inter/Riba Type 3c) No further TX allowed in this area. I seem to have developed rapid Arthritis Symptoms, pain, restricted movement in elb...	Steve-o	4	2817	Dec 22, 2013 by suziq
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