Hey hey!

Good to see I wasn't the only 'camper' it's a bit of a tradition for me over Easter, work commitments permitting...

Alan and Kiwi hope you had heaps of fun! I sure did

And to all those who did other activities I hope you had a great weekend too.

Hugs

K

K and Alan, cheers. reading those last two posts made up my mind. im gonna go camping too. have a couple of girlfriends want to take me in their bus, and go camp. and maybe fish... i was not sure about going, but the weather is nice, and buggar it... as ya said alan, we gota be normal any chance we get.

my neutrophils are still .7, up from .6 a few weeks ago... they see this as normal, but i got a flu jab and have to be wary...  so far ive had no dose reductions or any rescue meds... touch wood...

good luck to you and hope ya have a cool easter....

oh and im takin my old blind dog purple, shes 14. in fact the girls said, purple can come. coz they know, if she dont go. i wont. lol. shes my baby.

Hey, my family is camping, too. I worry a little about the cold (it will be high 20's at night) but the days should be fine, even for a 60-yr old with low red cells. I think we should go ahead and act normal every chance we get. There will be days when we just can't act normal. I'll arrive back home Easter morning, and then have labs on Monday morning. Just CBCs, no VL or enzymes.

Happy Easter and I have to say I still get a boost from your positive attitude. I hope treatment continues to go well for you.

Alan

Hey peeps!

Thanks for the feedback

Phil your levels are very similar to mine, I'm guessing for some people that is  'par for the course' on treatment. It's like having blood buddies lolz. Bummer bout the riba reduction, but I get what you mean when you say 'something' always happening on tx! (Never a dull moment ha ha)

Thx for the input kiwi I'm guessing in N.Z. that treatment is comparable to the Australian system seeing as we're in the same sorta vicinity? If you find anything out that would be cool...

Had a look at the link Steff, cheers for that! I guess that one of my major concerns is dose reduction or cessation of treatment, it matters to me sooooooo much! I'd take the Neupogen option if given the choice anyday.

Anyhoo, got a call back from the nurse about the second round of bloods, my Neutrophil count is slightly up which is good. I just have to be monitored and tested about once a week for a little while though. *Poke poke ouch*

Luckily I got the green light to go camping! So thats the plan for Easter....

I'll take extra care now that I know!

HAPPY EASTER EVERYONE!

Peace and luv

K

Hi K,

Here's some info about Neutropenia during tx and drugs used to combat it. Hope it helps

http://hepatitiscnewdrugs.blogspot.co.uk/2010/09/hcv-treatment-and-neutropenialow-white.html

Love Steff xx

my neutrophils went from 2.9 at the start, and then dropped to .6  they took more blood a week later and it was .7... still pretty low...

goin up for appt today. so might ask a few questions.... let ya know if i find anything out..

K, Your numbers aren't much different than mine. I put my last 2 labs after yours in parentheses, and also the guidelines from the VA website for reducing dosages or adding other meds. I just don't know whether either one of us should fret or not, no experience. I haven't given it much thought yet either, as I had been focused on the hemoglobin which finally did fall below the VA guideline of 10, and sure enough, my riba was reduced. Always something going on in tx!

White Cell count..... 2.1  (  2.3 , 1.9  )  < 1.5

Platelets................ 111  ( 124 , 107 )  < 80

Neutrophils........... 0.77  (  1.4 , 0.9  )  < 0.75

But there are a number of folks on this forum that have had to deal with this.

Hi All!

Was hoping for some wisdom/experience!

So far treatment has been pretty cruisy going... until now? I got some of the results from my 4 week bloods which are as follows:

ALT.......36 down from 232 (yay!!!!!)

AST.......29 down from 157 (double yay!!!!)

White Cell count..... 2.1 down from 8.3 (normal is 4.0-11.0)

Platelets......111 down from 254 (normal is 140-400)

Neutrophils....0.77 down from 5.46 (normal is 2.00-8.00)

I am completely rapt about the first two results, that means my liver is healing  but the last three are a bit of a concern, especially my neutrophil count. The nurse promptly took more bloods even though I had them done only two days previous.

Is this something to be concerned over? I feel fine, my sx have been very minimal, but being told I'm 'neutropenic' has got me a bit emotional

Is there a way this can be managed without dose reduction?

Sincerely

K