I took Harvoni and there were no dietary restrictions. I don't know about Epclusa. Can you get ahold of your doctor or pharmacy ?
Your health smoothie sounds good .
5
Blueslate said
Jun 5, 2022
Hello 5 - thank you for all the encouragement. Especially as I will be 70 too soon enough. Really good to hear that you feel much better after the treatment! I have a calendar to mark off the days of treatment, most unlike me but ensures I won't forget. Let you know how how the appointment goes. One other question I have is about butter, is it suggested not to use as I saw something in a blog but it wasn't clear. The water no doubt helps & keeps the headache away.
I have decided to make a green drink which apparently knocks a fatty liver by 43% & shows a difference after 14 days. Not sure if hype but will try. Make Kefir & strain, use blueberries & kale. Can freeze those two & make the kefir every day so easy.
5-1-18 said
Jun 4, 2022
Bluestate, it sounds like you are doing well on tx, that's always good
My name is "5" , that was my date of starting tx 5-1-18 , but I shortened it to 5 along the way.
guru is the status the forum gave me after I posted a bunch of posts . You won't be a "newbie" long which is your status right now.
keep on keeping on. Oh, I am 70 now and doing so much better since 2018.
-- Edited by 5-1-18 on Saturday 4th of June 2022 06:23:22 PM
Blueslate said
Jun 4, 2022
Hello Guru & Tig - thanks both of you for the welcome.
I did read Tig the insert thank you. My pills are green not pink import from india. Your insert was slightly different & I did pick up a study, & yes Guru I think you are correct the 24 week thing is due to F4 according to the insert on one of the Astral trials they give 24 weeks if over 15 on the Meld. My reading was 15.7. We will see! I am 10 days into treatment beginning last two days to sleep better. On the 7th day I was pretty ill all day felt like my brain was swollen with a lot of fog & I felt terrible like my body was in a major war. I am drinking at least 2-3 bottles of water, plus juice, coffee.
I did stop everything a week or two before I went for the tests. I had been taking 100% red reishi mushroom for a couple of months before & D3+K2, B vits, C 1000, Queracin, zinc etc. The reishi I cannot get in Asia surprise surprise I did try some. My Chinese doctor in London said I couldn't because it would not be strong enough for me. I have no doubt over the years it has put my T cell count up, because everyone around, & there were many in the previous 6 years getting flu & other relatively minor illnesses & I never did. Although good when I took it after some dental implants it felt like they were being pushed out, so I would take for a few months then stop for one or two over the last 10 years. Because of the hip replacement 2 years ago now I decided not to take it due to the metal in my leg. Its taken 16 months to heal properly so I started again just a couple of months ago. That's the story. I also seem to be losing a lot of water kidneys working better. They found small kidney cysts one on each, told me fairly normal at my age & no problem at all. The other thing that is really good. Muscle pains particularly back, legs everywhere I've had for years & used Nurophen often. The painkillers I began to cut out just occasionally for arthritis. The pains have really subsided everywhere only occasionally in my back since on tx. I had no idea for all these years it has probably been due to the Hep C. now just take my thyroxine 125mg & Hep C meds. Thanks again. I will update.
-- Edited by Blueslate on Saturday 4th of June 2022 01:54:34 AM
5-1-18 said
Jun 4, 2022
Welcome Blueslate,
Yea it's been awhile since we had anyone on tx around here so I'm glad you found us.
These forum friends helped me so much through my tx.
I did 8 weeks on harvoni and hubs did 12, I wondered if it was due to his f3-4 status and maybe that's why they have you on it longer...yes, do quiz the doctor about this becos 24 weeks does seem long.
Good idea to drop any other supplements during tx. I only took b12 and my thyroid meds. during tx.
I look forward to your posts and updates.......good luck , take it easy and yea drink tons of water.
