Anyone who's been through tx is aware of the effects on a person's mental state, even post-tx, but the post in question was extremely offensive and would have caused distress to people who are already feeling vulnerable. Fortunately it was removed quickly.
Banning members is an extremely rare occurrance on this forum, but the main objective is to keep this a place where people feel safe.
Love Steff xx
virginiap said
Oct 29, 2010
I just want to say that I sure didn't mean to cause any trouble on this site. All I meant to do was to tell my story about not being able to physically handle the treatment and share my choices about how I best could take care of myself.
I feel really bad that anybody got banned because of their posts talking to me.
I just want to apologize to the whole site .... I never intended any trouble and I felt like I was doing my best to handle the misunderstandings of my posts. I didn't read the post(s) which were deleted ... I trust the moderators made their decision for a reason but I just hope nobody holds anything against me for simply speaking about my own treatment experience and how I decided to try herbal remedies.
I don't like to argue and I don't like conflict and I certainly don't want anyone to be angry at me for speaking my opinions.
I really feel bad that someone got banned.... I'm sorry if my posts got people upset with me. None of this was my intention. All I wanted to do was to offer information to other people like me who are treatment intolerant.
Thank you all for understanding.
Minerva said
Oct 29, 2010
Hi Dee,
No-one wanted to see Mike banned, but he left no choice after his latest post, which had to be deleted.
For whatever reason/s, Mike crossed the line and was very offensive to forum members and we were left with no alternative. Had Mike stuck with his original apology, there would not have been a problem and this would not have happened.
It is really unfortunate, but we can't allow forum members to verbally attack others. Hugs Hxxx
-- Edited by Minerva on Saturday 30th of October 2010 12:41:57 AM
DGiga said
Oct 29, 2010
I can't beleive that Mike was banned. I have seen a lot of people banned but Mike was a good person. I think this whole thing is a big misunderstanding and needs to be revaluated. Mike apologized, what the heck? Dee
LaurieBluesGuy said
Oct 28, 2010
OK,
simple statement to be made.
People on treatment will have anger issues, the treatment does that, it can (with some people) make one bad tempered and short tempered, but verbal abuse of a member will NOT be tolerated.
If you feel like posting angry, then don't post, don't react, sit down and count to one thousand if need be, think of something calming and come back and post it a better state of mind. I have seen verbal abuse and even threats of physical abuse appear on other Forums, it will not happen here, from anyone.
This is a safe place, and will be kept safe for all.
We may not agree with everyone, but we will get along.
We are here to benefit ourselves and also to benefit others, we are here for each other, and that means a little tolerance of others views.
Not everyone agrees with me, not everyone loves Karate as much as I, not everyone loves Boxing, not everyone loves Welsh Rugby (how is that possible ?).
Colin Goodman was always ribbing me about the state of my beloved Welsh team, and now he's no longer with us I miss the ribbing dreadfully. I will cry a bucketful without his ribbing this Autumn.
This is a serious disease, people need serious help, and healing, and compassion - not intolerance.
Different view are just reflective of individual states of minds, and that's what makes the world go around - differences.
Please, we (the moderators) don't want to ban anyone over squabbling and verbal abuse, but it will be done, swiftly.
Much Love,
Lau
greenqueen said
Oct 28, 2010
I have deleted your post Mike and you're banned.
Moocow said
Oct 28, 2010
Right now, I've got a couple of things to add in here- it seems that we have a couple of people that are not reading for comprehension and are interested in nothing but disparaging someone else's opinion about how she dealt with her disease.
1. Going off on someone because they've expressed how they chose to handle the maintenance of their disease is unacceptable, especially when the person NEVER stated that their method was a "cure" and everyone should do it her way.
2. Everyone needs to put their brain in gear before they start typing a reply. RE-READ the post you're responding to BEFORE you start disparaging anyone!
3. Apologizing AFTER you've literally ripped someone to shreds is somewhat LATE and the only example you're projecting is narrowmindedness and control issues. Not to mention "ridicule". Yes, READ again before you post!
