Hey Godsgirl,
I too am new here I have not been to Dr yet so I don't know about my liver but I'm sure he will want to do a biopsy. Whatever the out come I want to live and be alive while I'm doing it. I will take the treatment and I will always be here to be supported all my best to you and I'm praying for you. Please know that these guys here are the absolute best people I've ever met. You are in good hands here.
GodsGrl said
Mar 1, 2012
Thank you all for your input and words of encouragement, it really has made me feel WAY BETTER! All of this has been very hard on me and my family. But I do know it's beatable and I have been encouraged by all of you and your struggles and victories! I am going to start treatment asap. My Dr. wants me to get everything in order, like eye exam, dentist etc. Then go to an orientation about the treatment then start within the next month. I am blessed with a very supportive husband, family and friends. I have so many mixed emotions, but I can't rick any further damage. Believe me I don't want to be on the transplant waiting list.
I love life and want to have many more happy and healthy years! I'll be keeping you all updated!
God bless and again thank you!
cntryboyar said
Feb 24, 2012
Hello Godsgrl, it's great that you found this place, i found it a few weeks after i was diagnosed and have been on here since. I started tx oct 28, 2011. I'm sure you have read all of the horror stories reguarding tx and are automaticlly thinking the worst will happen to you. I did! But i will tell you it has been no where near as bad as i had pictured it in my mind. Granted the first 4 weeks where defenitlly the toughest physiclly, but my body aclymated pretty fast and haven't missed a single day of work. I will tell you there where days that it was the last place i wanted to be, but tx is completely doable. Waiting for more scaring on my liver wasn't an option for me. As soon as i was diagnosed i started researching tx and took the steps to begin as fast as possible. Glad i did too, i'm geno3a just like you and on the peg/rib therapy and have had an undetectable status since week 4. The bad part of tx is a heck of alot better than what may result in the future if you don't decide to treat. The sooner the better in my opinion. But like i said, it's just my opinion, everyones situation and daily dynamics are different so in the end it's your choice. Reguardless of what you decide, you can rest assure that we are all here to support you in any way we can. This is a great group of people and without them tx would've been alot harder on me. Funny i'm not much of a talker in person but get me on a computer and i get long winded! lol Pray about it, best advice i can give you! And know we are here.....
krowdog said
Feb 24, 2012
Hi Godsgrl. Good for you for taking these first steps.
As mentioned, you only have to do the 2 drugs. I had to do the protease inhibitor Incivek also, and that drug can be pretty rough. Even so, I have been able to hold a busy, full time job (although I'm a little slower now ;)
I was biopsied 2/2, and opted to start right away. If I had been anywhere near cirrhosis, I would have done anything to start instantly. I NEVER want to play the "liver transplant waiting list" game...it often ends badly :(
Good luck on whatever you choose. and if you do treat, you'll find lots of info and tips to help with your side effects.
Brad
(Geno 1a, Incivek triple TX, UND @ wks 4,8,12, & 16. Just shot #19)
Anna Christie said
Feb 24, 2012
Hi. Sorry you got such bad news about the biopsy. But the good news is you have Hep C genotype 3 which is much easier to treat and get rid of than genotype 1 which 85 % of people in the United States have. Gen 3 requires a 6 month tx usually and has an 80% succces rate of treatment without protease inhibitors. Triple therapy which is for Gen 1 has an 80 % success rate. The protease inhibitors also make you feel more sick thatn just standard tx with peg riba. So if u got to have hep C you have one of the most treatable kinds and can get the same success rate with just peg/riba and less side effects because u don't have to take a protease inhibitor. Depending on the person , you may have to cut back a lot on your activities and devote yourself to tx. Maybe u won't have bad side effects but be prepared if you do and have a plan as how to handle it.
You will benefit from tx and it will save your life. I started in Sept and finish last shot Mar 19th. It seems forever but only 4 shots to go. It was hard and I got pretty sick but I am so glad I did it and that I am almost finished.I wanted to start and get it over with and now the end is soon and I have been undetectable since week four of Incevik a protease inhibitor. Fear is normal but don't let it keep you from doing what you need to do to get rid of this killer disease and go on to live a long, long and very happy life. We on this forum will be here to share our experience wth you. It is hard but ighly doable. I am a big wimp and I have almost gotten to the end. If I can do it, I think most peole could. Thake care and let us know if we can help in any way. Hugs
GodsGrl said
Feb 24, 2012
I just got home from my Dr. and she shared with me my biopsy results, not good. I have cirrhosis and suggested that I start treatment asap. I am very fearful to say the least. She said because I am geno type 3a that I am not able to take the triple therapy. I am scared that I may not be able to preform my required work and life duties from the side effects. I am considering waiting to start till next fall. Please let me know input. Here are my biopsy results
Grade 3 inflamation (moderate involving all tracts)
Stage 3-4 Fibrosis (Prominent bridging fibrosis, early Cirrhosis not ruled out)
I love life and want to have many more happy and healthy years! I'll be keeping you all updated!
