Hello LUV2

Give you a world of credit for going through all that time and not knowing where your at.

I also am starting my fifth week of the Abbott Meds , I'm getting a little Ribavirin fatigue.

Keep up the good fight.

Matt

I'm just finishing up week 4, 8 left to go.    Rock on!

OK so here is week 9 and I get a headache every now and then.... I have three weeks and four days left till I find out what arm I am on.  I'm like a kid waiting. Either way I will be fine. If I have to go on another 12 weeks on the real drugs then so be it...I just want this dragon gone forever.

In Matt,

My trial coordinator took me off all herbals. The only thing they allowed me to take was a multi vitamen & some prescription meds I was previously on. But even before she would allow that she had to run it by the ABBOTT folks. I would discuss your plans with yours before starting some of this stuff.

à

Mike

-- Edited by balagan51 on Sunday 24th of February 2013 04:38:35 AMi

-- Edited by balagan51 on Wednesday 27th of February 2013 10:50:01 AM

i would like to add athat they told me to stop the herbs when I first was in contact with them about the trials. She said they preferred that I stop 30 days before beginning if at all possible O/T just got off the interstate in route to have my  4 weeks labs drawn this morning......

This is interesting. My coordinator asked me what kind of stuff I was taking.  Fortunately I don't have to take any medications on a regular basis.  But I do take 8 different vitamins every day, fish oil, baby aspirin and the like.  They made note of that but did not ask me to cease taking them.  She only mentioned that alot of people stop taking their vitamins because it adds to the total daily pills.

I'll have to ask about it when I see them tomorrow.

Yeah Mike my RN cord took me off of all sups I was taking. I am only taking my diabetes pill and bc pill and thats a fact jack(sorry waiting for Duck Dynasty). And I am watching both Mike and Matt's sticky on both of your journeys.

In Matt,

My trial coordinator took me off all herbals. The only thing they allowed me to take was a multi vitamen & some prescription meds I was previously on. But even before she would allow that, she had to run it by the ABBOTT folks. If you haven't already, I would discuss your plans with yours before starting some of this stuff.

 Best of luck to all of us! 

Mike

-- Edited by balagan51 on Sunday 24th of February 2013 04:38:35 AM

-- Edited by balagan51 on Wednesday 27th of February 2013 10:50:01 AM

Hello LUV2 

Make sure you checkout my sticky on Turquoise II Abbott study about my experience with high Billirubin scores incase you develop a similar problem with your lab results. 

Matt

Matt,

I don't find out anything till April 5th. My billirbuin scores were always low (on the low end of a normal range) However when I was taking my blood pressure and diabetes meds my bil went up a tad...but still within normal range. I am off of the bp meds and am only taking my study meds and diabetes and a birth control pill. So come April 5th it will be interesting to look over all of my stats.

Hello LUV2 

I am also on the Abbott trial but for cirrhotics,  did any of your labs come back with high Billirubin scores?

Matt

Thanks Iris.

I'm in week 6 and so far so good. Come on April 5th...thats when I find out of I am on placebo or the real stuff. I feel great....I mean besides the no energy thing....but I had that before I started trial. It seems like I have to push myself to do everything. If I am on the real these drugs are pretty easy on me as far as SE.  I'm keeping my paws crossed.  Thanks for the support everyone.

Trish, am wishing you the best....Blessings

So I am on week 3 of the pills......so far no SE . It's business as usual. Been working out 3-4 times a week. So I still don't know if I am on placebo or the real stuff....but April 5th....I will know for sure. Keeping my hopes up and marching on.

I opted out of the Gilead trial and I am being screened for the ABT

Just a side note. I had a liver biopsy Friday at a respected teaching hospital her in Florida
It was over before I knew it was happening. All I did was raise my shirt, while still in street clothes

They are only taking 13 cirrhotics, but I confess to being more than a bit scared. I am so scared I have been up actually thinking of opting out

Im a G1A non responder. my viral load actually went up at 3 months with peg/ifn.ribo!

Best of luck to you and Thanks for starting this thread.

Well done and congrats to you for getting started at long last, Trish!    Let us know how it goes, we`ll all be watching your progress with great interest!  Keep wearing that t-shirt!   

Wishing you all the best of luck!  ~ Jill

ps - I`ve made this thread a `Sticky`

What great news.  I know you've been hanging around here a long time.

Wonderful you get to start.

Wishing you the very best!

Brad 

Congrats Trish!

Keep us posted!

Step guy~ Speaking in tongues huh....well if down the line I start  doing that help me out lol. As far as the riba I am taking 6 of these a day. Three in the morning and three at 8pm. I am supposed to take these meds 12 hrs apart. So I set the timers on phone. I am really good about taking meds and way. I take 1 diabetes pill in the morning and my bc pill at night so now I am just adding to the pills. Plus my boyfriend will remind me too. I don't know where into the riba a rash can start....but I am going about my days like business as usual....hope it stays that way and I hope this trial is a success.....I would love to be able to help other people from my experience on this trial.

And thank you ona and Neil...I like that Neil the dragon slayers! I actually have a t-shirt from me riding my motorcycle up in NC on the dragon its says Female dragon slayer....guess now it can have two meanings!

Good Luck..  Hopeing you have good results with the real stuff. 

Good luck Trish, it was a long wait for you too. Think your Tx will be a bit easier than for the rest of us but you are doing grounbreaking trials.Welcome to the Dragon Slayers....finally.

Way to Go!!! Keep leading the way for the rest of us. How much Riba will you be taking? Is the the new set of drugs that cause folks to start speaking in tongues?

Well long time coming and glad it finally came for me .

I had my blood&urine work done this morning and my first dose this monring.

I am taking ABT-450/ABT-267& abt-67 and the ribavirin. Or I am taking the placebo and the ribavirin. I still have my nightly dose to take...but so far so good.

I almost broke down and started crying in the exam room I was so happy to get started. Gonna keep posting on how I do . I have 12 weeks on this then I find out if it was the "real" thing or placebo and if it was placebo then Imove onto the "real" thing. Thanks everyone for being so supportive and informational.