Thanks for the post and letting us Know how the trail is working. Excited for you. Interferon is tough stuff!
Neil_Canuck said
Jan 3, 2013
Good results. There's quite a few trials right now that look promising. Shows me that the big pharmo companies haven't given up on us yet (there's a ****load of money to be made). Good luck on this attempt.
Michaele said
Jan 3, 2013
Hi , Ive never done tx of any kind. I declined the triple Tx because I have issues that were contraindicated with interferon. My choice to not tx. GI was for it. Im going to a new hepatologist on the 24th of this month. I will run this by him to see what he thinks. I am 1b stage 2-3. My platelets are low and so are my WBCs , Ive got alot of health problems, but hopefully I can hang in there til there is a treatment that I can do. Good luck with your new tx. Michaele
gsx1250fa said
Jan 2, 2013
Hi. Haven't been here for a while and butted heads with a few of ya'll last time I posted. Anyway...thought I might share what is going on with my new study/treatment plan AS i BELIEVE IT MIGHT SHOW SOME HOPE FOR THE "HARD CASES" LIKE MYSELF as will as naive cases (study has already been done with naive groups showing I believe 90-100% SVR ...please don't quote me on this...my doc says 90%...Gilead says 100%). 3 yrs ago (1ST TREATMENT ATTEMPT) I was geno 1A-2. Last biopsy 2 1/2 weeks ago showed geno 1a-5 VIRAL LOAD 3.6 MIL (beginning of cirrohosis). I am very concerned to go from stage 2 (of 6) to stage 5 within 3 years. I am a null responder 3 treatment attempts. Last with triple therapy (victrilis). I entered a new study (4th attempt) 2 weeks ago that involves Gilead sofosbuvir/gs-5885 (combined into 1 pill) and ribavirin (1/2 the study group). The other 1/2 of the study is receiving gilead sofosbuvir/gs-5885 only without ribavirin. The entire study group consists of null responders. THERE ARE NO INTERFERON SHOTS...JUST PILLS. Last weeks blood draw (ON TREATMENT ONLY 1 WEEK) showed a viral load <25 (FROM 3.6 MIL) and hopefully todays draw (2 WEEKS INTO TREATMENT) will be UND. Being my 4th attempt I am more than skeptical of course...but the first draw viral load is the lowest I have achieved ever (during the 3 prior treatments). I have a "glimmer" of hope now. I AM HAVING NO SIDE EFFECTS...which leads me to believe most of MY previous side effects were from the interferon. This is only my personal experience I am sharing. There is POSSIBLY A "NEW DAY ON THE HORIZON" FOR HEP C TREATMENT I believe. I will keep ya'll updated as I go. I wish everyone the best.
-- Edited by gsx1250fa on Wednesday 2nd of January 2013 09:52:10 PM
-- Edited by gsx1250fa on Wednesday 2nd of January 2013 09:52:55 PM
-- Edited by gsx1250fa on Wednesday 2nd of January 2013 09:54:44 PM
Know how the trail is working. Excited for you.
Interferon is tough stuff!
Good results. There's quite a few trials right now that look promising. Shows me that the big pharmo companies haven't given up on us yet (there's a ****load of money to be made). Good luck on this attempt.
Hi , Ive never done tx of any kind. I declined the triple Tx because I have issues that were contraindicated with interferon. My choice to not tx. GI was for it. Im going to a new hepatologist on the 24th of this month. I will run this by him to see what he thinks. I am 1b stage 2-3. My platelets are low and so are my WBCs , Ive got alot of health problems, but hopefully I can hang in there til there is a treatment that I can do. Good luck with your new tx. Michaele
Hi. Haven't been here for a while and butted heads with a few of ya'll last time I posted. Anyway...thought I might share what is going on with my new study/treatment plan AS i BELIEVE IT MIGHT SHOW SOME HOPE FOR THE "HARD CASES" LIKE MYSELF as will as naive cases (study has already been done with naive groups showing I believe 90-100% SVR ...please don't quote me on this...my doc says 90%...Gilead says 100%). 3 yrs ago (1ST TREATMENT ATTEMPT) I was geno 1A-2. Last biopsy 2 1/2 weeks ago showed geno 1a-5 VIRAL LOAD 3.6 MIL (beginning of cirrohosis). I am very concerned to go from stage 2 (of 6) to stage 5 within 3 years. I am a null responder 3 treatment attempts. Last with triple therapy (victrilis). I entered a new study (4th attempt) 2 weeks ago that involves Gilead sofosbuvir/gs-5885 (combined into 1 pill) and ribavirin (1/2 the study group). The other 1/2 of the study is receiving gilead sofosbuvir/gs-5885 only without ribavirin. The entire study group consists of null responders. THERE ARE NO INTERFERON SHOTS...JUST PILLS. Last weeks blood draw (ON TREATMENT ONLY 1 WEEK) showed a viral load <25 (FROM 3.6 MIL) and hopefully todays draw (2 WEEKS INTO TREATMENT) will be UND. Being my 4th attempt I am more than skeptical of course...but the first draw viral load is the lowest I have achieved ever (during the 3 prior treatments). I have a "glimmer" of hope now. I AM HAVING NO SIDE EFFECTS...which leads me to believe most of MY previous side effects were from the interferon. This is only my personal experience I am sharing. There is POSSIBLY A "NEW DAY ON THE HORIZON" FOR HEP C TREATMENT I believe. I will keep ya'll updated as I go. I wish everyone the best.
-- Edited by gsx1250fa on Wednesday 2nd of January 2013 09:52:10 PM
-- Edited by gsx1250fa on Wednesday 2nd of January 2013 09:52:55 PM
-- Edited by gsx1250fa on Wednesday 2nd of January 2013 09:54:44 PM