Whew!  So glad to hear you feel better. I was really worried about you. Keep a careful eye on all these crazy side effects, because as Jill was quick to point out, some of them can be really serious. I hope your doctor and nurse practitioner will give you the custom care you deserve, since I bet there is very little data available about folks with your medical history. Just make sure you know every trick in the book when it comes to contacting them, even on weekends.

Good luck and please keep us posted.

Alan

thanks.  i am much better today.  

I was only in severe pain for the first hour  or so when i woke up yesterday, i slept good the night before after the shot.  so i guess i didnt feel it while i was sleeping or maybe it just hit me when i stood.    I was very worried that it was my kidneys because of the location of the pain, but as it ascended throughout the day i thought not.

so i guess i am right in thinking the neuro sx are not common, so may be something else

Hi roro, and a warm welcome to the forum.  How are you feeling today?  So sorry to hear you had such a rough time after your shot last night, have you managed to speak to your doctor yet? 

It certainly sounds like you had some quite extreme pain there, and you clearly have a number of health issues going on as well.  It is quite common to experience things like headaches and generalised aches and pains following a shot, but you have a complex medical history and it sounds like it would be a good idea to get some medical advice.

It`s good to hear your son and husband are both clear of the virus.  I remember being so relieved when my 2 grown up children turned out to be free of the virus too, so I can relate to that.

Let us know how you`re getting on. 

Love from Jill xx

ps - here`s a list of the most common sx experienced with Peg + Riba, from the Hep C Trust -

http://www.hepctrust.org.uk/Treatment/Conventional+Treatment/Side+effects

I started pegg/riba last week, will be starting victrellis at week 5.  last fri nite i did the shot and I was fine.  been having meningitis symptoms all week, but i think it started with the riba friday morning before the shot, or maybe just the headache.  it went away with motrin, but I know they were meningitis sx because had it before, aseptic not bacterial.  stiff neck, pain with moving eyes, nystagmus when trying to focus, pressure headache, worse if try to bend over.  i haven't found anything about meningitis sx with tx except a few cases where the interferon suppressed immune system and underlying infection progressed to meningitis (SCARY!)

This is possible, because i have had many infections - lyme disease, babesia, bartonella, parvo B19, CMV, HSV, mycoplasma,  ehrlichia, rickettsia, anaplasma, epstein barr, prob many more.  i also have adrenal dysfunction and the dr made me go off hydrocortisone before starting tx, so i could be suppressed from that.  my cortisol levels were tested a few days after going off  (over a week ago) and my morning cortisol level was 2.  its supposed to be 20, so endocrinologist thinks i may have addisons.

i called the dr and left message about meningitis sx, no call back.

so i did my shot last night and this morning i had severe flank pain on both sides.  as the day went on the pain went up to mid back, then to shoulders.  it was so severe i could hardly breathe, could not stand.  had to take 10mg vicodin just to tolerate it.  i am on morphine also, and neurontin for nerve damage from back surgery.

anyone else get neuro sx with tx?