5
Blueslate said
Jun 3, 2022
Exactly - I did question 24 weeks & asked isn't it usually 12. Just said he wanted me on it 24 weeks. I will discuss it with him next visit because he seemed to think that my VL would be right down. All I can think is he accepts that I have tried to deal with it over the years quite vigorously with accupuncture & chinese herbs over a lengthy period & it did not clear it. I was very ill when I first went there about 2006, there treatment was serious, the herbs black old socks disgusting & changed every week slowly over 7 months became lighter & I began to feel really well. I did early in the 90's know some friends who cleared it with herbs so maybe because I am very overweight as well 103kgs though no ascites. I think he views I have failed treatment. I will ask him. Also I was surprised to read here about the milk thistle as that he has given me too. Once I went for herbs years later for a couple of weeks to Chinese with ping yin prescription & was given herbs & 4 months milk thistle. But generally I have not used it. It struck me as very interesting about the Hep B. It came back completely negative & he re-interated I did not have Hep B on the phone call a few days later. Now I see from the boards there have been many that thought they had Hep B so maybe during the latTer part OF 80's & 90's C was being misdiagnosed as B. We will see as I am sure he will do blood work again 21st June. I am grateful for some support so thank you. I live with thai almost completely the last two years & sadly cannot speak thai so its not been so easy from that perspective .
Tig said
Jun 3, 2022
I’m curious about your doctor prescribing the Epclusa for 24 weeks. Standard protocol has been 12 weeks, even with cirrhosis, and has been very effective. Make sure they keep an eye on your HBV status as well.
Here‘s a link to some light reading (lol) on Epclusa:
Wow! Allow me to welcome you to the forum. You have quite a history fighting the Dragon. I’m sorry you had such a roller coaster ride. That’s not at all uncommon with those of us that have been infected for decades. What’s important is getting it cured, and you will.
It has been quiet around here for the last year, or two. Actually that’s a good thing, because the new medications/treatments are so incredibly effective!
I’ll review your post again, and talk again soon. The one thing I must say, and it will provide you the most benefit during treatment is to do your absolute best to drink 3-4 liters of water everyday! I kid you not! These new drugs demand extreme hydration! Do your best to stay on that schedule. I’ll provide a picture below that might help you keep track, lol! Trust me, it helps.
I like some others was told I had Hep B & my body had cleared it. Years later when pregnant with my son again told the same thing that I had had Hep B. In 2003 I had a Hep C test the first & it was positive. Family were sick so I just put it on the back burner. I must have got it before 1989 so probably 35+ years. I am F & 69 years now. 2005 I became sick very & went to the doctor who frankly didn't give me the time of day. This btw is in England. I went back to bed & wanted to die!. Later I managed to go to a Chinese herbalist & after putting a very large blister on my stomach which lasted 5 months & 7 months of accupuncture & cooking chinese herbs twice a day I felt so much better. I began travelling as although not cleared treatment was out of the question due to the cost. Fast forward when I wound up in Clermont Ferrand hospital in isolation for a week with whooping cough they did all the tests on my liver it was now 2014. I was told I had GT 1a - F-1 in blood work & fibroscan & told treatment not necessary yet check in year. As I felt ok I didn't go back I am english & though I kept an eye on advances in treatment but after my local doctor attitude earlier I did nothing except go back to the Chinese herbs maybe for a couple of weeks each year. Then Covid hit by now i had spent about 7 years between the UK & Thailand. It was a no brainer whether to go back to UK so I stayed in Thailand. They found in France that I was off the chart for thyroid in 2014 & I was balanced after about 4 months. My reading for thyroid should have been 0.04-0.5 (something like that) my reading was 104 way off the charts. I did not want to take the Covid vax and got Chinese herbs & vitamins etc in case & decided to stay put until it was over. A year in my hip went & luckily I had insurance & I would never have got past the waiting list in the UK so in July 2020 had a full hip replacement. So now I'm here a week into treatment that thank God is affordable. A friend gave me the name of a doctor in Thailand & I went to see him 24th March 2022 a few days ago. Ran all the tests. I am F4 now cirrhosis 15.7 on the Meld chart. VL - 1m & AST - 82 ALT - 97 & I was immediately given Sofosbuvir & Velpatasvir 400mg/100mg. Interestingly having read quite a bit on the boards I was also given Legalon Cap 140mg which turns out to be milk thistle! I see many are counselled to stop it if they take it. I rarely did but did take 100% red reishi mushroom but stopped. Dr does not want me taking anything else even other vitamins so I did not prior to seeing him anyway. So I am grateful to know to drink lots of water - I did not know & 5 days into treatment I began to feel lousy nothing specific though feels like my liver is being squeezed, just feel uncomfortable & unable to sleep properly all week. All I know is I am very blessed as Dr says it should clear ok but he wants me to take it for 24 weeks. Anyway if you read this lot. Thank you for allowing me to write it.