God bless and again thank you!
Hello Godsgrl, it's great that you found this place, i found it a few weeks after i was diagnosed and have been on here since. I started tx oct 28, 2011. I'm sure you have read all of the horror stories reguarding tx and are automaticlly thinking the worst will happen to you. I did! But i will tell you it has been no where near as bad as i had pictured it in my mind. Granted the first 4 weeks where defenitlly the toughest physiclly, but my body aclymated pretty fast and haven't missed a single day of work. I will tell you there where days that it was the last place i wanted to be, but tx is completely doable. Waiting for more scaring on my liver wasn't an option for me. As soon as i was diagnosed i started researching tx and took the steps to begin as fast as possible. Glad i did too, i'm geno3a just like you and on the peg/rib therapy and have had an undetectable status since week 4. The bad part of tx is a heck of alot better than what may result in the future if you don't decide to treat. The sooner the better in my opinion. But like i said, it's just my opinion, everyones situation and daily dynamics are different so in the end it's your choice. Reguardless of what you decide, you can rest assure that we are all here to support you in any way we can. This is a great group of people and without them tx would've been alot harder on me. Funny i'm not much of a talker in person but get me on a computer and i get long winded! lol Pray about it, best advice i can give you! And know we are here.....
Hi Godsgrl. Good for you for taking these first steps.
As mentioned, you only have to do the 2 drugs. I had to do the protease inhibitor Incivek also, and that drug can be pretty rough. Even so, I have been able to hold a busy, full time job (although I'm a little slower now ;)
I was biopsied 2/2, and opted to start right away. If I had been anywhere near cirrhosis, I would have done anything to start instantly. I NEVER want to play the "liver transplant waiting list" game...it often ends badly :(
Good luck on whatever you choose. and if you do treat, you'll find lots of info and tips to help with your side effects.
Brad
(Geno 1a, Incivek triple TX, UND @ wks 4,8,12, & 16. Just shot #19)
Hi. Sorry you got such bad news about the biopsy. But the good news is you have Hep C genotype 3 which is much easier to treat and get rid of than genotype 1 which 85 % of people in the United States have. Gen 3 requires a 6 month tx usually and has an 80% succces rate of treatment without protease inhibitors. Triple therapy which is for Gen 1 has an 80 % success rate. The protease inhibitors also make you feel more sick thatn just standard tx with peg riba. So if u got to have hep C you have one of the most treatable kinds and can get the same success rate with just peg/riba and less side effects because u don't have to take a protease inhibitor. Depending on the person , you may have to cut back a lot on your activities and devote yourself to tx. Maybe u won't have bad side effects but be prepared if you do and have a plan as how to handle it.
You will benefit from tx and it will save your life. I started in Sept and finish last shot Mar 19th. It seems forever but only 4 shots to go. It was hard and I got pretty sick but I am so glad I did it and that I am almost finished.I wanted to start and get it over with and now the end is soon and I have been undetectable since week four of Incevik a protease inhibitor. Fear is normal but don't let it keep you from doing what you need to do to get rid of this killer disease and go on to live a long, long and very happy life. We on this forum will be here to share our experience wth you. It is hard but ighly doable. I am a big wimp and I have almost gotten to the end. If I can do it, I think most peole could. Thake care and let us know if we can help in any way. Hugs
I just got home from my Dr. and she shared with me my biopsy results, not good. I have cirrhosis and suggested that I start treatment asap. I am very fearful to say the least. She said because I am geno type 3a that I am not able to take the triple therapy. I am scared that I may not be able to preform my required work and life duties from the side effects. I am considering waiting to start till next fall. Please let me know input. Here are my biopsy results
Grade 3 inflamation (moderate involving all tracts)
Stage 3-4 Fibrosis (Prominent bridging fibrosis, early Cirrhosis not ruled out)
I'm just needing input.
Thank you!!