4. If the poster was literally advertising alternative treatments and expounding upon the fact that those methods are the ONLY way to treat HCV, the moderators will take care of it. Responding in negative mannerisms/posts only creates bad feelings and conflict on the forum, thus making other posters that enjoy the forum reluctant to participate.
5. There is substantial proof that milk thistle and other natural remedies are helpful in the health and well-being of those who cannot tolerate conventional, SoC treatment. No, it's not a "cure", nor did the poster claim it was. If a poster comes here and starts making claims that it's the ONLY cure or a cure, we will take care of it.
Sometimes it is best if you don't agree with someone's opinion or experience to not respond at all, as in "take the high road" and not start an argument that goes NOWHERE.
-- Edited by Moocow on Thursday 28th of October 2010 06:34:05 PM
virginiap said
Oct 28, 2010
Mike,
Thank you for the apology. You stated in the other thread:
Apparently Dori has had to deal with our style of ridicule before
Well, I don't deal with ridicule, Mike. I don't have time for it. I'm 57 years old and have a life to live. I run my own online discussion forum for poets and artists. We don't allow ridicule on the site and yes, I've been posting on the net since 1998, 12 years, so I've seen ridicule like this before but when it's directed to me, if I don't have the authority to delete the attacking posts, I speak out about them and then I will leave. Same in real life. If a so-called friend (This site is named "hepcfriends") but in real life, if anybody ridicules me, I don't accept it. I treat people with respect and expect them to treat me with respect. When they don't, I simply dismiss them from my life. Life is way too short to have to deal with ridicule.
At any rate, I DO thank you very much for your apology. I appreciate it very much. I appreciate you re-reading my posts and realizing also that I was not intending to tell anyone to substitute herbal treatments for the standard western treatment of interferon & ribaviron. My purpose was to relay my story regarding being treatment intolerant, as is the title of this forum, and to offer some information to others who are also treatment intolerant; information which I truly believe is valid.
-Dori
_____________________________
James,
You said in the other thread:
Please don't try and tell people "Milk Thistle" is a substitute for proper treatment. There are people looking at this that know nothing about Hep C, and they don't needs "herbs".
THAT's where you put words in my mouth. As I clearly stated repeatedly I am treatment intolerant. I never ONCE told people that milk thistle was a substitute for interferon/ribaviron. Please READ prior to posting responses to people.
That's why I posted on this particular forum which is titled Treatment Intolerant. That would be ME. The treatment made me ill and landed me in the hospital.
I therefore was trying to be helpful and post some information I had which I thought would be helpful to others who are treatment intolerant.
Consider yourself lucky that you were/are able to withstand the treatment. I couldn't. Does that make me a bad person because the treatment made me ill and landed me in the hospital? Is it my fault that my physical constitution doesn't match yours and that since I AM treatment intolerant, I am seeking out other sources to try to make sure my liver stays healthy. What's wrong with that?
To state that I'm trying to "tell people Milk Thistle is a substitute for proper treatment" is where you put words in my mouth.
Some of us can't DO the "proper" treatment. It is quite unfortunate that there aren't other medicines available to treat Hep C but their aren't. Though those who are treatment intolerant represent a small percentage of all of those treated with the interferon/ribaviron chemo treatment, still..... there are PLENTY of us! There are millions of people with Hep C and even if there are only 1-2% of the people who are treatment intolerant like I am, that's a HUGE number of people. Those are the people I was addressing. And I don't appreciate you putting words in my mouth stating that I was attempting to convince people to take milk thistle instead of interferon/ribaviron. I NEVER said that.
The doctor I quoted from an email he sent me is a DOCTOR. He's the one who told me about his patient who used Bupleurum and his viral load was lowered significantly. I didn't make this up and the doctor is not a liar and if you want me to send you HIS credentials, I'd be most happy to do so.
There's certainly nothing wrong with having your own opinion about whether herbs can help inflammation, lowering the viral load count, or anything else. If you don't believe it, that's fine.
But what you did is... you not only ridiculed me for stating that I was treatment intolerant and had therefore done some research, expressing MY opinion that these herbs may be helpful to me and others who are treatment intolerant, but you put words in my mouth by telling people that I was attempting to convince them to get off the interferon treatment and use herbs instead. Please see your above quote.