Hi Bluestate,
I took Harvoni and there were no dietary restrictions. I don't know about Epclusa. Can you get ahold of your doctor or pharmacy ?
Your health smoothie sounds good .
5
Hello 5 - thank you for all the encouragement. Especially as I will be 70 too soon enough. Really good to hear that you feel much better after the treatment! I have a calendar to mark off the days of treatment, most unlike me but ensures I won't forget. Let you know how how the appointment goes. One other question I have is about butter, is it suggested not to use as I saw something in a blog but it wasn't clear. The water no doubt helps & keeps the headache away.
I have decided to make a green drink which apparently knocks a fatty liver by 43% & shows a difference after 14 days. Not sure if hype but will try. Make Kefir & strain, use blueberries & kale. Can freeze those two & make the kefir every day so easy.
Bluestate, it sounds like you are doing well on tx, that's always good
My name is "5"
, that was my date of starting tx 5-1-18 , but I shortened it to 5 along the way.
guru is the status the forum gave me after I posted a bunch of posts
. You won't be a "newbie" long which is your status right now.
keep on keeping on. Oh, I am 70 now and doing so much better since 2018.
-- Edited by 5-1-18 on Saturday 4th of June 2022 06:23:22 PM
Hello Guru & Tig - thanks both of you for the welcome.
I did read Tig the insert thank you. My pills are green not pink import from india. Your insert was slightly different & I did pick up a study, & yes Guru I think you are correct the 24 week thing is due to F4 according to the insert on one of the Astral trials they give 24 weeks if over 15 on the Meld. My reading was 15.7. We will see! I am 10 days into treatment beginning last two days to sleep better. On the 7th day I was pretty ill all day felt like my brain was swollen with a lot of fog & I felt terrible like my body was in a major war. I am drinking at least 2-3 bottles of water, plus juice, coffee.
I did stop everything a week or two before I went for the tests. I had been taking 100% red reishi mushroom for a couple of months before & D3+K2, B vits, C 1000, Queracin, zinc etc. The reishi I cannot get in Asia surprise surprise I did try some. My Chinese doctor in London said I couldn't because it would not be strong enough for me. I have no doubt over the years it has put my T cell count up, because everyone around, & there were many in the previous 6 years getting flu & other relatively minor illnesses & I never did. Although good when I took it after some dental implants it felt like they were being pushed out, so I would take for a few months then stop for one or two over the last 10 years. Because of the hip replacement 2 years ago now I decided not to take it due to the metal in my leg. Its taken 16 months to heal properly so I started again just a couple of months ago. That's the story. I also seem to be losing a lot of water kidneys working better. They found small kidney cysts one on each, told me fairly normal at my age & no problem at all. The other thing that is really good. Muscle pains particularly back, legs everywhere I've had for years & used Nurophen often. The painkillers I began to cut out just occasionally for arthritis. The pains have really subsided everywhere only occasionally in my back since on tx. I had no idea for all these years it has probably been due to the Hep C. now just take my thyroxine 125mg & Hep C meds. Thanks again. I will update.
-- Edited by Blueslate on Saturday 4th of June 2022 01:54:34 AM
Welcome Blueslate,
Yea it's been awhile since we had anyone on tx around here so I'm glad you found us.
These forum friends helped me so much through my tx.
I did 8 weeks on harvoni and hubs did 12, I wondered if it was due to his f3-4 status and maybe that's why they have you on it longer...yes, do quiz the doctor about this becos 24 weeks does seem long.
Good idea to drop any other supplements during tx. I only took b12 and my thyroid meds. during tx.
I look forward to your posts and updates.......good luck , take it easy and yea drink tons of water.
