Have a great Christmas Kirstin, and i wish you all the best with your treatment when you start. Hugs Heather xxx
James10500 said
Dec 20, 2010
Have, a great x-mas.
cloudguard said
Dec 20, 2010
Good luck and happy holidays.
Kirstin said
Dec 20, 2010
Thank you everyone for replying, I have to say that I am confident that I have made the right decision. So look out TX, here I come!. I feel alot better then I have in a long time, perhaps because the stress is off, I know when I will start the treatment & I have no more decisions, right now anyhow, to make . I am lucky to have the people I do in my life, also all of you. Want to say that this forum has made a difference . Anyhow, I would like to wish you all a very Merry Christmas & a wonderfully happy New Year. May next year bring us all love, happiness, peace & most importantly good health. Best Wishes, Kirstin xxx
ty said
Dec 20, 2010
Hi Kirstin, Very best wishes and a good luck from me as well. I'm sure friends and family will come through for you and you will make it through tx in style. Take care, ty
Cinnamon Girl said
Dec 20, 2010
Hi Kirstin, a difficult decision for you but I think that`s the option I would have gone for too. Great news about your genotype!
That support from your close friend and your mum- in- law will be invaluable once you start tx - just knowing that the help is there should you need it is wonderful. People like that are worth their weight in gold! And you have plenty of support here too!
Good luck - sounds like it`s all starting to fit into place.
Happy Holidays to you and your family.
love from Jill xxx
BJ said
Dec 18, 2010
Gidday Kirstin,
I'd thought I'd already contributed to this addy when you first published it but it's either lost in cyberspace and/or I fell asleep and forgot to submit it.....most prob'ly
Anyway, I reckon your decision to do the SOC tx is wise, little is known about the likely sx with the DEBO25A and SOC tx drugs and you are better of not finding out via the lottery system of a double blind drug trial-study. That aside, it sounds like your best mate as well as your moil (Jen & Vick) are a coupla' good sticks and exactly what you need in your corner as you go through tx. They sound honest and reliable and will be good support for you at times when you need soemone to confine in, along with a place like this Forum, a few supporters like that are worth their weight in gold during the trials and tribulations of tx.
Anyway, with the making of the decision taken care of I s'pose it's a matter of telling the doc and getting a confirmatory starting date for tx from him, and you'll pretty well be on your way. Here's hoping all that takes place a soon a possible and as the sky opens up once again here in the north, it's goodnight from me as we cuddle up to the sound of raindrops on the roof as I go to sleep.
Cheers,
Brendan.
Kirstin said
Dec 18, 2010
Had talks with my partner... no closer to a decision then I was when I started... but I also spoke to my closest friend & mother-in-law.. & both of them agree with me. Will go for the regular treatment, TX. I believe in my heart that it is the right decision. I actually spoke to both, whole-heartedly, no crap, no "just what you want to hear"just how it is... & it's been awesome. I know without a doubt that they will be there for me. They have actually spoken to each other & worked out that they will share the chores of my house on the days I cant manage... so just got to say... Jen, Vick... I love you both, with all of my heart xxxx
DGiga said
Dec 16, 2010
Hi Kirsten, I am happy to hear that you are genotype 2 and also glad to hear that your liver results are good.
The trial sounds great but like you said there are no guarantees that you are getting the meds or a placebo. I never heard of that but then there are a lot of things I never heard about. Only you can make that decision. That is a tough one. I wish you luck with whatever you decide. Hugs Dee
James10500 said
Dec 16, 2010
Hi Kirstin,
Glad you have a 24 week genotype. Viral load can vary all on it's own. I'm pretty sure the less damage you have to your liver the better the meds work. Someone who is stage 3 has their chances lowered a bit. As far as the trial, you might as well go for it, it can only raise your chances of success. If you get the placebo nothing changes. I'm glad things are a least clearing up, and you know what is going on.
Best wishes,
James
Kirstin said
Dec 16, 2010
Also, he told me that my VL had dropped, actually significantly. What would cause that? How does that happen?.