Yes, sir, you put words in my mouth.
............
Thanks to all for the conversation and I wish you all the best health and success. As for me? As I said, I'm going to eat healthy foods, exercise daily, hope and pray my virus remains undetected after my 14 weeks of illness during the treatment and subsequent unfortunate intolerant reactions, and move on with my life.
I encourage you all to be kind to each other and respect each other.
Peace, love, good health, and ample energy to deal with all you need to deal with.
Thank you for your time and many thanks to Minerva and administrators for locking the other thread. Also, many thanks to the other kind site members who sent me their positive notes of encouragement and friendship via private message.
I hope we can move on from this now.
-Dori from Virginia
-- Edited by virginiap on Thursday 28th of October 2010 05:34:06 PM
-- Edited by virginiap on Thursday 28th of October 2010 05:35:28 PM
James10500 said
Oct 28, 2010
1) Person recommends herbal supplements and says they lower VL in one case by 20 million.
2) I call BS and tell her why herbal supplements aren't reliable.
3) Person gets defensive and tells me I'm putting words in here mouth. What I did say was "please don't tell people that herbs a substitute for proper treatment." Maybe I mis-understood her. But when you say you wouldn't take Peg and Riba, but recommend herbs what are you saying ?
Does anyone really believe that herbs lower VL ? You've got to decide who to trust when you deal with this. Alternative treatment to me means alternative to success. I simply don't believe that Garlic, licorice root, and artichokes are going to do any good in fighting Hep C.
No worries, I gotta run to the store and get some herbs, stop by the market for some artichokes, and buy a yoga mat to attain SVR.
Good luck everyone !!
I'll miss ya.
James
-- Edited by James10500 on Thursday 28th of October 2010 02:24:16 PM
-- Edited by James10500 on Thursday 28th of October 2010 02:32:55 PM
Mike said
Oct 28, 2010
I went back and reread all the posts on Dori's thread. It became obvious, to me, Dori and I have different opinions in regards to herbal supplements. Obviously I clearly stated my opinons and still stick to them. However to make the insulting and abusive remarks I did to belittle her opinions was uncalled for.
Obviously she was extremely intolerant to the prescribed treatment and went through a terrible experience. I wish, with all my heart, she continues to be UND.
I realize my apology is late, and what I did was wrong. I'll try in the future to be more tolerant of others opinions and not become insulting with my posts.
God bless Dori for making her stand against adversity. She's obviously a stong minded person and willing to fight for the right to state her opinion. I truly hope she reconsiders leaving the forum and returns. She did offer the best defense, for her opinions, she had available. She's also concerned about others being intolerant to treatment with interferon and ribaviron and offered what she felt was an alternative therapy to help make the liver strong enough to fight the disease. I should have recognized that her posts weren't meant to sell to anyone, she just wanted to offer help and show her concerns. I got caught up in questioning her ideas. I shouldn't have and should have been friendly to her opinions.
Dori if you read this please consider coming back to the forum. We need more people who have your ability to cause people to look at things in a different light. I apologize for causing you to leave and hope you'll return.
Anyone who's been through tx is aware of the effects on a person's mental state, even post-tx, but the post in question was extremely offensive and would have caused distress to people who are already feeling vulnerable. Fortunately it was removed quickly.
Banning members is an extremely rare occurrance on this forum, but the main objective is to keep this a place where people feel safe.
Love Steff xx
No-one wanted to see Mike banned, but he left no choice after his latest post, which had to be deleted.
For whatever reason/s, Mike crossed the line and was very offensive to forum members and we were left with no alternative. Had Mike stuck with his original apology, there would not have been a problem and this would not have happened.
It is really unfortunate, but we can't allow forum members to verbally attack others.
Hugs
Hxxx
-- Edited by Minerva on Saturday 30th of October 2010 12:41:57 AM
I can't beleive that Mike was banned. I have seen a lot of people banned but Mike was a good person. I think this whole thing is a big misunderstanding and needs to be revaluated. Mike apologized, what the heck? Dee
simple statement to be made.
