HI ya'll! Hope you have a smile on your face or in your heart this evening. I do even though I feel crummy.
Pj, I'm like you....I'm feeling good because I'm doing something. Can't believe you are already 2/3 done! You go girl. My honey took me to the library today and even though I wilted once I got in the truck, I was happy as a lark because I had medicine in my body and was kicking some hepatitis ass. Smiled all the way there.
Greg, I always like to read what you write because you have this very calming way about you. Thank you for your continued support and I'm gonna talk with God about you too. Ya'll make me feel so good when I come on here.
James, you are so right...each moment I live, I'm getting 'weller'! haha I really like the thought of that. Thank you for your encouragment.
Ya'll take care, ~wrath
James10500 said
Aug 19, 2011
Best of luck to you with tx ! Every moment on tx is a moment closer to being done.
Best wishes,
James
Greg said
Aug 19, 2011
Dear Lisa,
Sorry to hear your news, sending you love, hugs and light. Congratulations on starting your journey towards beating this dragon you are not alone.
In my prayers, Greg
PJ said
Aug 19, 2011
Congrats on getting started, Wrath!! I was just like you, thrilled to FINALLY be doing something. Now I'm 2/3 done and you will be there too, before you know it.
Hope the sides are gentle with you
hugs, pj
beautiful_wrath said
Aug 19, 2011
Randy, I want to thank you for your note. I was so happy to hear my insurance was covering this for me. When getting it all figured out with them was wondering what my copay would be and was scared but found out I fell under 'catastrophic coverage' and it's costing me zero, nil, nada. Can you believe it? I'm so blessed. Hope you are at peace today and happy for the weekend to be here.
Greg, thank you for supporting me. Funny how words over a computer can actually make a person feel better sometimes. I really appreciate it. Please take care.
PJ, I'm finally there! Hope you are well and will read up on it all and where everyone is at after this note.
Dear Karen...Your note really touches me. Has the rash improved, worsened, anything? Haven't read any threads but wanted to respond to ya'll firstly then will read. Thank you so much for taking the time to write to me and encourage me, I hope one day I can do the same for you. Am hoping you are smiling as you read this. Hugs to you.
I like that...peace out, girl scout! haha
Sincerely, ~wrath
beautiful_wrath said
Aug 19, 2011
Hello to everyone reading this. I hope my note finds you all in a peaceful spot today.
I feel better than I have in a long time. Have some good news for ya'll for once! Firstly though, I want to thank you all for your support and sweet, heartfelt words. Right after I wrote this post my granny passed and had bad news from the ct scan so I just kind of withdrew for a while until I felt I could get on with myself....
...and today, I got on with myself indeed. I started my treatment!!!!!!! Can I be a member of the darts club now? I got a great aim, I tell ya!
My ct scan showed massive swelling of the liver, the ducts, the bile thingie, enlarged nodes in abdomen, lesion of the liver, lesion on a kidney....just all kinds of crap. Really set me back spiritually and emotionally but I have since come to terms with it and now that I actually feel like i'm doing something about it, I all the sudden feel better. I'm so weird! haha
Mainly though, I just want ya'll to know I didn't run off on ya...will be here now for the duration and will probably drive you all batty with questions. Real scared of this Incivek. Bad A-- stuff. I've had today's injection and then two Incies, no Riba yet today but in a couple hours my first dose. I'm off an runnin'!!!!!
Thank you for always being here for me.
As always, ~wrath
Hep Me said
Jul 21, 2011
Hey Wrath, that is a lot to deal with no doubt and I feel for you having to play the patience game.
I am glad to hear your insurance will cover tx for you, that should help put your mind at ease for the costs. I have heard over and over that the liver is the most resilient organ in our body, so hang in there and try to stay focused on the positive outcome you are going to have. I know that's easier said than done. Sorry I can't be more helpful medically speaking. Please don't worry about not being around, very understandable. The important thing to remember is that we are here if you need to talk.
I'd just like to say too that you always have a such a warm and wonderful attitude and it is refreshing to feel that when reading your posts. You generally always start by putting the peace and wellbeing of others before yourself and that is very kind when considering what we are all going through.
Take care, Randy
Greg said
Jul 21, 2011
Dear Lisa,
I am so very sorry to hear of your news, I can't understand how you are feeling but just wanted to let you know that we are here with you all the way. I hope you draw some comfort in that, we all start out as strangers here but become very close as we embrace each other and share this journey together. I wish you all the best on your journey and I know that you will have a great chance of beating this dragon with the new triple therapy once you start treatment.
You are in my thoughts and prayers, Greg
PJ said
Jul 21, 2011
So very sorry, Wrath, that you've had all of this additional stress to deal with and I don't blame you at all for not wanting to think about it.
But, the good news is that hopefully you will be in treatment soon, and killl this stupid dragon. I wish all the best for you and hope that it happens very soon!!
britlitkaren said
Jul 21, 2011
We're about in the same shape except I was g 4 s 4. Hunnyo - I was so bad they wouldn't even consider tx unless transplant hospital administered it. I totally know the fear. Really. Falling asleep wondering if you'll wake up. Sigh.
I'm praying n sending good vibes that the call will be positive, but most of all that you can take it with an peaceful outlook. Our bodies are amazing in the way It coordinates to heal itself.
I'm so grateful for Telaprevir n triple therapy. And happy for YOU to get approved. You can do this. Please keep us posted. My dr has me inside all day to try n improve rash. So I'm readn online..
Peace out girl scout, Karen
beautiful_wrath said
Jul 21, 2011
Hello to all. I hope my note finds you at peace and in good spirit. I admit to not being around lately because I couldn't read anymore about my disease because it was more than I could take for a bit.