Kirstin said
Dec 16, 2010
Went to clinic today, got to finally see the top guy, hooray!. Finally feel as though I am getting somewhere this afternoon, in a good mood now . I was told that I had genotype 2 but I don't, its 3a so basically the same, still only the 6 month treatment. Biopsy results were in, not too bad just band 1 scarring, no cirrhosis.. woop woop!! (had alot of sleepless nights since I had biopsy done, thinking the worse). Bad news though, my hospital is broke, so no treatment starting this month, the place is basically shutting down for that time. I also have something to ask you all... Today the doc told me of a trial they are starting worldwide in January, it's with a new drug called DEB025A. Anyone heard of it?. What the trial consists of is the same drugs, TX, but with that added drug as well. Trials have already shown that with this additional tablet the likelihood of being cured ups to between 85-90% instead of the 75% it stands at now with the combo therapy. The trial will only consist of 400 patients worldwide & only half will recieve the new drug, the other a placebo. He recommended that I enrol in the trial.. Which means, although it starts in Jan, the real treatment wont start until the end of February. If I go with just the TX I will start in the first week of January. What if I aren't 1 of the lucky ones to draw the new drug? What if it is the same as if I started in Jan? That will be almost 2 months I have wasted (I know, but I told you all before how impatient I am!). I did ask him though that if I went with the TX in Jan & it didnt work would I be able to try again, yes, but the chance of being cured dropped to 20%.. Thats going to happen anyway right?, if the trial one didnt work either.. What does everyone think I should do?.. He gave me 2 days to make my decision so I would love to hear your opinion on this.. AHHHH What to do!!
Have a great Christmas Kirstin, and i wish you all the best with your treatment when you start.
Hugs
Heather
xxx
Good luck and happy holidays.
That support from your close friend and your mum- in- law will be invaluable once you start tx - just knowing that the help is there should you need it is wonderful. People like that are worth their weight in gold! And you have plenty of support here too!
Good luck - sounds like it`s all starting to fit into place.
Happy Holidays to you and your family.
love from Jill xxx
Gidday Kirstin,
I'd thought I'd already contributed to this addy when you first published it but it's either lost in cyberspace and/or I fell asleep and forgot to submit it.....most prob'ly
Anyway, I reckon your decision to do the SOC tx is wise, little is known about the likely sx with the DEBO25A and SOC tx drugs and you are better of not finding out via the lottery system of a double blind drug trial-study. That aside, it sounds like your best mate as well as your moil (Jen & Vick) are a coupla' good sticks and exactly what you need in your corner as you go through tx. They sound honest and reliable and will be good support for you at times when you need soemone to confine in, along with a place like this Forum, a few supporters like that are worth their weight in gold during the trials and tribulations of tx.
Anyway, with the making of the decision taken care of I s'pose it's a matter of telling the doc and getting a confirmatory starting date for tx from him, and you'll pretty well be on your way. Here's hoping all that takes place a soon a possible and as the sky opens up once again here in the north, it's goodnight from me as we cuddle up to the sound of raindrops on the roof as I go to sleep.
Cheers,
Brendan.
Had talks with my partner... no closer to a decision then I was when I started... but I also spoke to my closest friend & mother-in-law.. & both of them agree with me. Will go for the regular treatment, TX. I believe in my heart that it is the right decision.
xxxx
I actually spoke to both, whole-heartedly, no crap, no "just what you want to hear"just how it is... & it's been awesome. I know without a doubt that they will be there for me. They have actually spoken to each other & worked out that they will share the chores of my house on the days I cant manage... so just got to say... Jen, Vick... I love you both, with all of my heart
Hi Kirsten, I am happy to hear that you are genotype 2 and also glad to hear that your liver results are good.
The trial sounds great but like you said there are no guarantees that you are getting the meds or a placebo. I never heard of that but then there are a lot of things I never heard about. Only you can make that decision. That is a tough one. I wish you luck with whatever you decide. Hugs Dee