People on treatment will have anger issues, the treatment does that, it can (with some people) make one bad tempered and short tempered, but verbal abuse of a member will NOT be tolerated.
If you feel like posting angry, then don't post, don't react, sit down and count to one thousand if need be, think of something calming and come back and post it a better state of mind. I have seen verbal abuse and even threats of physical abuse appear on other Forums, it will not happen here, from anyone.
This is a safe place, and will be kept safe for all.
We may not agree with everyone, but we will get along.
We are here to benefit ourselves and also to benefit others, we are here for each other, and that means a little tolerance of others views.
Not everyone agrees with me, not everyone loves Karate as much as I, not everyone loves Boxing, not everyone loves Welsh Rugby (how is that possible ?).
Colin Goodman was always ribbing me about the state of my beloved Welsh team, and now he's no longer with us I miss the ribbing dreadfully. I will cry a bucketful without his ribbing this Autumn.
This is a serious disease, people need serious help, and healing, and compassion - not intolerance.
Different view are just reflective of individual states of minds, and that's what makes the world go around - differences.
Please, we (the moderators) don't want to ban anyone over squabbling and verbal abuse, but it will be done, swiftly.
Much Love,
Lau
1. Going off on someone because they've expressed how they chose to handle the maintenance of their disease is unacceptable, especially when the person NEVER stated that their method was a "cure" and everyone should do it her way.
2. Everyone needs to put their brain in gear before they start typing a reply. RE-READ the post you're responding to BEFORE you start disparaging anyone!
3. Apologizing AFTER you've literally ripped someone to shreds is somewhat LATE and the only example you're projecting is narrowmindedness and control issues. Not to mention "ridicule". Yes, READ again before you post!
4. If the poster was literally advertising alternative treatments and expounding upon the fact that those methods are the ONLY way to treat HCV, the moderators will take care of it. Responding in negative mannerisms/posts only creates bad feelings and conflict on the forum, thus making other posters that enjoy the forum reluctant to participate.
5. There is substantial proof that milk thistle and other natural remedies are helpful in the health and well-being of those who cannot tolerate conventional, SoC treatment. No, it's not a "cure", nor did the poster claim it was. If a poster comes here and starts making claims that it's the ONLY cure or a cure, we will take care of it.
Sometimes it is best if you don't agree with someone's opinion or experience to not respond at all, as in "take the high road" and not start an argument that goes NOWHERE.
-- Edited by Moocow on Thursday 28th of October 2010 06:34:05 PM
-- Edited by virginiap on Thursday 28th of October 2010 05:34:06 PM
-- Edited by virginiap on Thursday 28th of October 2010 05:35:28 PM
-- Edited by James10500 on Thursday 28th of October 2010 02:24:16 PM
-- Edited by James10500 on Thursday 28th of October 2010 02:32:55 PM
I went back and reread all the posts on Dori's thread. It became obvious, to me, Dori and I have different opinions in regards to herbal supplements. Obviously I clearly stated my opinons and still stick to them. However to make the insulting and abusive remarks I did to belittle her opinions was uncalled for.
Obviously she was extremely intolerant to the prescribed treatment and went through a terrible experience. I wish, with all my heart, she continues to be UND.
I realize my apology is late, and what I did was wrong. I'll try in the future to be more tolerant of others opinions and not become insulting with my posts.
God bless Dori for making her stand against adversity. She's obviously a stong minded person and willing to fight for the right to state her opinion. I truly hope she reconsiders leaving the forum and returns. She did offer the best defense, for her opinions, she had available. She's also concerned about others being intolerant to treatment with interferon and ribaviron and offered what she felt was an alternative therapy to help make the liver strong enough to fight the disease. I should have recognized that her posts weren't meant to sell to anyone, she just wanted to offer help and show her concerns. I got caught up in questioning her ideas. I shouldn't have and should have been friendly to her opinions.
Dori if you read this please consider coming back to the forum. We need more people who have your ability to cause people to look at things in a different light. I apologize for causing you to leave and hope you'll return.
Best regard, -Mike