Have had a hard go of it since biopsy in June. Had some complications that set me back a few weeks for treatment but have healed since. Was astonished to find I have Stage 3 Grade 3 liver disease. Have a viral load of 1.75mil. and am 1a. Was sent for an mri but due to all of this metal in my spine unable to do it so ct scan with barium and injected dye last Friday. Was just told that Dr will be going over the report this afternoon and calling me afterward. I feel like the world is moving in slow motion around me as I await my fate. I did get good news that my insurance covers the tx and new med also so that's a good deal.
I'm just very afraid of what this phone call is going to say. I think they were looking for lesions or anything funky in the liver. I'm so scared. Every day that goes by, I know more damage is occurring. I just wish I could hurry up and get on tx. They said this is the last thing needed. We shall see.
So now I just wait. Will let you all know how it turns out. Thank you for listening.
Pj, I'm like you....I'm feeling good because I'm doing something. Can't believe you are already 2/3 done! You go girl. My honey took me to the library today and even though I wilted once I got in the truck, I was happy as a lark because I had medicine in my body and was kicking some hepatitis ass. Smiled all the way there.
Greg, I always like to read what you write because you have this very calming way about you. Thank you for your continued support and I'm gonna talk with God about you too. Ya'll make me feel so good when I come on here.
James, you are so right...each moment I live, I'm getting 'weller'! haha I really like the thought of that. Thank you for your encouragment.
Ya'll take care, ~wrath
Best wishes,
James
Dear Lisa,
Sorry to hear your news, sending you love, hugs and light. Congratulations on starting your journey towards beating this dragon you are not alone.
In my prayers,
Greg
Hope the sides are gentle with you
hugs, pj
Greg, thank you for supporting me. Funny how words over a computer can actually make a person feel better sometimes. I really appreciate it. Please take care.
PJ, I'm finally there! Hope you are well and will read up on it all and where everyone is at after this note.
Dear Karen...Your note really touches me. Has the rash improved, worsened, anything? Haven't read any threads but wanted to respond to ya'll firstly then will read. Thank you so much for taking the time to write to me and encourage me, I hope one day I can do the same for you. Am hoping you are smiling as you read this. Hugs to you.
I like that...peace out, girl scout! haha
Sincerely, ~wrath
I feel better than I have in a long time. Have some good news for ya'll for once! Firstly though, I want to thank you all for your support and sweet, heartfelt words. Right after I wrote this post my granny passed and had bad news from the ct scan so I just kind of withdrew for a while until I felt I could get on with myself....
...and today, I got on with myself indeed. I started my treatment!!!!!!! Can I be a member of the darts club now? I got a great aim, I tell ya!
My ct scan showed massive swelling of the liver, the ducts, the bile thingie, enlarged nodes in abdomen, lesion of the liver, lesion on a kidney....just all kinds of crap. Really set me back spiritually and emotionally but I have since come to terms with it and now that I actually feel like i'm doing something about it, I all the sudden feel better. I'm so weird! haha
Mainly though, I just want ya'll to know I didn't run off on ya...will be here now for the duration and will probably drive you all batty with questions. Real scared of this Incivek. Bad A-- stuff. I've had today's injection and then two Incies, no Riba yet today but in a couple hours my first dose. I'm off an runnin'!!!!!
Thank you for always being here for me.
As always, ~wrath
Hey Wrath, that is a lot to deal with no doubt and I feel for you having to play the patience game.
I am glad to hear your insurance will cover tx for you, that should help put your mind at ease for the costs. I have heard over and over that the liver is the most resilient organ in our body, so hang in there and try to stay focused on the positive outcome you are going to have. I know that's easier said than done. Sorry I can't be more helpful medically speaking. Please don't worry about not being around, very understandable. The important thing to remember is that we are here if you need to talk.
I'd just like to say too that you always have a such a warm and wonderful attitude and it is refreshing to feel that when reading your posts. You generally always start by putting the peace and wellbeing of others before yourself and that is very kind when considering what we are all going through.
Take care,
Randy
Dear Lisa,
I am so very sorry to hear of your news, I can't understand how you are feeling but just wanted to let you know that we are here with you all the way. I hope you draw some comfort in that, we all start out as strangers here but become very close as we embrace each other and share this journey together. I wish you all the best on your journey and I know that you will have a great chance of beating this dragon with the new triple therapy once you start treatment.
You are in my thoughts and prayers,
Greg
But, the good news is that hopefully you will be in treatment soon, and killl this stupid dragon. I wish all the best for you and hope that it happens very soon!!
Hello to all. I hope my note finds you at peace and in good spirit. I admit to not being around lately because I couldn't read anymore about my disease because it was more than I could take for a bit.
Have had a hard go of it since biopsy in June. Had some complications that set me back a few weeks for treatment but have healed since. Was astonished to find I have Stage 3 Grade 3 liver disease. Have a viral load of 1.75mil. and am 1a. Was sent for an mri but due to all of this metal in my spine unable to do it so ct scan with barium and injected dye last Friday. Was just told that Dr will be going over the report this afternoon and calling me afterward. I feel like the world is moving in slow motion around me as I await my fate. I did get good news that my insurance covers the tx and new med also so that's a good deal.
I'm just very afraid of what this phone call is going to say. I think they were looking for lesions or anything funky in the liver. I'm so scared. Every day that goes by, I know more damage is occurring. I just wish I could hurry up and get on tx. They said this is the last thing needed. We shall see.
So now I just wait. Will let you all know how it turns out. Thank you for listening.
~wrath