5
Exactly - I did question 24 weeks & asked isn't it usually 12. Just said he wanted me on it 24 weeks. I will discuss it with him next visit because he seemed to think that my VL would be right down. All I can think is he accepts that I have tried to deal with it over the years quite vigorously with accupuncture & chinese herbs over a lengthy period & it did not clear it. I was very ill when I first went there about 2006, there treatment was serious, the herbs black old socks disgusting & changed every week slowly over 7 months became lighter & I began to feel really well. I did early in the 90's know some friends who cleared it with herbs so maybe because I am very overweight as well 103kgs though no ascites. I think he views I have failed treatment. I will ask him. Also I was surprised to read here about the milk thistle as that he has given me too. Once I went for herbs years later for a couple of weeks to Chinese with ping yin prescription & was given herbs & 4 months milk thistle. But generally I have not used it. It struck me as very interesting about the Hep B. It came back completely negative & he re-interated I did not have Hep B on the phone call a few days later. Now I see from the boards there have been many that thought they had Hep B so maybe during the latTer part OF 80's & 90's C was being misdiagnosed as B. We will see as I am sure he will do blood work again 21st June. I am grateful for some support so thank you. I live with thai almost completely the last two years & sadly cannot speak thai so its not been so easy from that perspective .
I’m curious about your doctor prescribing the Epclusa for 24 weeks. Standard protocol has been 12 weeks, even with cirrhosis, and has been very effective. Make sure they keep an eye on your HBV status as well.
Here‘s a link to some light reading (lol) on Epclusa:
Epclusa Monograph
Wow! Allow me to welcome you to the forum. You have quite a history fighting the Dragon. I’m sorry you had such a roller coaster ride. That’s not at all uncommon with those of us that have been infected for decades. What’s important is getting it cured, and you will.
It has been quiet around here for the last year, or two. Actually that’s a good thing, because the new medications/treatments are so incredibly effective!
I’ll review your post again, and talk again soon. The one thing I must say, and it will provide you the most benefit during treatment is to do your absolute best to drink 3-4 liters of water everyday! I kid you not! These new drugs demand extreme hydration! Do your best to stay on that schedule. I’ll provide a picture below that might help you keep track, lol! Trust me, it helps.
Hello everyone...ok first post.
I like some others was told I had Hep B & my body had cleared it. Years later when pregnant with my son again told the same thing that I had had Hep B. In 2003 I had a Hep C test the first & it was positive. Family were sick so I just put it on the back burner. I must have got it before 1989 so probably 35+ years. I am F & 69 years now. 2005 I became sick very & went to the doctor who frankly didn't give me the time of day. This btw is in England. I went back to bed & wanted to die!. Later I managed to go to a Chinese herbalist & after putting a very large blister on my stomach which lasted 5 months & 7 months of accupuncture & cooking chinese herbs twice a day I felt so much better. I began travelling as although not cleared treatment was out of the question due to the cost. Fast forward when I wound up in Clermont Ferrand hospital in isolation for a week with whooping cough they did all the tests on my liver it was now 2014. I was told I had GT 1a - F-1 in blood work & fibroscan & told treatment not necessary yet check in year. As I felt ok I didn't go back I am english & though I kept an eye on advances in treatment but after my local doctor attitude earlier I did nothing except go back to the Chinese herbs maybe for a couple of weeks each year. Then Covid hit by now i had spent about 7 years between the UK & Thailand. It was a no brainer whether to go back to UK so I stayed in Thailand. They found in France that I was off the chart for thyroid in 2014 & I was balanced after about 4 months. My reading for thyroid should have been 0.04-0.5 (something like that) my reading was 104 way off the charts. I did not want to take the Covid vax and got Chinese herbs & vitamins etc in case & decided to stay put until it was over. A year in my hip went & luckily I had insurance & I would never have got past the waiting list in the UK so in July 2020 had a full hip replacement. So now I'm here a week into treatment that thank God is affordable. A friend gave me the name of a doctor in Thailand & I went to see him 24th March 2022 a few days ago. Ran all the tests. I am F4 now cirrhosis 15.7 on the Meld chart. VL - 1m & AST - 82 ALT - 97 & I was immediately given Sofosbuvir & Velpatasvir 400mg/100mg. Interestingly having read quite a bit on the boards I was also given Legalon Cap 140mg which turns out to be milk thistle! I see many are counselled to stop it if they take it. I rarely did but did take 100% red reishi mushroom but stopped. Dr does not want me taking anything else even other vitamins so I did not prior to seeing him anyway. So I am grateful to know to drink lots of water - I did not know & 5 days into treatment I began to feel lousy nothing specific though feels like my liver is being squeezed, just feel uncomfortable & unable to sleep properly all week. All I know is I am very blessed as Dr says it should clear ok but he wants me to take it for 24 weeks. Anyway if you read this lot. Thank you for allowing me to write it.